Oh my goodness, I am so thankful that I found your channel. You are so REAL and you really get it! It is just over 1 year since my diagnosis. I’m riding that crazy roller coaster daily, still trying to figure out how to navigate this disease. I am 68 and so grateful to have an amazing supportive care partner in my husband. I have learned more about Parkinson’s doing my own research online than from my doctors. That’s been frustrating…. I am going to go back and watch more of your videos, I have a good feeling about you and feel like I have found a new friend. I am so very sorry for your loss….. I have experienced the heartbreak of suicide, having lost my dear father when I was only 15. Take time to grieve and feel your sadness, it’s so important for the healing process. I do believe that those of us with PD feel things deeper and stronger than most others. Thank you again for the beautiful authentic gift of your sharing. Many blessings ❤

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Your video definitely resonates with my feelings at times, and I'm sure many others as well. Your ability to be articulate, honest, and vulnerable is a gift to us. Wishing strength and peace to all - and gratitude to you.

Your vulnerability in this video is why people love and appreciate all that you do for the PD community as well as the rest of the world. Thank you for being honest about your grief and struggles with this thing called life!😊

The fast track!! Yes, I resonate with this so very much. Sometimes I feel like I’m drinking concentrated life juice. And loss, of parts of self and others and always coming back to how everything is happening right now, how the moment is just as it is because of all of these tensions. When it’s beautiful it’s beautiful and sometimes it hurts, deep. Thank you for sharing as always ❤ it’s a comfort and joy to find you being you

….sometimes it seems that we are all just little worms on the wet pavement of life…your helping a lot of little worms with your project and efforts. Thank you some much and many blessings your way.

Your video explaining “The Wiggles Project” was the first video I ever saw about your experience at the Casino, and how you were treated.That was just when I was being diagnosed (Summer/Fall of 2021). Since then, I have really benefitted with your kind, honest,& and informative support, and I am so sorry for the loss of your friend, and what you are going through. Please take care. I will be thinking of you.

Jenn, you're amazing ! Your ability to express your inner thoughts and feelings is truly a gift. And it's something that helps those of us (me!) who do not have the ability to do so understand that we're not alone in our up & down life. PD or not. Hugs to you 🤗

Jennifer, Your post today showed up at just the right moment. Hearing your broken-open hearted words about loss connected so deeply with me. At the moment the dopamine is not working and my body feels like I'm lugging around dead meat. Your post reminded me of the many times I have come through this dead meat feeling and my body functioned again, for a while. I've heard it said that when a friend dies, the relationship doesn't die. As you inferred, we carry with us the times spent with that person. The aspects of us that connected with that person are still alive in us, ready for new connections.... I could go on. What you're creating with the Wiggles Project is valuable beyond measure. Please keep going with it. if you ever need help, ask us. You have a big family here that loves and appreciates you.

Thanks for sharing your thoughts and memories. I'm sorry about your friend, stay strong and be your self, best wishes David

I heartily agree with the other commenters about this video. You are articulate and real with us and it is much appreciated. Your comments about friendship touch me as well, I have been saying goodbye to a friendship and have been focusing on the loss. But will now try to turn to appreciating the positives that we’ve left with each other over the course of our friendship. I’m new to Parkinson’s, less than 6 months. But everyday noticing different things in my body that scare me. Thank you again for your videos, you are touching and helping us!

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Hi Jennifer. Thank you for such a deep, stirring and heartfelt video. I understand your sense of sudden loss, as my son was taken without warning last May. It can be an overwhelming feeling and situation. Sending you a virtual hug. I agree, Parkinson's changes us no matter how hard we try to live in our past. The circular conversation eventually must end and reality is all we can see. I cannot trade stocks anymore, as when I am ON I can make good decisions, when I am OFF I change my good decisions to bad, and then make more bad decisions. Thanks for sharing and being so lovingly vulnerable.

When I listen to you I feel that youre close to me .....by sharing your life with parkinson lossing someone is always hard... continue what youre doing we all support you and have you in our thoughs merci dear

Jenn, I totally get what you discuss in this video. 2023 was an awful year of loss for me, my wife passed away, a dear friend of many years passed, my beloved 101-year-old aunt passed, my beloved 20+ year-old cat passed…one blow after another. I go on, nevertheless. I was astounded when you talked about playing tournament poker in an earlier video, I used to play house poker and bridge, but I can no longer play those games or do so many other things. As the old poker dictum has it, “If you can’t tell who the sucker is at the table, the sucker is you.” Hang in there.

I am sorry for your loss. It is still hard to find out someone who was a part of your life has passed. Loved your advice at the end of your video.

OM Mani Padmè Hum - Peace to your heart n mind‼️🙏🥰👏

Sorry to hear of your loss. People with PD struggle daily with physical symptoms but rarely talk about mental struggles. Just remember all the positive energy you've put out there is ready to come home. I'd have to say of all the people I know, it doesn't surprise me that you would be the one out in the rain saving earthworks ❤

I’m so glad I found this channel today

Even though it must appear that I bailed, and after carrying on about buying a tee shirt, I didn't really bail. I've just been too focused on recuperating and it's been nearly all of 2023 over one wound. Now it's just a matter of getting past the effects of so many antibiotics, but things are finally improving. That's my story and I'm sticking with it. I ordered a coffee mug this morning. I think that's what I need, because I'll use it every day, and it will keep me focused on a terrific project, you and other people who have pd. Then I saw this and realized that you'd suffered a tragic loss, and I'm so deeply sorry. My sister died that way years ago, and a great niece years later. I was fire/ems so there are naturally going to be memories of calls like that. That subject has been with me for most of my life. The only think I think I've learned is that anything a suicide survivor feels is normal. Nobody else can define it. They've lost a friend, a relative, perhaps a business associate. And the loss of a friend is particularly devastating. You may be privy to personal details, but because you're a friend and not a relative, sometimes you're not. But your pain is real and you need real answers. Anyway, I'm so sorry about your friend. I can see you're feeling her loss keenly.

I feel you here and now, Jennifer. You know, you are my "oldest" Parkie friend--but I hope that neither of us is going anywhere soon! We've shared a lot of this journey together--and yet at a distance. Endings always bring to mind my favorite existential therapist, Irvin Yalom. He's written a lot of great books. The one to start with is "Love's Executioner" or maybe "Momma and the Meaning of Life."

Sending hugs.

I’m sorry for your loss.

I usually leave your videos with a smile....not a box of Kleenex! UGHHHH! Never give up on your dreams!

Such a poignant video….. I see many of us with Parkinson’s create content that show how we manage to get through this and be as positive as we can, but it’s also ok to let our guard down, remove the mask, and tell it like it is. I lost my older sister recently, and have had a series of other stressful events hit….. I was trying to put my own positive spin and document it on my next video, but I couldn’t do it without getting upset. Maybe that’s the point…..