Young Onset Parkinson's meets Casino Security and It Doesn't End Well!

Рет қаралды 5,434

2 жыл бұрын

This is the why, reason, catalyst, I launched the Wiggles Project and how I turned a traumatic experience into something positive! Young Onset Parkinson's disease (YOPD) meet Casino Security. In this video I tell the story of the first time that my YOPD met Casino Security, and how I was asked to leave. Never before had I had an issue with casino security or security of any kind, anywhere or at anytime, because of YOPD. I've played in the WSOP in 2018 and 2019 with YOPD! I've played World Poker tour circuit events at the Aria, cash games at the Bellagio, and have played them all with YOPD, and at times with dyskinesia. But on this day, at my favorite local casino a security guard who had absolutely no reason to approach me, as I looked through my purse for a lighter, but he did, and it didn't go well. This is the story behind the inspiration of the Wiggles project....and how to make the make most of a terrible situation.
Dyskinesia from Parkinson's medications and having Parkinson's is already no fun and to find yourself in a public situation like this, makes this painful reality, all the more painful. No one should be treated in this way, it shouldn't happen. This situation was totally avoidable and never should of happened, but it did. In hopes to get the word out about Young Onset Parkinson's disease, and a symptom or side effect of the medications used to treat it, I made this video, sharing my terrible casino experience.
What also sucked was that this casino security guard also killed a poker winning streak. I haven't won a single cash game session since!! I haven't played a lot, am not superstitious, but....poker players know what I am saying.
#YoungOnsetParkinsons #Discrimination #CasinoSecurity

Пікірлер: 66

@debbyleung8035 2 жыл бұрын

So glad I was able to come across your video. I am legally blind, and now am in the process with a Neurologist to getting a Parkinson’s diagnosis, or one of the other Parkinsonian conditions. This reminds me of the Disability Comunity and what we went through in the 70’s, 80’s and ‘90’s. A lot of education was done, and still needs to be done to better prevent situations like you had to endure…this type of discrimination…thank you for starting the wiggle project. I w/ continue to watch u whenever possible, and “thank you”.

@ParkinsonsWigglesProject 2 жыл бұрын

Hello Debby!! Thank you so much for your comment and sharing your story. We've got a lot more educating to do and the more we share our stories, struggles, and successes, the less often discrimination for any reason takes place!

@Mike-mo6jm Жыл бұрын

Howdy, I've had PD for 10yrs I live in Nevada and I like to ugo play Keno I know that my meds make me move funny sometimes,. So I went an. Had this card made that says. That I'm not drunk or on drugs with my name and I have parkinson's. So sometimes if I see a. Worker checking me out. I'll whip that card out on them then there nice They think. I'm tweaking on crank. ,. Good vedio. ,.

@ParkinsonsWigglesProject Жыл бұрын

Hi Mike and thank you for sharing how you make your visits to the casino work so you can play some Keno in peace 🥰

@joemancini2988 6 ай бұрын

You are admirable. I think they owed you a chunk of change.

@ParkinsonsWigglesProject 6 ай бұрын

They gave me $200! I talked with the head of security and he was very nice, saying that he has a staff of 150 or so security staff and those guys didn't do what they were supposed to do. I also talked with my lawyer and what I discovered is the since the casino is owned by a local tribe the land is considered a sovereign nation and you have to go through their courts first. After talking with my therapist I wanted to put it behind and make something good out of it and that's how I decided to create this channel 🥰

@reub5439evil Жыл бұрын

I found out I have Parkinson's disease officially about 5 years but in looking back it has been with me for the last 10 years or more. It been more difficult to walk and now talk along with severa other body functions. I sure wish I had had a therapist like your wonderful lady. At this stage of my life I am 83 years old male and in looking back I can see symptoms going back a long way in my life. I still am able to work part time at a big box store with their understanding of my absences. I really appreciate your web site, thank you!

@ParkinsonsWigglesProject Жыл бұрын

Hello and thank you for your comment!! I got super lucky finding my therapist, and am thankful!! There are some great books out there on Cognitive Behavioral Therapy and you may find some CBT therapists on KZfaq?!?! It's soooo good for you to keep working, even if part-time, and it's great to know that they are willing to work with your needs for time off! Take care and enjoy your weekend! : )

@Upslider777 3 ай бұрын

Hi Jennifer,thank very much for sharing your experience and I’m so glad that the Wiggles project came out of it! All power peace and Love! to you and your family 🙂🌈👍🏾

@ParkinsonsWigglesProject 3 ай бұрын

Thank you so much for your comment!! I am glad as well that the Wiggles Project was the outcome of this traumatic experience....it's a wonderful thing to turn a negative into a positive 💕

@user-nr4ik2bg8f 8 ай бұрын

You are wonderful - to have come through all of that and be able to tell the story with such grace. I wear T shirts that say no I'm not stoned, not drunk...i've just got Parkinson's disease..

@ParkinsonsWigglesProject 8 ай бұрын

Thank you so much! I occasionally play there and will wear one of my Wiggles Project tees. Thanks for watching and your comments 🥰

@wolfieziggy19 Жыл бұрын

You are a strong, beautiful woman with incredible strength and courage. I appreciate all of your video's. Much respect and love to you.

@ParkinsonsWigglesProject Жыл бұрын

Awe, thank you so much!! 🥰

@whitmcleod8897 2 жыл бұрын

Terrible experience but you’ve succeeded in making us compassionate for all who suffer from Parkinson’s. You certainly suffered that day.

@ParkinsonsWigglesProject 2 жыл бұрын

Hey there mister Whit! Thank you so much for your compassion 🥰 My goal ultimately is to help people know more about the disease and some of its signals so others know what they are seeing, and to pause before snapping to any conclusions about what may or may not be going on.

@robertsweeney101 6 ай бұрын

thanks for sharing what was truly a scary, anxiety inducing experience. you rock!

@ParkinsonsWigglesProject 6 ай бұрын

Thank you for your kind words! It was all you said it was but this KZfaq channel is the result sooooo 🥰

@laurarussell23Sandy 2 жыл бұрын

You rock, Jennifer! We need more PWPs like you who are willing to share our stories. It is the only way to end the stigma and shame that if way too often associated with this disease of ours. Keep up the good fight, my friend.

@ParkinsonsWigglesProject 2 жыл бұрын

Thank you Laura!! 💕 We absolutely need to end the stigma and bias that we find ourselves up against. It will take time but I believe it can be done! 💃🏻

@llewkamiamos6864 2 жыл бұрын

It is so awesome that you made the effort to educate the ignorance out of the staff at that casino. They should really take you up on that!

@ParkinsonsWigglesProject 2 жыл бұрын

Thank you!!

@charleslobaido8403 9 ай бұрын

You are so nice.Thank you for your insights ❤

@ParkinsonsWigglesProject 9 ай бұрын

Thank you for your comment! 🥰

@robertcruickshank9551 2 жыл бұрын

What we need is awareness and you are a great representative!

@ParkinsonsWigglesProject 2 жыл бұрын

We seriously need awareness! Thank you : ) 🙏

@bouffant-girl 29 күн бұрын

Stay strong, and maintain your positive outlook on life ✨️

@ParkinsonsWigglesProject 28 күн бұрын

Thank you so much!! That is my plan for sure 💕

@jenni5191 2 жыл бұрын

I have enormous respect for you.

@ParkinsonsWigglesProject 2 жыл бұрын

Thank you!!

@centralcoastcamper9631 7 ай бұрын

Sorry to hear about your negative experience. I often carry a cane when I'm out in public, because my p. d. Causes me to weave a bit when I walk, so I' m looked at as a old man with a cane and not a drunk that has trouble walking.

@ParkinsonsWigglesProject 7 ай бұрын

Thank you for your comment and sharing your story! My negative experience turned into this KZfaq channel :) I've never had anything like it happen since, and would wish it upon no one. A cane is a stylish and mysterious way to keep em guessing. We got to do what we got to do! 🥰

@SF-cg6kn 2 жыл бұрын

Further proof, as if it were needed, that stress exacerbates our symptoms! At least you got out there 🙂. These days, I hate it when things don't go to plan... whereas I used to quite enjoy a bit of chaos when I was younger (and didn't have PD!) Incidentally, quite unusual for a smoker to have PD 😳

@ParkinsonsWigglesProject 2 жыл бұрын

Yes!! The bodies response to stress when you have PD is no joke. I like to think I’ve got a thick skin and can endure quite a bit of the world we live in, especially with year of bartending, it takes a bit to shock me…but this situation was different. Funny that you mention my being a smoker 🙃 when I was in the diagnosis phase I thought…I am a woman, a smoker, coffee drinker, and under 40, and knew how unlikely it was for it to be PD. While rare, not impossible….so here we are 🤗 Thanks for the comment!

@LifewithParkinsons 2 жыл бұрын

Hi, Jennifer, thanks for sharing that horrible experience, I hope it never happens to any of us again. It's really great that your therapist suggested that you take a negative situation and turn it into something positive - well done! On a side note, something that really bothered me about the security team, if they thought you were that bad off, wouldn't they like call an ambulance or something if you are in that bad of shape sitting in your vehicle? Compassion anyone? Just a thought.

@ParkinsonsWigglesProject 2 жыл бұрын

Thank you David!! My guess/hope is that had I drove off they might have called the police?!? It was very clear that I was in no shape to drive, and you would hope for the safety of the road they would’ve but there’s no way to know for sure. It took about 30 mins and I was all good…I was still being watched and sat in the back of my open truck until I got better. And when that time came about 30 minutes later I stood up to close the back and was fine…which would be clear to anyone watching. There was no compassion whatsoever in this interaction, nor did they say it’s possible we’ve made a mistake and if so we’re sooty but this will be easy to clear up if that’s the case and here’s the name and number of who to talk to discuss what’s happened.

@LifewithParkinsons 2 жыл бұрын

@@ParkinsonsWigglesProject It seems like a weekend in their best room with some meals included might have been in order?

@ParkinsonsWigglesProject 2 жыл бұрын

@@LifewithParkinsonsA massage would be sweet!! 🤗

@LifewithParkinsons 2 жыл бұрын

@@ParkinsonsWigglesProject Good idea!

@AmericaNewscape 6 ай бұрын

We would enjoy interviewing you if you can spare the time. Either way keep up the remarkable work.

@ParkinsonsWigglesProject 6 ай бұрын

Awe thank you! I will check out your channel 🥰

@endthe.1245 3 ай бұрын

Oh wow!!😢 this would be awful. I would have had the same reaction.

@ParkinsonsWigglesProject 3 ай бұрын

Yep, it was awful! But it lead me to start this channel 🥰 Thank you for watching and your comment!

@Plainsman1300 Жыл бұрын

Have you ever researched mucuna for natural dopa?

@stewea57 Жыл бұрын

Sounds like a disabilities act lawsuit to me, nobody should have to experience that

@ParkinsonsWigglesProject Жыл бұрын

Totally agree but here’s something fascinating I learned. When you are at a tribal casino you’re on sovereign land and they have their own court system you have to go through.

@stewea57 Жыл бұрын

@@ParkinsonsWigglesProject I wondered if it was tribal owned, sorry that happened to you

@garyfrechette8689 7 ай бұрын

Just wondering, does a soft touch help you to relax? I'm in a small church and if anyone comes in with Parkinson and starts to wiggle, would it help if I just put a calming tough on the shoulder, and just tried to calm them? What would be the best approach? Thanks for sharing your channel. I have a much healthier understanding of Parkinson because of what you share with us.

@ParkinsonsWigglesProject 7 ай бұрын

Thank you for watching! Because the needs of people vary and touch is a sensitive issue....some people may not mind someone touching them while others may mind very much, no matter the intention. I think the best approach is to be normal and not become uncomfortable, because when dyskinesia's kick in they are no fun, and I know for myself I want anyone with me to be comfortable and not worry that I have them. If I need a hug or hand to hold or drink of water, whatever it might be, I will ask, but a comment such as...."I know dyskinesia's are difficult (if you know 100% that that is what they are having) and want you to be as comfortable as you can be while experiencing them, I am here for you if you need anything, just let me know," could go a long way! I certainly don't have all the answers....but I think a good/safe approach is to empathize and let them know their wiggles doesn't make you uncomfortable and you want them to be comfortable and care for their wellbeing and you are there for them :) I have been planning to do a video about some new experiences I have had. I hope this helps!!

@garyfrechette8689 7 ай бұрын

@@ParkinsonsWigglesProject thank you for the response and guidance. I know touch can be uncomfortable for some people. I remember having eye surgery and during the surgery the surgeon made a sound of 'concern' which nearly sent me into a panic, save for the attending nurse who quickly took and held my hand. To me, that had such a calming affect, it was incredible. When i came out of surgery, I thanked her for being there and doing that. I will remember your advise should I ever have the privilege to care for someone with Parkinson. Thanks again and I appreciate all the information you share with us.

@JeremyMcdonald 2 жыл бұрын

Wow! That's terrible!!! Kinda makes a person not wanna leave the house.

@ParkinsonsWigglesProject 2 жыл бұрын

Hey Jeremy!! It was terrible but nothing is stopping this girl from getting out there and doing my thing :)

@JeremyMcdonald 2 жыл бұрын

@@ParkinsonsWigglesProject Good for you!

@angelakindon9839 Жыл бұрын

Yes! Yes! Yes!

@Harro6418 Жыл бұрын

Terrible! I was stopped by security in Amsterdam; they thought i was high or drunk.

@ParkinsonsWigglesProject Жыл бұрын

It’s seriously no fun!! I actually just left the same casino 🙃 still playing poker and had a great night! But my wiggles kicked in, so it was time to go a winner 💃🏻

@kinksavvy 2 жыл бұрын

I love the shirt

@ParkinsonsWigglesProject 2 жыл бұрын

Lol!! It’s actually a men’s shirt and I just got it from Target 🙃 Thanks, I love it too!! 💕

@kinksavvy 2 жыл бұрын

@@ParkinsonsWigglesProject and I love your courage, too

@ParkinsonsWigglesProject 2 жыл бұрын

@@kinksavvy Thank you!!!

@bouffant-girl 29 күн бұрын

With PD Diskinenisia, some security and police officers who are close minded, uneducated, , biased, etc.. will jump to conclusions and assume that the person is on meth, and will react as they would with a person who is under the influence!

@ParkinsonsWigglesProject 28 күн бұрын

Yes and that is what happened! I spoke with the head of casino security at another property and he said they never ever approach anyone who isn't a possible danger to others or themselves or causing a disturbance of some kind...and I wasn't bothering anyone a disturbance. Should have never happened but it did and the silver lining is that is lead me to create this channel ♥

@James-ws6du 10 ай бұрын

Sometimes people think i am on meth

@ParkinsonsWigglesProject 10 ай бұрын

Sorry to hear this, I know it feels and in an ideal world it wouldn't happen.

@scoop123456789 2 жыл бұрын

Jennifer, you inspire optimism and a positive can-do attitude in the face of difficulty. Good for you 👏🏻👏🏻 Looking forward to more from the Wiggles Project ❤️

@ParkinsonsWigglesProject 2 жыл бұрын

Thank you so very much!! 🥰 I believe in the mind body connection and that optimism and a can do spirit helps with my Parkinson’s symptoms. 🌸