Polypharmacy in MS: A Hidden Challenge Uncovered
Рет қаралды 5,657
Күн бұрынIn today's video, we delve into a critical yet often overlooked aspect of MS management - Polypharmacy.
Polypharmacy, or the use of multiple medications by a patient, is a common occurrence in people living with Multiple Sclerosis. With the complexity of MS symptoms, it's not unusual for patients to be on several different medications. However, this can lead to potential risks and complications.
In this comprehensive guide, we'll explore the concept of Polypharmacy in MS, its potential dangers, and strategies for safe medication management. We'll discuss the impact of Polypharmacy on MS patients' health, quality of life, and overall disease management.
Key topics we'll cover include:
Understanding Polypharmacy in MS
Risks associated with Polypharmacy
Strategies for managing multiple medications
The role of healthcare providers in managing Polypharmacy
Tips for patients to navigate Polypharmacy
Whether you're a patient, caregiver, or healthcare provider, this video is designed to provide valuable insights into the complexities of Polypharmacy in Multiple Sclerosis.
Remember to like, share, and subscribe for more informative content on Multiple Sclerosis. Your engagement helps us reach more people and make a difference in the MS community.
Keywords: Multiple Sclerosis, MS, Polypharmacy, Medication Management, MS Symptoms, MS Treatment, MS Care, MS Management, Aaron Boster MD, Healthcare Provider, MS Patient, MS Caregiver, MS Community
Disclaimer: This video is for informational purposes only and does not replace professional medical advice. Always consult with your healthcare provider for personalized medical advice.
#MultipleSclerosis #MSPolypharmacy #AaronBosterMD #MSManagement #MSTreatment #MSCare #MSCommunity
The Boster Center for Multiple Sclerosis is accepting new consultation and actively enrolling several MS clinical trials. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
@EvenSoItIsWell Жыл бұрын
Thank you so much for this video Dr. Boster! I love that you recommend that people with MS advocate for themselves and embrace diet and lifestyle changes to help with symptoms of MS! You are awesome!
@EvenSoItIsWell Жыл бұрын
I would love to have you as a guest on my channel.
@AaronBosterMD Жыл бұрын
@@EvenSoItIsWell let's do it!
@EvenSoItIsWell Жыл бұрын
@@AaronBosterMD yes! Can I reach out to your office to set it up?
@tinytattoomike7943 Жыл бұрын
Ms diet information would be huge 🙏
@dr.froghopper6711 Жыл бұрын
I was on morphine and oxycodone for 30 years for old injuries. When I told my doctor that I wanted off he told me NOBODY wants to be off morphine. I insisted that I wanted off and he literally smirked at me. I got on the cannabis program and weaned myself off completely. I’m now down to 1/2 the oxycodone and I plan to stop them too. The doctor got me started but encouraged me to stay on them. I was recently diagnosed with fibromyalgia. Long term opioid use can contribute to fibromyalgia.
@kelly-bo-belly Жыл бұрын
Medical marijuana is powerful. I feel positive that big pharma feels threatened. It helps so much for so many things.
@youserguide Жыл бұрын
I didn’t know that! Something for me to consider.
@jennifersignsoflife1375 Жыл бұрын
I just left a comment on a video you made 6 years ago. You're a super-star! I'm on 12 meds bc when I 1st was ill, they put me on a med which caused me to gain an inordinate amount of weight very quickly (120lbs in 12 months), which caused me to have hypertension & pre-diabetes, and a heart attack). I've lost the weight, but now can't stop losing at 5'10" & 97lbs. I refuse to accept THEIR new normal. I want one of my own. Thank You so much for all your positive videos & great information.
@plumber802 Жыл бұрын
Hey Dr. Boster. Yes, I frequently discuss with my neurologist about all the meds that are required to treat my MS. I know that you recommend a DMT but I have PPMS (I'm 60 yo) and all it was doing for me was allowing me to get frequent UTI's and strange fungal infections which required yet more meds to treat. I have been able to reduce my total meds down to Clonazepam and Tizanidine at bedtime to treat muscle spasms that would otherwise keep me awake. I have found that exercise and stretching is beneficial. I'm still working on cutting down on sugars/carbs. Thanks for helping so many people with your videos.- Andy in Vermont.
@SweetT77777 2 ай бұрын
Thank you for covering this issue! I came to that exact realization today when I got yet ANOTHER medication. It's just grown to excess since a transverse myelitis attack within my MS in 2016. I researched my interactions and it showed 34, THIRTY-FOUR interactions!!! 😳😮 I'm an RN and always check these to make sure I'm not taking meds that have incredibly severe interactions and cause more issues. I've most certainly got to discuss with my doctors to see how I can reduce any unnecessary medications at my next follow-up appointment.
@TammieD12 Жыл бұрын
Thank you Dr. Boster. Your videos are more helpful to me than my neurologist. During my lastest flare up, we spent a day watching your videos. The information is very beneficial
@martinm8991 Жыл бұрын
Being in year 26 of my MS, I have been combining three MS-meds for 3 years (before that, it was two drugs for 6 years). Besides the main (=expensive) MS-medication (currently Ocrevus) I am on, I have been taking Solifenacin (proven by a study to help remyelination in mice) for ages. It also helps me a lot to sleep through the night with none/one toilet trip, instead of 2-4! A few years ago I added Simvastatin, which has shown similar effects in that same study and it is now in phase-3 study towards becoming an official (=expensive) MS-medication.
@Jerusalem_Warrior Жыл бұрын
Hey, sounds worth looking into! Please convince one of our Dr. B.s - Dr. Boster, or Brandon Beaber - to do a video about them. 👌
@angiebear8727 Жыл бұрын
If you don’t mind my asking I’m really interested in switching my maintenance medication from Vumerity to Ocrevus. Has your experience with it been positive? A pill is definitely a step up from the injection meds which were the only available treatments when I was first diagnosed but love the idea of not having to take those four pills everyday ❤
@Jerusalem_Warrior Жыл бұрын
@@angiebear8727 Ocravus is generally well tolerated, keeps the MRIs stable, takes part of one morning twice a year, and certainly doesn't involve self injections and pills. The only down side, for me anyway, is feeling that my immune system is back in action a month before the infusion, and recovering from killing it for a month after! 🙄
@syazwanimohdsabri91 Жыл бұрын
Was on so many medications. But 6 months after final dose of Mavenclad, I told my neuro that I was planning on having a baby. The amount of meds drastically reduced, so now I'm only having 1 urology medication, 1 anti-depressant and the rest are just vitamins D3, folic acid, methylcobalamin. Haven't had relapses (other than 1 after COVID-19 infection) after Mavenclad, so that also played a role in my daily pain reduced. Hated the 10 meds swallowed in the morning, too much but it was helping with pain somewhat. Was even told to drink 3L plain water a day due to that. Now no more polypharma, thank goodness.
@esraabahaa8357 Жыл бұрын
I am phobic towards medications to the extent that I didn't want to take MS medication when I was first diagnosed a year and half ago. I agree with you Dr Aaron we need to cut down on poly medications and choose only what is super necessary for the time being and give life style changes a shot. Thanks a lot for the video ☺️
@youserguide Жыл бұрын
I’m on 5 meds plus D, and I’m considering lowering my dose of oxycontin; medical procedures make it difficult to put me under sedation due to opioid tolerance. However, Degenerative Disc Disease and the chronic lumbar pain make me concerned that I may not do well with a lower dose. I do see a pain mgmt Dr who gives me occasional Lidocaine push infusions which help to reduce pain severity. It really is a fine line with managing a pt’s quality of live AND the drug-drug interactions! I heard that’s one reason why med students don’t want to become MS specialists. Thanks for all you do!
@kylecanplay4550 Жыл бұрын
Thank you for all the informative videos! I currently take around 10 meds, was on a few more that i gradually weened myself off of. Recently got off of a psychiatric medicine that was for Schizophrenia. It helped a little at a very low dose, so i dropped it and haven't had any recurrence of symptoms. I take 12 pills a day, and one is to protect my stomach from further damage from pain meds. In my humble opinion, the insurance companies try to run things, and big pharma cares more about profit margins than quality of life for the consumer. Doctors such as you are too few but your impact is HUGE!
@angiebear8727 Жыл бұрын
Don’t take a lot of prescriptions but do take a lot of vitamin and mineral supplements. Have found them helpful so far especially D-3, B complex, potassium and magnesium 😊 Did take baclofen(don’t remember proper spelling?) for many years but haven’t missed it since I stopped. Believe it contributed to my level of fatigue and brain fog more then it helped with spasms 😊
@freethinkeralways Жыл бұрын
Thank you, Dr. Boster! Exactly! Pill for every ill 😀 Matching the symptoms to the diagnosis to the medications is the main premise of allopathic medicine 😀
@TrollinOn22s Жыл бұрын
I've been on 1 med for 24 years, but year 25 I'm now on 3 as I added 2 for nerve pain.
@JP-sk7pf Жыл бұрын
Hi, Dr. Boster! Thank you for all of your extremely educational videos. I will keep this short. My son was diagnosed with MS 2 years ago. He is on about 23 different meds. It is impossible to get his PCP and his Neurologist to commit to looking at his meds list. The PCP says, "I can only deal with symptoms that are not MS related," and his Neurologist only looks at meds like Aubagio without regard to all the others. Is it OK to contact you for a second opinion on his meds? I would set up an appointment to see you instead, but we don't live anywhere near you. We're well over 1,200 miles away. Your videos are invaluable! In fact, when I learned from you about Baclofen, I mentioned it to my son's neurologist, and he quickly prescribed it, and his nurse's attitude was like they had known about this all the time, and yet never thought to use. It has been a huge help. I don't understand why there isn't more attention to his overall health. By the way, his neurologist also has MS, and has had it for many years. One would think this would cause him to be more careful than to allow his nurse to make too many decisions on his behalf. That is this parent's opinion. We like his neurologist, but not enough to see my son still suffering and hurting. Do you do video conferencing to interview my son to discuss his meds and symptoms? Thank you for all you do!
@Jerusalem_Warrior Жыл бұрын
Well, the Fampyra didn't do anything for me, and I never started Lyrica or Adderall, so - besides for the Ocravus - I just don't bother with any medications. Stretches for the spasticity, sleep (and coffee ☕) for the fatigue, water and pelvic floor exercise (and extra visits to the bathroom) for the urine retention / urgency, and exercise, sunshine and supreme gratitude that at least I'm in a good mood! 😅 Happy summer from Jerusalem! ☀ 🌊 🐦🌱
@Jerusalem_Warrior Жыл бұрын
* Unless you count the LDN - call it a placebo if you want, I still push it. 💊
@dr.froghopper6711 Жыл бұрын
Gratitude for our lives is so important. The One that created me knows both my pain and my limits. I’m hurting, bored and lonesome. He gave me a garden for sunshine, exercise and excellent food. He gave me the best wife that any man could ever hope for. I have sufficiency to be able to help my mother and sons in limited fashion but at least I can help. Being disabled has really put strictures on my daily life but it keeps me home and from spending excessively, allowing me to help my family in these trying times. I’m a blessed man with much to be thankful for. I truly am grateful for all the good in my life. Did I mention my 3 dogs? They are a constant source of joy!
@dougtagg9162 Жыл бұрын
Thank you for the Monday morning video. Fortunately I have a low level of medications. Doug coffee in hand from Lyndhurst Ohio.
@freethinkeralways Жыл бұрын
Is coffee considered a medicine? Because I take a huge dose of the strongest one 😀
@desiredecove5815 Жыл бұрын
Ugh 😑 I spoke once about polypharmacy at a conference-no bueno. Great video- thank you for touching upon this. 💪🏻 #SharingisCaring
@debrabright2111 Жыл бұрын
Great topic! One that is often overlooked. Thank you!
@denisewhiting5786 Жыл бұрын
thank u dr Boster!
@jackielavelle7974 Жыл бұрын
Thank you!!
@ScottMarc-RT1 Жыл бұрын
Thanks for this great video. Healthy diet, sound sleep, exercise, hydration can probably take the place of some meds. Many of us take supplements, too. Titration is important.
@fishandfloral Жыл бұрын
I’m on a lot of meds, for multiple medical issues, not only MS. I asked at my last appointment what could I stop taking. The response was there’s nothing we can stop. 😢
@marybethcully5883 Жыл бұрын
Thanks❣️
@siddiqkazim940 Жыл бұрын
Really Dr thank you very much. You care about the patients and you want them to be better.
@hilarykerr7383 Жыл бұрын
You are great. Thank you 😊
@Earthoceanfire435 Жыл бұрын
I’ve always been more herb 🌿 than pharmaceuticals. My doctor wondered why I’m scared of pharmaceuticals. I’m not scared but I each one takes away nutrients.
@freethinkeralways Жыл бұрын
I am scared of pharmaceuticals.
@custombuilder1 Жыл бұрын
That's just great advice in general!!!THANK YOU!!!
@kaym9882 Жыл бұрын
You are aces Dr. Boster!
@Americangirlsp75 Жыл бұрын
Thank you for your video…I actually take 28 medications and no one is listening to me..I have so many issues with complete super signs..too many drs with no resolution and not heard..a bit scared 😢
@bradbowden4796 Жыл бұрын
Such an important topic!!
@KatBrat38 Жыл бұрын
Should I count vitamins, they tend to be what I take the most.
@1nsanetr Жыл бұрын
Thanks Dr. Boster. It seems less is better. The only thing I have experienced is interferon beta 1a and antidepressant interaction. With another DMT, I don't have suicidal thoughts anymore. Both have boxed warnings for that and I guess it was a cumulative and dangerous side effect.
@arthurmiller9103 Жыл бұрын
This is a life saver content Be 🙏 well
@daveIsMyName311 Жыл бұрын
Great video!!! Much needed.
@cherylanne4448 Жыл бұрын
Thanks for the videos. I really don't know if I have this or not. It is excellent information. Sometimes it is hard going to the doctor when have depression and anxiety because things get easily dismissed. I am a little concerned because I've started getting neuropathy in my feet and tingling in my face and hands. B12 makes it worse. Just getting informed.
@tiffanyandtheshihtsu Жыл бұрын
Awesome!
@daveIsMyName311 Жыл бұрын
I love your intro (the music and your style!)
@wendyhiggins902 Жыл бұрын
These are all good points for anyone. However many of us have multiple medical issues. So who would decide which pills to remove and why? I am on 6 scripts and four OTC. I have seasonal allergies, RRMS, celiac disease high blood pressure and hypothyroidism.
@marthacalderon6305 Жыл бұрын
I take too many meds for pain on my legs. Greettings frío, Guanajuato, Mexico.
@jenigriffiths1004 Жыл бұрын
I was only on Tysabri when I changed neurologist after reviewing my MRI'S they said I don't need to be on any meds. Said see you in a year.
@usuallynumblimbs Жыл бұрын
As soon as I was diagnosed with MS I got throw so many different medications. Now I’m scared/ nervous to try anything new. It’s a silly phobia.
@blakelandis2434 Жыл бұрын
Whats your thoughts on the ketogenic or even carnivore diet for MS brain fog and cognitive declines? Ketones seem to help the brain function more clearly than the ups and downs from carbohydrates/sugars.
@bmiller949 Жыл бұрын
OMG. I remember my grandmother having a bowling ball bag full of pills back in the 70's. I have 3 pills and would like to whittle one of them to zero.
@tinytattoomike7943 Жыл бұрын
I’m on ocrevus and baclofen just started Ampyra a couple months ago I believe the Ampyra is helping my walking a little bit but my appetite has gone down hill since starting it I’ve been getting it back eating Indian food I’m thinking about cutting out my 10 mg baclofen because I feel it doesn’t do anything and never has 🤔
@tinksspixiedust Жыл бұрын
When a new doctor or nurse sees my list of meds, diagnoses, and allergies, their eyes glaze over. They simply cannot process so much. If they can’t, how am I supposed to?
@arthas-gigachad7600 Жыл бұрын
Hey, do you know someone who recently had apitherapy, is it actually help with MS?
@AaronBosterMD Жыл бұрын
Not familiar
@dr.froghopper6711 Жыл бұрын
@@AaronBosterMD bee sting therapy, I think. I remember hearing about it back in the 80’s but was told it was bunk, by a doctor that had never heard of it. Odd call but I’m not a doctor. Seems one should have information before bunking something but, again, I’m not a doctor. I am a 43 year disabled professional patient with a nerdly streak though. And I have access to the internet-Johns Hopkins, Harvard, Mayo and others.
@harddriveusame7248 Жыл бұрын
I take more vitamins than drugs.
@pattischmitz2680 Жыл бұрын
I had an mri .. does anyone know what this mean? There are a few small areas of T2/FLAIR signal hyperintensity within the bilateral white matter, nonspecific, but likely reflecting chronic microangiopathic change. Thanks
@pattischmitz2680 Жыл бұрын
Also can they tell by a regular mri.. w/o contrast..and without mri of your spine if you have ms? Thanks!!
@freethinkeralways Жыл бұрын
Spots in the white matter on both hemispheres might b related to chronic changes of small blood vessels.
@MysticFIREFLY Жыл бұрын
Can you please address the BLACK Labels placed on Medications by the FDA>> it seems Mavenclad is on that list....... also, do you have any patients, who can share how they did on the Mavenclad therapy treatment PLEASE>
@AaronBosterMD Жыл бұрын
Are you referencing "black box warning?"
@MysticFIREFLY Жыл бұрын
@@AaronBosterMD yes, exactly
@JULIEJBF42 Жыл бұрын
Does gut flora have any impact on M.S.?
@AaronBosterMD Жыл бұрын
here you go: kzfaq.info/get/bejne/ZtWBpLOAusy9m4E.html
@in-kognito8997 Жыл бұрын
Hi Well I dont know how are thinks in general or at least other MS patients in germany but to speak for me, I m taking Ocrevus and Dekrystol (vitamin d) thats it. Well our health system is quite different than the ones you have. I think its all about money, but this is way more pronounced in the states. These situation was the main theme of Nevermores song "medicated nation" I guess. A 100% healthy patient is bad, an dead patient also. So the health system has to keep us somewhere between. 😂😮😉
@in-kognito8997 Жыл бұрын
But Im very surprised that the average ms patient in the states is under 7 different meds. 😮 thats a lot. What kind of are these?
@in-kognito8997 Жыл бұрын
And not to forget. I am very thankful for your work, for sharing your knowledge with us, for all the energy and time you put in the fight against ms. 🙃🫡 thank you so much.
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