I have a 3 month year old and my entire life is wild now! I’m almost 2 months post stroke, I can walk, I just can’t do the basic things, I try everyday but for whatever reason my hand is not responding well, I will not give up tho! I don’t have a choice!NEVER GIVE UP!
@joycezaid39095 ай бұрын
I had that while in rehab; even getting out of bed and eating a meal, or showering & putting on clothes wiped me out. My whole body would be heavy. When I would go home to visit, my husband would ask me why I breathe hard from the car to inside the house? He would sometimes say I am not doing enough exercise, and to do more. I finally told him that this experience has been the most difficult of my life, and if he couldn't be supportive, I WILL find someone else to spend time with, and I say this to the other people in my life who think I'm not doing enough to "GET BETTER"!!! That's more tiring than the stroke itself!!!
@melissadepew-porras52535 ай бұрын
So very well said
@akuerika45082 ай бұрын
My sister once asked me why I breathe so hard. I told her I was tired can't they just see it. Annoying. I'm feeling depressed now cos I lost my apartment. It was demolished while I was in the hospital. The thought of that along is draining. Right now squatting in a tiny space with a friend and it's so tiring. Huh
@derekterrell3465Ай бұрын
I feel you , honestly sometimes I just hope I don't wake up, I'm not scared to die, people don't understand at all, I also hate when my wife is like your doing so great when It's taking everything I got just to take a couple steps
@WildWestRosie4 ай бұрын
Oddly, I've found myself really tired, and I struggle to do more, but my children are telling me to chill and take it easy. But I've been hard on myself because I can't do what I feel I SHOULD be able to do. In other words, I'm harder on myself than others are on me. Thank you for letting all of us know that what we're feeling is normal and OK.
@deejae82955 ай бұрын
I feel like my legs are full of cement and I can barely move them every day. I’m two months out from my stroke and I’m doing home health rehab OT/PT. I also did two weeks of inpatient rehab. I sleep 9 to 11 hours every night and sometimes take a short cat nap during the day. I don’t feel like I can get anything done. This Nurofatigue is real people. It’s no joke!
@HartleymollyАй бұрын
How are you now??
@49lucky5 ай бұрын
Boy is that true😅😅. I feel lazy and I'm not bouncing from job to job. Glad I live by myself so I don't care when something gets done. 😅😅😅😅
@PostStrokeOrg5 ай бұрын
❤️
@allisonholmesmusic975 ай бұрын
Thank you for this. I had my stroke January 2, 2024 and while my physical recovery has been remarkable, I’m dealing with severe fatigue. Add agoraphobia that I’ve been dealing with for a couple of years now and going out and doing something like grocery shopping or appointments is utterly exhausting. I do take two naps a day and if I miss one or take it later than usual I feel it for days afterwards. I’m glad to hear that I’m not the only one and it’s completely normal. Thankfully I live alone so if I ignore a chore or find I’m too tired to shower for a couple of days it doesn’t impact anyone else.
@derekterrell3465Ай бұрын
What got you back walking and stuff all over had is shit therapists that don't know shit
@teresajennings12436 күн бұрын
I had my stroke a month ago. I have found neurofatigue is very real in my life these days. Setting boundaries with others is so important. People think they need to get me out and socialize, and some days I just have no energy for it. This video is so helpful. Thank you for reminding us to be kind to ourselves.
@YahuahLovesUsAll3 ай бұрын
My son and dad would call me lazy. My depression and lack of energy caused my son to leave to live with his mom, and it literally left me feeling even more broken
@feetayrooster6 күн бұрын
❤🩹
@ronaldbeauchamp48205 ай бұрын
You Just made a difference in my life thank you!
@mgee6695 ай бұрын
All true very. Lots of abuse guilting feelings of low morale it absolutely SUCKS
@careyparks23165 ай бұрын
It's hard. I have been called lazy. Thank you. I got to put in grace and quit being so stubborn. It is hard to ask for help. In my mind, you see me struggling., but I disgress..I want the help and I have to ask for help
@aceydoosee4 ай бұрын
I totally understand these feelings!
@idachau10802 ай бұрын
Wow!! I couldn't understand why I had a funny head feeling and I have to sleep straight away.. may only be for 20 minutes to half hour .. I don't feelnguily after hearing this. Thank you. 💝
@feetayrooster6 күн бұрын
Thank you for what you are doing. My wife had a brain aneurysm in Feb 2024 and the resulting stroke now dominates our lives. It is now August and we seem to be getting some control back into our existence. Our recovery has gone incredibly well and we have had a lot of wonderful medical people help my wife with hours and hours of physio and occupational therapy. Now we are working out how to live with the more permanent effects of the stroke. It is so good to have found Post Stroke and to go back and watch all the videos. Thanks again.
@mikeviscome44912 ай бұрын
Thank you for letting me know im not lazy ,Im healing. God Bless you work ,keep it up .Im 70 had a stroke but recovering,you answer a lot of questions my wife and I have been having.
@bhavaniganesh75555 ай бұрын
Very useful information , thank you very much My husband who had stroke 2 years back, has lack of initiative to try to do some things on his own, he expects someone to help him out .I wanted him to become independent (not fully ) like prior to stroke,if I insist he gets angry Please give me some tips to help him to do his routine things on his own Secondly , he is very comfortable doing exercise when therapist is there, but never tries on his own to perform any simple exercise .How to motivate him or make him understand that the more he does , the more he will regain or benefit from it . As a caretaker , I don't know how to handle this issue , it gives me a lot of mental stress. I will be really grateful if you help me out . Thank you
@Mrsbigdog734 ай бұрын
Agreed! It’s so difficult to encourage our SS to improve and not push them too hard.
@argeliagonzalez13034 ай бұрын
I am in the same situation you are in. My husband had a stroke in September. He also isn’t motivated to do any of his therapies at home. He does fine when he goes to see his therapists. I am also in need of tips to motivate him to do what he needs to do without him getting angry at me. I hope your husband is doing better as well as you. ❤
@BrettELothrop14 күн бұрын
Hi Ganesh- I once read that those that want 100% recovery must treat their rehab as a full-time job: 8 hours of sleep, an ambitious exercise/cardio routine, relaxation/meditation, nutrition, optimistic outlook, mental exercises to expand the mind… You have probably seen this list before. I have found no other substitute available in stroke recovery literature. Good luck.
@SonicRacingEPt5 ай бұрын
You hit this subject right on the spot! Because my family is exactly thinking this of me! They're used to My old self that I was a working machine and demanding so much and now recovering from a Stroke I've told them let me recover and it's like I tell them to demand more of me they just don't get my "pains"they say I've had broken bones and I'm like it's totally different but I'm thankful to God 🙏🏻 for giving me the joys of having this Stroke happen to me and not any of my family members because they would be a horrible mess they'd be hating life and questioning God "why me"! But I'm the Most thankful and happiest person Alive because of this Stroke! Thank You again for this wonderful video. Have a wonderful and blessed weekend 😎
@joycezaid39094 ай бұрын
I'm home from rehab, and just going to the bathroom, washing up, dressing, what to eat/not eat drink, it's enough that anything gets done AT ALL. Try to use my body to do tasks, since I don't have my homecare set up yet, still wiped out on the most simple things. Stroke is NO JOKE!!
@Great6525 ай бұрын
This is one of your best videos 👍
@charliehay15205 ай бұрын
You and this channel have been a blessing to me...i have gotten more help and information from you GOD bless you ma'am! And i pray GOD bless my fellow stroke survivors! Romans 8:28!
@paulinematthison7214 ай бұрын
I have got a stroke eigth months now, your videos they are very helpful to me. My recovery was going fine until few weeks ago I felt so tired, but now I understand. Thank you God bless you.
@BrettELothrop14 күн бұрын
Hi Math- that’s interesting… My neurofatigue came 10 or 11 months after my last stroke. It seems to have occurred once I started to add weightlifting to my exercise routine. xo
@wa136013 ай бұрын
Thank you so nuch for this, I't's 7,omths since the stroke and I'm MORE fATIGUED THAN EVER BEFORE. Missed my Church service beccasue I just didn't have enough energy to get out of bed that I felt so guilty and was so angry with myself but after hearing this I stopped the anger.And I have a very hard time asking for help - my house is a mess too. Thank you for the videos. I need to esercise properly per your videos. They do help ,
@goingclear2647Ай бұрын
Thank you for this, it's been over a year now, and I'm still exhausted all the time.
@robertwalle50875 ай бұрын
I needed this. Best advice I got from a Dr who fights Gullien-Barre "go ahead and get tired, but don't get exhausted" I get revered faster when I dont get exhausted.
@dianasoria-mccorkle90534 ай бұрын
It's going on 2yr since my stroke and I still don't feel like myself. It's so hard for my family to understand so I forwarded this video to them 😢
@harley86805 ай бұрын
Thank you for sharing more information on this. I am 9.5 years out from having an acute stroke (Ischemic) in the pons of my brain at age 50. I have foot drop and that is usually when I know (the foot will start dragging) before it hits really bad. I have had problems with neuro fatigue on and off for those years but usually big social events (where there is lots of talking in the room) and or when I have done many activities. My husband can usually recognize first when it is about to come on. Being in cement is a perfect description. Everything goes, my speech, physical abilities etc. It is frightening. As of late it seems to be coming on more. My adult children are probably the ones that do not understand why I do not work although my daughter saw neuro fatigue hit me on Christmas Eve and I think she may finally understand.
@user-pq2pi5gu1e5 ай бұрын
I hate the thought of grocery shopping anymore. Getting in and out of my car, and if I'm lucky enough to get one of those carts, even Getting in and out of one of those is a chore😢😢😢
@joycezaid39093 ай бұрын
I ONLY go to stores that have the scooters or the drive thru, and that was BEFORE my stroke as my bone on bone arthritis in both knees is severe, even using a rollator is challenging. Now, I pace myself through the day, was in hospital due to mental/physical/financial stress caused by the stroke, and the respite was needed.
@emmyaaron26374 ай бұрын
The last 10 months has been the hardest in my life. I get so scared sleeping at night because of muscle cramps (Spasticity) the pain gets so much i cry just to turn on the bed then waking feeling like your whole body is casted in cement. 😢
@adventureswithgnomie65535 ай бұрын
I'm almost 13 years post and taking a shower still wipes me out.
@user-ds8ig3xq3p5 ай бұрын
Oh no!!!
@harley86805 ай бұрын
Agreed. I am 9.5 years out and bathing is one of the most exhausting things.
@adventureswithgnomie65535 ай бұрын
@harley8680 I figured out why it does but I can't change it. I have to step in the tub - all the slanted angles to funnel water to the drain. My brain gets overwhelmed.
@goingclear2647Ай бұрын
I get it. I get pretty stinky. Hate bathing ..... so exhausting.
@jholly5747Ай бұрын
Sometimes I go days without showering. I don’t want to, I just don’t have the energy to get in the tub. Sometimes I would prefer to have a bath, but that is also exhausting. Just trying to get out of the tub. Plus, I am blind now, not from the stroke, but from diabetic retinopathy and other complications. So my life is extra hard, I went blind in 2000 20 sorry that was 2022, I had the try to recover from the stroke. It is all too much sometimes. at least from these videos I know what’s wrong with me, that I have post stroke, fatigue, or neural fatigue.
@melodioushaste5 ай бұрын
I'm almost 3 years post the TBI and I was wondering if it will ever get better. I have to get into bed daily at 5 PM because I start losing the ability to speak and walk. I remember my mom called me lazy when I was around 3 months into my recovery, and it made me so mad! I asked her how she would feel if in order to every time you take a step it's like your shoes are on the wrong feet and think of how much mental energy that would take. Put the shoes on the wrong feet for a day, and that's how it feels.
@user-mu1qi2ui2j5 ай бұрын
P
@jholly5747Ай бұрын
Thank you for this video. I have been wondering what’s wrong with me since I had my stroke two years and 10 months ago. When I go to the grocery store with my husband, I really don’t feel well after being in the store only 10 or 15 minutes. Most of the time I’m slumped over the grocery cart and my head is in where you put a child in the cart. My husband hates it and he said people are staring at me, so I can’t see them because I am blind now. Not due to the stroke, but from diabetic retinopathy and other eye complications. Lately, the neural fatigue has been extremely difficult. I find myself sleeping most of the day and it is very hard to even get something for breakfast or lunch myself. Thank goodness my husband is on holidays for another week, so he usually gets my lunch for me. I find it so exhausting even to get a shower and sometimes I go days without doing that. Sometimes my best days are very early in the morning and I am able to get a shower. Most days by the time the rolls around I just want to sleep. Life is very hard for me now.
@user-eh3bz8bh7u2 ай бұрын
It definitely comes and goes.
@user-cu9ro6bo4h5 ай бұрын
I am 6 months out from my 3rd stroke. I am tired ALL of the time. I push myself a lot. I am also having trouble sleeping.
@poolmotorrepairguyFL5 ай бұрын
5 strokes for me. doc only now of 3. ...... 2 no way i see a doc !!!!! a year off docs drugs yay !
@user-cu9ro6bo4h2 ай бұрын
Wow 5?! My first 2 happened in 2014 a week apart, 3 months of Speech, PT & OT & gradually I made it back to work after about 6 months. This 1 they said was closer to my spine & I'm still in therapy for it. My benefits are running out at work. Coming out on SSDI, no one seems to know whats causing them or why. Thats the worst part. Trying to stay strong, you do the same! Thanks so much for responding!!!
@TorgerVedeler3 ай бұрын
Having neurofatigue teaches you who your friends are… and aren’t.
@tional52669 күн бұрын
Yes it most certainly does
@grahampikevideosАй бұрын
I have found aerobic exercise v helpful for energy, alertness and physical strength, power. I’m not saying this is right for everyone, we are all individuals as indeed, our stroke is individual. However, for me a visit to the gym really works and lasts for 2 or 3 days. Following the rule of ‘a change is as good as a rest’ during just an hour at the gym I spend a few minutes on a machine for my arm strength, change to legs, pop on the cycle for 10 mins. Then back to the arms and legs….keep changing don’t overdo one of them…. Then onto the cross trainer for 10 mins. I have to walk and bus it to and from the gym so need to factor in the energy for the journeys. The final thing I include throughout my hour is a few moments recovery here and there. Never drive myself to strain or pain. I do feel the aerobics on the cross trainer and bike help as they are getting the heart and lungs working, pumping the blood throughout the body and the brain where oxygen is needed. You know instinctively, what’s too much, your body tells you, I always stay within my limits as I find them growing.
@user-ds8ig3xq3p5 ай бұрын
Tks, i couldn't understand why i no longer had motovation or enthusiasm to do ANYTHING!
@sjsj49762 ай бұрын
Thank you for bringing awareness to this very important topic 😊
@juanltorressr8276Ай бұрын
I get frustrated when people say," I get tired too". If they really knew. smh
@jenniesaulsberry33443 ай бұрын
And I thought was just meds thanks God for you
@irishphilly5 ай бұрын
Very affirming vid, thank you---especially that a) it (fatigue) exists; and, b) it's a uniquely fatiguing fatigue. I'm about 8 years from my thalamic, Left brain, right hemiplegic affected. Every day is a new day. I figure, if I wake up alive, excellent---I surely can go Bother. or Annoy Someone. THAT makes me happy! I found I had to learn to recognize I am fatigued even as I experienced Being fatigued---beyond exhausted--it's not even exhausted, it just IS Fatigue. I appreciate that makes no sense or may sound like Jabberwocky to anyone who hasn't experienced this fatigue in their marrow, but for those of us who have/do/are? It ain't no Joke. It's nice having the company of other people's reflections & comments with these vids---So helpful. Thanks.
@maureenlunda30625 ай бұрын
Very helpful thanku
@yolandaperez94275 ай бұрын
You have been so helpful. I have learned so much from you.
@aceydoosee4 ай бұрын
Thank you so much! I was being so hard on myself because I can’t do what I used to! I used to do a lot and not even think twice about doing multiple things during a day. I had my stroke in June of 22, I’m still recovering and all my drs say I’m probably the best I’m going to get. My neuro has stated that I have post stoke fatigue syndrome. I’m learning to mange my expectations of what I can do each day.
@PostStrokeOrg4 ай бұрын
Of course! Life can look a lot different after a stroke ands it’s hard because you want to judge yourself against your pre stroke self. But that’s just not helpful. I’m glad you’re finding way to be kind to yourself❤️❤️
@anthonybyrne11692 ай бұрын
I find the nastiest part of post stroke fatigue is other's pig ignorance.. thanks for this video
@user-ds8ig3xq3p5 ай бұрын
I am only 3 mos post. My problem is shakey, trembling. The way i feel after the flu..
@aceydoosee4 ай бұрын
Lots of rest for you, this was me also for a long time - a good 6 months or more.
@user-ds8ig3xq3p5 ай бұрын
There sure isn't much out there regarding strokes .
@charesahulsey89824 ай бұрын
It’s been since Feb 2022 I had my stroke. I’ve really got this. I’m exhausted after doing my duties I use to do before or after my 8 to 10 hour day. I was a hairdresser and stood all day. I now can do the laundry and dishes. I cook the meals but I have to get showered around 5 pm and I’m dead the rest of the day. If I go to to grocery store I have to go in the morning then beat the rest of the day. I have numbest the whole right side. I feel so tired in my brain. It’s more brain fog for me. Thanks for helping me understand this.
@njean244 ай бұрын
I would have never understood this until I saw this video. Your videos are so helpful, specially to a caregiver like me. ♥️
@hemasookram46555 ай бұрын
Tell me about it,! This and spasticity are on rotation with me weekly.
@lizgolden975 ай бұрын
I call myself lazy. It's difficult to be kind yourself
@PostStrokeOrg5 ай бұрын
@lizgolden97 It really is, but like with all things in life, you can get better with practice ❤️😊
@FloridaRaider5 ай бұрын
Watch negative thoughts.treat yourself the same as you would treat your best friend. - your reality follows the quality of your thoughts
@lizgolden975 ай бұрын
@@PostStrokeOrg I'm trying
@BrettELothrop14 күн бұрын
@Burncity104 ай бұрын
Thank you for sharing this! ❤
@margaritaortiz13662 ай бұрын
Yes this is what I needed to know, Thak you!
@blue.50582 ай бұрын
I’ve found that my body feels heavier after my stroke that seems to improvement as the weeks go on
@ChristopherHarle410482 ай бұрын
Thank you. I needed to hear this,
@stevenlengyel97013 ай бұрын
It’s so frustrating when I’m working on something and I’m interrupted so then I have to focus on something else, which is usually semi important, but still I want to be able to complete a task I’m working on.
@dancarl68033 ай бұрын
I'm 41 and I find the combination of fatigue from stroke and fatigue caused by persistent AF makes it impossible for me function normally some days. It has now been 3 months and I am thankful to be walking and talking but quality of life is failing me.
@Mooregirl4 ай бұрын
I am year two and am still dealing with this and sensory overload😢tfs❤
@danmartin8885 ай бұрын
What a great video
@mgee669Ай бұрын
Excellent video all true
@rawism4 ай бұрын
I’m going to give this video to all my friends and family
@PostStrokeOrg4 ай бұрын
Please do!! I hope this helps them better understand ❤️❤️
@VENKATACHALAMDEVARAJANIY-op9qh4 ай бұрын
Hello Dr Elyse I watch your videos with great interest. They are a valuable source of information. Thanks for the same. I had a brain stroke three years back. My right side is paralysed.Your video is proving very useful in the recovery process. My worry is fingers which close easily but does not open. Would like your view on this. Thanks Rajan
@frankylin253 ай бұрын
Thank you so much for this video. Exactly what I'm going thru right now, swimming thru concrete. OMG! I thought something weird happened to me. So my question is. Does it go away? If so, when?
@jasheragirl4 ай бұрын
Thank you for helping me understand.
@stevenlengyel97013 ай бұрын
I just want to finish things.
@davidnewland2556Ай бұрын
one statistic that I read long ago is the brain uses 25%of our caloric intake each day
@chooningrid68605 ай бұрын
Mine is trouble speaking. for e.g. it may turn out to be something different
@Pure_KodiakWILD_Power5 ай бұрын
Good morning, Beautiful. Interesting ink 💖
@PostStrokeOrg5 ай бұрын
Thanks so much! It's from my favorite movie, Howl's Moving Castle 😊
@Pure_KodiakWILD_Power5 ай бұрын
@@PostStrokeOrg Ah. Sounds vaguely familiar, but I'm not sure. I'll have to check that out.
@drd64164 ай бұрын
Love studio Ghibli too. 3 weeks after coming from 3 months rehab. I am better than i was by far, but hate that i will never be anything like i was, and that hurts because I was so busy in the past. @PostStrokeOrg
@Mrsbigdog734 ай бұрын
Strokes are very misunderstood. Every one is different 😢
@YahuahLovesUsAll3 ай бұрын
Feel exhausted, but can’t sleep
@LENNAMAZIN5 ай бұрын
Thanks!
@PostStrokeOrg5 ай бұрын
Thank you SO much for your contribution to Post Stroke!! ❤️
@jennyschneider24243 ай бұрын
How long can it last? I have days often, but I’m starting 3 rd year post stroke
@agohio83665 ай бұрын
Facts
@PostStrokeOrg5 ай бұрын
@agohio8366 ❤️
@mclovin87395 ай бұрын
Is that Calcifer from Howl's moving castle on your arm?
@lisarowe87635 ай бұрын
Can stress bring this on?
@BrettELothrop14 күн бұрын
Hi- I wondered about your question as well. My fatigue came 10 or 11 months after the last stroke when I began a weightlifting routine.
@TheDrowst4 ай бұрын
Great information but It's too long for somebody with neurofatigue. Thanks
@ericanorton762 ай бұрын
I had a AVM and in hospital for 3 months and can’t see half my vision. This happened 10 years ago and still feel lazy. Can I still have this? I never want to leave the house is that part of it?
@ericanorton762 ай бұрын
I used to think it sounded like depression but I’m just not depressed so I didn’t understand why my body was acting that way.
@sajanninan45205 ай бұрын
❤❤❤❤❤
@charliewilson35285 ай бұрын
Is it the same as chronic fatigue syndrome? And my boss expects me to still do miracles at work. Even though, I'm not that guy anymore. What about oxygen supplements? Or therapy.
@aceydoosee4 ай бұрын
I think it’s similar, my neurologist has called it post stroke fatigue syndrome
@chantalfaure79024 ай бұрын
Can you please let me know if it's possible to still have neuro fatigue after 1 and a half
@aceydoosee4 ай бұрын
I still have it and I’m almost 2 years post stroke
@Great6525 ай бұрын
Halo Elyse i just wanted to say science has made very little progress on nurostudies specially parylysis due to stroke they just have initial treatment and you are on your own immune response of the body.i myself am a hemmoragic stroke patient and I have spoken to best neurologist and surgeons they don't have the answer in short I want to say there is no cure for parylysis if by God's grace your recovery happens well n good or else you just die in a hope waiting one day you will recover.
@BrettELothrop14 күн бұрын
Hi Great- thank you for your comments. I had to discover-on my own - - because my two different neurologist wouldn’t tell me - - the extent of my damage. It seems that if they are powerless to help me then it is best not to tell me the extent of the damage. MRI
@Great65211 күн бұрын
@@BrettELothrop i understand.doctors don't have answer for this but keep one thing in mind keep urself mobilised if you don't stiffness and other sickness will catch you.brain is very complicated thing once dameged it's difficult to restore.am a spiritual person n one thing i noticed even 2000 years before there were parylytics and there was no cure until today Jesus Christ just healed them with his word remember miracles happen everyday.