Prader-Willi Syndrome: The Children Who Are Always Hungry

Рет қаралды 41,961

Жыл бұрын

Prader-Willi Syndrome causes insatiable hunger, and there is no treatment available. These families have started a foundation to find a cure, while battling to help their children's dangerous obsession with food.
Subscribe: bit.ly/ProjTV-Sub
Welcome to the KZfaq home of The Project, we think you're going to like it here!
Watch full episodes of The Project here:
10play.com.au/theproject
Check us out on Facebook:
/ theprojecttv
And Instagram:
/ theprojecttv
Why not Twitter too:
/ theprojecttv
#TheProjectTV #PraderWilliSyndrome #Chromosone15

Пікірлер: 41

@nellen55 10 ай бұрын

Sounds like hell. Feeling of starving and never being self-sufficient

@Vegetarianbull 8 ай бұрын

It is a hell! I have a similar condition and it is a hell!

@t-alimichael3363 7 ай бұрын

Shout out to the neighbor and credit card. What a humble human finding a way to distract himself and gained independence. Thanks for sharing.

@thefury4424 Жыл бұрын

A big shout out to all the other PWS families out there! Never easy telling others how our children are always hungry and them saying “sounds just like my child” when they have no idea. Routine is your best friend, my little girl just turned 12 and is kicking butt and amazing!

@motorhead20 Жыл бұрын

Poor guy. So humble and self controlled while fighting one of our most intense urges on overdrive

@metime4325 8 ай бұрын

The young girl is so smart!

@TJGAMINGSCOTLAND 11 ай бұрын

It’s heartbreaking ❤

@PirateOfTheNorth 7 ай бұрын

I hope they can cure the constant hunger even if they can't cure PWS.

@melissalove2463 7 ай бұрын

OMG this is so wrong & so cruel ! We NEED more than anything to find a cure for this horrific disorder !

@JessaHawke 12 сағат бұрын

We should probably find a cure for something like uh.. ALS first

@elizabethrandellswart2397 Жыл бұрын

Heart breaking.

@hardcorehunter9438 11 ай бұрын

Yeah I guess you know what it's like

@jflsdknf 3 ай бұрын

I've watch other docs on prader wili and they all talk, walk and act very very similar almost identical

@Timbergal 7 ай бұрын

I notice that a large percentage of children with PWS live in AU and NZ. I wonder what the diagnosis/population is?

@alyssaj.2659 Ай бұрын

I can’t imagine always feeling hangry 😨

@andrewattenboroughtwothumb4697 Ай бұрын

One of my friends had it and died at the age of 27 years old and was in hospital a lot before she died in 2018

@theshagnetwork 2 ай бұрын

There MUST be a treatment for them.. either some sensation or hormone blocker because there is a hormone that causes hunger too. Apparently its also possible to become desensitized to that hormone.

@EmEmEm579 Ай бұрын

I am sad

@Lauren-vd4qe Ай бұрын

HINT: sounds like a chronic lack of zinc. if u dont have enough zinc in your body, your leptin (saity) levels are low, hence the chronic hunger.

@raumsogg 6 ай бұрын

In the 80s, many people used prescription, amphetamine-based appetite suppressants. As it turned out, as a diet, it was way more damaging than efficient on the long term, but the molecules do exist. I don't understand why science can't come up with some effective and inocuous appetite suppressant to help patients with PWS. I'm surely being naive, and hunger is only part of the problem of course, but I'd like to understand why this is not possible, I mean it would help a lot, wouldn't it?

@Robohazrad 5 ай бұрын

Me too, I know they have ozempic that doctors will give fat people with diabetes and it keeps them from getting hungry. I wonder if they will work

@KenWang2 2 ай бұрын

Because it’s part of the plan to keep customers and keep making money.

@turpasauna 2 ай бұрын

I'm sure it's possible. It's just not being researched. Science revolves around money.

@anitaschuloff2557 Ай бұрын

How many people from My 600 lb life have this but go undiagnosed? Did Dr. Now ever consider this?

@Thatguyattheend 4 ай бұрын

Ozempic

@thatsnotright7260 7 ай бұрын

Imagine getting that credit card bill 💵 😮

@kyunglee4548 9 ай бұрын

They should team up with the makers of Ozempic since the this medication makes you feel full and and release the harmonies in your body that you are full…

@Vegetarianbull 8 ай бұрын

Yes they already use ozempic and saxenda at the same time with metformine. And better if they get the gastric sleeve at the same time while using that medications.

@veronicamedina277 3 ай бұрын

PWS children suffer from constipation and it’s the brain that doesn’t stop sending signal to the belly that is full since it has to do with a chromosome which also can cause psychosis

@damongirl66 Ай бұрын

@@veronicamedina277 Conversely, anti-psychotic medication can cause an insatiable appetite. It's often a reason that patients won't comply. I was given a tablet one evening while in hospital and while not feeling actual hunger, I felt the need to eat. A lot. All evening until I slept.