Thank you so much for this. I feel like doctors have been misleading me for years now. I went into my family doctor as a teenager and had an ECG because of some chest pains and was never told the results. 15 years later, I'm due a psych appointment for ADHD medication and was required to take an ECG. The nurse told me everything was fine but sent me to my GP to confirm, who told me that my ECG looked normal except for (something) "which could just be anxiety." I have a little bit of white coat syndrome, but I also have asthma and PTSD+anxiety, so everytime I've had blood pressure or heart rate taken it was higher than normal--but a 24/hr bpm proved that my blood pressure was actually fine and would drop to normal levels at night if I wasn't exerting myself. So when I took my ECG results to my psych, I was none the wiser... until my psych pointed out on the chart I had a prolonged QT which disqualified me from taking some medications! I was in shock! I had no idea what it meant! I tried googling it too and all the results looked awful. When you mentioned family history of fainting or sudden death, I do actually have fainting episodes but my GP said it's probably just vasovagal. Now I'm wondering if it's something I should look into more or if it simply is just anxiety, which I am actually on anti-depressants for...

Thank you for this video !!! Very comforting to know I am not the only one who has suffered from cardiac anxiety.

I received this diagnosis after my first ECG, we are doing another one to confirm. Been feeling pressure around my heart for months though... thank you for sharing your experience! lots of love to you. Life is precious. Living more fully now that I know that at any point i could go. xox

I had a lot of ECGs, but Long QT syndrome only showed up on a couple of them when my heart rate was high. The ER doctors were never concerned. One of them even told me he thinks it was just a machine error because my heart rate was fast. I went to a cardiologist I was anxious there, so my heart rate was 118 on the ECG. My QTc was 498. The cardiologist wanted to do another ECG when my heart rate was lower. I managed to get it down to 107, and this time my QTc was 440. The cardiologist came back and said he thinks I have Long QT syndrome. He reviewed my case with the electrophysiologist, and they believe mine is a reverse case because usually it shortens with high heart rates and prolongs with lower heart rates. I'm set up to get genetic testing and was prescribed a beta blocker, which I'm scared to take. I wish I knew if they had calculated it by hand or not. Long Qt Syndrome is my biggest health fear. I have severe health anxiety, to make it worse I have little ones I'm scared I'm going to die suddenly with no goodbye's. Worse part it's genetic 😢

It’s simply terrifying… and I’m sending out so much love to those who are waiting for results. Went in for palpitations waking me up at night and found out I had a long qt. Still trying to figure out why and am waiting on results 3 weeks from now.

I suffered a sudden cardiac death in 2019. Saved by my CPR trained wife. 26 nights in CICU. Dual ICD pacemaker/defib implanted. Post hospital stay showed A-fib. Have had RF ablation. Long QT is most commonly a genetic disorder. Many young athletes have collapsed and died. I am a fit 72. Make sure you have an ECG by qualified cardiologist EVERY YEAR.

I was diagnosed with Brugada Syndrome (very similar to Long QT) and had an implantable defibrillator put in and life has been extremely normal! :) Thank God for doctors and nurses!!!

Oh, you poor thing! I so relate to you, I actually need to giggle because it’s uncanny. So, when I was 8 weeks pregnant, I was admitted into the ER (Australia) for heart assessment because I was super anxious and pulse was around 140 B/PM. They did an ECG and the doctor came in and asked me the same questions: any history of sudden cardiac death in family, yadda yadda yadda. I said no and the doctor said they had seen an “orange” flag in my ECG and did not specify what he thought I “may possibly” have, but did say that I would need an echocardiogram and 24 hour halter in hospital… I was beside myself, especially when they told me (whatever the condition was they thought I had) could be treated with medication but could cause miscarriage/fetal abnormalities 🤦‍♀️. Long story short - it was a false alarm. But I can relate. The heart is not straight forward and anxiety can definitely mimic dangerous disorders. Blessings, lovely ❤️.

490 qt for me. I have a stress test and Holter monitor set for 3wks out. It's terrifying and I already suffer from GAD. Bless all of you

Please stop obsessing over this.,Mine runs 450- 550 all the time and I’m fine. Lived an active life and am turning 80.

Having had several episodes of adverse drug reactions some of which involved arrhythmias requiring referral to A&E for ecgs I have concluded that it is difficult distinguish between inherited and acquired LongQT. There is a range QT intervals which could be either and with the variability of machine derived measure of QTc it makes the diagnosis of LongQT even more problematic. I once achieved a QTc of an indicated 500ms at 75 bpm heart rate from my own four lead ecg device which I believe was drug induced. I could not however preclude the possibility of having inherited LongQT until I did my own hand derived geometrical measurement of QT of 440ms at 55 bpm from a graphical trace.

Medications like SSRI’s can cause long QT problems, anti depressants and anti psychotics caused it in my partner but after stopping them have gotten better over time 🧡

I was admitted to hospital for three days this week with paroxysmal Atrial Fibrillation (rapid rate) they did this to monitor me because they increased my beta blocker (Sotalol). Yesterday my cardiologist told me I now have a slight increase in my QT prolongation, which can be a side affect of taking Sotalol. I was told to get another ECG done at my GP in a weeks time to check the QT prolongation isnt getting worse.

I was had Long QT at 480. Doctor rushed me to A and E after she saw my heart rate was 140 at resting. Im waiting on holter results and echocardiogram is on Thursday

Yes, the last EKG’s I’ve had showed a prolonged QT, I will finally get in to see a cardiologist this coming week. Did you have any shortness of breath?

I recently was in hospital with a fecal impaction too! They gave me colonoscopy prep liquid and it cleared me out, I was terrified I’d have to do the enema but didn’t have too. Mine had an unknown cause, so of course my brain went “colon cancer, MS, ovarian cancer” 😑😑

Can I recommend you watch Lorimer Mosely’s amazing protectometer not for the protectectometer but I think you will find it beneficial

Just get a portable 6L Kardia from Amazon and subscribe to it that’s what I done - it can do EKG anywhere to give you peace of mind

My ECGs show prolonged QTC but only with fast heart rate. Cardiologist says he thinks I have LQTS, no family history. I had some anxiety my heart rate was 123 showed prolonged QTc then he checked when my heart rate was 90 it was normal 10 mon later. I've had 20 ECGs all normal except when my heart rate fast. They want me to start beta blocker , I already have low blood pressure. I asked cardiologist if he hand calculated he said no machines are accurate. Anyone have any advice ? I have extreme anxiety

My qt 378 and qtc 487 what i do it is serious or not ? Anyone tell me plzzz

I woke up this morning remembering i had a higher heart rate last night. So now my heart rate went from 100 to 160, thinking i had a heart attack or other heart illness. My heart rate is still a bit high (normal 85-95bpm, now 95-110bpm). Probably from the caffeine, i never drink that much caffeine a day. When i think about it, it goes up real quick, when i'm talking, it goes down a bit. I have a pulse thing at home, but try not to check every 5 minutes.. probably nothing, but ill contact my doctor.

Sup girl how are you doing

Hope u gonna stop worrying about it now