Q&A: What is Ewing sarcoma? | Texas Children's Cancer and Hematology Centers
Рет қаралды 61,019
Күн бұрынThe Faris D. Virani Ewing Sarcoma Center, part of the Solid Tumor Programs at Texas Children’s Cancer Center, is dedicated to research, advancement and treatment of Ewing sarcoma, the second most common bone tumor in children. The center was officially established by Dr. Asha and Mr. Farid Virani in honor of their son Faris’ battle with Ewing sarcoma.
Topics in this video:
00:21 - What is Ewing sarcoma?
00:45 - What are the symptoms of Ewing sarcoma?
01:06 - How is Ewing sarcoma diagnosed?
01:30 - What is the typical treatment plan for Ewing sarcoma?
02:05 - What is the incidence rate of Ewing sarcoma?
02:24 - What Ewing sarcoma research is being conducted at Texas Children's Hospital?
03:56 - How is the Faris D. Virani Ewing Sarcoma Center unique?
05:08 - How can parents contact the Faris D. Virani Ewing Sarcoma Center?
To learn more about the Faris D. Virani Ewing Sarcoma Center at Texas Children's Hospital, please visit txch.org/cancer-center/solid-t....
@israelmiguel8768 3 жыл бұрын
I was diagnosed in 2019 when I was 29 years old, thank God now I'm healed! Keep the faith, because God is with us all time. We need God. Keep the treatment from your doctor and just have faith. God bless you all.
@Laadrianaaa1990 3 жыл бұрын
💯💯🙏🙏
@notsayingc2192 3 жыл бұрын
My daughter was diagnosed last week at 30. It scares the hell out of me.
@israelmiguel8768 3 жыл бұрын
@@notsayingc2192 just have faith in God, the lord definitely has all we need. God bless your daughter. Peace!!
@notsayingc2192 3 жыл бұрын
@@israelmiguel8768 thank you! Be well and god bless
@israelmiguel8768 3 жыл бұрын
@@notsayingc2192 amen!
@young9869 4 жыл бұрын
I was diagnosed back in 2013. Stage 4 had spread to my lungs. Anyone out there who may be suffering, just keep fighting on, no matter the odds.
@pyrefly7575 4 жыл бұрын
Same happened to my bro , sadly enough he didn't make it , happy you made it tho !
@young9869 4 жыл бұрын
@@pyrefly7575 Sorry to hear that, I appreciate it though
@pyrefly7575 4 жыл бұрын
@@young9869 don't worry I've gotten over it , :) I've found peace at last
@justaregularguy1234 3 жыл бұрын
I was diagnosed this year, already amputated my right leg and it also has metastasized to my lungs as well, still fighting it with my chemo. But I honestly don't know will I survive or not
@young9869 3 жыл бұрын
@@justaregularguy1234 How old are you?
@eva_pruiett 2 жыл бұрын
A girl at my school died of Ewing sarcoma and I want to learn as much as possible about cancer to try to find a cure/ better treatment options in the future.
@pyrefly7575 4 жыл бұрын
This shits rough , if anyone one of you is going through this I hope you make it out , back in the days this was death sentence
@kaylynrivera5245 6 жыл бұрын
My brother just got recently diagnosed with ewings. He got his port last week and he starts chemo tomorrow. I'm honestly very shock and never thought this would happen... I hope this process is easy..
@last5181 5 жыл бұрын
God bless you
@deepakostwal2905 5 жыл бұрын
How is he sir
@lunaphoenix2025 5 жыл бұрын
God bless you🙏
@sushantkainth2849 3 жыл бұрын
How is he now?
@melaniesayoto815 3 жыл бұрын
Pray for you ❤️
@aidanwaddell9348 7 жыл бұрын
I had this cancer and i was diagnosed when i was 6 now im 13
@lordofgibby4160 7 жыл бұрын
Aidan Waddell you are strong
@izzysvlogchannel2109 6 жыл бұрын
Aidan Waddell strong
@Marbaby92 5 жыл бұрын
Aidan Waddell were you vaccinated before diagnosed with it
@pyrefly7575 4 жыл бұрын
My brother died of this , thank your doctors and your caring parents . And good luck with your friendships since you're now so much more mature mentally than anyone else bcus you had to face death at age of 6
@No-qwewe 10 күн бұрын
Hello are you okay now?
@561Hero 2 жыл бұрын
My sister was diagnosed at 26, 4 months before her 27th birthday. 8 months of treatment later she now has just days left to live.
@Sarinajan1990 6 жыл бұрын
I was diagnosed with Ewing sarcoma when i was 13. Now i'm 27. Unfortunatley the Tumor was on my spinal cord and now i'm paralyzed.
@weirdnessmasterd2539 6 жыл бұрын
Sarinajan1990 I’m really sorry. My cousin just got diagnosed with this and it’s wrapped around her spinal cord....
@fernandapalv7392 6 жыл бұрын
Im so sorry..... 😪😭😥
@yogiraj3995 5 жыл бұрын
I am 39 . 30/04/2019 digonis Ewing sarkoma
@annahchimwara4719 4 жыл бұрын
Sending love to all of you guys❤🌸
@mycah1993 3 жыл бұрын
Sending prayers
@yylaminator 4 жыл бұрын
I had this on my chestwall, it was fully cut out but i still have to undergo chemo for safe reasons. Have to do every 3 weeks 6 cycles. Next week the second starts, for now im doing preety good with the chemo.
@skyewilliams9343 4 жыл бұрын
Massimiliano Rossi you only have 6 cycles?? I have an overall 14 cycles.. I'm currently on cycle 8 :(
@yylaminator 4 жыл бұрын
@@skyewilliams9343 where was or is your tumor and do you have metastasis?
@UmarHassan. Жыл бұрын
I survived it in 2020 there was 12 cycles I goes for follow up and it relapsed in 2022 now it's my 4 cycle total is 10 I am 16 and it makes me stronger mentally
@GravyMilkJelly 8 жыл бұрын
kek, I have this cancer. diagnosed at early stage.
@deepakostwal2905 5 жыл бұрын
How ya doing now
@nasserali1175 5 жыл бұрын
Just got it
@flixzyshotz2521 4 жыл бұрын
@gravyboy are you still alive and well
@nadimmusaevi5267 Жыл бұрын
Sizinki kac santimiydi
@itsmeminhaz3784 10 ай бұрын
My uncle suffered from Ewing sarcoma for 2.5 year now he is resting in peace. May Allah grant him jannah
@sde8383 6 ай бұрын
Had it at 10 years old. I survived with chemo and radio. Not a death sentence. But not easy either.
@viharkhandhar3192 4 жыл бұрын
a kid in my grade died 2 days ago bcz of this cancer, he was only 14 :(
@bucktooth3684 3 жыл бұрын
I just got this diagnosed to me yesterday and this disease is not nice
@DrespoTV 3 жыл бұрын
Hope you are doing well friend!
@bucktooth3684 3 жыл бұрын
@@DrespoTV thank you I have 2 months till my operation just doing doing proton beam therapy right now for 6 weeks
@DrespoTV 3 жыл бұрын
@@bucktooth3684 Keep strong buddy, god bless you ❤️
@bucktooth3684 3 жыл бұрын
@@DrespoTV thanks man 🙏
@bucktooth3684 3 жыл бұрын
@@DrespoTV hi man just wanted to say I finished my operation a month ago they took at my collar bone and I’m cancer free now!!!
@briang.g4112 4 жыл бұрын
my little brother is currently diagnosed with this, the cancer has grew so big on his shoulder joint....we need help please!! ...we are PNG...
@surethreat291 4 жыл бұрын
How is he?
@briang.g4112 4 жыл бұрын
@@surethreat291 After my plea, he passed away in November 26th 2020!!
@surethreat291 4 жыл бұрын
Santoh Mahn sorry to hear. A girl i know just got diagnosed with stage 4. Shes beautiful and funny and nice, a truly amazing person i hope she makes it
@briang.g4112 4 жыл бұрын
@@surethreat291 wow thats an inspiration...Great news!! 👍
@surethreat291 4 жыл бұрын
Santoh Mahn what
@JackKingOS 4 жыл бұрын
my buddy tayden died 2 days ago from this😭 #taydenstrong
@pyrefly7575 4 жыл бұрын
Tayden had really bad luck but he surely died happy knowing ppl like you would care for him
@Ace_xsc 4 жыл бұрын
my cousin died from this yesterday she was 17 yrs old almost 18 in one month😭😭😭#gontosoon
@shikhachauhan3128 3 жыл бұрын
My friend is suffering from this disease I want to know that how many month it tooks to cure and how many chemo is given to patient plz reply to me plz
@UmarHassan. Жыл бұрын
12 cycle 10 months dose
@kylerspang2148 10 ай бұрын
9 months of it I have it but if it’s early he’ll survive if it isn’t man either amputation or he may rest in peace
@lostsoul4317 12 күн бұрын
@@kylerspang2148how are you now? What was your case?
@kylerspang2148 12 күн бұрын
@@lostsoul4317 thanks for asking just beat it 3 weeks ago! In recovery! I had Ewing sarcoma at a stage 2 it was just starting to spread to my lungs. But did radiation and 14 cycles and I’m good now!
@kinemasteredite5558 2 жыл бұрын
I got the fucking ewing sarcuma and i am from bangladesh
@561Hero 2 жыл бұрын
Goodluck
@madisynsickafoose2509 8 жыл бұрын
I had this cancer. they found it when I was 6 not teen age years😂
@NanaMuffinLady 4 жыл бұрын
I'm 27 and they just found it😅
@NanaMuffinLady 3 жыл бұрын
@Jibon Sarkar I'm okay, thanks for asking. Had 3 of 6 rounds of chemo, waiting for results on the last CT and MRI. Chemo is tough but they have good medication to treat side effects. They may do radiation afterwards. It's localized.
@NanaMuffinLady 3 жыл бұрын
@Jibon Sarkar I had an obvious tumor that grew at my jaw back behind the teeth. Small at first, the spot felt sore. Then it grew faster.
@NanaMuffinLady 3 жыл бұрын
@Jibon Sarkar the tumor did not hurt, no. But the chemo makes my body hurt for a couple of days and the neulasta shots cause some nasty bone pain. If you have something that concerns you, go to a doctor. Don't take “it's nothing“ for an answer and demand either CT or MRI.
@NanaMuffinLady 3 жыл бұрын
@Jibon Sarkar the tumor did not hurt, no. But the chemo makes my body hurt for a couple of days and the neulasta shots cause some nasty bone pain. If you have something that concerns you, go to a doctor. Don't take “it's nothing“ for an answer and demand either CT or MRI.
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