It would be really nice if the videographer would show the slides, instead of just showing the Dr point into space…

Thank you Dr Allen for saying it is not trivial. It's devastatingly miserable.

RLS for me is an overwhelming feeling to move your legs. It even goes into my arms.

I've been suffering with this all my adult life, (I'm 61), and one of the things that has often given me instant relief is laying in certain positions. One position is like the yoga "child" position - legs folded up underneath you when facing down, (I use a little pillow to support my head). The other position is laying on my tummy almost like in recovery position. Sometimes the relief is immediate, maybe only for half an hour but even that is blissful after the constant sleep disruption. I have also been taking gentle iron for years with, initially, huge success but I now take more of it and get less and less success, and of course, you have to be careful not to overdose on iron. Overall, I live my life with a constant headache through lack of sleep; every other aspect is healthy, I keep exercised and fit, eat a good diet, don't smoke or drink, cope fairly well with other stresses, but the lack of sleep is the one thing that messes up my health.

Feels like all the leg nerves are being electric shocked.

Wish I could see the video he is playing.

Please try magnesium! When I first had symptoms of RLS it felt like snakes or bugs crawling up and down my legs, mostly at night. After putting up with it for a while I finally went to my local health food store, spoke with the nutritionist and immediately she recommended Magnesium. IT WORKS! As long as I take my magnesium every day I’m not bothered by RLS. I’ve been taking it for over 15 yrs. It’s a life saver. Magnesium is great for the whole body also.

It's a torturous feeling of electrical impulses that make your legs twitch & jerk and you are unable to sleep. It sucks. When you are exhausted it is hard to function.

Would have been nice if we could have seen the video of people moving

Great lecture and information. But, the camera controlling person strongly needs to work on his/her recording skills. More than half the necessary information is not even recorded.

I have RLS , I've had it for over 25 years. I've seen a neurologist and had probes attached to make sure everything was working. I also went to a sleep clinic, had to sleep with probes on my head and arms and legs. That night when I slept, my legs kept still. Going a long distance in a car, is a nightmare, and on a plane, even worse. My son and daughter have it too.

It's like the inside of my legs itch or tickle. And as I drift off to sleep, all of a sudden, my legs can't get "comfortable" and I have to keep moving.

Just read through comments. People have found help with: 1. Magnesium - taking Calm before bedtime. 2. Keto diet. 3. More potassium in diet. 4. Iron deficiency. 5. Soap in bed by feet (try different soaps if one doesn’t work. 6. Hot bath before bed. 7. Leg massage. 8. Vitamin B12 9. Wine made my RLS worse.

It’s crazy hearing the description every single time. Im not alone or crazy. I avoid caffeine, stress, sugar, overstimulation after 5pm. If I so much as take a bit of cake, it’s game over. If it gets too unbearable and I’m already sleeping, I just fold my legs and arms under me until all my limbs fall asleep and then move my limbs out from under me. There is that “just coming back from having fallen asleep” tingling but other than that I am good to sleep.

shame you did not span the camera to show the video screen

I had RLS for decades, recently my GP prescribed Appese, or ropinirole 0.5 containing hydrochloride 0.5. Wow! The first night I took this tiny tablet I had NO problem with RLS. I have just finished a packet of 28 tablets and not one hint of RLS. It was like magic. It remains to be seen if this keeps up forever, but so far, really incredible.

Yes, I too wished we viewers could have seen what the attendees were seeing.

Its terrible! After working all day and being totally stressed out , you finally are exhausted and really need to sleep But. Then restless legs start , its horrific, aggravating, frustrating, torture , i have RLS and my feet also burn and now im experiencing sharp pain in both feet. Im up at night by myself with no one to talk to. Dealing with Restless Leg Syndrome and depression is overwhelming!! Finally I have been given Ropinrole and its helping me sleep. But. I was told the meds can make the condition worse. Now im worried because i can't imagine this condition worsening. Oh please Doctors, find a cure!!!!!!! People need to share with their doctors how bad this is so we will get more research on Restless Leg Syndrome

I don't notice it terribly much during the day. It just keeps me up at night. And it hits when I'm too sleepy to realize Why I can't get comfortable. If I can wake up enough, I take magnesium & water and I'm much better. the Mag also helps with leg cramps.

“Your legs start moving and you can’t stop them”. NO. It is not involuntary motion. It is an unpleasant sensation that requires one to voluntarily move.

It’s too bad we Can’t see the images/overhead he is talking about.

Why not show the videos??? My ex husband has it!!

It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is adapting a before nap time workout ethic routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your work out in your room at night and before bed. That's my conclusion and cure after 38+ years, too. It is the average age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the midnightght mark to 1am. It is too cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.

This video would’ve been a perfect video as it was so informative however being able to see the videos and slide shows I feel I miss something very important to be able to see what it looks like.

What’s it like? Hell. No other way to describe it. I live with Severe RLS and it affects my arms, my neck, my whole spine and my legs. All day, all night and I’m permanently medicated to keep it somewhat under “control”.

RLS forces you to move your legs, modulating the sensations associated with RLS. Most common are tingling, aching, shooting pain, itch you can’t scratch, pins and needles, cold or hot feeling... So when you move your legs, it goes away for about 5-10 seconds. From personal experience: magnesium pills, iron, heating/cooling pads, sleeping potions, compression, massages....help. Some outside help will be exercising, decrease coffee intake, physical therapy etc. But the most common theory is iron deficiency

how can we see the presentation

I wish we could see what they are seeing...

I explain it like it feels like I have anxiety or a nervous disorder in my legs. It's isolated to my lower back and legs but my entire body and soul feels so nervous and restless while incredibly tired. Miserable!

I’ve had restless legs as long as I can remember even as a young child I just feel like I have to move my legs and I can get up and run a marathon a few years ago I discovered I was anemic and low iron, and until I got my blood transfusion. My restless leg syndrome was the most severe. It had been my whole entire life, I just figure it’s something I just live with

You can't sleep. Sometimes, I walk the floors all night crying. I'm so tired. Mine was low iron. It's a lot better now! My sister has it too

I have sever restless leg syndrome, I had it as a child. My mother and my father suffer also. Im ADHD and have been all my life, it got worse in my late thirties. ALTHOUGH I had this a a child. I’m also iron deficiency, I have thalassemia minor, and I’m sure I need more B12. I don’t sleep at nigh, I’m miserable! I was sent to a “quack,” psychologist, and was told I have OCD, and I am bipolar. Not getting enough sleep is emotional straining .. But Bipolar probably can’t be diagnosed in a ten min session. Im not educated on the subject, but common sense must come in to play here at some point. I’m not a Doctor but I have done quite well on common sense . Gabipintin is something I haven’t tried but ambian is something I have and I thought it worked most of the time. but supposedly it’s like crack on the street and not given out anymore. I’ve now been going on three years with very little sleep. Im sure the quack would have me committed to a new government mental health hospital and in a straight jacket on who knows what medicine and pissing in diapers. I choose to newer enter that place again.. I’ve had to quit work so I can’t get some sleep. I feel electricity is moving through my leg and it travels to my arms. I find walking around at night calms it down in me. but doesn’t help on the sleep side. Believe me I have completed about this for years with all kinds of Doctors. Yes I’m probably a bit crazy by day four without sleep. Do you know of a Doctor in the Dallas are that’s well versed on this? I would be so great-full. God bless ,

Should have shown us the patients .

Why can't we see the film or photographs under discussion.Why does the camera stay fixed on the lecturer

you can improve iron by reducing inflammation, which can cause functional anemia, and this will not show up in standard blood tests.

It's awful. I have it. It's like cramping pulling, I can tell when it's coming on. Nothing but meds will stop it.

It's a sensation along the muscle, some like a tickle. I've had it for over 60 years and still suffer. Not just being hot or sitting still, or in bed. A sensation that you can feel, not an unconscious movement. Can be in a4ms, legs, back, hips.

You only touched on opioids. No drs suggest opioids, but it's a top tier treatment for severe RLS. I discovered it myself by accident while in the hospital after a serious injury and being on Morphine. I have had RLS since my late twenties, am now 68, and have been taking 5 - 10 mgs of Methadone at bedtime since 2016. This has been the biggest help. You're right; dopamines like Ropinirole eventually produce augmentation. I called it a love-hate relationship. I've learned that diet matters. I'll have to try an iron I.V. Thanks for trying to educate neurologists.

Try no sugar intake after midday ..no bikies ..no foods with sugar ..works for me after years of helplesnes ..

He must have shown the graphs for clarity. Is the IV tretment one-time procedure or extended over a period? What is the effect of taking iron tablets; increased intake of iron- rich food items?

I have been taking Ropinerole for years

I agree, why can’t we see the slides!!!

I have had this syndrome since I was in my mid thirties, I am now 72. Most of the medication no longer works and I spend my nights moving from a bed to the sofa, sofa to kneeling on the floor, walking and then laying on a hard floor. If I get three to four hours of sleep each night I am lucky. This disease runs in families with my elder brother, niece, nephew and sister all suffering to various degrees. The majority of doctors do not take it seriously, most believe it is a psychological problem and some just dismiss it out of hand. Apart from moving around, I fill my nights doing chores or anything that moves me around.

Can't see the slides.

My daughter goes thru her bottom fitted sheets like crazy from it

I think I am going to ask my doctor about getting this looked at. Especially the referral to psychiatry bit.

RLS destroyed my life. It’s gotten a bit better but that time it completely destroyed my immunity. Constantly sick and sleep deprived. Terrible

I have an excess of iron due to a blood condition…and I have RLS….

I have it only in my left leg. Is anyone like me?

I have had this problem since I was in early thirties. I am now 72 yrs. I have tried everything you have talked about. They didn't help me all that much. I have restless body syndrome. It RLS on steroids.

I started having this condition when I started taking antidepressant that it’s said amass a side effects and also Benadryl right now I am withdrawing the medication I am expecting to get better but never sure enough, I usually started with the RLS after taking the medication and last for 6 hours at least and like you said I barely sleep just few hours the gabapentin doesn’t do anything for me

Why can’t we see the slides you are showing🤷‍♀️

There is no picture to see

we can't see the screen you are talking about.

Great video but now I’m confused because he said women get rls and men get Parkinson’s ? Yet he showed a video and described him as having restless legs can you explain what he meant by all that because I’m a 48 year old man and haven’t had any luck with my doctors

My grandmother had to get up and walk around

This would be more interesting if we could see the slides. Also, BEWARE Pramipexole (Sifrol) - this has very unpleasant side effects. Other research I've read said anything with anti as a prefiix is a possible causative factor for RLS - mine started from taking amitriptyline for 10 or so years - this is commonly prescribed for (as a low dose) sleeping problems with Rheum Arth.

At its worst I could count to 5 and my legs will kick. This for hours at night.

We can’t see at the monitor

I can’t see the video he’s referring to.🤨

is the cameramen minddeficient? please, if a speaker wants to ilustrate something at least follow him in his effort, if not what's th point for god sake'

THE GREAT DOC ALLEN! HIM & DOC EARLEY WERE A TEAM TO BEAT RLS. I LOVE THESE TWO MEN. I have the great fortune of seeing Doc Earley at JHH. THIS DISEASE IS A LIFE OF HELL AND TORTURE. SAD 😔 😟 🙁 😥 OPIATES SAVED MY LIFE. MY RLS IS EVERYWHERE WITHOUT MY MEDS. I wouldn't drive or work or go in public.

Since I've gone on the keto diet I am not bothered by restless legs are cramping anymore

If it the same it painful and muscle spasms

It's 4:08 am and I haven't slept

Me. For 40 years and very serious .

Thank you , thank you soo much , it drives me insane & unfortunately I also have tinnitus as well , I swear 🤬 it drive me insane . The jerking legs , the feeling of it crawling under my skin , Im now looking for treatment 24/01/2024, I developed it in hospital after a life saving heart ♥ surgery in Nov 2014 . so thank you so much for bringing this to the public forum .I'm starting to look into taking Iron & magnesium which I also have read it helps but as I take warfarine it could effect my blood thickening??

He didn’t discuss gabapentin? My bad - he did, I’m just exhausted and can’t sleep for a second night in a row.

I have just started having restless legs & I can’t get a good nights sleep. My doctor says I am slightly low iron level. Will iron tablets help me please. Or do I buy vitamin B12? Please help me. Thank you. 🏴󠁧󠁢󠁳󠁣󠁴󠁿

People will say sit down relax....nope I cant.

Hello. I have it so severe that they put me on Mirapex. I have been on it a year. I am seeing side effects of the drug. I want to get of of the medicine. What else can I do. I have had it more than 30yrs. I have taken it for over a year and now it is starting not to work as well.

It's not a disease. It's a symptom of a number of possible causes

My Dr. said take Tylenol! Oh my goodness, that actually made be angry.

Believe it or not , but a kosher dill picked Sperry before bed will eliminate restless legs and arms and make you really sleep...

Gabapentin caused bone loss in me and my sister. Please address that before recommending it

Gabapentin does not work for me. I take them drug he says not to take. I have it every day. I have noticed that I have to get the does adjusted up periodical Sometimes that docent work. I sleep about 5 to 6 hours a night sometimes less.

I had an MRI. You must stay still while your in it. That can be really hard 😕 I take gabapentin and pramipexole. Mostly it does help.

Some arthritis, fibromalgylike(gone), spider veins , halux,flat foot, gout, cramps,this Coke-thing, sciatica, hernia, slight Alzheim, - all together. Help? Never smoked /drank. Age 55 to 70.

PSA: RLS is simply a vitamin B1 deficiency and Potassium Deficiency. Source: Dr. Eric Berg

Magnesium takes mine away.

I get tremors and throbbing is this the same thing?thanks!

Where is the research for a cure or a gold standard medikament that lasts without Augmentation? U know the Genes which are involved : Meis 1 Gen as for instance. What about the iron defficiency? Problem of to less iron in the brain or Problem of transporting iron to produce Dopamine ?

What is he pointing at? The cameraman had restless legs and couldn't sleep last night

Hot shower or bath , only thing that have helped.

What about vitamin B1?

The RLS is severe. 😖

I am a male, and this disease drives me nuts!

Why is he not showing the actual patient? He should have blown his nose before going on the record? Cannot stand the sniffling. TUNNING OUT!!!

17.30 the new medicicne

How about taking vitamin B1, potassium and getting leg massage to flush the lactic acid buildup.

Women after menopause are not suppose to take iron

Absolute devestating desease that chokes lives !

Take dopamine for RLS

Surgery to relieve pressure on nerve tunnels?

Fabry disease? It could be. Do other family members have it? Legs and arms too? Its peripheral neuropathy. I don't know why they don't call it that when its not caused by medication side effects.

Restless legs are cause by what you intake like medication. Thanks.

A video featuring pictures and video clips, in which the videos and clips can’t be seen? Ah, No. Thumb Down; you lost me; Bye bye!

Makes life miserable

Poor video,

My husband had rls. After finding out that the drug the Dr gave him had a possible effect of instant death, we were delighted to come across the cure: put a bar of soap between your sheets at the foot of your bed. If one brand doesn't work, (dial soap doesn't work) try another. The 1st night, it worked. That was 2 years ago, still no jerking or involuntary kicking. Praise the Lord!!