Finding out you have Motor Neurone Disease - rugby star Ed Slater

Finding out you have Motor Neurone Disease - rugby star Ed Slater | The Big Jim Show

Рет қаралды 63,413

Жыл бұрын

Listen to the incredible conversation between Jim Hamilton and Ed Slater on Spotify - open.spotify.com/episode/7sEv...
Support Ed here - justgiving.com/crowdfunding/g...
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Пікірлер: 98

@thegreatbrankoni 9 ай бұрын

What a wonderfully articulate and honest man. Never heard of him before. Well impressed.

@Intellectuallyanidiot 17 күн бұрын

Ed is a strong man and extremely tough. How laid back he is here speaking about something so horrible and personal. I wish him all the best, may he get through this battle. There has to be something done to make rugby safer as there is a connection with MND and the impact of rugby, its a tough sport for really tough men.

@cameronbeaton1006 Жыл бұрын

Stay strong Ed. Thank you for letting us into your journey!

@sampilkington5597 Жыл бұрын

My Dad has recently been diagnosed with MND. Words can’t describe how devastated I am. But listening to you has reminded me that staying positive is the most powerful thing you can do. Best of luck mate and best wishes

@perxxan5534 Жыл бұрын

Can’t even imagine how you feel man I wish the absolute best for him, you and your family. Just want to send positive energy to you and him no one deserves to go through this I’m sure he is a great man with a wonderful family. God bless you and your family from the bottom of my heart and please try your best to be positive and appreciate every moment and live life to the fullest with your family. At the end of the day that’s all that matters. Really wish the best for you man reading your comment broke my heart.

@paulrichards6894 10 ай бұрын

feel so sad for your dad.....horrible disease....hope 1 day they can find a cure

@thereisonlyoneway 3 ай бұрын

search for Mark Manchester

@FRU.No.1 Жыл бұрын

Brave lad, quality player.

@Drifty325i Жыл бұрын

Thanks for telling us your story Ed, honestly mine was almost identical, ex rugby player, same age, same symptoms, similar testing (allot of different specialists) same time frame. I failed all of the tests, had allot of atrophy in my hands, then had a lumber puncher done (horrible) time went on and I was sent to another neurologist for another opinion I was extremely lucky in that I didn't actually have MND, I just have severe cupel and carpal tunnel on both sides. I'm feeling for you my man, keep positive and do what you can now. I went full throttle on living when I first was told ive likely got it

@hmq9052 Жыл бұрын

Why are rugby players getting it though?

@isyt1 Жыл бұрын

I’m going through the diagnosis myself as a previously sporty bloke in my late 40s. Atrophy in right hand and very weak pincer grip along with big reflexes and also fasciculations in my calves. Neurologist says it’s likely MND but they have to see some progression first to get a formal diagnosis. I also want to go full throttle on living but I’m waiting for that diagnosis as I don’t want to get in to more debt etc if it turns out to be nothing. In the head burying in sand stage I suppose Great yours has turned out to be carpel tunnel as that’s treatable. They said I don’t have that as I don’t have any sensation changes in the hand. Anyway, What an intelligent, cool and rationale guy he is. Hadn’t heard of him before tbh. And I’m going round checking my grip every day too lol. It’s all very relatable

@stevenclark1973 Жыл бұрын

@@isyt1 Hope you're ok bro...

@stevenclark1973 Жыл бұрын

@@hmq9052 It's not just Rugby players bro... it can come to anyone at any age. Lost my dad a couple of years ago with it... never touched a rugby ball in his life. For me, it's the worst debilitating thing you can ever get. It's cruel. If you get cancer you have a chance... not with this at the moment. Thoughts and love sent to anyone who has this or any friends or family with it. Let's hope they find a cure for this sharpish.

@anthonylodge7516 Жыл бұрын

It tends to afflict athletic people more than others. Not much more. But there is a higher incidence.

@markwt2680 Жыл бұрын

Kudos to Jim for a brilliant interview. 3 mates having a good laugh but a super serious part handled with love, honesty and caring.

@paulpretorius5040 Жыл бұрын

All of the best to you my friend. You are an inspiration to the world. Greetings from South Africa 🇿🇦

@nicprince4198 Жыл бұрын

Stay strong and Stay positive mate. Best wishes!

@stevenclark1973 Жыл бұрын

Brilliant video... spoken so well... total respect to you... dad had this horrible disease and I never knew what it was when I was with him when he was diagnosed after all those tests... until I got home and googled it. We're all with you on this.... they will find a cure for this or find something to halt it. Thoughts are with you friend... take it on... give it the two fingers and keep going. Hopefully a cure is just around the corner.....

@loveanimals969 Жыл бұрын

Heartbreaking. It must be horrific when you are told it is MND. God bless.

@simonbennett6235 Жыл бұрын

Ed, you are great speaker .I’m sorry you have been diagnosed with MND .My mother had the same . If you want to do a sponsored walk. Let me know. A Gloucester supporter.

@stephenmyers4319 Жыл бұрын

Im 33 as well. haven't been diagnosed yet, had blood test done, and all came back good. Booked in for an mri next friday on my head and back. I know deep down i dont have much time left. Every day gets harder and harder, day by day i feel my self getting weaker. I find my self loosing balance and tripping over at work im struggling to climb up and down the ladders. Muscle's shrinking, constant twitched though my body. Its going to be a horrible way to go with our brain still working but the body shutting off i just think thank god its me an not any of my friends or family. Im not so worried for myself but more so that my 5 year old daughter will grow up thinking "wish my dad was still alive" its that thought that really nocks me about. Been lucky enough to raise her by myself the past 4 years just hope i get to see her first day of school. Its sad there's no cure yet. Good luck brother

@lesleymaclennan7899 7 ай бұрын

Praying for you 🙏🏾❤

@johnilbehonest Жыл бұрын

I'm sorry to hear, nd sorry ur going through it.

@marksheehan8026 10 ай бұрын

Hey Ed never heard of you before this interview.. Ive got you my prayers .. healing n peace n wisdom mate Ps 23..

@lydiamoore142 Жыл бұрын

Prayers go out to you. My brother had it, and amazingly, he was able to talk well to the very end. Talk to Jesus. He really does listen to you. He did me, and healed me from needing a heart transplant, to healing my own heart.

@kevinwatson4935 15 күн бұрын

Great interview. The host was good, let him talk uninterrupted.

@31415926535ism Жыл бұрын

Very best wishes Ed.

@heatheringram14 3 ай бұрын

Thanks for your video. It's really helping me. My husband is in the process of potentially being diagnosed with MND, currently he's only at the MRI stage

@douganthony6424 6 сағат бұрын

Experts always tell us that muscle weakness is always the first symptom, but we again see that many times it is muscle fasciculations that show first.

@pam164 Жыл бұрын

I have BF and had it 34 years I was so worried when my muscles all over body started twitching and Doctors didn't take me seriously as I was 27 at time. Thank god it was just FB I still twitch everyday but I ignore it. So sorry for this man and he is so young.

@ClairePettitt 20 күн бұрын

I am in this place right now with identical symptoms going through identical testing It’s hell pure hell mine has been going on for 3 months and is getting worse

@mariussolomon5398 Жыл бұрын

All the BEST ED. 🙏🙏

@dabruscar Жыл бұрын

Best wishes Ed. Fight on mate.

@rugbyhub72 Жыл бұрын

Thank you Ed for sharing stay strong man 💪

@MrKelso85 11 күн бұрын

Brave lad thank you for sharing

@jimharries2070 Жыл бұрын

Stay strong brother

@janiesusanedwards9651 Жыл бұрын

❤ he is doing so well for him safe I am so proud of him😊

@Bapi802 Жыл бұрын

There is any cure for mnd Or als

@TeresaDonoghue 18 күн бұрын

God bless you & keep your courage & strenght Ed, Such bravery, makes you ashamed for stupid moanimg ,XXXX

@neil5006 Жыл бұрын

All the best Ed 🙏

@timwannell6477 Жыл бұрын

Best wishes Ed

@rakoelie7581 Жыл бұрын

thats a strong human being

@matthardy5496 Жыл бұрын

❤ ed slater

@FFTsteel 5 ай бұрын

Brother, love you. I pray for you and I hope you are loved to the end. I cannot imagine.

@robz1471 Жыл бұрын

Love ❤️ ed 🙏

@melaniebail Жыл бұрын

Be strong young man… that’s is the monster disease ever my heart is broken for your illness worst ever in this planet my dear husband had the same and up to today I can’t recover

@NinoNiemanThe1st 10 ай бұрын

What a brave man, balanced and realistic about his disease, but just getting on with his life. Total respect to him for talking about it! No prayers, Jesus or herbs, just realism.

@MrSuperdave75 Жыл бұрын

I hate to think the amount of times i got head knocks in 16 years of playing rugby. I never got comcussed or at least I didn't think i did. Still, i was groggy many times.

@bigyin2794 Жыл бұрын

Not sure if this has been discussed, but how much is head contact, concussion, CTE etc, ie being a forward, being investigated as a risk factor for MND?

@ashdrive Жыл бұрын

My sister has it, what a change within a year, hence seeing this video just to get as much info as possible.

@denisehadfield7995 Жыл бұрын

My brother got the diagnosis last week he has MND. I am devastated…

@sharonvisser3531 Жыл бұрын

Great interview Ed - Your story is almost exactly what most MND patients go through. This is a devastating disease. Stay strong.

@phildavies9690 8 ай бұрын

I'm just a nobody whose been researching MND in the hope of helping a loved one. If someone is reading this who works in medical research could maybe consider if fertilizer like blue green algae ( sold on Amazon) plays a role as a neuron toxin. This lovely tough young fella might have come into contact through injury.

@denvik 5 ай бұрын

how can i connect with you ? any insta / twitter or mail ?

@barnbersonol 9 ай бұрын

"Going forward" one of those current buzzwords thay annoy tf outtov me.

@derekbooth-yx4zs Жыл бұрын

A truly inspirational message from Eddie who sadly hit rock bottom. And he is well and truly loving the AA, meetings and helping others to understand there addiction then talking to them how they can get sober. And still go to AA meetings

@NEGAN310 11 ай бұрын

I lost my father to MND in 2015

@rogerward3390 Жыл бұрын

God love you 😍

@TheBullFather_ofAll 11 ай бұрын

Good looking man.

@shirleythompson8251 Жыл бұрын

💙💙💙💕

@Frank-fi1fb 4 ай бұрын

Twitching (even the 24/7 ones) as the first symptom of an MND is very rare

@il3mendo 3 ай бұрын

I unfortunately been diagnosed with a motor neuron disease 2 years ago. It s hard as hell. The major area which get affected are the lower limbs, achille s tendons, shoulders and neck pain. I wish you all the best.

@mriyke4719 3 ай бұрын

How are you now

@il3mendo 3 ай бұрын

@@mriyke4719 First of all thanks for asking. It s a struggle due to the facts that I found a balance with a pure and really limited diet and my social life collapsed. My health is great but emotionally I am not perfect. How are you brother ?

@iykegideon8199 2 ай бұрын

I won't say I'm fine I have heard the symptoms for five years now but I have not been diagnosed breathing problems has been issue to me

@il3mendo 2 ай бұрын

@@iykegideon8199 It depend, as we ll know everyone has a different side effects. I Just hope that you have been followed properly. Breathing issue can be a part of an allergy reaction, keep it in mind. 🤗

@shieldoflife2816 Жыл бұрын

There is a protocol that has slowed down ALS called the Diana protocol- there has been research articles and studies done- perhaps Ed can benefit- good luck and many prayers of hope to you Ed- 🙏🙏🙏❤️

@user-jv8nx8th3f 8 ай бұрын

I’ve had muscle twitching for about a year all over legs calf’s quads hand lip face arms there random but last in my calf’s longest I went to see a neuro and he said cramp benign faciculation syndrome. Still fear mnd to this day. But any twitches out there listen to ed he was twitching in one area and got weaker in that area random twitches arnt mnd you might twitch in leg hand shoulder all in one day. I don’t have any weakness 1 year in

@joshr920 8 ай бұрын

If you don’t have any weaknesses it isn’t MND

@user-jv8nx8th3f 22 күн бұрын

But he had twitching before weakness …. Explain that one

@leigh7507 Жыл бұрын

A fair amount of Rugby and NFL players getting ALS. Not sure if theres a link with heavy impact sports.

@rebekahsprlyan6982 8 ай бұрын

From my research there are some indications that high physical activity, as well as head injuries are linked to MND. There is still no one cause identified, it’s a horrible and complex disease