My last attack lasted 6 weeks. Morphine, oxy, or fentanyl didn’t touch it, had 2 procedures (first didn’t work) was in the hospital 10 days. This is a brutal condition that takes over your life. I hope a cure is found soon! ❤ my heart breaks for all who suffer

You poor soul,I pray you find a cure for this terrible disease.the medical world of science need to start doing more for people who are really suffering from this awful disease.

Thank you for talking about your experiences. I think the most frustrating thing about trigeminal neuralgia is it is progressive. I'm coming up on 3 years and I don't think I could do another 12. You are much stronger than a lot of people. We need a cure.

May God find a way to relieve her pain forever! Remember God, he can do anything for his children! There is always a wayout to every problem! 🙏

People think they have felt pain have never felt TN not even 5% of it, its brutal I would shake uncontrollable crying nonstop it's pure evil

Thank you so much Ruth for sharing your story and thank you Ryan for your love and support. Like probably everyone on this feed, I too suffer from TN, but nothing like you have...my heart goes out to you, you're truly a brave soul.

My heart goes out to you. I feel your pain and the attack you filmed? That was literally like watching myself last night. I was officially diagnosed in 2016, but have had it since 2010. So 12 years. I have TN1 & TN2 on both sides of my face. The left was the worst side and so I had an MVD in 2017. I had four brief TN2 flares on the left side from April 2019-August 2019 and then no pain on that side until my right side decided it was going to sent me into an abyss of pain in the beginning of April of this year and then I started getting sporadic (very short) flares on the left and even though the flares on the left don't last longer than a few minutes the absolute agony of both at the same time has me sobbing and desperately trying not to scream. I have to rely on my mom to take care of me (I'm 34) because I can't work due to the pain. The only reason I can even type right now is Im highly medicated. I'm in charge of my own meds, but probably should let my mom or step dad dole them out since during the 2016-2017 flare on the left I overdosed on my meds about five or six times. I mean, I've been trying to be careful to not repeat that, and I am on a different med, but I may end up having to consider that eventually.

This is so awful. I'm so sorry for anyone who has to deal with this ❤️❤️

I have been in pain for a yr. I would never compare m🎉y pain with yours but i cant go out. It's because it's to painful. People have no concept of what pain is. Plus people don't believe you. I pray you get better. 😊

While I don't like telling people I know how you feel, I actually do know how she feels as I have bilateral t n versions 1 2 and 3 on both sides. I live with this every day and night, all I can say is fine the beautiful people and the beautiful things in your life and hold on to those for the next day

Thank you for your Courage on sharing your experience of TN. Hopefully, It can be a eye opener for pharmaceutical companies that better medication is needed now. We have to push for a cure an time is of the essence. God Bless You💗

I'm sorry I was just diagnosed with it on July 2nd. I feel all you feel. I'm scared 😢 praying for you!

Be strong ❤️ u are not alone.... Thank u for sharing your story

Your in my prayers Ruth you are a very strong 💪 woman and your husband is amazing God bless you both!!

I've had TN for over 3 years now. Recently I discovered a way to reduce the pain and keep it from coming back as quickly. For instance, if you have pain on the left side of your face, locate the same nerve on the right side of your face and massage that area. In fact, it would be a good idea to just massage the whole right side of your face which is opposite of the side that is hurting. This will reduce the pain that you're currently having, and keep future pain from coming back as quickly or severely. I'm only taking about one third of the medicine that I was taking before I started using this technique. This really does work, you have to you try it

My dear dear friend, hugs from all of my heart

We are working hard to find a CURE. Learn about our research and join our fight by visiting www.facingfacialpain.org

You are an extremely brave woman for doing this video in pain. I was diagnosed with trigeminal neuralgia at age 65 after having botched root canal on a lower molar on my right side. I had first attach for 5 to 6 months intermittent with gabapetin medication. It went away 2 years then returned in February 2023. It felt like the on switch was turned on again. I am on 900 MG gabapetin which controls most pain until it wears off during day. My trigger is trying to eat on right side or talk a lot. I hope they find a cure and I will keep you in my prays. Mary Fiorentino from NY

Oh my dear . I know exactly what you are feeling . I have it for more than 20 years now. I was googeling And came across you . I go got therapy Every Week . I have changed my diet . I Hope you find some bit of reliëf from this suïcide pain. Lots of love M xxx ypu hubby is great .

I had Cyberknife in 2015 after suffering for 11 years. The left side of my face is numb but it surely beats the pain. Wishing you all the best.

I am in tears watching this. My daughter has been suffering for over 20 years going from doctor to doctor. I just sent her some info on TN and sources in her city to go to. She has no idea what she has. She is suicidal and Im hoping that the right neurologist and treatment will help.

My heart breaks for you...and I understand, as I'm in a similar situation. Sending all the love...♥

Stay strong beautiful woman

After having TN 30 years, not constant but very bad at times. It originated from dental work. My last episode a Chiropractor found that my C1 and C2 in my neck was causing the issue. With regular adjustments I have not had any pain for several months now and pain free. I chose to NOT use medications or surgery over the years. I hope others find what works for them as I found over the years it comes and goes and what may work one time may not the next time. This last round I hope was the final for me. I would suggest to anyone to look closely at the neck possibly being the culprit.

I feel your pain Ruth and I sincerely hope you will wake up one day to no pain ever again. I suffer from it as well and you give me hope that I can keep trudging along with this. Thank you for posting your video and sharing your experience. I know it must have been very difficult to do so. God bless you.

I'm only a minute into this video but Ruth's description of her TN2, the crushing/squeezing torturing pain has me in tears because that's how I described my pain to doctors for several years until they finally diagnosed me with TN. I'm still waiting to see a neurologist-8 months and counting- and haven't be specifically diagnosed as it being type 2 but given my symptoms I'm fairly certain. I'm 34 and the symptoms started 5 years ago with burning and itching in my upper teeth, along the gums and a squeezing pain in my cheek with numbness. I didn't match with typical TN symptoms the electric shocks that are common with TN. So doctors suggested TMJ for a long time. Hearing Ruth's description of her own pain feels so validating.

I know exactly how she feels. I've decided to go for microvascular decompression surgery in a couple of months. I've tried everything and if it doesn't work, I don't know what i'm gonna do next.

Ruth, maybe you should give a try to Peptide BPC 157 and Palmitoylethanolamide (PEA), they both can help. Keep fighting, science is progressing every day !

My sister had bad TN and she would have attacks where the pain was excruciating. We found an Upper Cervical chiropractor in our area (regular chiropractors won't do) and now it is like night and day. He adjusted her Atlas vertebrae. She no longer takes the anti-seizure meds the neurologist gave her and she is on road to recovery. She still experiences a little isolated quick "shock" from time to time but they are becoming less and less. The upper cervical chiropractor says its normal and they will eventually all diminish. Please look for an upper cervical chiropractor in your area.

I feel your pain. I have it to ❤

I had breast cancer back in 2020 and after my last chemotherapy treatment I started getting pain in my jaw area and now 2024 am learning as it's gotten much worse that they believe it Trigeminal Neurlogia and I have more test and then there going to go over my options since medication were to much side effects for me. What surgery I might benefit from. If it wasn't for my amazing kids I don't think I could have made it . I definitely haven't gotten bad can't eat and my teeth feel like moving and pain 😭😭 it's definitely took over my life. I beat Breast cancer and am trying to be strong but it's definitely the worst thing I ever had to go through.

Cbd oil for neurological pain has helped some. And chiropractic. My neck is very involved.

I feel that pain in my left eye and eyebrow and yeater day morning my bf accidentally poked me in my left in he's sleep he moves alot.ita so painful

I have been told I have this seeing this has me scared right now o can kind of take the pain but looks like it gets worse. I said right now o want to die when it happens I can’t imagine how I will feel later down the road 😢 I feel so bad for you Ruth because I know what I’m going threw and I want to die and I just had my 2 attack.

Dear sister, I have seen some videos that pranayama helps in treating this. Anulom Vilom, Kapalbhati, Bhastrika . Pls read more about these. There are people here in India who have almost come out of this. I really pray god this msg will find you and help you 🙏

Me and my daughter both have it 😢😮

#IHopeSheIsDoingOkNow

How your tn started?

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😢😢16 years with this 💩