Ruth, maybe you should give a try to Peptide BPC 157 and Palmitoylethanolamide (PEA), they both can help. Keep fighting, science is progressing every day !

Try my cocktail. It keeps me in remission. I've been pain-free and drug-free for over 3 years. I take taurine, lion's mane, multivitamins, alpha lipoic acid, and turmeric curcumin. Giving the myelin sheath what it needs is where it's at and costs me 52 cents a day. I learned this from those who have beat MS. It's healing instead of drugging, so it takes time. I just take the amount that it says on the bottle, no more, no less. There are over 30 supplements that restore the myelin sheath. Once I found what worked for me I stuck with it. I've been on the drug treadmill. It's not sustainable. Click my name for the post I wrote about other alternatives to drugs that people have had success with.

The pain from TN is sooo bad that it literally takes your breath.. u were probaly the reason she held on as long as she did

Mine is caused by inborn brain tumor. It started when I was 16 years old. Now I' m 56. I don't have much friends. I leave everything to God.

I am losing this battle.Admire. all of you with strength to carry on.I do not.Just to tired,worn out,tired of putting wife through this.Better to go so she can get on with her life . Just can't do it much longer.Peace and joy to all who see this.

I can’t even describe how terrified I am that my TN will come back. It’s in remission now but if it comes back I don’t know if I will survive.it’s like living in a nightmare.

I’m so sorry for your mom and you!! I live just like her!!! I wanna give up too. I know hard that must have been for her!!!!

I have 30 y.o and i suffer from TN 3 y ago , it runed my life at the point that i refuse to marry and have kids because of the daily strugles that i live and i know i will divorce because no one can be patient and supportive to my case

I AM CERTAIN I HAVE TN...ONE NIGHT TRYING TO SLEEP, I WAS PUNCHING MY JAW OUT OF FRUSTRATION AND PAIN. BRAINSTORMING ...I WENT TO THE PANTRY AND GOT A MAGNETIC CHIP-CLIP AND PINCHED MY BOTTOM LIP (EAST TO WEST). LOW AND BEHOLD IT WAS INSTANTANIOUS RELIEF. MY CASE IS EXTREMELY SPORADIC BUT AS EXCRUCIATING AS ANY HUMAN CAN IMAGINE! IT MAY DISAPPEAR FOR MANY MONTHS, BUT WHEN IT HITS, I UNDERSTAND WHY IT IS COINED AS "SUICIDE DISEASE"!

Thank you for this video❤. Bless all the participants. This literally made me cry. Unfortunately so relatable.

I feel your pain. I have it to ❤

SteveNZphsyio theorizes that this is caused by a branch of the trygeminal nerve outside of the brain causing nerve compression. He has jaw stretching exercises

Im 16 and I have this since when I was in the 8th grade and I still have it and it hurts so bad when it fires to my eyes

Had all my Teeth out because of this Monster. I thought I was having Tooth infections One after the Other. After the Suicide Pain with the Fifth One, I had a Full Clearance in 2013. We dont have Firearms permitted in Australia but if id had a Glöck... 💥 and Good Night. Like many say its not only the QUALITY of the pain its the HOPELESSNESS. Now I get the Ugly Cousin to Dental Pain, Ice Pick Headaches. You Know the Worst THING?! Lack of Honest Decent Medical Attention at the First initial Onset in 2004. I think they Knew but just let me Suffer in Melbourne Australia. Be advised, Its Only the so-called "Lucky Country" for some.

Bravo Billy, I feel your Pain. Art Practice is King. It's My Salvation like a Guiding Light. Helps My Brain fight Back. I had All my teeth out Under the Illusion that I had Dental Infections Causing the Pain. Only AFTER, Did I learn about that troublesome Trigeminal Nerve Root As A Hidden Foe. At least you've got a Swell Family. THAT is So Important & All the Best. For me, Finland is Home. As the Cöld is My Friend & My Pain subsides.

I'm sorry I was just diagnosed with it on July 2nd. I feel all you feel. I'm scared 😢 praying for you!

I had the brain 😢surgery and its still here i want to die

Recently diagnosed with it, it’s the most horrific pain I have ever experienced. I’m on medication now and waiting for a hospital appointment. The pain is still there most days in my top jaw, but the medication helps. When it first happened I had to sit in the chair for 24 hours a day for over a week, the pain would come in waves and I felt so sick. I didn’t eat and only sipped water for my other medication or even go to the bathroom I was frozen with fear due to the pain. I could have easily taken my own life if I had the means. I have never felt pain like it and I suffered spinal cord damage 25 years ago and use a wheelchair chair. I just don’t need this as well.

I really feel for you I suffer to alls we can do is have hope I practice qigong and tIji.not enough at home meds the pain robs your energy .i use pressure pionts massage that takes time on instagram there’s a Chinese master dressed in white I’ve been diong not enough pressure pionts on face .ive even bought tanszinte earrings good for brain.and collectors items .trying to follow a vegan diet .ill try send you vidoe of pressure points asap.its hard I have soon to b a fourty year old disabelled son lots of love and light

Pulsed Radiofrequency of TN with CT guided imaging… Cure

I'm so sorry for this families loss. I'm sure she is their loving gaurdian ❤ I too suffer debilitating pain and I'm glad she never suffers now. Poor darling family ❤

I am 74 was diagnose with this several weeks. The pain is indeed so intense and horrific. Last week (out of pure despicartion) I had a small jar of Vicks Vapo Rub and would smell it when I experienced stuffiness in my nose. The pain came roaring in like a tidal wave so I rubbed some on my temple ..down the side of my face -jaw line and also rubbed some on my gums. it was instant pain relief ! I know it sounds silly but it works-at least on me. Camphor, mental and eucalyptus are the ingredients in the Vicks Vapo Rub and one of these ingredients -if not all of them seem to calm the nerve down. Please give it a try and see if it works for you.

"we're so close" This was 2 years ago. How close now?

In 2015 a Maxillofacial Surgeon prescribed TEGRETOL® for my DENTAL? PAIN. BUT FAILED TO EXPLAIN THE RATIONALE BEHIND THAT. That he presupposed that TRIGEMINAL NERVE ROOT PAIN was the Clandestine cause, Not Infected Teeth. In retrospect I feel excluded & disrespected, because Knowledge is Power. Anyways, I think I'm a Rarity as Carbamazepine TRIGGERED Myoclonic Seizures in me. Cant win Can I?

I live in Platte city just north of Overland Park. Hi! I just got diagnosed by a neurologist at Truman. Thank you for sharing your story. ❤️

I've had this since I was 13 yrs old and have had two surgeries. To this day I have yet let anyone that's been though all I have

Nicole ur video said Orlando park....... ur soooo close to me. I don't know how to leave my info for you but unfortunately I don't trust to leave it here

Look at your beautiful family. Don’t give up!!! Look up a dentist in Oregon. Beautiful smiles. He’s curing people. 🙏🙏

The WORST THING for Me Is that the THING Tricked my Brain into Telling me I had Tooth infections likeca Domino Affect. Causing me to Panic after the 5th & have a Full Clearance. Consequently MY chimdren are Wholly embarrassed by my old before my time Face. In fact I sm CONSTANTLY PROFILED as Stupid or Nefarious with my Gradpa Face + Rollator. I so Tired of Telling shopkeepers That I AM NOT A THEIF. I have undeed declared all my Shopping for you & I have Everlovin' FINNISH🇫🇮💙 DNA. Therefore By default, I NEVER Steal as I have Circle of Trust Built into my Natural Normal. Most are Perplexed when Ibthen use Big Erudite words like ERUDITE and think I have Finish® Dishwashing Detergent on my Mind. YES Self prescribed Humour Helps in this Vexatious Fractious Dichotomous World full of Dubious Humans with the HUMAN CONDITION®

Clearly this Awful ANARCHIC THING has Defined your Life. I have TOTAL 100% EMPATHY & wish i coukd give you a Hug and Say I LOVE YOUR HAIRCUT as It reveals how Divinely Beautiful your Face is. Notwithstanding the Horrors we both Face.

That's a Horrible Tragic Story. May she RIP.

Thank you for this video. Your a great son to post this memorable video of your mom. I went through TN for 3 years and at the time i didn't have anything to live for. I failed killing myself with an overdose The pain is so horrible. Luckily it cleared up by itself. Every dr i visited thought it was just headaches. I'll be here if you ever need someone to talk to. God bless you and your family ❤

Vitamin C for neuralgia pain relief. Takes 8 weeks at least. A Study of Intravenous Administration of Vitamin C in the Treatment of Acute Herpetic Pain and Postherpetic Neuralgia, 2016

Iv had my 3rd flare up in a year and this week I haven’t slept , my attacks have been all day everyday, I’m losing hope and very scared , I’m not gonna get thru it

I feel this pain after got dentist cleaning than my headache was so crazy

I’m in tears right now knowing so many others suffer with this horrible life changing condition. Honestly the pain gets so bad I just want to end it all, I’m currently going though a bad episode and was in the ER last night for it. I hope one of the surgical treatments will work for me but from what I’m reading, I’m kinda wondering if anything is gonna help 😢 God bless anyone who is suffering with this, I believe it’s hell on earth

Im sorry to everyone that has to experience this. I was diagnosed 3 years ago. It would be miserable then go away. They say it comes back and comes back worse. They are correct. It been about a month of constant flare ups. I've barely left the house. Meds aren't working. Finally got some relief today, maybe it is coming to an end......for now.

I was just diagnosed this left side of face a week ago. I got lucky with my doctor first try on diagnosis. I watched these videos and I’m horrified but grateful because the nerve medicine does help at least for now and I pray continues to do so so it makes no sense. I hurt a lot sometimes it sharp electric shock pain sometimes does intense pain, you feel like you’re losing your mind. My jaw half of my tongue, my tooth up by my ear and makes no sense.

My husband is not as understanding as yours. Matter of fact my health is ruining us. I feel like ive disappointed everyone 😔 I hope you are doing well now ❤

Oh Nicole, oh how I understand. I am 44 and I have 99 conditions. It took way too long to fix me that it's what caused my TN. What I would do to sit down with you, just for awhile. No one understands 😢

OMG ZACH, I started following her on TT. I understood her so much, I am now 44 years old and my pain has gotten to severe at times. I can promise you this, your face ran through her mind non stop just like my kids and grandkids. We would never leave you unless it was something we no longer could bare. You are always apart of her ❤ "If were Strong enough to let it in, we are strong enough to let it go" ❤ Rest Well Beautiful

Omg!! Im losing my hair too, I wonder if its the TN

Idk how much longer I can do this. It affects my neck and shoulder as well. Mine never seems to go away anymore 💔

Note to mention: Kazakhstanian women have it hard in ways we cannot even imagine. The men of that country literally excuse wife kidnapping, which is kidnapping of a girl to force her into marriage. It's literally legal for men to do that to even younger teenagers.

Finally a place I feel seen and heard. I wouldn't wish this on anyone 💔

I feel SO seen by this. Thanks for making this.

No cure please they need to find one

My husband has had it for 33 years, it's horrific, trust me

God I ask you to help these sick people! I love you and pray for you ❤️

Parkinson disease 🦠 🦠🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain”.