I had a spinal cord tumor that my nerve endings had wrapped. I was in terrible pain; had surgery but nerve endings were severed to remove as much of tumor as possible. The years since haven’t been easy, I can walk short distances; no feeling below my waist backside. No control over bladder . I am thankful that I have done as well as I have. Just wish the nerve endings hadn’t of wrapped the tumor. But I’m a Christian and I know that God has allowed me to walk. The doctor told me after learning to walk again that anyone else would be in a wheelchair. Praise my Jesus that I am still here years later. To you reading this never take walking for granted; our lives can change in a minute

So, I have had surgery last week. Removing a schwannoma from my spinal cord around l3. I found out in February this year. My life just stopped. Couldnt believe it and as soon as i found out what kind of surgery was needed i was so scared. Last week i was very scared going into surgery. I knew there was no choice by still had to drag myself in there. I was scared for complications and also the surgery itself. Now 1 week later, I feel better. It was a very tough surgery, and first 3 days were very hard. Walked on day 2, but my legs did not feel the same. Power and coordination were missing. Now after the 1st week I can say strength is coming back and coordination also. Still very tired from surgery. This will take those 4 to 6 weeks recovery. From anyone going trough this, keep up hope. It sure helps and go into surgrry being fit. I'll post an update in a few weeks.

Mine was near L4-L5 and causing me lots of pain for years. I had surgery 3 months ago and there was no complications! I was so scared when they found the tumor and had fears about surgery. To anyone going through this I hope all goes well for you too!

I also had a spinal cord tumor removed on 11/6/18 I can report I am walking and driving !! Thank you Dr. Heiss at NIH !

I'm 24, I'm in my last year of Law school and this January 2018 I had a spinal tumor removed from my L3 on my lumbar. I've always been an athlete, and prior to the surgery I hadn't been able to do much physical activity for around a year because of the pain the tumor caused me. It took about a full year for a doctor to diagnose the tumor. I walked less than 48hr after the surgery, and three months after the surgery I am in very good physical shape with the ability to run, jump, play soccer and do anything I please. I train my body regularly and work hard on getting myself to where I once was. I am and will forever be thankful to the people that study such a beautiful profession, keep a positive mindset.. always and no matter what.

Recently had a benign schwannoma removed between T11 and T12. Six weeks after it was fully removed, I’m back to work. Anyone reading this with similar issues, be strong 👍

In 1991 at 30 years old...they found a tumor on the base of my spine. They rushed, did surgery and I've been disabled since. I had to learn to walk again...among other things. I suffer with spinal headaches daily. It's been hell. My surgery was over 4 hours but they severed major nerves. I wish I had found a better surgeon. I can't run anymore...I walk slow. But...I'm alive!! :)

Have a good life ahead my man, your story inspires us🙏🏽💪🏼

my best friend had a tumor inside the spinal specifically in T11. his having a hard to walk to due to the effect of the tumor. he still under doctors observation. hope next year will be his operation. pray for my friend pls.

I'm having surgery for a tumor and herniated disk on August 31st 2022. Your video really eased my nerves Aaron! Thankyou for sharing and posting your story!

I had a spinal tumor the size of a peach wrapped around my nerves at the L4 and L5 and suffered with it for 3 years before I was diagnosed. My symptoms were an extreme fire like pain down both legs and couldn't walk more than a few feet without falling over. After my surgery I was in the hospital for a 4 days recovering and a week later I was walking around the house. The only Negative effects of surgery was my lower back muscles tightened up and numbness in my inner leg thigh. Other than that i consider myself lucky.

I actually had a spinal cord tumor (T3 height).I got operated by a really good doctor and i walked in the 3rd day).Now i can run,sprint,play basketball and shiet :') It been 2 years and 3 months and my right side from my right ribs to my right foot toes are really numb but im alive :D

Meaning of life is to enjoy it. Brilliant guys so happy for you.

I have small one L 2. I have enough spine issues. Cyst in S 2. Used lumbar, fused cervical. Pinch nerves. Lord healed me and anyone just found out they have it

Keep up the great work ..

3 years ago I was diagnosed by a cystic schwannoma arising from spinal nerve sheath and then I was only 18 years old . Surgery was done after 4 months as the tumor was a little big so immediate surgery was required. After the surgery I lost my sensation in the thigh of my left leg and it's been 3 years after the surgery it don't heal and got a pain in the spinal . But luckily the tumor was arising from the L2-L3 nerves so I can walk freely and can run also .

Bless you buddy. Legend

I had melanoma tumor on spine surgery 1 month ago. Dr. Konn in Memphis Tn. I have 10 screws and 2 rods in my spine and was able to walk fine day after surgery. This man in my opinion worked a miracle on me. Will forever be grateful for this doctor. He is at UT Medical in Memphis Tn.

I just found out I might have a tumor, a cyst or possible cancer in my spine, I might be contacting you soon after I find out what is going on, glad you made a full recovery I hope I can make the same, my meeting is this Wednesday so wish me luck

I have a spinal tumor. The Dr is watching it and has told me that when I lose bladder or bowel control then it will be a problem. Until then he doesn't want to do anything with it. 5 years now and we are still watching.

My youngest brother has this going on with him right now poor kids only 16 wants to go out and be active used to run alot now just stays in sleeps alot he's really weak and depressed the way it's looking he will be going into surgery himself before much longer I just want my younger brother to be happy and make his faith strong again I'm not no angel but my brother ain't hardly ever done wrong in his life in fact I don't think he ever has probably the only one of three brothers never got grounded he doesn't deserve this prayers for a quick surgery and recovery if there's anything in this world I truly couldn't live without it's my younger brothers

También he sido operada hace 20 días de lo mismo,gracias a mi neurocirujano que hizo que volviera a tener alegría,no podía caminar,tengo 56 años y parecía de 80 años. Gracias al Dr Miguel Calderón tengo una nueva vida, sin dolor y el poder caminar...!

I just hat the 1st operation and have a 2nd in a month or so. It is a non cancerous schwanoma, the largest was at the base of my skull pressing against my brain stem. A week and a half ago they removed that section. Lost most of my voice at this point. Sounds like i am lucky at this point. Im held up recovering. Worried about the next subsection in the neck and more potential loss of nerves.

I have had 4 spine tumors, the largest was 8 pounds from being misdiagnosed for seven years. It took me two years to learn to walk again. Now in my 50s and seven spine surgeries, I have to use a cane. I still have a lot of pain and I think it’s because I have schwannomatosis. But trying to get my insurance to pay for the genetic testing is impossible. I’m glad yours turned out so well.

It’s scary because they just found a tumor in my spine and also near my pelvic and a cyst on my sacrum being 17 it’s scary but the doctors say they all looks benied

aaron if i may ask after how many after surgery you were back on your feet and runing

I have been experiencing this severe backpain from time to time for a decade before I was diagnosed last year with schwannoma at L1. I was advised to take surgery but due to financial constraint and we can not afford the surgery. A month ago the pain suddenly resourface and it is much worse that before. Now the tumor doubled its size in just span of a year. Now I am considering to undergo surgery if we can come up with the amount needed. Here in our country neurosurgeries are not covered by health card so it is really difficult to be tested and undergo surgery. There might be more individuals who have this condition but because of economical situation they can not afford it. I know God will make a way for my surgery. And I am looking forward to that day. Keep safe everyone!!!

I was told recently by a great Neurosurgeon here in Miami that New York is one of the best states to undergo for Spine Surgery!

I was 19 when I found out I was in excruciating pain for about year and half and I had just started my medical college but then everything stopped for me I couldn't believe how was this happening to me I mean I had plans and I remember thinking what now Am I going to be on a wheelchair my whole life or what is it.The fear I can remember it i couldn't even cry because of the people around me. I was literally dying inside thinking i may not be able to talk after today.People tell me you became stronger but all I think to myself is I wouldn't wish it on anyone.

my brother did this surgery for 33 days today, he is well, walks and has legs in the legs, but he feels pain on the right side, at the height L2 where the Tumor was, and the doctor said that he did not take a root that was in the marrow, not to give sequels!

I had the surgery July 8th 2019 it was very successful I suggest if you know you got a tumor or the day u find out get the surgery don't sit and wait for it to grow but good luck Aaron and god bless

I just had this surgery 2 weeks ago. L1 l2 area. I was up and walking after 2 days. Surgery was done in Townsville Australia

My good friend is dying from a spinal tumour. He had surgery which rendered him a paraplegic but the cancer is still spreading & he is in constant pain. Very sad indeed.

Wanted to comment to possibly help someone out. My pain started off mid back more on the left side. It was all of a sudden that it started hurting me. Excruciating pain while I was laying on couch. I had not done anything to hurt my back like lifting anything or falling or laying in a weird position. Pain hit and I could not fall asleep. 3 hours, a back massage, and using the heat pad is what it took for me just to go to sleep. Pain went on and on and on. Symptoms basically lined up with kidney stones believe it or not. Went and got urinalysis. Everything came back great. Then x ray. Everything looked great. Then CT scan. They said they found something in t12 section of spine that needed further imaging. I assumed herniated discs and I researched all about it. Sounded just like what I was having. Being a truck driver, this was bad news for my career because I didn’t want disc problems my whole life on and off. Went and got the MRI and they called me saying that I actually have a spinal growth (I’m sure they said this so it doesn’t sound scary). So now I wait. The pain is terrible. Only thing that helps me is BC powder and I know those aren’t good for us when used long term. There’s times it hurts so bad (mainly after hard work or a lot of physical activity) that I can’t even hardly breath or walk or talk. I can feel the pain wrap around my left side down to below my navel. When pain is real bad all I can do is make noises like moaning and groaning. I guess when I take deep breaths my lungs swell and cause pressure on the nerves or something. Same with stomach; if I eat too much or too fast, same pain I guess from stomach being a little more swollen. Legs and arms are perfectly fine, no problems or pain. Praying for everyone going through this. It’s no fun especially when you have to work through it all. Boss man doesn’t understand the pain. I wake up in the middle of the night and stay awake sometimes for hours because of the pain

How can I deal with this pain...2011 I started to feel the mayor pain in my lower back and legs..9yrs later I found out I had a ganglioma tumor... Lack of medical in Puerto Rico and I was incarcerated in the United States for 5 years and had to do all my time with some Major Pain.. the same day I got out I went straight to medical emergency and found out I had a tumor in my spine.

I am diagnosed with spinal tumor in T4-T5 since December 7, 2021. We are not that rich and can't afford the surgery. I have anxiety attacks every night because of worsening symptoms. Tired of waiting. It's so hard to be poor.

I have this going on right now and my tumor is growing and pushing my vertebrae out I have been dealing with this since 2017 but it's time to get it removed and have my SI joint fused and hopefully it will help with my chronic pain

I just found out i have a tumor in my spine but so far classify it only as a hermangioma, but have lots of pain in my right leg, interesting to see how this all works out.

I had this same tumor on my spine in my T-5 T6 region and after it doing nothing it started growing out the blue. I had surgery In 2010 and suffered nerve damage since then. I drop a lot of things and my hands shake. My spine also curved after the tumor removal and it’s fusing in that area.

I currently have a tumor at the root of my spinal column as well as a fluid build up and I’m suppose to have surgery this month . I have total weakness in my feet I can’t run or walk normally right now I lost my balance . my surgeon said he is going to put a catheter into the artery in my thigh to block off my blood vessels until the procedure . My main concern is my nerves repairing themselves. They have been compressed from the tumor on my spine . lifting weights and working out is a hobby of mine so if I don’t regain strength in my heels and feet I will be so heartbroken . I have two children to tend to I just wanna be able to return back to work .

Just had the same surgery as you, still hospital wondering how much strength I will have after this? I had a stroke about 3 years ago. I have a you channel mrhangerone All about chainsaws I worry lifting and starting a chainsaw how is your upper strength? Cheers Kevin down under Australia 😢😢

I have hemangioma on T9. To T12 for 5 years now i doctor just mention it now and told me not to worry but i feel like its a bubble in my back plus pain i have been dealing for so so long

Haemangia midthorcic vertebral body does it the same as tumor. I saw on my mri scan they saw this

I am having same issue I am also 30 years old .I found 1 thing that we all got to know in same age what's the reason ?

I have a brother who has been diagnosed with a tumor inside his spine. He is in abroad not in the United States. I have reached out to many for a second opinion or some guidance, unfortunately I had no luck as no-one is ready to give any guidance or suggestions just because he cannot be physical present for opinion. Is it possible to get an opinion through email or through phone ? Any help will be appreciated.

I was diagnosed having nerve sheath tumor between T1 - T2. Did get one opinion from Neurosurgeon last week, going for another opinion this week (July 25,2019). This was an accidental finding. Went in for chest x-ray due to persistent coughing ( coughing is long gone). I have NO side effects, no pain of any sort. What shall I do, go for surgery, or monitor periodically (MRI) and see what happens. Thank you.

Yo también tuve un shwannoma, en c6 y c7, me operaron hace 4 años. A los 6 meses , volví a caminar. Después de 2 años sin moverme...

1. 4cm ependymoma behind L1. I’m seeing Dr Bydon on November 5th after he reviewed my submitted MRIs.

I have similar symptoms, my right leg is numb, weak, i cant move my ankle or control my entire leg. The pain worsens at night. My lower back hurts so much. My xray showed a curvature in my spine. I was asked to do a ct scan but i cannot afford it. Every day i live with the fear that i might become paralysed one of these days.

I had a Schwannoma removed from my chest 15 years ago. It was the size of a softball. It was pressings against my left lung, almost completely collapsed it. Surgeon said it was attached to the the Vegas nerve and it may have damaged it. To this day I have a chronic cough that is very rough and I have different nerve issues all over my body at diff ent times

How many days in the hospital after surgery? What did the PT consist of? How many weeks/months to recover?

What is: T2 vertebral body likely represents hemangioma?

Delightful

i had spinal tumor t7 t8 , its removed with surgury in auckland nz. it was 8 hours surgery. now its recovery time . hard time. 28 years

Hello sir My father is hearing some kind of noise inside his right ear,so we took a scan,the result ( Right ear: moderate to profound sloping sensorineural hearing loss form 500Hz to 8kHz (mixed component at 1kHz) with normal hearing at 250Hz Left ear : hearing sensitivity within normal limits from 250Hz to 4kHz with mild hearing loss at 8kHz ) but he has no Diabetes. And again I took M R I scan also The result (Considering the clinical history most likely diagnosis is an acoustic schwannoma of right side) So what should I Do Doctor? I'm waiting your reply?

I am in an identical position to him- young, active, 2 little boys, exact same tumor. Haven't yet had surgery; do you know if he would be willing to field a couple questions (via email if easiest) from me? Thank you.

Praise the Lord hallelujah 🙌 🙏 glory to God

Do you treat cavernous malformations of the spine?

My mother has a spinal cord tumor too about 0.4x0.5x0.4 cm. I hope things end well.

Please tell me what is thoracic tumor embolisation??

Hello good day I'm interested to much for this I found this in my hubby spinal cord I was so allarming of this

I from the Indonesian and i have schwannoma tumor in L1-S3 help me

Hi I'm 30 years old. I'm suffering for a week with tingling pins and needles in face legs and arms with numbness . Had CT scan on head nothing was visible. Should I be concerned still is going on badly . Thankyou

i had spinal tumor too i got operated 2 years ago but still i didnot have any recovery i got spasm on my legs and its getting worst day by day can you please help me

what about when you have no insurance and cant even afford a cat scan or mri....

i hope my surgery will be successful this summer for my schwannoma. very scary..

I have the tumor, but I’m not leaving university for the surgery.

It's like me my spine popped and at the moment iit has been a month and i'm back at work cannot sit up straight for long but it's ok when I stand up and walk for long periods ' lucky because my job involves mostly standing up' but I do worry if Ii have a tumor on my back but we'll never know as I cannot get an appointment with my doctor, I live in North London and the NHS system is completely over run i cannot afford private treatment and I have no idea what's wrong with me. Britain is turning into a shameful country a country that takes money from the working class while preaching from high heaven in a system that is more interested in cover-ups then telling the truth or trying to fight the problems - if my back goes again I might even end up paralyzed FACT if it is a tumour...

It has been 14 weeks since i got spinal tumor(Schwannoma) removal surgery. Tumor was at l2-l3 region. Now i am feeling constant dull pain in lower left back but sometime it goes towards my buttocks and leg as well. Is it normal after surgery and will get better with time? Or, is this chronic condition? I am really worried and in pain.

But you should be aware of post traumatic Syringomyelia, which develops in 3℅ of patients after the surgery.I have developed that after 15 year of schwannoma spinal tumor surgery.

Hi I have shwnmana nerve tumor detected yesterday in 3 place.. it's very small size. Your advice please. Thank you

I also had tumor and had surgery last month..now i am not normal ..I'm worried can my life will be normal life like before 😣😥

Meri best friend ko spinal cord tumor hai lumbar region me iske complications ke baare me bataayee

hey I'm so scared I have four tumors sitting bilateral in my spinal cord in the sacrum having surgery in three weeks im 39 male

my mum who is 59 had an mri today and lumbar puncture to see if shes got spinal cancer she can't walk at all and she is getting numbness all over her body shes lost so much weight im hoping its not to serious. from australia.

I had the same tumor removed and I was left with paralazation

Has anyone ever experienced facial numbness with a benign tumor on your lower back? Its right next to my spine and the doctors said it could be pressing on a nerve connecting to my face.

Don’t bash me for this , but can you treat a spinal tumor with radiation/ chemo???

MRI without contrast can detect it?

I'm now 7 years post surgery and still have many lingering effects. The pain is much better, towards the end I was taking the max dose of Tylenol, aspirin and ibuprofen or alive basically 24/7, just to keep the pain at bay. I've always hated going to the Dr so I put it off way too long.

Can anybody help I need a best surgeon iam having this problem but unfortunately iam from Pakistan.if anybody suggest me which country should I go which Dr to be concerned which will be affordable for me

I had 6cm bening tumor schwanoma removed from inside the spinal cord thank god i am walking driving after a year from 10 hours surgery i am way better my biggest problem and suptom was in my right foot i started to loss feeling and standbility it felt also that blood didint go to my right foot even when i massage it nothing change after surgery big part relief of my leg symptoms and the symptoms go with the time.

Can you get tumor in age of 13? I have a back pain and it feels like electric shock and i dont know what is it

Eliminate: pork, sugar, redmeat, candy, sweets, processed food and fried foods from your diet and juice every hour on the hour, Blessed Be.

My daddy passed away last week of this spinal tumor

I love having cancer and no insurance and no family support.... like a discarded Pet

Stay brave!! - learn how to treat cancer yourself - visit - wattpad - book title ; what doctors dont know about cancer...... - Scientist K.E Anaekwe

I have similar symptoms, my right leg is numb, weak, i cant move my ankle or control my entire leg. The pain worsens at night. My lower back hurts so much. My xray showed a curvature in my spine. I was asked to do a ct scan but i cannot afford it. Every day i live with the fear that i might become paralysed one of these days.