I have been on it since 2015. It is getting increasingly more difficult, although with metastatic cancer it has kept me in remission and I don’t want to stop. My neuropathy is mild, but I have terrible muscle, joint and bone pain, severe fatigue, (in bed a week). Blood levels are ok except for liver function. I have pushed back from every three weeks to every six but am seriously considering stopping. However, during the times I take extra weeks off, I don’t feel better so am not sure I’ll ever recover. Am 62. I wonder how many people have been on it as long as me? I am curious, nobody seems to know. I feel alone