Great that Amy is recovered and free of the symptoms of her cyst. Yes it would be really good to know which surgical approach was used?

Had TC surgery by Fraser Henderson in Chevy Chase MD five years ago. I believe he uses a fenestration technique. Dr. Henderson is AMAZING and detethered my spinal cord at the same time. I’m so grateful to him. It was life-changing.

Now I have it... Just discovered.... When I asked after having issues with my right leg and thought it was a herniated discs from a car accident that caused me 3 herniated discs in my neck.... The nurse never told my mother what she saw after I was born... Now we know.... Glad you are feeling better, Amy!

I wish she would have told where her cyst was located, I felt like she held back alot of imformation, I felt like that was more of a comercial than information about tarlov cyst.

Thank you for posting this video. I wish our Cleveland, Ohio area doctors took this approach to helping those of us with Tarlov Cysts. For many of us in this geographical area and much of the country, and in fact the world; it is just too far to go to get proper treatment that would effectly treat or cure this rare disease. It has been shown that just doing the nerve blocks or the aspirations of the sacs on the Tarlov Cysts does not work, and in fact for all of the reports I have read from those who have had the needles in the spine, including my own experience, any relief is temporary and in fact can cause more pain. The fibrin glue procedure that has been used by some doctors has a well known failure rate. It is a difficult surgery for a patient for sure, but Tarlov cysts in the sacrum can and do erode it and cause many other pain and progressively degenerative issues making life increasingly debiliating for the sufferer of this unfortunately misunderstood rare disease that was first discovered in 1938.

Wow! Wonderful! So glad you got your life back honey!

i also suffer from tarlov cysts, I have 4-6 cysts. They began causing pain when i was in 4th grade. I am now 18 years old still trying to figure out how I can fix my situation. The extreme pain has stopped me from doing everyday things and i just want my life back, i’m stressed out trying to find a job that will work for me, i need to start my life but it’s so hard when being in excruciating pain everyday.

I am from India and I am facing same problem from last 5 years nerve root compression lumber spine doctor called it tarlov cyst . I want to know how much expense for the surgery.

How can they tell the difference between a Tarlov cyst and a synovial cyst? I just learned i have one, they say its a synovial cyst, im skeptical, i had an unusual difficult job that was very physical. M Im

but doesn't the cyst just re-appears after a few months or years after this kind of surgery?

سلام أنا أعاني من كيس تارلوف في العمود الفقري هل من حل

I have 4 tarlov cysts! Most doctors know nothing about them, abd radiologist twll tge doctors they ate nothing too which dies not help!

Great story my daughter is having the same problem need to talk to some one

Thanks, I do know about him, however the only insurance I have is medicaid and I know it's easy enough to find out if he takes, I have no way to get there. I live on a ssi check which leaves me nothing after rent and bills. Would you happen to know if he takes medicaid ?

I live in Illinois, I have Tarlov Cyst in S1 and S2..low back .I discovered by Mri...I have severe pain in my butt around my rectum....and pain in Vagina..I went to Orthopedic surgery to help me to do Surgery or drainage...He said to me that it's risky for me to do drainage or surgery...and the pain is not came from the Cysts , may be somewhere else and suggest for me to go to Medical physical rehabilitation for SI JOINTS may be he will do for me injection and some therapy!!! My symptoms: I can not sit comfortably, my urine changed the color. to yellow..not normal urine...pain like pressure and sharp...I'm 46 full time mom.....Help me with any advice please or where to go ??😭🙏🙏😰

Would love to know how many months after all pain was finished? or if it went completely.. also what exercise you did and when did you start

Hi does spine anesthesia could cause Tarlov Cyst to grow or worsen? Should I avoid Spine Anesthesia?

Would love to hear how you are feeling Amy?

Hi Lisa Anderson, Where do you live? Who took care of your tc.

Any treatment for it

Very little info.

From which doctor u operate this

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I have a lump just in the butt crack that is really painful,could this be a Taylor cyst or a pionidal?

I know someone that has a tarlov cyst in a very rear spot it is in her L-2,L-3 spine she can not get any help for her s at all in reno Nevada she is always in pain she has looked into surgery and her state medical will cover it but the drs there will not do it cause the get paid a small percent of what a rich person can pay them. the thig about these cysts they are deadly and my friend has been asking and asking for the help and no one is hearing her or even careing they just push her off to the side

i had this cyst when i was a kid. i was completely paralysed and was on death bed. the pain was so severe but i did my surgery in 1997 . it was a great success and spent my 20 years pain free. now in 2017 im diagnosed with it again. the cyst is back in my thoracic spine. i have no pain but my legs are numb and difficult to walk. plz advise me because im from pakistan and i would like to receive best treatment possible.

If only it were that simple. Canada continues to be apathetic towards tarlov cysts noting it as always as incidental and not causing symptoms. Surgery in the USA is out of reach for the majority because of the astronomical cost. But good news story for American patients. What type of surgery was it? Aspiration? Fibrin Glue?

I have a Tarlov cyst on my tailbone and it is very painful. It comes and goes, but I say it needs to go for good. I live in Galveston , Tx and had my 1st visit with a neurosurgion, he told me they don't treat Tarlov Cysts. I'm on Medicaid and need to find another dr. that treats tarlov cyst patients. I want and need it gone. Can anyone refet me to someone in my area that accepts Amerigroup medicaid. I'm desperate.