Confronting Chronic Disease and Refusing To Give Up | Susannah Meadows

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Confronting Chronic Disease and Refusing To Give Up | Susannah Meadows | TEDxNashville

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Күн бұрын

When Susannah Meadows’ son was diagnosed with juvenile idiopathic arthritis, they were told that his illness would never go away. When he made an astonishing full recovery, it was both a gift and a revelation. Perhaps "incurable" isn't the brick wall we assume it to be. Meadows, a journalist and the author of “The Other Side of Impossible,” discovered others who came back from diseases considered irreversible including food allergies, multiple sclerosis, intractable epilepsy, and rheumatoid arthritis. In this moving, personal talk, Meadows shares what she learned about hope and the refusal to give up. She also delves into the science to show why perseverance itself may be a prescription for recovery. Susannah Meadows is the author of "The Other Side of Impossible: Ordinary People Who Faced Daunting Medical Challenges and Refused to Give Up." It tells the stories of unlikely recoveries and the science behind them and was featured on Good Morning America, Fox & Friends, and NPR, as well as in Oprah Magazine and The New York Times. The Times’ Jane Brody said the “compelling stories left me in awe,” and Buzzfeed said it was “really moving and inspiring.” Curtis Sittenfeld wrote: “An amazing book-insightful, compassionate, and quite possibly life-changing.” Meadows is a former Senior Writer for Newsweek. Since 2002, she has been a contributor to The New York Times. Her widely-read 2013 story for The New York Times Magazine, "The Boy With a Thorn in His Joints," about her young son’s arthritis and the experimental diet therapy they tried, dominated the “most read” lists. She has appeared on CBS, ABC, ESPN, MSNBC, Fox News, CNN, NPR, and The Charlie Rose Show. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx

Пікірлер: 184

@mradderz1693 2 жыл бұрын

I'm epileptic, have eczema, have had IBS most of my life, and am currently a year into a crippling other stomach illness, as to which I'm still getting tested for what it could be. Some of us are just dealt an unfair hand in life, which is the main reason I do not believe in a god, for the unnecessary suffering there is on this earth. However that does not mean I'm finished yet. I have another test in 2 weeks from now which could finally help me getting progress to getting better from this stomach illness. I have had to quit both the jobs I was working so have lost all income, have lost some of the joys in life as my main hobby is working on cars despite the fact I'm no longer allowed to drive after having a grand mal seizure in December 2020, and I can also no longer enjoy the occasional pleasure of having a good night out drinking with my mates due to my stomach. I'm limited to the daily activity I can do due to the stomach pain, but I try my hardest to make each day worth it by being as productive as I can, even if I only do a few basic chores that day. Doing these chores often causes me a lot of pain, however the mental effect of not doing anything with my day is even more soul destroying than the physical pain. That being said, some days the pain is just too much to do anything, and those days are really tough. Once a athletic busy person, the fact I can no longer do many of the things that made my life worth living, has made my the past year very challenging and I'm not ashamed to say I've thought of quitting from this world as a result sometimes at my weaker points. However, I'm not done yet, just as long as there's hope for improvement. I'm not asking to be pain free entirely, just a chance to do the things I love again. There is more fight left in me yet. I'm only 21 and I have always had big plans for what I want to achieve in my life. These plans help keep me strong in-between the numerous doctors appointments I've had. I hope what is wrong with my stomach is curable and hope to come back in the future to this comment section with good news. I hope for good news for others suffering, no matter how big or small of the health issue. Stay strong and fingers crossed 🤞

@thejetguy007 2 жыл бұрын

Will wait for u... 😀

@easywaytravelsandtour3496 2 жыл бұрын

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@thejetguy007 2 жыл бұрын

@@easywaytravelsandtour3496 maaf kro bhaiya 🤣🤣spam comment kb sudhroge tm log🤣🤣

@buddhaneosiddhananda8499 2 жыл бұрын

Don't look at the "why" of God... God doesn't allow suffering... mankind chooses suffering...

@buddhaneosiddhananda8499 2 жыл бұрын

Life will woop you until you get it right...🤪🤪

@lemakeup13 3 жыл бұрын

The last words were intriguing 💪I coincidenly tapped this video while I need something that could elevate my mood regarding my condition. I am on heavy fatigue due to my autoimmune disease I guess. I have Enteropathic Arthritis, IBD, IBS, Gastritis, Anxiety and Spasmophilia. I am physically and mentally abused sometimes. I hate panick attacks and flare episodes. Trust me it's the worst ever. It's been 11 months dealing with those diseases and I am still trying to cope with. Love the video and explanation. To all people who suffer from chronic pain or illness, you guys are awesome and deserve to be anything you want to be. Virtual hugs for you all 🤗

@AspenDoesContent 2 ай бұрын

Virtual hugs to you too! Hope that you will find peace and happiness in your life! ❤❤❤

@sony7960 2 жыл бұрын

my 22 months old daughter was diagnosed with JIA at 18 months.still struggling and looking for ways to deal with it.clicked on the video,started reading the description and saw JIA written there..i hope all children with chronic illness recover but just reading that im not alone and a mother of a patient with JIA has done this TED talk feels great.

@AspenDoesContent 2 ай бұрын

Wishing your daughter and you the best ❤❤❤

@taylorstrange2217 Жыл бұрын

One day after a virus started to experience abdomen pain and pressure. It's over 2 1/2 years and we're still looking for an answer. This illness has put my life on hold, but I am determined to get it back one day. I'm only 22, this started when I was 20. If anyone had this before, lmk

@mattyice6370 Жыл бұрын

I’ve had the same feeling. Maybe look into SIBO?

@jasonwest7476 Жыл бұрын

I have been at it almost 14 months with the same issue, plus Nausea & lack of appetite. Also causes lots of anxiety/depression which the doctors like to claim is the root cause, but I don’t believe that for a second when it all started after an acute stomach illness. Mine mmmmm I believe mine was a virus as well. No one around me can comprehend that this could actually happen. That’s one of the hardest parts. People don’t seem to genuinely, fully believe it.

@vim92 3 жыл бұрын

I have severe tinntus, I've seen many doctors and specialists all of which could do nothing and told me to live with it. I work freelance while doing my bachelor's degree. The tinnitus is very taxing and exhausting, day to day life is difficult. There are no medical interventions available. I am hoping and pray for some hope soon.

@thejetguy007 2 жыл бұрын

Same here

@romeobravo78 2 жыл бұрын

Brain MRI. Look for chiari malformation or a syrinx. Both can cause tinnitus.

@vim92 2 жыл бұрын

@@romeobravo78 mine is from loud noise exposure

@vim92 2 жыл бұрын

@@gioyt3535 can you tell me more? I've tried so many things

@joelmason4513 2 жыл бұрын

You are not alone. As I write this my tinnitus is at 9 that's usually where it stays. It is overwhelming and for 10 years now I thought there could be nothing worse than tinnitus. However in the last 10 months my legs have become increasingly weak and weaker as the days grow. Then I started to notice that my right leg is atrophine. It's losing the quadricep and hamstring muscles because of nerve damage that I have no idea came about. Now I have the tinnitus plus weak legs. I still believe I can beat this and in 6 weeks I will go to the Mayo clinic. I pray for your ringing. I pray for us all. Much love and believe.

@jacquiwilliams491 2 жыл бұрын

I have rare chronic progressive autoimmune diseases I am beating the odds I couldn’t walk and use my hands! I was on 35 litres of oxygen a minute snd in hospital for 4 weeks! I came off prednisone when others haven’t! It’s about the mind and the feeling! I got up every morning and pushed myself I now can run 4 km I have climbed mountains! I never will never give up! I agree it’s the mind!!!

@lenalena1529 Жыл бұрын

how are you doing?

@AspenDoesContent 2 ай бұрын

That's the spirit! Keep it up! You've got this! ❤❤❤

@emmanate28 Жыл бұрын

I’d love to persevere while knowing I can’t be cured. The world is so hyper vigilant in finding cures and it’s emotionally wrecking to us that are exhausted doing so. Having hope can actually be self damaging at times. Until I die, or magically get better, I preserve for contentment in my life. That is something to be proud of, too.

@greatnews4041 4 жыл бұрын

Imagine being broke and having such huge infection and inflammation in your brain, you can’t think your way out by yourself.

@just.elhadji__7148 3 жыл бұрын

@Kasen Henry how does work?!...tells me to purchase the Code thus will enabling to accessfrom it

@juliasharon5337 3 жыл бұрын

yes i can imagine.

@timothys820 2 жыл бұрын

Can relate my friend

@iPostiPodiEatiYuri 2 жыл бұрын

sounds like neurocystcircosis

@sandella11 Жыл бұрын

Yes..I’m gonna be 74 yrs old and have had ME/CFS, anemia, hypoglycemia, mitral valve regurgitation, silent reflux, neuropathy , and spinal stenosis and sciatica, brain fog..overwhelming fatigue, bursitis and thyroiditis. Now having respiratory issues...Only child, single parent...worked hard..helped raise my 5 grandkids, fostered and adopted several shelter and puppy mill babies. I’m getting worse...weaker, more frustrated and no energy. But I get up every day. I live alone. Doing the best I’m able to do. No longer working...but still a caregiver. Outside critters and my 2 inside cats. I’m alone a lot...limited income (medical bills are killing me), but I’m not lonely. I push myself each moment. Just get thru moment by moment. I’m visiting here....like everyone else . Lost many many loved ones (both human and non human) over these years. Never remarried...too busy..no energy for added drama. It’s discouraging at times ... but I’m more aware of my mindset. My thoughts, perceptions, emotions, feelings and opinion arise and pass constantly. Whatever comes eventually goes. So...I’m hanging in. Enjoy nature, quiet and solitude and my non human pals. Love my family too but they’re all busy..working hard. I don’t socialize, don’t like loud noise, bright lights...I get too overstimulated...heart races...hate that feeling. I’m pretty content...and have lived to truly help others..so many...and that has brought me peace, gratitude and joy. I’m just so tired all the time and sick of doctors and tests that show something else is wrong in my body. Ahhh, well....such is life if we live long enough. Sending healing loving energy out to all beings (both human and non human) who are part of the Universe. 🙏🏻💫💖😮

@chronicallypep5 2 жыл бұрын

I have recently been diagnosed with an incurable chronic disease called small fiber neuropathy. I found this video very helpful and enjoyed. Thank you!

@rosie6 Жыл бұрын

Wow my heart goes out to everyone here ❤y’all are so brave and amazing!! I hope everyone is healthy and happy asap, it’s so hard but you are going to make it out!!

@Fornaxfornax1 Жыл бұрын

Im gluten free. But I had terrible asthma. I battle it for years. First, I quit dairy. It helped. One by one, I quit sulphites, xantham gum, sorbate, mushrooms, shellfish, some colours, soya. In addition strong raw gjnger tea greatly helped. I'm now medication free.

@contentsavvy3517 2 жыл бұрын

i still waiting for my endoscopy i have no money 😭 lost my job my 64 year mother spending me few money every month to take care of myself i feel so ashamed but i can't do anything i feel ill all the time but i wanted to resume my work

@bigbause2514 3 жыл бұрын

Thankyou for posting this. Really made a difference for me

@ayushighosh22 Жыл бұрын

Idk what’s wrong with me, I’ve been having neck, shoulder & back pain for 2 months now , went to doctors , I had a ct scan & blood tests , it’s normal . I’m dealing with extreme anxiety issues , I can’t stand without being dizzy. It’s making me feel miserable. I’m going to study abroad after two months but I’m afraid that I’ll miss the opportunity because of all these. I want to cry & disappear. I can’t deal with this pain.

@sydneykinkade9740 Жыл бұрын

Have you been tested for pots?

@erinchell2077 3 жыл бұрын

I am so very happy for you and your family and message.

@greta9558 2 жыл бұрын

Three words for you Susannah ...........whoa !! Thank you !!!!!!!!!!!!!

@armanb6065 5 жыл бұрын

Incredible speech!

@pwear2528 2 жыл бұрын

Thank you.

@alexcorpus4915 3 жыл бұрын

wow im amazed

@irisx2728 3 жыл бұрын

Thank you so much!

@markharris1223 3 жыл бұрын

Well done to this excellent lady for healing her son. Drugs are too often prescribed to the exclusion of advice about diet. Just one question though, do all American ladies suffer from chronic sore throat?

@fuhgetabatit1051 3 жыл бұрын

Ughhh no. If you smoke you might have a constant sore throat.

@k.baller5140 2 жыл бұрын

I'm dizzy off balance 24/7 like I'm rocking on a boat even when I'm still or laying down, like gravity is literally pushing my body... I've had mri, blood tests done and there's no resolution or relief... All this began 4 months ago after a panic attack and this month the rocking sensation is worse.... It's torture everyday having this invisible condition where people think I look fine but internally my body is being tortured. I'm losing hope... Watching these videos to try to keep myself going... I

@iPostiPodiEatiYuri 2 жыл бұрын

might be parasites

@k.baller5140 2 жыл бұрын

@@iPostiPodiEatiYuri what? Why do you think that?

@dhrubayengkhom2981 2 жыл бұрын

It might be binocular vision disorder. I have it too. Please look it up. Try covering one of your eyes for a few minutes and see if you find comfort and relief from your symptoms. If you feel better by doing this simple test, it might be bvd

@k.baller5140 2 жыл бұрын

@@dhrubayengkhom2981 no it's not that. I can close my eyes and I literally feel gravity pushing and rocking me no matter what. I'm 5 months like this suffering with no relief.

@dhrubayengkhom2981 2 жыл бұрын

@@k.baller5140 please refer to an ent specialist, it might be balance issues related to your ears.. get a proper ear checkup

@kevindobson9732 3 жыл бұрын

My whole body is inflamed literally Sudden from severe Ibs Interstitial cystitis Severe crippling ocd Anxiety and panic disorder

@lex3176 3 жыл бұрын

Must be tough. You can defeat it

@kevindobson9732 3 жыл бұрын

I've tried but my doctors tell me it's chronic there is no cure I gotta just live with it . I suffer in excruciating pain dally I can't take it anymore Also suffer from a stage 4 prolapse hemroid. I can't even walk anymore

@kittygirl109 3 жыл бұрын

I just want to tell you, that I felt like I was reading my own description reading this. I have horrible joint pain. Bladder issues as well, and terrible digestive gerd and ibs. I also have OCD and I used to have panic disorder. I understand.

@raquel5538 3 жыл бұрын

Have you tried changing your diet to an anti-inflammatory one and contacting a holistic doctor?

@raquel5538 3 жыл бұрын

Also look up Indian herbs

@kylies3160 5 жыл бұрын

Well spoken

@melemel9062 2 жыл бұрын

That was great

@happysolo9523 Ай бұрын

yes healing is possible if you have faith in god and in your healing superpower

@JazevoAudiosurf Жыл бұрын

the attitude to survive obviously raises your energy and with that energy you may be able to survive. but on a fundamental level, that is a decision for life, and some will not agree to make that decision. the reason why they got the disease in the first place is because they didn't really want or know how to live. it seems to me that there is a existential understanding that decides if we are going to be sick or healthy. that understanding is what we are supposed to change, which is obviously impossible to penetrate in everyday life or we would have done it. call it ignorance. I suffer from chronic gastrointestinal disease and diet has done a lot for me, just like sleeping. but while it won't really go away, I know somehow that there is something I'm doing wrong, it's just too deep to grasp, my thinking is not subtle enough, precise enough.

@sukruthas1646 10 ай бұрын

I suffer from the same stuff , I also have hital hernia which makes things worse sometimes . My voice also gets affected

@JazevoAudiosurf 10 ай бұрын

same here. I find that eating more volume pushes my stomach up, that's what's causing it to slide and that kinda solves it for me, eating less volume, especially in short timeframe@@sukruthas1646

@cjbartoz 3 жыл бұрын

For more information about the Buteyko method you can read the following 2 articles: - Kazarinov V.A. (1990) "The biochemical basis of KP Buteyko's theory of the diseases of deep respiration" - V.K. Buteyko, M.M. Buteyko (2005) “The Buteyko theory about a key role of breathing for human health: scientific introduction to the Buteyko therapy for experts”

@lisamurray4073 Жыл бұрын

Not just diet, but underlying bacterial and viral infections.

@cjbartoz 3 жыл бұрын

The list of the deep breathing diseases curable with Buteyko Method: Preasthma respiratory allergosis polyvalent allergia laryngospasm (loss of the voice) food allergy drug allergy pseudocroup pharynritis laryngitis tracheitis Asthmatoid bronchitis Bronchial asthma CNDD (chronic non-specific pulmonic diseases) chronic bronchitis obstructive bronchitis chronic pneumonia brochiectatic disease pneumosclerosis pulmonary emphysema silicisis, anthracosis etc. Chronic rhinitis Vasomotor rhinitis Frontal sinusitis metopantritis Maxillary sinusitis Sinusitis Adenoiditis Polyposis Chronic rhinosinusopathy Pollinosis (hay fever) Quincke's edema Urticaria (hives, nettle rash) Eczema (letter) neurodermite psoriasis diathesis Vetiligo ichthyosis (fishskin disease, xeroderma, alligatorskin disease) juvenile acne (comedones, blackheads) Raynaud's disease (vasospasm of the upper limbs) Obliterating endarterilitis Varicosis (varix) Thrombophlebitis Hemorrhoids (piles) Hypotension (hypotony) Hypertension (hypertony, high arterial blood pressure) Vegetovascular dystonia (VVD) Vitium coridis congentium (congenital heart diseases) Articular rheumatism Rheumatic heart diseases Diencephalic syndrome Heart ischemia Chronic heart ischemia (CHI) stenocardia posthmyocardial ifarction cardiosclerosis Breaches of cardiac rhythm tachycardia (tachyrhythmia, tachysystole) extrasystole paroxismal tachycardia cilinary arhythmia (cardiac fibrillation) Generalized atherosclerosis Arachoiditis (posttraumatic, influenzal etc.) Postinsultus states (conditions) paralysis (palsy) paresis Parkinsonism (initial form) Hypothyreosis Hyperthyreoidism Basedow's disease Diabetes mellitus Breaches of menstrual cycle Toxicosis of pregnancy (disgravidism) Pathologic climacterium(menopause) Cervical erosion Fibromyomes Fibrotic mastopathy Sterility Impotency Menacing abortions Radiculitis (nerve root syndrome) Osteochondrosis Metabolic polyarthrilits Rheumatoid polyarthritis Dupuytren's syndrome (tendon osteal contracture) Cout (podagra) Pyelonephritis Glomerulonephritis Nycturia (bed wetting) Cystitis Urolithiasis Obesity of any Lipomatosis Chronic gastritis Chronic cholecystitis Biliferous tracts dyskinesia Chronic pancreatitis Cholelitniasis Duodendal ulcer Spastic colis Peptic uncler Multiple sclerosis Epilepsy (spastic syndrome) Schizophrenia (at the initial stage) Collagenoses (dermatomyitis) Glaucoma Cataract (a) Strabismus (heterotropia) Hypermetropia (farsightedness) Radiation sickness Acute hepatitis Chronic hepatitis Cirrhosis of the liver HIV (human immunodeficiency virus) AIDS (acquired immune deficiency syndrome)

@kristaellow7958 2 жыл бұрын

Totally Agree. the clients I have that do the best believe they can do the best and understand the body, mind and spirit are one. Those that keep getting stuck on what they have been told (that they cannot do anything about their chronic illness for example) take much longer to heal even when we change food, movement and stress. In my case, I work mostly with diabetics who have been told it is purely genetic which is purely nonsense.

@marcellabraxton7671 3 жыл бұрын

Thank you for sharing your story!!!! It is inspiring

@lex3176 2 жыл бұрын

Determinated to solve the unsolvable I see how many other struggle. I wont give up neither

@chrissiehall6984 10 ай бұрын

I’ve given up,,,!

@TrishaCole-eu2id 2 күн бұрын

Thanks to alternative treatments & diet tips that enabled me cured my badbreath thank you Dr osuma

@DeliveranceIsReal 7 ай бұрын

For ten years, I suffered from chronic Lyme disease, arthritis, galbladder issues and constant chronic pain. The doctors said I would not recover. I was in agony daily, and I watched others die around me with late stage diseases. Prayer healed me when medicine failed me. God fully healed my disease. When Jesus found me I got baptised and started following the bible. God gave me a new family. My life is full of meaning. My heart is full of gratitude. I want to love others and share his work. You are unique to God and you are special to Him. Don't listen to the people who hate and talk negatively. Seek the Lord while he may be found (Isaiah 55:6-9) Psalm 41:3 “The Lord sustains them on their sickbed and restores them from their bed of illness.”

@maritimestudies6264 3 жыл бұрын

In my context, God is the creation and the End. Creation is not what followed after the beginning. God is what you cannot address, not gods.

@michealcheng2949 3 жыл бұрын

i have been suffering from herpes for 6 years now, am so happy that i meet DR Rorpopor herbal on you-tube who cured me totally you are the best

@JP-xs5lo Жыл бұрын

I didn’t think there was a such thing as juvenile arthritis if it comes back you live in New York I mean Lyme disease capitol of the world public testing is flawed private testing only If you test negative on public test does not rule out disease. If he gets late stage neurological Lyme be in the look out for symptoms can lay dormant decades and come for you later life and it’s one of the worst thing that happen to you. No joke there are many many patients with this story.

@ganbatte1260 2 жыл бұрын

I dont know if my abnormality can be called chronic disease or not. I suffered with blushing with my face. My face will turns red in any moment. Especially when i got "caught in a spot" moment, this will be really disturbing because my white skin will turn to red immediately and everybody will have strange looks in their eyes, and there will also be whispers like "why is he turning red?" or "look how uncomfortable he is" or "this guy will be the one who walk out first from this company". This thing has made me suffer until now. I cant stand how embarassing it is, it is not that im not confortable speaking in front of people, but it just happen somehow. I lost my job 3 years ago, dont have any income, give up my college because of this. Ive been through all kinds of humiliation all the time. Its not really a chronic ilness that make me cannot do anything, its just all about embarassment. My mental is struggling now, i cant have clear mind, and i cannot pursue my dream. I have a dream that i want to be an academics, pursuing master & doctoral degree. I want to dedicate my life to sciences and make this world a better place to live. But i cant imagine speaking in front of people everyday with that abnormal in my face. Last week ive got employed by a company, so i have a new job now. Its been a week and its still okay, still no one point it out at me. I consider this a second chance for my life. I hope that i can stand the bully and embarassment. The reason i want to do this job is to see how strong i can stand the bully from others. If this going well, i will resign next year and enroll myself to pursue master degree. My age is quite late for a job and academic things. But i am addicted to study, i cant stand it everyday. Books are my lover, sciences are my motivation in my life. I hope that anyone who have mental issues and problems in your life, give it a second chance. Do it as if you are living for the second time and had acted as wrongly the first time as you are about to act now. If you have struggles in your life, you can share with me here. And i will reply to you ASAP. because it feels better when i share my stories and read others stories as well.

@heartsDmise Жыл бұрын

Maybe it’s rosacea?

@andrewi5921 4 жыл бұрын

I have ms wahls seems too much though

@rebekajah 4 жыл бұрын

I have ms and I got out of my wheelchair... by switching my WiFi off. True story. Please try it... And spread the word.

@The231447LucidDevTeam 3 жыл бұрын

I'm losing hope

@lex3176 3 жыл бұрын

There's thousands of people like us. It's just bad luck. Acept it. No miracle will happen, gods dont exist. It's all on you. Nothing will change if not for you. Just remenber. If you trully put up a fight, stg will break and give way. It's hard bro. I feel you. 100%. No retrear no surrender to the death bro.

@LilMissEaster 3 жыл бұрын

God sees and loves you. It may not feel like it for a long time but knowing it can help you through. My cousin also lost hope in things she once wanted but that doesn't stop God's love. God doesn't take away pain but he can help you overcome them. The bad experiences we go through can help you grow and you can inspire others. After all, who would be inspired by a person who hasn't struggled? "May the God of hope fill you with joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope." -Romans 15:13

@pauldesrochers418 3 жыл бұрын

Magic mushrooms therapy will change your mind

@Kepss1222 3 жыл бұрын

Please don't! DO NOT give up! Keep doing research... You will find a solution.

@rikkichadwick3548 3 жыл бұрын

Don't lose it buddy cuz at the end of the day it's all you are left with... I feel you, I have chronic pain and difficulty articulating words cuz my jaw hurts, also my neck, shoulders, sometimes one of my legs anyway, I know how tough life can be even though we might not have the same problems.

@dorothyputz4125 2 жыл бұрын

The day I came across Dr IGUDIA KZfaq channel was the day I started living a more comfortable life again after using his herbs medication in curing my Diabetes disease

@Tina52516 2 жыл бұрын

Congrats on your healing ❤️‍🩹