CNN's Meg Tirrell sits down with Johnny Lubin, one of the first in the world to try a new kind of medicine that uses a gene-editing tool called CRISPR to offer a potential cure for sickle cell disease. #CNN #News
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@cloudythagreat5 ай бұрын
Beyond happy for him I’ve had sickle cell for 21 years and I went through the same gene editing process and it’s been more than a dream come true just when I was all out of options and just biding my time this was presented to me and my family and I’ve been in the best physical health of my life ever since💯👍🏽
@TheLawrence055 ай бұрын
So you are actually the first on the planet to have the editing?
@teresalegler27775 ай бұрын
Wonderful news. Prayers for continued good health.
@jakegutierrez74705 ай бұрын
A few hundred people have actually already been cured of sickle cell through gene editing, the boy in the video is just one of the first teenagers to have it done !@@TheLawrence05
@cloudythagreat5 ай бұрын
@@TheLawrence05 not on the planet but one of the first people in Cleveland
@cloudythagreat5 ай бұрын
@@teresalegler2777 thank you !
@afrolatinagrl5 ай бұрын
I lost three sisters to sickle cell, and it brings me joy to see this. I wish all the best to Johnny and all the other patients.
@mach15535 ай бұрын
I hope it works w/o side effects.
@lawsattitude19995 ай бұрын
Sorry to hear this.
@lawsattitude19995 ай бұрын
@@mach1553 There will be side effects. Let's just hope that they ain't major and the treatment is still worthwhile.
@xDueyx4 ай бұрын
There won’t be any
@Skarlett005 ай бұрын
What a sweet kid. Wishing him a lifetime of success and health.
@MentalPistol5 ай бұрын
you sweet for that
@wegotthis2475 ай бұрын
His smile and demeanor are infectious!!! That huge smile made me click for the story😁Such great news for him and his family. High five to the doctors, researchers, and funding!!!
@voorkobserve47165 ай бұрын
In Canada, 6 beds out of ten are used for people afflicted with schizophrenia. Gene editing will be a major turn point for humanity and hopefully for the best.
@tatum63526 күн бұрын
at very HIGH costs at first. it could take decades to be affordable when it finally gets approved for the general public.
@kimberlyaccurso19215 ай бұрын
What a beautiful young man. Best wishes for a fantastic pain free life !🙏🏻❤️
@lpg123385 ай бұрын
Hopefully the young man has a long and healthy life.
@marshmello66365 ай бұрын
Nope he is just sterile now
@Januaryschild5 ай бұрын
How do you figure that since the cells edited were hemoglobin not sex cells?
@jevinday5 ай бұрын
"do you feel like a medical pioneer?" "I don't know, I feel like a guinea pig" This kid is funny 😂 I hope he's doing well
@madelinemanor33675 ай бұрын
Go Johnny go! Your attitude is amazing, and your smile is the brightest 👍👍👍 from a California Granny 👍🥰
@tragicrhythm5 ай бұрын
Extraordinary technology and outcome. Hope the results are lifelong for the kid!
@edpoletto80485 ай бұрын
Incredible!!!!!!! All the best to you. Another reason why health care should be universal.
@psychologicalpotatoe5 ай бұрын
Bro is just a straight up chill dude fr
@Omarbrown2045 ай бұрын
😢😢I can’t wait to get my son this cure I go through so much with him
@codename4955 ай бұрын
What an amazing thing! I remember patients coming into the ED in SC crisis. So much pain and suffering. How wonderful!
@teresalegler27775 ай бұрын
Fantastic news! Best of luck! Love the progress in Medicine.
@martyschrader5 ай бұрын
It doesn't hurt that they chose a good-looking, well-spoken kid from good-looking, well-spoken parents. Walking advertisements. Well done.
@MandyX195 ай бұрын
This is amazing! I hope this is something they are able to make more affordable or a procedure that insurance covers to help sickle-cell patients and their suffering. But we know how the insurance companies are. Either way this is amazing!
@ssmt25 ай бұрын
Ya gotta love modern medical science! Hopefully the cost can be brought down enough that the treatment can be made available to everyone that needs it.
@angel-vz7ii5 ай бұрын
What a cute kid. Wish him all the best. Be well.😊
@springbloom59405 ай бұрын
Genetic engineering will never ever go wrong
@Inmyownleague5 ай бұрын
Not from the point of view of the ruling elite
@springbloom59405 ай бұрын
@@Inmyownleague Yup. Already experimenting on black children 🙄
@jaegeru35352 ай бұрын
Get your zombie bunkers ready
@BlanBonco4 күн бұрын
It could go wrong sure but with him we will be able to see what happens. Crops and animals are another story.
@saturdaysequalsyouth5 ай бұрын
The future will be stranger than any of us mere mortals could have possibly imagined
@alexanderangelo72845 ай бұрын
This is only the beginning....
@Thaiurbangarden5 ай бұрын
Omg this kids is so smart and hilarious! I love his personality! I’m glad his treatment is working and pray the treatment last longer than expected!
@monicarust23835 ай бұрын
Precious boy! Great news!!!❤❤❤
@davericks42285 ай бұрын
So cool! Great news for this young man's future :)
@manonyc10194 ай бұрын
Thank god that boy looks so happy now
@smooth24775 ай бұрын
Amazing story so happy for the family
@wendigo535 ай бұрын
Mr. Lubin now 17 feet tall.
@tiffanyannejocelyn69085 ай бұрын
God love you johnny! I hope it's permanent.
@NoSoyYo-TV5 ай бұрын
I wish I could help in someway. Look at that smile. Give those scientists what they need .
@whitebluesky69325 ай бұрын
Hope it helps him feel better 🙏🙏🙏
@katyafaucher44685 ай бұрын
What this kind of procedure open the door to terrifies me.
@kjdnyhmghfvb3 ай бұрын
The diseases that they are helping, should be terrifying you
@Jj-ke3ugАй бұрын
Yeah...... Even you can see the unsettledness in his face. He may be smiling but it's still a concern. I actually see the concern in the sense even though he's smiling but everyone else is trying to throw it under the rug Yes, he may feel better and I'm glad he feels better but I know at night time he's thinking. I just wish the parents would have waited
@oddlilbird5 ай бұрын
This is wonderful!! Congratulations✨💜✨
@ADAJ3KINGANGEL5 ай бұрын
Know your blood type and that of your partner so your kids don’t have to go through the pain of sickle cell.
@urjitkhatua9565 ай бұрын
How does blood type affect this?
@ADAJ3KINGANGEL5 ай бұрын
@@urjitkhatua956 people with ro subtype are affecting the most. Sickle cell mostly affects people of African descent because it’s a mutation that fends off malaria.
@jinxterpinxter5 ай бұрын
Sickle cell has NOTHING to do with blood type.
@bmjpdx92225 ай бұрын
@@ADAJ3KINGANGEL Thank you. Never knew the connection with malaria -- the good news is, the bad news is.
@redstarchrille5 ай бұрын
@@ADAJ3KINGANGEL Kid... No mutation are not for fending of malaria, but people with it dont get as sick, due to malaria parasite cant bind to misshaped blood cells. Mutation happens at an rate of 1 in 10^-8 per generation. hemoglobin type is not a blood type.
@soulchorea5 ай бұрын
Man this kid is a perfect 50/50 blend of his parents 😄
@lowellbrown1122Ай бұрын
Did they talk about the drawback? The risk of developing cancer
@thiosemicarbizidebenzoylal29215 ай бұрын
How this possibly could cost 2 million dollars is a mystery once you understand this procedure. Fraud in medicine is ridiculous.
@afanaobeba78765 ай бұрын
You bet! Milking every penny from every potential patient. The high cost is possibly because of the small pool of eligible patients who can actually afford it. If there were 10 million potential clients, the cost would likely be more reasonable.
@thiosemicarbizidebenzoylal29215 ай бұрын
@@afanaobeba7876 I read the research paper and this is Easily done for under 25k if that. 2 million is some fictitious number made up by a scammer.
@RedzicMuharem5 ай бұрын
can you offer it cheaper?
@thiosemicarbizidebenzoylal29215 ай бұрын
@@RedzicMuharem Dang right if i am allowed to use the proprietary information and facilities SUBSIDIZED by the government.
@RedzicMuharem5 ай бұрын
@@thiosemicarbizidebenzoylal2921 then go do it
@MissesWitch2 ай бұрын
"cool and freaky" is exactly how I'd imagine it to be!
@sa47695 ай бұрын
I’m very happy for him
@ghostmantagshome-er6pb5 ай бұрын
We are on the right track.
@meredithdriscoll30675 ай бұрын
So happy for him 🥰
@ozzieman43925 ай бұрын
Best wishes for a long healthy and happy life!
@scillyautomatic5 ай бұрын
If the past three years have taught me anything it's that scientist always have public safety FIRST in mind. And that they would never misuse their mountains of grant money for nefarious reasons...
@scillyautomatic5 ай бұрын
This technology WILL be used by bad people with bad intent for money, power, fame, control.... you name it.
@Jecoopster5 ай бұрын
You sound like an antivaxer😂
@Welmosca5 ай бұрын
Right?
@sireconde59695 ай бұрын
@@Welmoscawow sarcasm. I wonder if u ever visited a doctor, use any science related medicine, or anything that science? Just a thought.
@gregsutter18055 ай бұрын
Polls now show 24% of u.s. citizens know one person thats been injured by the c19 vaxx and updates. Soon the public will be outraged.
@pakman37775 ай бұрын
I hope everything works out how they think it will
@larrymunn52795 ай бұрын
Probably not. Gene editing to my understanding at this stage is just breaking a link and making sure it stays broken as the body will attempt to repair it. It's messy. But, could be old news already I ain't heard much about it in years. Gotta start somewhere if you have a place to start from. Long as it can do more good than harm.
@afanaobeba78765 ай бұрын
$2million!!!!!! WTF!
@Johnieboi5 ай бұрын
Scientists are amazing.
@malachite0725 ай бұрын
Thanks to them we can have what we want and need.
@shanenoel12704 ай бұрын
@@malachite072 YEAH! At a cost. High blood pressure, diabetes and heart disease has been around since time. Scientist have done nothing to cure any of those diseases. There are more people suffering from those diseases.. are they not? Scientists are frauds in la coats.
@wearedustinthewindinthewin72394 ай бұрын
Hope this medical treatment is lifelong.
@kwakuosei515 ай бұрын
This awesome! Happy for them. Hopefully they can make this more accessible. In the meantime I'll have to figure out how to make 6 million+ to give my family a shot at trying this
@PenelopePitstop8885 ай бұрын
Glad for biomedical science❣ So, if you're a person with "sticky blood" could that perhaps explain intractable or complex pain syndrome?
@larrymunn52795 ай бұрын
I dunno I just remember my RN buddy telling me that sickle cell anemia is one of the most painful conditions you can have. I imagine it wouldn't be a mystery if it's that bad.
@lisamareeaccary51325 ай бұрын
Wow ! That’s amazing, I hope it’s a cure for him ❤
@captaingoodguySentientA.I.5 ай бұрын
when you vote for “affordable housing” it has nothing to do with making housing more affordable to the average homebuyer. what you’re actually voting for is more HUD housing or housing for drug addicts, felons, and mentally ill people. affordable housing is a scam run by democrats.
@Smiley_1015 ай бұрын
I remembered 9 years ago when my nephew were born and we found out he has Down syndrome I went online looking for cure for him and at the time it was gene editing it was an early stage . I remembered being hopeful that one day there will be something out there for my nephew and I’m so happy that we getting closer n closer . I know there so many peoples would benefits so much from this and hopefully they can make it affordable for everyone as well
@rileydahlgren26142 ай бұрын
cure? whats wrong with him? are you implying the enforcement of eugenics? The same eugenics that led Hitler to kill millions, spearheaded caste systems?
@calvinmurry10965 ай бұрын
Don't forget Henrietta lack. And a bunch of other stuff done to blacks. Including experiments on me. I have thalassemia and sickle cell trait.
@payasoinfeliz5 ай бұрын
I used to play online video games a lot. I befriended another player through this game, he was friendly, and we played several times per week. Then one day he stopped logging on. I later found out he died of sickle cell disease. Was super sad to hear about it. I didn't even know about the disease beforehand, and had no idea he had it. Glad to see this advancement saving lives. Game on!
@DeanPickersgillАй бұрын
Such a lovely story.
@Keith-Baucum75 ай бұрын
I remember when they talked about designer babies. you could pick the color of your babies eyes or hair color.
@halohat22865 ай бұрын
This is the future and one of the greatest achievements of mankind of my lifetime.
@JJ-Cool155 ай бұрын
This is great!!!
@dlite69995 ай бұрын
My boyfriend has Tri Cickle cell anemia I wonder if this therapy "chrisper "Curious to hear more good news about this treatment working for many diseases
@wowlobby5 ай бұрын
Congratulations!
@IAmTruth-xj4es5 ай бұрын
Every time I hear of gene editing or therapy, I think of Jesse Gelsinger and all the lessons from that trial gone wrong. Still, I very much hope this young man continues to heal from sickle cell. Wish him all the best.
@newforestpony956724 күн бұрын
There is no proof of safety because this is phase one of a clinical trial. Experimenting on children, who cannot give consent but will bear the long term consequences in to adulthood when the parents are gone, with no long term safety data, is ethically highly questionable. What happened to 'first do no harm'?
@tiffanyalberti2029Ай бұрын
3 of my blood relatives died in less than a year. 98 percent of my family is dead. I lost my father to kidney disease. My mom to Alzheimers. My uncle to a heart attack. My family has a long list of sicknesses and illnesses. One day my families medical history is going to come to take me out as well. I am so close to being the last surviving member of my family. If my parents genetically engineered me and their parents engineered them then this would not be happening to me. I was born in 1980. No such thing as genetic engineering then. Maybe it's not that bad.
@Fredfredfredfredfredfredfred2 ай бұрын
I’m pretty sure the first drum clip was that one drum beat
@zazo1625Ай бұрын
HAH yes I was looking for someone else who heard it
@FredfredfredfredfredfredfredАй бұрын
@@zazo1625given the circumstances, our boy trolled exquisitely. 🤌
@herosnational54595 ай бұрын
2 millions traitement? 😢
@Hakushodemon5 ай бұрын
very cool. id watch a documentary on this new medical technique. its expensive now but it could become widely available with enough rich people using it. after awhile it could become cheap
@JesusChristDenton_75 ай бұрын
"We are not only men of science: we are men of hope." - Dr. Jonas Venture
@dysfunc1215 ай бұрын
2 million per treatment? That's steep.
@dizhar88885 ай бұрын
Amazing 👏
@MissesWitch2 ай бұрын
he went from a deficiency to an upgrade!
@john_wick15 ай бұрын
I wish he can be a real mutant super hero
@CharlesReedPi3 ай бұрын
"You don't need a donor?" Tell me you don't understand gene therapy without telling me you don't understand gene therapy
@paleocon7775 ай бұрын
Justice for Jonathan Lewis
@chichomx6235 ай бұрын
No you don’t need a donor just 2 MILLION 🤦🏻♂️ let me just get that out my account… crazy
@nyfinest4875 ай бұрын
Science is not cheap, what do you expect. With time it will get cheaper. Jesus you people always bitch about everything
@LucasCosta-io8vr4 ай бұрын
Just thinking about the implications os mind blowing
@TheFinav5 ай бұрын
Turns out... he IS a superhero.
@jamiegallier21065 ай бұрын
Awesome news.❤
@severtone2635 ай бұрын
$ 2 Million! That is way out of reach for most people..... even after the price goes down. Say it goes down in cost by 90% (which is a VERY generous estimate here), it is still going to be $ 200,000. Still out of reach.
@sb52245 ай бұрын
I see your point. But, from commercialization point of view, it took 12 years of research and almost $1.5 billion dollars in research funds. So, they have to charge a high price so that they can pay back the investors with great earnings. Secondly, it will be reimbursed by employer insurance and Medicaid in US and other nationalized insurance systems in EU. However, yes it won't be accessible to people in under-developed countries. That will take 50 more years. You need top medical facilities to administer this complicated treatment (there are only 10 in US who have the capacity).
@metamorphic755 ай бұрын
So, is this a treatment or a cure?
@larrymunn52795 ай бұрын
It's not a once and done thing once a gene is switched off or taken out of service your body will attempt to repair the damage. You have to ensure it cannot it takes a few rounds.
@seanspartan20235 ай бұрын
This is how "I Am Legend" starts.
@GLEAM0721Ай бұрын
Amazing
@irvine1125 ай бұрын
actually the gene editing may have given him super powers that he hasn't discovered yet 🤔
@BeauJameson-qr9sp22 күн бұрын
Sickle cell disease treatment using CRISPR is huge for medical science and for the development of CRISPR human gene editing
@margaretenoha53945 ай бұрын
Banker Cabal Eugenics
@Kenny-tl7ir3 ай бұрын
You are moaning over a kid being cured of a deadly disease. How miserable are you?
@paperbagbrown13265 ай бұрын
What's harder to find? A bone marrow donor, or $2,000,000?
@williamhornabrook80815 ай бұрын
$2 million per treatment is super eye watering, but this is beginning and that should come way down over time. Very exciting stuff!
@sb52245 ай бұрын
It is to be covered by employer insurance and Medicaid.
@johnnykananaskis3355 ай бұрын
2 million dollars per treatment? That's pathetic
@redstarchrille5 ай бұрын
Human body have 35 trillion red blood cells that has to be modified. And this with modified DNA markers at the exact spot.
@patrickwalsh46155 ай бұрын
That's murica! 🇺🇸 💩🇺🇸💩🇺🇸
@drekelley23525 ай бұрын
How much is it tho?
@itsabovemenow10165 ай бұрын
I can't understand why this procedure costs two million dollars.
@sb52245 ай бұрын
Because it took 12 years of research and almost $1.5 billion dollars in research funds. Where do you think that money comes from?
@itsabovemenow10165 ай бұрын
@@sb5224 the insurance company to whom we pay premiums even though they can refuse us the benefits from the.12 years and $1.5 of research their customers paid for.
@user-mc3ie6of4n5 ай бұрын
Cool!
@ramsita81985 ай бұрын
Good news FDA thank you
@Gerrwords3 ай бұрын
this is only the beginning
@michaelleon20385 ай бұрын
Kid’s got good taste in video games.
@mekab.326822 күн бұрын
.....And wait what will happen next
@margaretcarter12882 ай бұрын
Thank you to the new station for doing this story that affects mainly Black people hats off to you!
@shondmichael13635 ай бұрын
2 million dollars per treatment. Seems like our people will be better off using the money to fund crspr labs and geneticist training colleges at HCBUs.
@Klonkus5 ай бұрын
Your people? Dude, they aren't going to help any of us.
@connormartin13225 ай бұрын
A lab capable of performing CRISPR typically needs an NIH P01 center grant, something to tune of $50 million minimum.
@funDAYsmiling5 ай бұрын
It’s a neglected disease in the pharmaceutical industry for a good reason.
@catoftruth1044Ай бұрын
this is not the same as the movie the island right?
@RL.RachelLaurin5 ай бұрын
Crisper and gene editing? Sounds like the movie Rampage 🙃
@verilyveronica84305 ай бұрын
It’s how humanity ends itself but not our problem now .
@redstarchrille5 ай бұрын
@@verilyveronica8430 Kids... gene editing is nothing new. it's have been done since the 60s. The new things is the technices of doing it. Both are regulated by laws both national and international.
@verilyveronica84305 ай бұрын
@@redstarchrille It does not change what I said in any way
@goaheadtagmeIknowyoumadbitch5 ай бұрын
Who.... must be before my time, carry on boomer
@goaheadtagmeIknowyoumadbitch5 ай бұрын
@@redstarchrilleyou should "edit" your remedial comment SMH
@0to100_real_quick5 ай бұрын
I hope he does get super powers.
@ObsidianElohim16 күн бұрын
Man that little dude got mad charisma. That's Tupac reincarnated right there.