Teenager With Butterfly Skin Inspires Others | BORN DIFFERENT
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Despite being born with an incredibly rare condition that causes his skin to blister and tear with the slightest touch - John Hudson Dilgen is inspiring people with his motivational speaking. John, 15, was born with Epidermolysis Bullosa, a condition that leaves him in constant pain and affects only one in every 50,000 children in the United States. On a daily basis, John has to have the majority of his body wrapped in bandages to save him from infections and further harm - around 95 percent of John’s body is covered in open wounds. To find out more, visit: www.ebresearch.org
For more info, please visit: tunnel2towers.org
The motivational work John does is for the EB Research Partnership: www.ebresearcg.org
Video Credits:
Videographer / director: Adam Gray
Producer: Nora Hakramaj, Ruby Coote
Editor: Beth Angus
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@xDigitalMonster 5 жыл бұрын
She’s a damn good nurse and he’s a strong young man.
@reeses5212 5 жыл бұрын
Noones ever been more right
@Pseudochick01 5 жыл бұрын
xDigitalMonster You're so damn right! 💪🏻👍🏻
@dhamani 5 жыл бұрын
Ikr , I though he died , I remember when he was 11
@rntn7148 5 жыл бұрын
I’m a potato I thought he passed away also. Edit: I was wrong. Just googled and the family is being given a new house this week!
@sopranomegansaunders 5 жыл бұрын
Rn Tn You’re probably thinking of Jonathan Pitre from Ontario, Canada. He passed away of EB this past April.
@Christina-bm7np 5 жыл бұрын
No child deserves to go through this. It breaks my heart. Bless this whole family, including the nurse.
@yetiboi8032 5 жыл бұрын
No child? Not even any living being, not only child.
@EvolvedJewel 5 жыл бұрын
Your imaginary god sure blessed that boy all right.
@theasianpianoboy6750 5 жыл бұрын
*Looks at Mao Zedong as kid*
@vonschezar3356 5 жыл бұрын
@@EvolvedJewel wth.
@egyokult 5 жыл бұрын
So true
@dovahkiink.7870 4 жыл бұрын
I got in shock when I saw him with the bandages off, I cannot even imagine how painful having those wounds is, I wish all the best for him.
@arianacabrera9443 4 жыл бұрын
Dovahkiin K. I think they compared it to like a burn dont know the degree but could you imagine?
@MrKrabs-zp7on 3 жыл бұрын
@@arianacabrera9443 They compared it to a 3rd degree burn i think, i'm a but late but yee
@andressaloiola8669 3 жыл бұрын
Him in the shower.... I just broke down crying inside, my heart is in pieces
@andressaloiola8669 3 жыл бұрын
@@MrKrabs-zp7on man... when your body is covered in 3rd degree burns the doctors put you in an induced coma because the pain is just unbearable... I can’t even imagine how he goes through this everyday
@SRBOMBONICA86 2 жыл бұрын
@@andressaloiola8669 he is on strongest opiates Dilaudid ,but still it's not enough
@her2607 2 жыл бұрын
when he apologised for not being able to get deeper into the water my heart sunk, god bless him and his family
@marilynwillett804 Жыл бұрын
God not god.
@TheTrueLadybug Ай бұрын
@@marilynwillett804hush
@DantePizzaLover 16 күн бұрын
God? Who made him having that?
@jennabateman1500 9 күн бұрын
@@marilynwillett804 the fact that that’s what you care about that the g in god is capitalized….Your god gave this kid this life. He’s disgusting if he’s real
@hal3yamazing 5 жыл бұрын
That nurse cried, she showed she cared for that young man on a level that not every nurse cares for their patient. She is what every nurse should strive to be as.
@cuppyrobertson7164 5 жыл бұрын
I think she's doing a good job but she needs to put up her hair. That very germy.
@madisonnorthrop52 5 жыл бұрын
Cuppy Robertson have you ever worked in an ER? A lot of nurses wear their hair down.
@cuppyrobertson7164 5 жыл бұрын
@@madisonnorthrop52 What qualifies you to ask me?
@justme6781 5 жыл бұрын
Not really. To be a good nurse u need to be strong and not to be emotional too much:/
@floatingchimney 5 жыл бұрын
No, that's absolutely WRONG thing to strive to be. It's pretty obvious you're not a nurse or don't work in a medical field, or most most importantly - you don't work at all. A nurse is a professional, she has a job to do and needs to do it on a professional level, with precision and attentiveness. Crying and being emotional is not what ANY medical worker should strive to be. Her job is to do her job first and foremost.
@vayneaurelius5238 5 жыл бұрын
95% of his body covered with open wounds?? i cant imagine everyday feel pain... this is so heavy
@iamkelisb 5 жыл бұрын
That's so true
@hiphopdagame 5 жыл бұрын
i've had 80% of my body covered with open wounds before coz of a bad Eczema flare up... trust me, you just gotta be strong and have faith and pray for better days...
@iamkelisb 5 жыл бұрын
@ItzNuttellqKinq you need help
@hiphopdagame 5 жыл бұрын
@@iamkelisb you know what's funny and truthful, someone like this teenager that has gone through ups and downs via his condition(or anything in life), will develop into a more compassionate, caring and understanding individual compared to peeps that took things(life especially) for granted and doesn't really react well to daily stresses.... i'm just telling it as it is as i don't think i'll be the individual that i am today without experiencing ups and downs with life and with having this skin condition...
@aaGirlification 5 жыл бұрын
exactly wat i was thinking n felt.
@twocrazyboys4367 4 жыл бұрын
This is horrible can’t imagine that poor boys pain he is literally in pain every minute of his life 🙁
@justtrent9519 4 жыл бұрын
He died 🤧
@thisistheworstnameyouwille1945 4 жыл бұрын
@@justtrent9519 how did u know?
@justtrent9519 4 жыл бұрын
this is the worst name you will ever see lol it was a video
@justtrent9519 4 жыл бұрын
Fjorgyn Yea look up Jonathan Pitre it’s sad
@biggiecheese1136 3 жыл бұрын
@@justtrent9519 that’s a different person
@pkx5897 4 жыл бұрын
I can honestly say this boy has changed my views on life and showed me that everyone is going through something, but there’s people who are going though something 100x worse. John is absolutely beautiful and his outlooks on life is what keeps me going every single day. I love how kind hearted and passionate he is as well as having the sense of humor that he does. Everyone needs to see these videos of this amazing kid and how inspiring he is, especially these days in society!!!
@CupCake-sc9eb Жыл бұрын
I'v got tinitus like 2 monhts ago and feeling suicidal and now i am a bit ashamed. Seeing that John Hudson can wake up every day with this kind of pain and still have a smile on his face was like a wake up call for me.
@cassandraalaena1543 5 жыл бұрын
i’m not normally someone who finds these videos hard to watch but seeing him take his bath and the amount of dread and pain he was feeling was so hard to watch
@allisonrenae9615 5 жыл бұрын
it's just sad because you think about all the things he misses out on.
@adelina07 5 жыл бұрын
cassandra alaena don’t worry, he is ok, I really do know that
@nadaw1509 5 жыл бұрын
It's hard for me to watch kids suffer
@nadaw1509 5 жыл бұрын
Omg that looks so so painful I can't look at the blood skin and skinny arms and legs
@F8th63 5 жыл бұрын
Yes, it was very hard to watch. Poor sweet boy. God bless him.
@cccccccc549 5 жыл бұрын
So sad....what an intelligent and well spoken young man
@babyaliveisg8868 5 жыл бұрын
T
@roamingrambler5839 5 жыл бұрын
you should watch his video on the channel Special Books by Special Kids
@rainbowdashgirl3206 5 жыл бұрын
Im your 1k like
@JDRodriguez9 3 жыл бұрын
I want to meet this kid and tell him how much he’s inspired me
@rorus9530 4 жыл бұрын
he’s such an intelligent, brave boy. Life can be so unfair.
@user-de6cx4em6s 5 жыл бұрын
This is like being skinned alive, daily. Which, fun fact, is supposed to be one of the most painful things to experience. One of the most painful ways to die. So the fact that he’s still here, living, making the most of life and being so positive, is really great.
@Bizartspirit 5 жыл бұрын
I though about something... What if this is hell? It's just an idea, but maybe in an other life he skinned someone? Maybe after this life his soul will be completely cleaned from all sins and in the next life he will be in heaven, in a lucky life?
@genericusername8337 5 жыл бұрын
@@Bizartspirit Delusional. An attempt to console yourself because reality is hard to accept. Not blaming you though. Humans have done it for millenia, and will continue to. Still, that doesn't add validity to these ideas.
@EvolvedJewel 5 жыл бұрын
@@genericusername8337 You are intellectually superior to all of these people, I've read your posts. Know that. And I totally agree with you on all points. They cannot see the contradiction of a benevolent deity who imposes suffering such as this on a child. They lack critical thought, education, and are brainwashed.
@dogewoge6580 5 жыл бұрын
@@Bizartspirit You are the definition of delusional. Don't mix your made up beliefs with reality.
@katie_jeanes 5 жыл бұрын
Doge Woge Who pissed in your cereal 🥣? Lol.. Leave him be, he’s aloud to believe in a higher power. Besides, he said it was just a thought.. Quit being a bully..lol
@memequeen9091 5 жыл бұрын
This boy is the definition of strength and courage.
@poisonrain7462 5 жыл бұрын
ikr he has had that for 15 years!
@ashblade8685 2 жыл бұрын
Yeah! He knows that it painful but he lso knows that he needs to be strong and work through this, I could never be a brave as him ❤️❤️
@karlajacome2802 4 жыл бұрын
I’m crying 😭 This story broke my heart he’s warrior 🥺😍
@ellenrichardson8701 4 жыл бұрын
Me too. 😱😰💔💔
@kimberlydunlap5434 4 жыл бұрын
Karla Jacome It made me cry as well
@frowniebrown86 4 жыл бұрын
“I don’t think I can I’m really sorry 😢” oh my goodness when he said that, I could feel how unbearable it is for him 😭😭😭
@ellaelliott4415 2 жыл бұрын
It’s impossible to feel what he feels-I get what you mean but you can’t
@raynekraven 5 жыл бұрын
after watching this who can ever complain about a paper cut again? this kid has courage, I wouldn't be able to go through this
@Septembersend34 5 жыл бұрын
Because everyone's feelings are valid, including people who have paper cuts
@raynekraven 5 жыл бұрын
@@Septembersend34 seriously? a paper cut is NOTHING compared to what this kid has to go through. paper cuts heal.
@Septembersend34 5 жыл бұрын
@@raynekraven I know. His condition is horrible and I'd do anything to change it, but we can't. I'm still gonna complain about a paper cut though honestly just because usually it happens in class and I'm so bored I could eat my own eyeballs and I could laugh over dropping a textbook
@skeetskeeh7070 5 жыл бұрын
You would be able to if you were forced into it since birth
@raynekraven 5 жыл бұрын
@@skeetskeeh7070 maybe maybe not it depends on one's personnality one headache knocks me down, not out, but almost
@miracole6469 5 жыл бұрын
the fact that he's wearing avengers T-shirt is adorable. ure a strong fighter john. ure the real life hero
@dominickbanks3633 5 жыл бұрын
he loves superheroes, it’s a good thing. He love superheroes because it makes him feel courageous, and fight at the pain he goes through. He saves the day just like superman. He saves the world. I love him.
@hazmalfor162 4 жыл бұрын
700 like
@brennangappy8360 4 жыл бұрын
Also, the dad making the ice cream float just melted my heart. Such a supportive group he had around him. ♥️
@shinobiverse3068 2 жыл бұрын
That same dad is my science teacher, I never knew why he always acted so nice and why he just looked burnt out. Now I know.
@deaththekid3198 3 жыл бұрын
The fact that this boy is my science teachers son is amazing, I remember once my teacher couldn’t arrive to class because his son had to get a surgery. I miss you mr.dilgen!!
@marjoriesyoutube4530 5 жыл бұрын
My heart aches , I had to stop watching , I’m a nurse I know how much pain he is . God bless him , but he such a trooper , I pray they find a cure for him .
@korinantoinette8644 5 жыл бұрын
That is nice
@aya2722 5 жыл бұрын
Is there no cure for that disease till now? O my god
@jessw.6250 5 жыл бұрын
Marjorie’s KZfaq God! I feel the same & will pray the same 🙏
@adelina07 5 жыл бұрын
Marjorie’s KZfaq Everything is going to be fine
@rntn7148 5 жыл бұрын
Carolyn Crouch This isn’t Jonathan Pitre. This Jonathan is still alive and their family is being given a new house this week. I was confused also.
@Laura-ym2gs 5 жыл бұрын
That looks so damn painful. :(((
@User556q 5 жыл бұрын
imagine living like this eryday , for the rest for your life , this is horrible
@muffinmonster2634 5 жыл бұрын
I bet it is
@livingdeadgrrlx3 5 жыл бұрын
It definitely is
@kayleighwaters3878 4 жыл бұрын
No kid, adult, or elderly human being should EVER have to go through this. Stay strong...
@techno05 2 жыл бұрын
yeah it is something that i hope calms down in my 40's
@exclusive._dg9870 4 жыл бұрын
THIS MADE ME CRYY 😭😢😞😪😩😫🤧☹️😔😢😢😭😭GOD BLESS THEM 🙏🏽🙏🏽
@gothicRomantic 5 жыл бұрын
meanwhile on another part of the world, there are people who dont go bath in weekend, people who yelling back to their mom when she asked em to go to bath. be grateful to ur life if u watching this. and keep fighting john!
@grammarpolice2714 5 жыл бұрын
Oh my gosh, this just happened between my mom and younger brother...
@thomasd.2296 5 жыл бұрын
what?
@madeyoureadmyname3027 5 жыл бұрын
ryan aries yeah
@Mxer724 5 жыл бұрын
Wish i could give this young man a day without pain..
@user-bt7rz9pd2h 4 жыл бұрын
Mary Oden Why’d you think that was funny?
@1NewsNewZealand 4 жыл бұрын
Stormi Webster it was
@SakMeibals 4 жыл бұрын
@@user-bt7rz9pd2h yes it was
@lenadengel2145 4 жыл бұрын
@@user-bt7rz9pd2h i agree, this isn't funny at all. seeing in how much pain he is everyday, not beeing able to live life like everybody else is just sad and heartbreaking. and then making such stupid jokes is really not funny
@pandachan3223 4 жыл бұрын
@@lenadengel2145 these dumbasses live in another reality, to them stuff like this is nothing but a joke, other people's suffering means nothing to them, and it's sick
@andread4595 3 жыл бұрын
And to think about how many times I’ve winced because a little skin peeled off my finger and the way that hurts underwater… There are no words for how terrible I feel for what this child and his family go through. This nurse is also an angel and seeing her get so emotional was heart wrenching. John does definitely seem like a kind soul. Someone needs to find a cure for this. Bless this entire family and their providers.
@deloresm7494 4 жыл бұрын
I am so sad that he has to suffer like this. God bless you sweetheart.
@kingofmeatballs763 5 жыл бұрын
*I wanna be this guy's best friend and help him....I wish I could be there go hang out with him after he takes a bath so he isn't lonely....*
@syafirafa 4 жыл бұрын
I wanna do it too
@orangeyes9888 4 жыл бұрын
I feel the same way 100%
@elmoiscursed1692 4 жыл бұрын
Me too THERE SHOULD BE A CURE FOR EB
@xxfarawolfxx 4 жыл бұрын
King of Meatballs same I would be there to help him through the pain
@petitecontrebassiste 4 жыл бұрын
I know I wish there were people who live close to him that would come over and just sit with him after baths and distract him. really sucks =(
@raforsomething 5 жыл бұрын
I can't believe kids like this still find the courage to come in front of a camera a do what they do. Keep going and stay *STRONG* Edit: Also the parents and others are a key factor in this as well, so props to his mom, dad, and others who help.
@priscillaadomabadu2154 5 жыл бұрын
SSJB his parents are really strong I keep pausing it cos it’s so hard to see the pain he has to go through just to take bath it’s such an ordeal, he’s very inspirational
@ProfessorKenneth 2 жыл бұрын
This poor kid...I'm crying because I wish I could help him ..🙏🏻😩😢
@luna_exe7753 4 жыл бұрын
When he was taking a bath tears just rolled down me face....
@symonegomez2388 4 жыл бұрын
Same here man
@Angel-pt2cf 5 жыл бұрын
Theres no words to describe how sad is to see this. 😔
@adelina07 5 жыл бұрын
Angel it’s ok, I know that he is ok and his father is happy that he is a strong boy... (I really do know)
@rashadep9758 5 жыл бұрын
Bravery takes over sadness and he is for sure a brave young man
@robertleveen4380 5 жыл бұрын
He is a really strong boy
@kathleengoss5974 5 жыл бұрын
He lives pretty close to me. I remember seeing his story on the news and having it really touch me. He just got a new house that was donated to him with no mortgage and it’s accessible to him and makes it easier to function. He’s such a sweet kid and I hope he has an amazing life
@tamikabarr6732 5 жыл бұрын
😊 awww good for him 👏
@liIdecky 5 жыл бұрын
Did you ever talk to him?
@kathleengoss5974 5 жыл бұрын
Eragon Kvothe no, he loves in queens I think (?) And I live in upper westchester
@orion1two 5 жыл бұрын
That's amazing!!
@lulua512 4 жыл бұрын
My heart is shattered completely. No one deserves to got through this. This boy is so strong I want to help him with everything. A literal inspiration.
@zubaydahtalukdar8088 3 жыл бұрын
I know mashallah 😍😭
@nathalie7312 4 жыл бұрын
I love how much his nurse cares about him. He needs someone like her and his parents to have patients and as much understanding as they can to what he is going through 💕
@gracieshepardtothemax1743 5 жыл бұрын
John Hudson I wish I could take away all your pain. I wish you didn’t have to suffer. I’m glad you have a support system and as family who loves you! Love from Canada 🇨🇦
@sharonmiller7088 5 жыл бұрын
Love your comet and I feel the same way.
@gracieshepardtothemax1743 5 жыл бұрын
Sharon Miller no child deserves to suffer! I really hope he gets everything he’s ever wanted! Cheers!
@verified9351 5 жыл бұрын
*tIpS fEdOra* tHiS iS tImMy FrOm ‘mUrIcA
@oliviathurlow8774 5 жыл бұрын
Hi I live in Canada too
@jeremyneal3749 5 жыл бұрын
He is Canadian
@Starqhi 5 жыл бұрын
I feel so sorry for him 😭😭 NO ONE DESERVES TO GO THROUGH THIS PAIN 😭😭😭
@teachwelltuition4005 4 жыл бұрын
So true
@jordanclark65 4 жыл бұрын
I wish he didn't have to suffer😭😢
@sweetiehearts8339 4 жыл бұрын
Yes. He definitely doesn’t deserve this. But some people do deserve this. But John is not one of the people who deserve it though.
@LexyLillys 4 жыл бұрын
True
@anigeorgieva6580 3 жыл бұрын
He died
@jordanclark65 4 жыл бұрын
No kid should have to live with constant pain like this😭😭😭😢
@gapeach4u 4 ай бұрын
Never in my life have I felt such shame at myself as I have now seeing this young child, this human, suffer so greatly when I complain that I have to even get up, make my coffee and work. At least I have a decent life, it’s not all rainbows mind ya but it’s damn great compared to his. The little things we take for granted and he faces that every single day! I just can’t stop my tears. I don’t know you John Hudson Jr but I am praying for you and thinking of you daily and I will live life better from now on bc you inspired me. You are handsome, brave, strong, determined, courageous, smart and inspiring and my love goes out to you, your family and nurse! They are all wonderful and I’m so very sorry for the loss of your father last year. With every tribulation you’ve faced you still are triumphant and deservingly so. 🩵🩵
@aririnrin2571 5 жыл бұрын
There's nobody who could know or imagine his pain. It's terrible....He must be scared and desperated, because he's the only one who feel the pain.......It's hard to say, but I wouldn't let anybody to live such a painful life,...i feel just so sorry.
@aririnrin2571 5 жыл бұрын
@Bookshelf That's true that there are people who suffer from the same condition. However, the pain is not the same, you can't say that they know each other's pain, because each of them is different people with different mind and body. Maybe, they can imagine each other's pain more than someybody who has no such condition, but they will never know each other's pain.
@skarlettcage3922 5 жыл бұрын
@Bookshelf They Don't feel the same pain. There are many different kinds of EB. I have EB but mine isn't as severe. I don't feel as much pain as he does
@skarlettcage3922 5 жыл бұрын
@Bookshelf You were literally wrong. I support educating the underprivileged
@skarlettcage3922 5 жыл бұрын
@Bookshelf You commented on a public domain. It doesn't matter if you were talking to me or not
@troxycat 5 жыл бұрын
@@skarlettcage3922 I have EB too...I very rarely meet anyone else with it. Mine is nowhere near as severe either, but it definitely causes problems.
@gabbys5867 5 жыл бұрын
I handle pain so awfully and seeing the pain he had to go through just for a bath makes me feel awful. I hope the best for him and his family. Edit: Thanks for all the likes ❤️❤️❤️❤️❤️
@alextatertots4395 5 жыл бұрын
Gab S He sadly pasted away back in April due to complications...
@rntn7148 5 жыл бұрын
Alex Tater Tots No I thought so also but that was another child that died in April. This family is actually being given a new house this week. The one that passed in April’s last name was Pitre I think. Someone helped me on another comment when I thought same.
@alextatertots4395 5 жыл бұрын
Rn Tn Oh ok... my bad, sorry.
@rntn7148 5 жыл бұрын
Alex Tater Tots No problem. I was confused, also!
@amirhabaker1339 4 жыл бұрын
everyone who said a comment thank you for supporting jhon im so glad you are all on his side now hes not alone we are with you JHON
@Makeriaa 4 жыл бұрын
This honestly made me cry, he’s so strong...praying for you John❤️❤️❤️❤️❤️
@pelumigbadamosi6819 5 жыл бұрын
Who else was feeling bad as you were watching the shower part of the video,I definitely felt his pain
@FlipAndLand 5 жыл бұрын
Yeah. You know exactly how it feels. Idiot.
@Idk-kg8gr 5 жыл бұрын
@@FlipAndLand Not to be rude or anything, but I think what this person means, is by seeing this they can put themselves in that situation by using their imagination. Sometimes you don't really have to have the condition to able to imagine what it's like. So by calling this person an idiot isn't really the best choice of wording, and your comment at all isn't needed as well.
@alix6002 5 жыл бұрын
pelumi gbadamosi .... The thing is your pfp but no hate but just it’s distracting me XD
@Ash17030 5 жыл бұрын
pelumi gbadamosi I almost cried
@doniay.210 5 жыл бұрын
Yeah.. Not to be rude but its a bath not a shower.
@jenniferhalf1650 5 жыл бұрын
Such an incredible boy....but I'm not going to lie this truly breaks my heart....
@pamelatillery2841 4 жыл бұрын
Aw poor boy, he is strong and has a loving family. My heart breaks for him. Bless him. 👍👍
@brendaluna173 4 жыл бұрын
Why just why would a child have to go through such pain? My heart breaks for him, I wish I could do something to help him.
@bethrunkle76 5 жыл бұрын
337 heartless people disliked this video. How could even one person dislike it. I live with pain every day but i can not even imagine what this brave boy goes thru.
@kenzie9231 5 жыл бұрын
It is probably because they don't like blood
@leahdavis8023 5 жыл бұрын
It’s not them trying to be mean its because they’re sad for them
@ciennachelsie 5 жыл бұрын
They were probably crying and their tear touched the dislike button
@janetmorehouse4665 5 жыл бұрын
For some people, I think they pushed the dislike button because it was just so sad/hard to watch. It’s probably a mistake to assume they meant anything wrong by it. Honestly, I can’t click on the like button because my heart hurts for this beautiful boy and all involved. There is nothing to like.
@Thisissarah815 5 жыл бұрын
I think maybe they disliked the video because they hate seeing such a young, beautiful soul suffering
@mikaellaroberts6499 5 жыл бұрын
I pray he gets that special bath tub 😢🙏🏼
@kylie.jjohnson 5 жыл бұрын
He got the bath! That is what the nurse was bathing him in.
@vanessastarks6486 5 жыл бұрын
They actually ended up getting a brand new house built for them for free! The kid was sooooo grateful for it that he cried! It was truly AMAZING!!!
@jaredsantos6457 5 жыл бұрын
@@vanessastarks6486 I swear he died last year
@MrandMrsPaper 5 жыл бұрын
Instead of praying, donate!
@mikaellaroberts6499 5 жыл бұрын
MrandMrsPaper I pray because I do not have the financial means myself to donate. Trust me, I would be homeless if I donated to every person my heart felt for. 😕
@lespaul382 3 жыл бұрын
This warrior will be greatly rewarded in the next life. Bless his heart🙏❤️
@Rose-ko4op 3 жыл бұрын
I want to give him the biggest hug ever but then he'll be in so much pain🤧 Thank you for being an inspiration John and for reminding us to not take things for granted💜 Also props to the parents and also the wonderful nurse. I know it means a lot to John to have such supportive people around him.
@makkenziebeer214 5 жыл бұрын
he’s so strong. every day he struggles with physical pain and it hurts to live. but he carries on. i am a healthy limber person, and i can barely get through one day without wanting to die. i wish i was as strong as him. you’re in my prayers, u and ur family. 💗
@MadeleineHenderson 5 жыл бұрын
Makkenzie you may be healthy physically but obviously not mentally and that doesn't make you less strong than someone with a physical condition lovely. He is an amazing strong kid, but you must be pretty strong too to make it to the end of each day if you are feeling so bad. I really hope you have a good support network xx
@efoxkitsune9493 5 жыл бұрын
Hi, the fact you made it this far and are still here tells me you yourself are stronger than you know. I'm sorry you feel this way. You know, just because mental illness and suffering is not physically visible doesn't mean it's any easier to deal with - or that you're any less for struggling. I know that sometimes even getting out of bed is an impossible challenge. Some days it may even be too hard to overcome. But so far you've made it through 100 % of your days, that's quite an impressive score. I hope things get better soon. Hang in there. And remember that asking for help is never a weakness. Wishing you all the best and sending lots of love!
@kimkartrashianstopmakingst9060 5 жыл бұрын
I know how you feel..and you ARE a strong person to keep going. I find what helps me is doing small things that make me happy....especially being outside grounds me, or being around my pets. They are very therapeutic for me. I also think watching uploads like these make me appreciate what I DO have even more. You are important and you do matter. I have struggled with depression since I was a kid. It never gets easier or really subsides, but learning small ways to take care of it make all the difference. I appreciate your comment and your honesty 💜
@kimkartrashianstopmakingst9060 5 жыл бұрын
Reem Hassan very nicely said and true
@efoxkitsune9493 5 жыл бұрын
Reem Hassan (idk where your comment went, but) I love what you said. "The key to happiness is letting each situation be what it is instead of what you think it should be-Mandy Hale" - that's something I'm gonna need to keep in mind myself.. :)
@storyofmylife1550 5 жыл бұрын
Sorry sweetheart..can't stop crying...lord please do this family a miracle and heal their son....pls lord...this is too much
@savagefam5352 5 жыл бұрын
lana Ibin amen 🙏🏼
@storyofmylife1550 5 жыл бұрын
@@savagefam5352 yes.. God does wonders.. This sweetheart deserves one.. He is in pain..I just can't stop crying ..
@herutababalagasa1599 5 жыл бұрын
Amen
@uhnothing1391 5 жыл бұрын
if god exists then why did he give this kid this disease in the first place
@haithamlwar9781 5 жыл бұрын
@@uhnothing1391 if god doesnt exist there will be no life , god who create him and god who will give him wonderfull heaven
@thomaslawrence6038 4 жыл бұрын
This child has the kindest soul ever. I wish him the best and i hope they can find some relief to him. My heart goes out to his family .
@justinbalog7968 4 жыл бұрын
This kids a warrior. He deserves all the respect in the world. The amount of people that would quit with what he deals with would be damn near everyone. He’s a hero for pushing through. If you end up seeing this brother I’m 23 and you’re my hero. God Bless
@queenjasmine7250 5 жыл бұрын
I loved the nurse 😭💯❣❣
@rozamiri8259 5 жыл бұрын
على ما اضن اول عربي تحياتي
@michaelb.tysonson3375 5 жыл бұрын
I almost cried... how is this any way to live??? Life is just cruel...
@michaelmyersplays4992 5 жыл бұрын
That's how life is it's unfair It's not in god's hands It just happens bad luck
@michaelb.tysonson3375 5 жыл бұрын
Ricardo Uribe That’s basically what I said...
@michaelmyersplays4992 5 жыл бұрын
@@michaelb.tysonson3375 yes sir
@hectorchavez1877 5 жыл бұрын
@@michaelmyersplays4992 I don't believe in bad luck though,I don't believe in any luck but I guess good luck to him
@michaelmyersplays4992 5 жыл бұрын
@@hectorchavez1877 if you dont believe in luck then why does he have to suffer?
@lilly_janelle 4 жыл бұрын
This sweet boy deserves to go outside and run with his friends, ride a bike, go on a carnival ride, catch a football. Or even hold a slice of pizza. His strength and bravery is unmatched. All of these children and their families are absolutely amazing!! 💕
@SolaGratia. 4 жыл бұрын
This young man just reached in and captured my heart. Not only him, but his family. I know that maybe most people who view this see a lot of pain, but what I see here is so much love. My God... So much love. ❤️
@nettiewatkins6545 5 жыл бұрын
Living with that kind of excruciating pain is not something others can understand who have not experienced pain at the same level that he does. Compassion and empathy are so important.
@dalejoseph9423 4 жыл бұрын
@Mary Oden what is wrong with you!! I don't see why you would say that!!!
@dalejoseph9423 4 жыл бұрын
@Mary Oden This is not a joke
@lochbessmonsta5348 4 жыл бұрын
@Mary Oden thats....a unique thing to say about his situation. Yes he needs pain medication and I'm sure he appreciates any means of escape from his pain but somehow I feel like your comment was a jab at him which is pretty insensitive. That kid is stronger than most and I adore him for his courage.
@SRBOMBONICA86 4 жыл бұрын
@Mary O'Bear true but these types of wounds not even morphine can help entirely
@Cath0505 5 жыл бұрын
Instead of funding wars and many other atrocities is this world this is the kind of thing money should be used for, find the cure for horrible diseases like this. What a great kid, his parents and nurse are pretty awesome too
@personalpersonal9356 5 жыл бұрын
... If we don't do that then everyone will die .. Well not everyone but many will die including more kids and resources will go . That was very stupid of you to comment . That's why it's a thing called donating so we give money to this too .
@Cath0505 5 жыл бұрын
@@personalpersonal9356 Actually, the only stupid comment here is yours. Did I ask you to like my opinion? Get a life troll.
@personalpersonal9356 5 жыл бұрын
@Mandi W , War literally saves lives . How stupid are you ? Why else are you and whomever you love are alive ? Yes people die in war however it's to save idiots like you and other actually smart people . That's why people participate in war ... It's to protect the people even if they die . If a person that literally went through war had to see your freaking comment ... I'd pity him/her cause they literally risked their lives just to save an idiot like you however some will still say worth it somehow .
@personalpersonal9356 5 жыл бұрын
@Mandi W , Yes .. They do give money . Many rich people donate money either out of actual care or just to look good ... They still donate money at the end of the day and it's to actual organizations like to a kids health department and so on . Also , All you gotta donate is at least a dollar to any organization like for kids health or whatever ... It doesn't always have to be to the military cause that's why you pay taxes and where your tax money go but if you don't want to .. That's fine .
@personalpersonal9356 5 жыл бұрын
@Mandi W , The fact you know no common intelligence is worrying. We learn this in elementary school . We still learn it in middle and HS .. And college cause people are risking their lives to protect others . Why else do people go to war ? War happens to benefit the people and to protect the people and resources .
@AbbyH767 4 жыл бұрын
I came here from sbsk and in his video from there I literally started crying. He is so optimistic about his outlook on life! Go John, shine bright and never let anyone or anything dim that 💡🕯️
@personaljesus5019 4 жыл бұрын
He doesn't deserve this pain. He seems to be a nice person. I wish him all the best ❤️
@demithys6236 5 жыл бұрын
I can see the pain in his eyes when he talks about taking the bath. I’m so sorry that he has to live like that. I hope one day they find a cure for him because he deserves a life beyond the bandages and baths.
@beear2363 5 жыл бұрын
The people who disliked were crying too much and just missed the like button
@yazzyxx 5 жыл бұрын
this actually happened l, and then I looked and I saw that I pressed dislike, and then I was like NUUUUUUU and pressed like.
@tessaknowlton41 5 жыл бұрын
I wish
@verenakelly1789 4 жыл бұрын
Perhaps they think I don't like that this boy has so much suffer, so I dislike
@conservaserva5958 4 жыл бұрын
This is just for watching...not for liking or disliking!
@crtx_wolf2252 4 жыл бұрын
BEEAR I agree
@drearolle7026 4 жыл бұрын
Lord bless this child , prayers of healing
@ericabryan6943 2 күн бұрын
ive seen a few videos with john and i just love him. and im so happy he has a nurse who clearly cares a lot about him. best circumstance in a bad situation
@krystallvinter7438 5 жыл бұрын
Just like his skin is being stripped away every day, so is his childhood. I can't even imagine how painful it must be, both physically and emotionally, to have your freedom taken away from you like that. I hope that he will one day be in a good enough condition to do all the things he ever dreamed of doing. Keep fighting, John.
@gutpulp 5 жыл бұрын
My sister's friend had this, the first time I met her, I started crying (I was about 6 at the time) she told my mom that she didn't mean to scare me, and I just told her "I'm not scared....I'm sad I can't help you..." She said (before she died, just this past summer) that she had always remembered that.... She wasnt supposed to make it to 12, but she pushes through She was 17 when she died. She taught me so much, and I honestly think I want to go into medicine and help people with this illness because of her.
@yadielgonzalez9108 5 жыл бұрын
MEN and WOMEN are enemies! Duude
@taevantae8283 4 жыл бұрын
I think he’s very brave, like, I wouldn’t survive a moment with that.
@Slytherin_101 9 ай бұрын
This video brought me to tears. He deserves the world while going through this. I wish him the best of the best. ❤
@rickm7491 5 жыл бұрын
John, I'm 60, and tough but after seeing your courage I am sorry that I can't be as tough as you. You are an inspiration in courage and endurance. You have motivated me as no one else ever has. Gladiators weren't as tough as you! Keep fighting and God bless you.
@belisariocastillo8695 5 жыл бұрын
That’s one strong kid, a strong 💪 mother, strong family
@jenniferoverstreet4299 4 жыл бұрын
I cried. I cannot imagine this pain, or having a child that lives in this pain. He is such an inspiration, his nurse obviously loves him and his parents have to be strong as well. God Bless this family and his nurse.
@lolaemmonds7385 3 жыл бұрын
nobody, especially a child should have to go through things like this. god bless him :(
@Charlie-kt3tk 5 жыл бұрын
Owwwwww I wouldn’t deal with the pain He’s a fighter I know he’ll get through it
@boldfaith765 5 жыл бұрын
Grown: check. Man: check. Crying: check. This young man is an inspiration to anyone with half a brain to understand the strength it takes to have such a great disposition and personality despite all this. Hoping and praying for a cure, thankful for the example he is setting.
@Robert-mu6qq 5 жыл бұрын
He's a modern day stoic.
@Septembersend34 5 жыл бұрын
Just bc you're a man doesn't mean you can't cry bud
@boldfaith765 5 жыл бұрын
@@Septembersend34 I never said otherwise 🤜🤛👍
@devinwilde5967 4 жыл бұрын
No one should go through anything like this
@sanaawhite3457 4 жыл бұрын
Wow he is a strong boy. God will bless this boy
@fnizer 5 жыл бұрын
Been on youtube since it launched in 2005. Never written a comment. But this person impressed me. Courageous, strong willed. Even though times might be tough, he keeps going. Genuinely inspirational. *And I have to add, he's a cool dude!
@janesmith7274 5 жыл бұрын
this is so incredibly sad
@loreenal9267 4 жыл бұрын
This story made me cry a lot. I wish this strong boy all luck of this world, and may he have sometimes a chance to be a healthy guy with not all of this horrible pain. God bless.
@lucykanniard3635 Жыл бұрын
OMG! That poor little boy. Sending prayers to him and his family! I really hope they find a cure!
@mncalapati415 5 жыл бұрын
Damn... I hate seeing kids in pain. My heart goes out to you John. You are a very strong person, stronger than most people. You are my motivation brotha. More power to you young man.
@dadjokes1159 5 жыл бұрын
Its hard to watch a video where a child is in this much pain. I hope they can find a cure one day.
@marianakalen2448 4 жыл бұрын
God bless this boy😭 bruh... I almost cried hes a strong person
@graciesmom62 3 жыл бұрын
This young man is stronger than I’ll ever be. I hope doctors can find a way to manage John Hudson’s pain. You’re amazing John Hudson. Sending you love and light. ❤️❤️
@totallysofte5548 5 жыл бұрын
Trying to hard to cry. I don’t think I’ve really noticed how grateful I am until now. He’s so motivational and strong and deserves the whole entire world. This broke my heart, but trust me you’re one of God’s most special kids! He made you specifically the way you are and you’re unique for this ❤️
@SuperDarkdiver 5 жыл бұрын
seems like god hated him from the start...
@AwkwardlySilenced 5 жыл бұрын
I love this kid. He’s got mad wisdom and happily shares it, even though he has to make himself so vulnerable to the public. He helps a lot of folks. Be like John.
@jaykay1053 4 жыл бұрын
Hi John Hudson! I just watched your video again. I just want to say thanks for telling the truth about what you go through. For centuries, people with medical challenges were hidden away from society. You, being willing to get out there and tell your story really helps all kinds of people. Whether it's in helping them develop their own empathy or gain a new perspective on their own situation, sharing your way of approaching life is effective and yes, inspiring. Empathy and hope are two beacons of light in a sometime dark world. Thank you for your positive contribution to the world. Hoping all the best for you, John Hudson, especially in the realm of pain control.
@etoilesln 4 жыл бұрын
John is really an adorable kid, he didn't deserves that at all, God bless him and his family 💜
@thatsevenfrogger 5 жыл бұрын
any SBSK viewers here?
@hollie9990 5 жыл бұрын
Meeeee
@user-wd6bq6tu8h 5 жыл бұрын
Me. I cried when he cried. :'
@mercyrahma9501 5 жыл бұрын
Yes😊
@sunleo6161 5 жыл бұрын
Me
@kellygehr5882 5 жыл бұрын
Yep saw him on there such a strong young man!
@MRBallSlapper-gy1lr 5 жыл бұрын
i really do hope they find a cure...
@zwhite3392 4 жыл бұрын
There he is in so much pain yet he still wants to help other people! How selfless! I salute you little man.
@patriciamichael8506 4 жыл бұрын
I litterally cried during this. I hope he continues to have a great life..
@iceice2010 5 жыл бұрын
Awww sweetie u are awesome a beautiful child and your parents and nurse rocks!!🌷
@numpty7695 5 жыл бұрын
RALEK lifestyle unfortunately he is dead right now :(
@some-one-else 5 жыл бұрын
Numpty No he isn't, Jonathan pitre is.
@pautorr8629 5 жыл бұрын
Numpty lies! He didn’t die
@ashleythrash7387 5 жыл бұрын
Your a great kid dont let anybody tell u different, I'm praying good works a miracle for you!
@drafsheenmasoodmalik1478 5 жыл бұрын
Me too
@baronkaedit3935 4 жыл бұрын
I pray for you, John. When I see this video, I cry and cry. You are Here. Really! Take care. Send Love from small republic - the Czech Republic.
@the.synikalv6134 4 жыл бұрын
He is so strong he goes through this stuff everyday and he still wants to help people What and inspiring young man 💜
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