@@johnatondroid Faith isn’t mutually exclusive with science.

@@johnatondroid this is asinine. John is a wonderful person who is fighting hard and believing in a cure. Let’s raise money for that cure.

There is a cure with the anecdotal data amd peer reviewed study by 1 of rh3 worlds most renowned doctor with an unprecedented results with 100% cure and solution with hear this 0% side effects. I'm not kidding. Reply to this and I'll tell you where do look and see and get it for yourself if you choose

There is already a cure backed by peer reviewed studies by world renowned physicians with unprecedented results proving 100% cure with hear this 0% side effects with the best most verifiable anecdotal data. Relly to this if you like this information to see for yourself

Nice bro

YES!!!

Yes‼️I love that she did that, giving him a sense of like you said respect and also independence in some way for him to decide what he wants to share.

Yeah he's insanely articulate and aware, he must have got it from somewhere!

That touched my heart so much. Just so much love and respect.

Yes, he’s a living reflection of his parents unequivocally positive influence(s). All around good human beings.

Jesus loves you🤍

He's really a special kid

Agreed.

I agree 💯

He is an adult. Correct me if I’m wrong, but I believe he’ll be 20 this year.

😭😭😭 RIP, he was SUCH a good father from watching this video. What a sweet man. I’m sure he is greatly missed…

Sending tons of love to John and his family! Rest in Peace

NOOO and here i was hping at least this boy would at least not have to deal with the pain of losing a parent. John is definitely in another level of bravery . RIP to his father hope they can meet again somewhere!

Gosh people don’t know how to use the crying emoji

The things that stand out are how family matters so much in a persons life ...family can take on many forms but it is all we want or need in the end ...each other ...This young man has reached a level of philosophy rarely understood by many who have lived 4 times longer than he has ... His father did a great job raising him and caring for him ... This video caught me off guard and has inspired me to remember what really matters. Thank you to all the family for sharing your love...

Jesus Christ... be grateful for what we have because some people have it very rough

damn...

А как же мальчик? Что с ним? Как он? 😢

💔😭 is sad

Such bad news! RIP

🥹💕

That's what got me too! 🥺

I cant....😢😢😢😢

That exact moment of pure tenderness will be with me forever

I wondered if you meant the dad had unconditional love or if you meant the son had unconditional love. But then I realized they both do.

Honestly that’s all that matter

I second that!

Yes, that's so true! Our bodies are just the hosts of our souls! And our soul is invincible!

Animo..fuerza¡¡!!🇪🇸🇪🇸🇪🇸🇪🇦🇪🇦😉😉😉

Jesus te ama😉😉🇪🇸🇪🇸🇪🇦🇪🇦🇪🇦❤❤❤❤❤

Don't feel ashamed, sweetheart!❤

What an incredible young man! Does anyone know how he is doing now?

What are you ashamed for?

Me too.

You should not be ashamed of yourself. You're going trough your path in life like we're all going. You can't be blamed for feeling the pain and aches of life. Life is unfortunately very brutal, but at least we're lucky to be able to enjoy it more than people like John. I get the sentiment of your thoughts tho and I've got to admit I felt the same way like you at first but then I remembered that we can't be blamed for our flaws. We're just human beings. Stay safe ❤

Unfortunately his dad is an angel. 😞

@@Frosty0762 Oh my heart. I’d like to think his daddy is waiting on him in eternity… Never sick, sad, hurting, or separated again.

❤️❤️❤️☺️

Thank you for that. I fully agree 💙

YES!! Beautifully said!

He is so brave.

Same!

Thank you for the update 😇😇... Stay safe brother/sister 👍🏻

He went into Phase III trials!

Thanks for the update. What beautiful human beings. My heart goes out to all of them. ❤

Thank you for the up date. I don't have much money but I do have lots of prayers the cure will be here soon for him and all kids with EB 🙏❤️

Thank you for the updat

I hope you to be alright now,stay strong and never give up

Same here.

Is he 19 in this video?

Yeah, at one point he talks about what it's like being 19.

@@AseAleisha yep, people who have EB often don't go through puberty so he sounds and looks younger but he's 19

19 🤯 he looks so young.

@@overgrownkudzu Yes, I keep wondering if he and other adults with EB ever find that frustrating, because they must find that people quite often don't realise they're an adult, and they likely get spoken to like a child quite frequently. I think I'd find that frustrating. On the other hand, he has a really good sense of perspective since he's dealt with much bigger problems than that, so maybe he shrugs it off.

Well that was mighty kind of ya

Wow, that's a kind gesture. Huge respect.

Respect

Wow. Thank you man from all of us

Your a good man

You sir have spoken the golden words! This is sheer strength 💪 Both mental and physical This guy is a hero...he is literally unbeatable!

That's so cool. I love that you said that

That's so dumb. Both are worthy on their own ways. You don't need to put a whole group of people down

@@giovannebeistline2575 thanks for being sane

Is there any kind of gene therapy being developed for this that you know of? That would be incredible!

​@@francookie9353no. But they are REALLY close to a cure!

ofc you are

​@@francookie9353 vyjuvek

Prove it.

Well said. I wasn't thinking I'd be too affected and just support the young man's struggle without getting emotionally invested, but seeing how brave he is and then watching his father struggling to hold it together was too much. What an amazing young man and family. I have the utmost respect for them.

Beautifully said

I think your message,Vlad is quite honestly one of the most heart felt and beautiful I’ve ever read!!!! Thank you for making me believe in humans again. You are one wonderful man 🙏🏼🙏🏼💕🙏🏼🙏🏼

Same, I am 46 year old bloke sobbing watching this.

Same here, bro, I wish I was hundreth the man he is

I’m currently a medical explorer, and this channel has really had an impact on me.

This video is painful to watch. I think as a man who lost a leg ABK and the pain I went through, but seeing a kid with a condition like this it, breaks my heart. He’s very smart, brave and tough though I’ll give him that. God bless him!

@@Anonymous-lq2bs hey mate totally agree with you his strong as a bull the pain he is in must be incredible he gives himself pain medication so he must in pain poor fella

Thank you for becoming a medical person. We need more hero's like you. Hopefully find a way to stop this horrible disease. Little dude is a beautiful person, heartbreaking.

How is medical school? I'm interested in medical school and becoming an anesthesiologist when I'm older, and I'm wondering how medical school affects you/how challenging it is/how hard it was to get in. If you're comfortable with answering I'd love to know!

True.

Death be not proud is title of a book of true story of a young man who died from something at a young age, inspiring and moving story as well, I think he was a teenager, he died of a brain tumor, published in 1949 by his dad John Gunther.

@@elainebolling505 I am *always* searching for new books to read. I will check this one out! Thank you! Also - If you've never read The Diving Bell and The Butterfly, I strongly encourage you to briefly familiarize yourself with the content and pick it up. It is a *must read*!

He seems very wise and resilient praying for him tonight

🙏

What a loving family.

Yep me too, 53 yo man crying

Tears and compassion I cried too but a wonderful family they are for sure God bless them

@@reubenbruno2250 Do you even know what you're saying? God did this.

Omgeeee me tooo

When you’re sleeping you don’t feel pain

@@blackqweenmars you do actually you just feel it subconsciously

He's an adult now so legally it's his decision. Although I think a lot of disabled people are not respected like this, even once they're adults.

@@junbh2 This is sadly very true. I am a disabled adult and people often talk to/about me as if I were a young child.

@@junbh2 even when it's legally within the parents' right to decide, they should still check with their kids if it's at all possible

@@overgrownkudzu Yes, I agree.

The fact that he is an adult, even as a child/teenager, and it took palliative care to be the first people to suggest that he should have a say in how and what kind of treatment he gets, makes me pretty annoyed. He is obviously very loved, well looked after by his family, clearly an asset and full member of the family. Don't get me wrong I am not faulting anyone here. But when the mum says, palliative care is about giving John Hudson the chance to pick his quality of life over some of the smaller decisions but 'not the big ones obviously'. That rubs me up the wrong way. This is an adult, healthcare is a partnership between providers and patients. The big things are the things he should have the most input with. And I understand that is complicated and hard for parents of children who have always been unwell, but you have brought up a beautiful adult. He will ask you for help if he needs it. But these are his decisions to make, about his life.

That broke me.

I lost it watching his dad kiss and rub his hand...this boy is such an old soul, wise beyond his years.

💯💯💯😑💗🐙🙏

Utter sweetness 😇

I so agree. Heartwarming and heartbreaking. But all love.

He has every reason to be angry and bitter. But he's so gracious and appreciative of the things his parents do for him.

God bless you to.

And he is right, some people don’t.

Yeah. It makes me wonder: Is he this way because he’s live with EB or would he be this way without dealing with the disease. My guess would be the later. But he’s obviously a good person. I’ve dealt with adversity before but this… I seriously cannot even imagine what that is like, even for a day.

yes

@@leeartlee915 yes

You've echoed my thoughts exactly. He's got so much fortitude. Best wishes to him and his dear mother and father.

@@leeartlee915 I can tell you John having EB is definitely why he is the way he is. When you live in chronic pain and have a chronic, progressive condition, your mindset changes completely. You stop seeing things the way others do because you are looking at life through a very unique lens. I don't have EB, but I do have MS that I developed in my early 20's and it's really changed the shape and trajectory of my life. You really do learn to appreciate the little things that people take for granted like the ability to drive a car or even go up a flight of stairs. I love John so much because he doesn't let the 'can'ts' define him.

Imagine what he could do, being well, with that positive attitude, strength and heart. ❤️

The cure is God e is the only cure pray for him 🙏

This breaks my heart. A child should have a fair healthy shot at life.

@@samanthaevans9823 what?....

@@samanthaevans9823 say thx to your god for this "gift"

THIS family’s love/unity is notable & inspirational; we could learn MUCH from this young boy…🥲🥲❤️❤️👣

He's an angel on Earth

He is not a young boy, he's an adult. Nearly 20 in this video. But he does indeed have such a strong spirit.

Seriously! His so resilient ❤

Absolutely.

Thank you so much for your interest of being a geneticist. As you know there are so many illnesses that haven't even been diagnosed without the genetic coding ect. . Blessings sent to you God Bless you for your important training. 🙏 Peace

If you need any first-hand anecdotes for Ehlers-Danlos syndrome, message me.

Amyotrophic Lateral Sclerosis (ALS). Commonly referred to as Lou Gehrig's disease But the worst is anything that takes your mind

Pulling for you in Kentucky too, John Hudson! What a breath of fresh air & inspiration you are to us ALL!!! 🙏💗🙏💗🙏💗🙏

Pulling for you in Alberta Canada!! You are amazing, inspiring, and so handsome! Thanks for sharing and SHINING your bravery!! You are a LOVE WARRIOR ❤️

Said well, thank you. From a good hearted person.

I have some idea what he's going through. I live with Ehlers-Danlos syndrome and am always getting injured. I've had half a dozen injuries in the past year, including a broken ankle for many month, extendor tendon in my foot, injured shoulder, sprained ankle, and currently have trigger finger. It's also a collagen disorder. Living in constant pain is not easy, nor is gaining the understanding of those who don't know or witness what life is like to live with such a condition.

I agree ! It is obviously no walk in the park even though he’s had it his whole life I am sure the pain is excruciating at all times! He’s amazing and such a beautiful soul. 💁🏻☀️💕

It might be worth bearing in mind he's nearly twenty years old, then again I concur ...he has great wisdom and maturity.

Ditto and amen!!

Yes 💗

could of said it better myself,,ditto ♡ stay strong cutie

Yep!

Serious cool guy !!

Jesus loves you🤍

Physically he seems younger at first glance because of the way the disease has affected him. But then his maturity and life experience make him seem much older than 19. So it's even more startling.

Achei que ele tinha uns 14 anos

@@junbh2 yes! My coment refers to his maturity!

oh...he looks much younger

How do you know?

He died recently. Its a sad situation

@@irshviralvideodid he really???,

​@@irshviralvideono, he is alive. His father died but not his son. Maybe get your facts right.

​@@_ofthenight_just a pathetic troll. He's alive. His dad is dead.

At the risk of raining on your parade, I gotta tell you that would be beyond a miracle. The governing technology is centuries away still.

@@Belikel At the risk of raining on your parade, Miracles happen everyday

@@Kriptickhaos Wishful thinking and pipe dreams didn't invent fridges and airplanes, humans did. And the gate keepers before each success were time, money, ingenuity and effort. Not 'miracles', I'm afraid.

@@Kriptickhaos they do but unless there is a way to transfer his consciousness into another vessel, this is the trial of this particular family. and given the fact that the family is still in tact id say they are pulling through

@@Belikel Actually they’re not far off at all from curing this disease. Probably within the next 5 years.

True with fighting you get adrenaline and serotonin (afterwards ) as aids to pain relief and if you do get injured you got decent pain relief and you know the pain is only temporary.......but this lad knows that every single day of his life is gonna be in more pain than you or I have ever experienced and he doesn't give up , he could overdose on his meds or find other ways of ending it all but no he carries on , most of our nerve endings that communicate pain to our brain are in the skin , this lads pain is on another level ......

Perspective! Makes me realize how trivial almost all of my complaints and worries in my life are.

Beautiful, And Yes!!!

Much respect to you too brother

@@sarahdee374 There's always someone worse off than you. Some diseases are worse than death IMO.

Your comment is 100% on point. Thank you

I agree because I was never loved and I think love is the most important thing in the world.

@@GrimBirthday I pray you will be Loved forever.

We are loved with an Everlasting love.

I will to.🙏💗

he sadly passed along time ago

@jasminebarker8724 his father passed who was also named John. 😔

@@jasminebarker8724he’s still alive, it was his father that passed from cancer

I'm so sorry for your loss. God bless you and your family.

I reckon your son was lucky to have a parent like you even for that briefest of time. Love from WA

@@creepycupcake. Thank you so much.

@@Danoz_die_wreckt thank you so much x

You fought for your son. He knows your love. He knows you were there. THAT is what matters. You and the doctors could only do what you could in 1981. Because of your son, they know more today. He had a purpose. A journey. To bring love and be loved. And to help bring more knowledge in the journey of what is EB and how can it be treated and ultimately cured. God Bless.

As a father I can't even imagine my heart breaks and sending your family lots of love and will try to support.

They love each other, so beautiful ❤

GOD BLESS? You people make me sick

he could’ve prevented it by not dragging the kid into the world in the first place. That would also cure it.

he's not a kid.. he's an adult

@@AkiDahlia he looked like a kid, didn’t realize he was older. Either way I hold the same sentiment

@@AkiDahlia he’s 12

@@elijahmena2907 he was born in 2002

@@elijahmena2907 not true!!

He's almost 20

@@Wee_Voo Exactly, still a kid.

@@WaytogoEinstein He's an adult

@@WaytogoEinstein past 18

@@Wee_Voo He's still a kid compared to most people.

There is nothing to be ashamed of. There is always someone who has a harder time than you do, but that doesn't make your own problems less important.

Same. Every one on this channel makes me feel like the biggest POS for complaining about anything in my life.

@@SAOS451316 That's a reassuring sentiment. We have a family friend who is 100 and she says the same to me sometimes - other people's problems are other people's problems (not the same as yours). She is very kind and wise, like John Hudson is.

John may see these comments and without knowing him I can assure you he does not want his life to make you feel ashamed of yours. If anything just try to be a bit more mindful if you feel so inclined, like this young man has had to become. He’s wise beyond his years and that’s what we can draw true inspiration from. He knows himself and he appreciates the ones there for him. Nothing more is required of you. Everyone struggles, we’re all human. ♥️✨🥺

Perfectly said...this kid is incredible....no words can say how incredible this kid is... this family is the definition of family.

May God Shower John with. his healing Power n Restoration in Jesus mighty name!!!

@@rosemuchina4986 hey Rose 🤍 I invite you to read the Quran 🤍🤍

@@rosemuchina4986 Maybe he doesn't want to be "Showered with healing power & restoration in Jesus mighty name". Maybe they aren't Christian or maybe they aren't religious at all. Maybe they're even Atheist, you never know.

@@rosemuchina4986 your god did it to him

@@kaseymigliaccio2519 doesn't matter, You don't have to be a christian to belive in God's healing power

They had a lot of years to deal with it before he came of an age that it would bother him. But he's so damn smart that he could probably tell. There's comes a certain time when you have to accept what is happening. I think once you hit that acceptance stage it gets easier. You'd be surprised what you can deal with given the right therapy.

If one ever decides they want a child - they should think about this, what if my child will have a disability or mental health problems that will affect them more then the typical person per se. If one is able to say, yes i can handle that, then go for it, because it can happen to anyone.

@@Dinaciety beautiful message

Just an FYI he’s 19! ( 16:14 ). I suppose EB or perhaps his medications has prevented proper progress through puberty for him, but he’s clearly much more aware of himself and matured than other young adults. This man’s attitude to life is truly inspirational.

He does not feel terrible for his physical infirmities. So why do you?

I agree 👍

@@vioxa8645 His wounds and constant healing take a lot of calories no that certaingly hampered his growth.

He is an adult

What a great reminder and thing to say!

S2=*

That’s exactly what I’m doing, also to build my compassion

Facts

Yes, well said.

I know 😟

I am glad he has access to strong painkillers like morphine. I know it doesn't fix the pain, and that it has lots of side effects and has to be taken carefully, but his condition is one of those ones where I am grateful that we do have such drugs.

I hope God helps you complete your studies. Please I hope he gets better.

I hope you continue on with your studies and help many people like Mr. Hudson. I would much rather spend all resources saving the most empathetic and graceful among us than supply the deceitful. Please bring more good to this world.

Good luck with your study and thank you for helping the kids in the future

I pray you can make a difference, my friend. John and all the people like him need it.

Ora a Dios Jesucristo

Your a lovely young man

Yes I agree with you and Jesus please heal, help, and be a ever present in this family. What a love he is . God Bless them all.

He may also feel like people see him as a burden, I hope not though as that would in a way be more emotionally and mentally debilitating than the actual disease. May God bless him and help comfort him in someway .

🎯

I completely agree .

So so agree...

We should all be thankful for what we have. But we as humans all have problems. Sweeping them under the rug because someone else has it worse is no way to make use of what good things life has to offer.

@@isthataspider7410 I absolutely agree. A problem is still a problem, no matter how much worse someone elses may be. Dont discredit your own or others problems because of this. There will always be a worse situation but that doesnt mean every issue less severe than that one is invalid

100% 😢

Love you PBG, and thank you for supporting this channel. So much respect for John.

he needs to rest life has been rough with him

It’s so good to see you here man i loved your channel

Dang PBG, I didn’t expect you to be here. Nice to see you.

Yeah that was the first thing that really stuck out to me about her. She asks for permission for certain topics. She says how she experience things but clarifies if that’s how he has experienced them. She’s very honest but gives room for their to be a candid discussion. Really great mom and a really amazing son as well.

I was only half way through the video and was about to comment on the incredible level of respect between him and his Mom!

Yes!! Total respect to you both, that has to be challenging. He's a lovely boy. x

❤️

I thought this too. The respect she has for her son is astounding ✨ totally blew me away

Same here - really choked me up , what an amazing lad

Reiki is demonic ...!!! Prayer to the Triune God & charity & palliative care.

I quit my job to focus on school and now I'm graduating but can't find a job and feel the same way but this video really put everything into perspective for me. I don't have much to give now but when I get my job, i'm going to donate.

Don't beat yourself up. Those are normal reactions to losing a job. But jobs are temporary situations. Another one is right around the corner. Don't give your old job another thought. Focus on living your best life.

Just because someone else has it worse doesn't mean you should be ashamed of yourself struggling in a complicated situation. There's always someone doing worse or better than one, doesn't mean we should feel ashamed.

Stay Strong...U made it thru, n If ur mother didn't love U ...Then Thier is Something Wrong with Her!!...Not You!!!!! Try not to Carry that pain with You, Cause that's what She wants....Self Love is The Best Revenge!!! 💕

You are so worthy of love, respect and compassion. You are incredibly resilient and I'm praying you are blessed with joy every day 💕

This has always encouraged me to know God (Jesus) is near the broken 💔(psalm 34:18). He let his body be broken on a cross to heal our brokeness by reversing the curse that has brought so much brokenness. He stands ready to be a doorway to eternal life (revelation 3:20 - niv Bible)

Tbh chronic pain is way worse than that, I have a watered down version of what he has won't stay here to explain my condition but it makes my skin really dry and sensitive to touch causing little blisters to pop up, chronic pain was even ranked as one of the worst pains ever. So I'm deff happy I don't have chronic pain

That’s word for word just perfectly put. I also am a sufferer from CRPS and lupus..and the knock on illnesses that go with that. But this young man, is truly remarkable……❤

I've had excruciating chronic knee pain for my whole life. It sucks and it's hard to live with

I think I have experienced the same amount of pain as him in the past 7 years. Different medical issues but unabler chronic pain and can’t work or anything. He’s the only one that inspires me because i feel like I can relate to him the most

I've also had chronic pain, varicose veins, and spider veins at my ankles for about 8 years, I'm 29. I'm grateful to God when I see things like this because I still have all my senses and all my limbs and an amazing quality of life. Most of us are so much more blessed than we realize.