I am 78 next month and cant even get to talk to my GP. I am affected all down my left side with violent chronic painful tremors which stop me walking, getting in and out of bed, eating using a knife and fork and most important sleeping. I have had FND for years am on strong painkillers and 7 sleeping tablets a day. I have telephone consultations once a year with a neurologist and live alone. I do have carers popping in 3 times a day to make sure I am OK, I have lots of equipment including a stairlift, 2 walkers and a wheelchair which I cant use on my own, my left side is too weak to turn the wheels... Watching the way you have treated your symptoms is encouraging me to try. Already the dot is on the wall and my knees have managed to rise alternately about 1" off the floor...Thank you for sharing your treatment. You have given me hope...

Great detail in this video. Happy for you to have recovered so well. I never knew to take a look at FND. Thank you!

This is good news Tanya! I'm happy for you! Thanks a lot for sharing this.

THANK YOU so much, I wish I could like this 1000 times. On my 6th week post dx of shingles in the ear, I can now read, walk about the house, eat regular food, but my face still looks droopy on the right side and my balance is iffy at best, so no driving or jogging these days. The only good thing about being ill is that I lost about 15kg and my appetite for beer and wine. I live in the US, so I will have to ask around the local physiotherapy and neurology clinics about this type of treatment. Wish you the best on your full recovery. THANKS!!

I very happy for you, I liked that you can manage the sounds in restaurants, this bring me hope to me with my hiperacusis, thanks for sharing Tanya!!!

Tanya!!! This is so amazing and I am so happy for you. To God be the glory and may He keep blessing you both. What a hopeful season you're in. Also, is nobody gonna comment on how good looking the gentlemen is... lol😂.

I don’t think it’s ever truly ‘gone’ as such , but you may have long periods with very little symptoms. It’s a fluctuating condition.

I still have FND. I will start up keto again soon. Still covid in our home, but once thats over. Thank you for sharing your treatment information! I also started a youtube channel and some is about FND

This is my story. A few differences - different pain, different tremors, different ignorant doctors, but .... this is my story. I was in my early 40's. Was visiting my parents, had my young children with me. Woke up in the middle of the night and had the paralysis - thought I was having a stroke. For weeks prior I ignored the painful spots where the blisters were. I had a shingles spot on my ear, iI also had one on my palette, roof of my mouth, back of my throat, deep in my ear canal. I went to the emergency room and was diagnosed "ear infection." No anti-virals given. Got worse, obviously. Diagnosed myself with the help of google. Went to a neurologist - he had never seen Ramsey Hunt and he dismissed it. Did nothing, basically nothing. Weeks passed, I was dying. Finally got to my home, couldn't walk, eat, talk or do anything other than vomit. Got to my nurse practitioner and she got me to an ENT and put me in ICU.... It's been over 10 years now. I have partial and I consider myself lucky. I have given up on any further treatment - I'm either not sever enough, didn't have a stroke, it's just too rare. I just received this link - from a friend. She's a massage therapist but had never heard of RHS or FND. This video is helpful, hopeful and reassuring. I thought a lot of the symptoms were just my issues. I see that they are not. I have never spoken of many of these resulting symptoms and problems. THere did not seem to be much of a point. Thank you for stepping out there and sharing your story. I'm very appreciative and grateful. I am very sorry this happened to you. Your recovery is inspiring and I am appreciative of your video and this disclosure of information. I am hopeful there is a tidbit of something that may help me as well.

Awesome!! 💪

Hi there I am from Toronto and really am looking for a healing for my FND

What was your full set of symptoms?. Thanks.

Awesome God is good

I live in northern Australia, may I ask the type of treatment this is called so I can try and locate a practioner here?

Ive tried all the supplements and they were a load of rubbish

How did you get your hyperacusis and tinnitus? Hyperacusis is awful