I have been affected with Ramsay Hunt Syndrome from 28th July 2024. I have similar symptoms as you. I am under steroids and physiotherapy and hope I will be completely recovered.

I'm in a state needing euthanasia. FND doesn't exist. It's the word these use when they don't have any answers. I was fine before Neurologically poisoned by Drs with misprescribed drugs.

Hi, thanks for your encouragement. I've been suffering RHS for 4 months and I'm still into it. I noticed just a few millimetres of improvement... I've got a question: did anybody suggest you to make any vaccine to exclude a new activation of the virus? Thanks 😉.

Do you have synkinesis or vertigo problems?

Thanks for the video, I was diagnosed a week ago, now I have an idea about the coming weeks. Is there any studies on long term outcomes depending length of treatment with prednisol/kortison and antiviral?

I have it too. I cry with you. I just want to sleep. My hearing and vision is worse. Praying for you.

Energy drinks, Pre workout, Caffeine in pill form, CAUSE hyperacusis for me. COFFEE does not! Coffee actual helps normalize my hearing somehow!

I was diagnosed almost 9 weeks ago, and I look similar to your day 5 but it's still a great improvement from where I was. I'm frustrated with my progress, and I stumbled upon your video. I didn't think to wear noise canceling headphones I'll have to try that.

What medications were you put on and how soon aftern symptoms started did you start taking them?

I’ve had mines since a kid never made a full recovery

What was your full set of symptoms?. Thanks.

Here because my sister was diagnosed recently. It was over a week and she was turned away by doctors thinking it was just a virtual throat and ear infection. Only when she went Into total facial paralysis did they properly diagnose Ramsay Hunt. Her is worse than your or even Justin Bieber’s. I am trying to lean as much as I can so I can be a supportive big sister. I am sad to hear there may be long term pain. But you are encouraging that one can press on and live well.

This is absolutely brilliant and so informative. Thank you both so much for sharing this 🙏

Can u please send me your email I'm a patient since 2017

Hello Tonya,this is the third video of yours that I watched. I have shingles it is very painful. 💕NonnaGrace 🐓

You are lucky! I can't find any help or treatment here in the UK 😢

Keep your head up and bravely walk through life. I too had Ramsay Hunt syndrome 2 and a half years ago. My face is 90% back. I still have some minor effects but we don't need to go back. Only unlike you, I had a rash in my mouth and tongue, not on my ear. I know what you've been through. Thanks for sharing this video.

Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🎉..

Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again.

Do you get severe headaches after 20days when you actually got the symptoms , first day after symptoms

Hola, qué tipo de terapia usaste para poder volver a sonreír? Llevo 4 meses después del síndrome y aún no logro mover nada de la mitad de mi cara 🥲

I was misdiagnosed late jan 2024 with Bells Palsy, only to be diagnosed with RHS a week later. Although I was prescribed steroids i wasn't given any antiviral medicine until a week later. I find your find journey with RHS very inspiring and has given me hope. Thank you for posting your video.

My husband recently diagnosed with this . Can you suggest a good Dr in Toront

The worst feeling is developing chronic debilitating pain and dysfunction, from making somebody else’s business a bunch of money, and watching none of it go back into the program. Now I can’t start mine! 🤦‍♂️🤦‍♂️

Hola, hace 2 meses me dio Ransay Hunt, estoy con terapia sin embargo sigo con la mitad de la cara completamente paralizada, ya estoy desesperado ya que no veo mejoras, que me recomiendas hacer?

Dear Tanya! you look so good thanks for the video! I suffer from horrible tinnitus. have you had this?

Hi!! Thanks for this video I have my first two months with ramsay hunt... I'm frustrated but I hope this situation can be fix soon...

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This was super encouraging to me to see. I'm so grateful my primary care provider did the right thing and gave my antiviral along with the initial Bell's diagnosis. Went back in four days later because I was -confident- the lesion on my ear was Ramsay Hunt. Fortunately, the only thing we changed was to get even more aggressive with the antivirals. I'm only 9 days in and it's so discouraging sometimes. Face gets so floppy at the end of the day. I'm terrified I'll never smile again without looking like a Batman villain or an old-timey Las Vegas pit boss chewing on a cigar. Thanks so much for this.

Español please 😢

Tanya you are such an inspiration. I was diagnosed with RHS in December of 2019. I am physically 90-95 recovered, but mentality and emotionally still struggle. Miss my old life, job, face etc...Family/friends don't understand the impact this has had on me. Don't know how to embrace my new life. I know I am futurnate, but still angry. How do I move on?

Таня, здравствуйте! Вы отлично выглядите. Сколько времени восстанавливалось ваше лицо?

i have all the same plus i am now deaf in my left ear and am fighting vertigo. this is month 11 for me.

Thank you so much for sharing. I also had gut swelling, 3 hospitalizations. I even took the shingrex two part shingles vaccine 4 years ago. This has been such a confusing illness, your video gives me hope. How many months did you deal with this? I'm on 6 weeks now

❤ 5:07

I was diagnosed with shingles on the 8th Sep 20-23 , I have chronic nerve pain STILL , and now the itching rash again , I think I have shingles again , I am just waiting to see if the blisters appear again .. I feel extremely weak , in terrible pain .

Shingles twice now . Antivirals straight to Dr

Hi there I am from Toronto and really am looking for a healing for my FND

Thank you for sharing I've just come across your video I have the same problem my left side is kinda paralyzed I can't hear or close my eye or make facial expression I have had it since 2019 been on medication and nothing has improved

Hi Mika!❤ Great to hear you're doing so well now. I'm just shy of a year in, still have intermittent tinnitus and sensitivity. Facially I'm still struggling with my eye care and mouth tingling. If I'm eating or try talking a lot, my eye drops closed now rather than being wide open. I get twitching of the eye when tired too. ENT say I'm doing well and a year+ is normal for full(ISH) recovery. Thank you for your posts, they really helped during those dark early days. Stay well 🤗

You're such a soulful person. I'm bummed you don't have any recent videos. Aside from Ramsay Hunt talk, you have the personality to be impactful on others. I really enjoyed this video for the Ramsay Hunt information, but overall the positive and outlook you have had really brightened my spirits. Thank you!!

Thank you very very much, you are such a great encouragement. I thank God my facial symmetry is returning gradually after five months. Please what I am facing now is that I have tinnitus,phyteracusis, spinning in my head and I have visited three different ENT doctors, they said there's nothing anyone can do about it. Please from your experience can you give me any useful advice? It's really affecting me,I can't stay in office, church and any loud noisy environments. Please let me hear from you. Thank you. Please i send this same message to your other video link. Hopefully i I will hear from you. I really happy to see you like this.

Hi Tanya, thanks for sharing this video, going through the same right side of my face and shingles in my ear. Hope you can advise how long would i bave to deal with the symptoms as nothing seems to work on my medications🥺

Tkyou so much for sharing yr journey with FND.Hard yards 😢.I live in NZ and it's now 2 long years since diagnosis.Finally starting therapy with OT,Physio,rehab coach.Its all so daunting 😢.I am so glad to of had a phycotherapist over that time that has literally saved my life.I encourage all to reach out,keep asking for help until you're heard.God Bless KiaKaha ❤ Jo NZ

Hi Tanya. It’s reassuring to know that I’m not alone in suffering the after affects of RHS. I was struck down with it in October 2022. Completely out of the blue.. no prior illness or stress. Initially before the paralysis I had a week of excruciating ear pain resembling an icicle being driven into my right ear. Then I woke up with the paralysis and numbness. The early symptoms were pain, lethargy, vertigo and a feeling of disconnection with the real world around me, as if I was living a video game! Thankfully those symptoms have gone now and I have regained about 90% of my fascial muscle control. Drinking from a bottle is still a challenge and I don’t think I’ll be whistling any time soon. Occasionally I get a dull ear/headache that worries me. I dread the return of the syndrome. I was given steroids on day one but only started antivirals on day six as the ear blisters only appeared then. I worry that this delay might have negative effects on my recovery. All my research only offers advice for treatment immediately after the attack but no advice on how to prevent a reoccurrence of RHS. This plays on my mind greatly. Can you offer any advice on preventative measures? Regards Liam

Anyone got tinnitus after Ramsey Hunt? My face come back to normal but my left ear is tingling and ringing. Also get tired easy and ringing? Is there a fix?

I don’t think it’s ever truly ‘gone’ as such , but you may have long periods with very little symptoms. It’s a fluctuating condition.

I just got diagnosed withRHS 7 days ago. It’s been so painful. Only slight paralysis but got the ugly rash on the side of my nose my eye my lip and my scalp. Thank you for the videos. I’ve been bc so scared about when it’s going to get better. You gave me hope ❤

I got Diagnosed 7 days it’s been crazy and painful. I have it in my scalp my nose my lip and the bottom of my eye. Thank you for your video. This headache is insane.

I’m so grateful to you for your candidness & boldness to show yourself on camera and share your thoughts and experiences. I was diagnosed with Bells Palsy, but then quickly realized (through my own research) that I actually had RHS. It’s almost 6 weeks now. I went to ER first thing in the morning when I noticed my lips not pursing. Had a dose of steroids and antivirals. My pain subsided after a few weeks. Still some, but not as bad as it was. I have little pustules all over my skull, mostly the right side (paralyzed side), and in my ear and on my neck. My questions are: 1. what tests can be done to see if you still have the virus raging in your body? 2. Can they test to see if your nerves are dead? 3. Should I see a Neurologist, ENT or only someone in the same group as your guy?