That IS an interesting note, b/c our doc originally said OSDD, then later DID, but has gone back to OSDD... yet alters in our system DO "take over" the body- free to act however they will, and I (the host typing), have NO IDEA what's going 99% of the time. They act, they speak, they watch/do whatever they want... they can do things around the house, etc. That, imho, sounds like it's DID clearly by how you described the differences. What difference does it make if a doctor SEES a switch happen?!

The way I've seen it described is it comes down to "executive control." With my system, it seems like the vast majority of the time, yes, an alter may front and they'll have a huge amount of influence on the way we feel, what we do, how we move, etc., but like you say, I'm always there in the background, sort of "supervising" I guess. I can't always intervene if something goes wrong but it's often the case that I can, like stopping someone from saying or doing something that would lead to disastrous consequences. (I'm really more of a "backseat driver" though... I kind of hate fronting, but I get a kick out of watching everyone else do it...)

Your alters who get "tired" after being out front for a while might get stronger if they practice. That's what happened with us. It hasn't helped every part, but it did help some of them. HTH.

I think it's sort of a fuzzy definition... it's not like everyone is going to fit in exactly the category of OSDD or exactly DID. Amnesia and who fronts can change over time.

My system is like this, typically. But I've definitely got a lot of long term missing time/memories and have recently been informed of some conversations I don't remember having at all and are out of character for me. So I have no idea what's going on anymore lol

I don’t really have a protector lol there’s only two of us here

@@jellyandthecrewman1834 'Only two' so far...I used to think there were only five of 'them' (before I realized I was part of the system) we are now about 47, a new person came forward just last week. You never know maybe there are more than you think.

@@janel4582 oh my god Lily we aren’t alone

@@jellyandthecrewman1834 😊

@@janel4582 check up: we have two more! Julia is literally a jock and Sophie idek about her So yeah now there’s four of us

Thank you!

Thanks, Jess! Yes, 1% seems the right % from different countries; if you look at DDs across all categories, it is between 9-18% (for general population) and between 5-46% in mental health populations. Loads of variety, and not enough studies to say much with absolute certainty. But then, it is the same problem working out true prevalence for many health conditions unless there is a public health notification requirement.

I agree! So very helpful, thank you! And thank you to Jess for all that you've done (and put up with) by putting you and your guys out there - you all are so brave! Husband too! ;)

Thank you!!!!!!! Love, All "11" of us

MultiplicityAndMe hi. Please can you tell me what is the benefits of getting a proper diagnosis. Thanks Andy

@@thectadclinic Hi I was wondering if the amnesia can count retroactively in DID? As in at times I feel as though I’m present to a degree in any given situation but later on I lose a lot of the details or even lose the whole time frame. Is that something you’ve seen in your practice? It feels different from simply not bad short term memory. Btw I absolutely love your channel. It has been so helpful and I’ve even watched a video in therapy with my amazing therapist and it has defined the direction we are taking in our approach to opening communication with my brain family. So thank you!

I didn’t realize how many heated arguments I got into until I started getting an alter

SAME ITS COMING BACK IN FLASHES

same i seem too crazy i already started to refer to my other “personas” in 3rd person its that my actions when im not this me i do soo much stuff i wouldnt do i counted like 4-6 of them and my mindaet changes sometimes its fuzzy and i feel like someone wont let me say stuff and some of mes get influenced? i honestly have no idea :( also i feel disconnected from some of “their” memories and feelings

@@phostentialrotinrainyfishc9447 yo exactly this I get that shit all the time

@@starrysky5105 at first i thought they were just personas i came up with to be cool around others but than i feel like they started to have their own feelings or i realized they kinda had their own stuff. like for example Daki is super sensitive: hates people, touching, food, herself, always cries and is always anxious but i cant imagine ever feeling like that.. is there a chance i have OSDD... theres some stuff i dont even remember anyone doing and literally cant differ reality from dreams. I’m feeling awful right now for no reason and I feel like thats just Daki... also there always were inner conflicts with me and fights and always ended up crying deciding stuff has also been very hard idk what to do...

@@phostentialrotinrainyfishc9447 no I get that. I've always had feelings I couldn't explain. Logically my head was like. Why are you doing this. I'd always come up with different names to identify myself as. And sometimes I think that was for a reason. I have alot of moments where My PTSD will pop up then time is like scrambled again. And I dont feel like me

@@starrysky5105 same all my personas kinda are here to deal with stuff that others cant process or understand.. when Dakis or others emotions are too overwhelming and processing stuff becomes too hard the body kinda turns on autopilot and Akadia the emotionless me fonts it always feels empty when ur Akadia... im kinda glad to see im not alone also hope you get better!

i know this is 7 months old, but i have NEVER heard anyone say the same things i go through. literally, everything you said is me, kinda freaky. ide love to talk to you + maybe we can help eachother out w this, i’m learning and struggling lol. 🤍

@@sns22895 ya’ll are not alone! Im kind of in a similar boat!

@@sns22895 this is late but i'd love to talk to you about our similar experiences :) i've discovered a lot about myself and my system since nine months ago.

@@abbiepancakeeater52 Hello!! I also very heavily relate to what you've said, I assume I have OSDD 1b and I have 2 alters as well as the host,, me. Sometimes I let both of my alters [a little and a caregiver] influence me and sometimes they co-front/are co-conscious. I've tried to speak to them and sometimes I hear responses back but it's hard for me to tell if my caregiver is speaking to me or if it's my conscious, but they do influence me a lot. I put name tags after I speak to let everyone know who is actually speaking in the moment. - Le

@@abbiepancakeeater52 hello, I know this comment is from 9 months ago, but I saw your original comment and this is EXACTLY the kind of shit I am currently struggling with (Bpd/c-ptsd vs OSDD or even extremely well hidden DID, but OSDD seems a lot more likely). Could you perhaps message me back and tell me about the stuff you have learned? Especially since you mentioned your system and all. Thanks in advance!

Yes please!

OSDDB1 AND A1 are acually not a diagnostic just yet. Just thought u should be aware before saying your diagnosed with it. OSDD is but not b1 or a1 they are a theory. - kzfaq.info/get/bejne/fNCmo6ubm6qRo2g.html

SusanS. Radio Collectiv I answered a similar question elsewhere on here. Each clinician will determine many factors to achieve the best compromise for diagnosis. The five categories within DID are likely to have a degree of flexibility for some individuals, and where there is a lack of absolute certainty, making a cautious diagnosis is reasonable. In your example, it may depend on factor three, the degree of distress/functionality. It is not an easy task!

Sparkle Heartz So much involvement, it really does help!

I know this is an old comment, but I ended up on this video because I’ve realized over the past year or so that I’m probably not just really great at compartmentalizing trauma, but dissociating pretty regularly, and according to this video likely have OSDD (not sure which variant because I also have the same question about traumatic amnesia but not day to day amnesia) I’m certainly not a professional by any means, just another person trying to figure out what’s going on up there, but that being said I think I can answer your 4th question to some extent. My experience with religion is limited to being raised in a protestant christian household and taking a couple of religion courses in college, so I can’t speak on anything outside of that. Two examples of religious multiplicity came to mind as I read your comment, the first being shamanistic practices/religious healers, and second being the “holy spirit.” From what I gathered in my college courses, shamans can allow “others” to take over and act through their bodies by putting themselves into a trance state. Whereas some spiritual/religious healers report sharing their bodies with doctors or healers who have the knowledge/skills/etc. required to give medical advise and in some cases even perform surgeries, when the individual themself has no medical background whatsoever. (If anyone wants to read about this stuff, I read Magic Witchcraft and Religion by Pamela A. Moro in school. 10/10 recommend.) Then there’s the good ol’ holy spirit, that’s supposed to work sort of like a scary “gods always watching” conscience. (Side note this is more anecdotal because I haven’t actually studied Christianity as a whole nor do I have any interest in doing so, but I did spend 16 years of my life being dragged to several different churches throughout the years, and it was a common theme among almost all of them). Anyhow, every pastor in every church I ever went to said quite frequently that they “heard” the holy spirit, that the holy spirit was speaking through them, that the holy spirit drove them to do one thing or another, and SO MANY people in every congregation would say the same sort of thing (just not on stage in front of a mic). Sorry for the long response to an old comment, but part of me found your line of questioning really intriguing since I’ve been wondering many of the same things, and just thought I’d reply, at least partially, to the one question of yours I think I have a pretty solid answer to.

Jedi Jen I would agree with this, there is so much individual variation, and things do change over time, so we have to be flexible in our assessment and measurement.

It doesn’t really matter what label is put on it, for you, it sounds like the experience and understanding of what is happening and why, is what counts.

Its an excellent question and highlights the imprecise nature of diagnoses in mental health. The absence of any amnesia would normally prevent diagnosis of DID according to strict criteria, but if there is clear evdence of alters coming out with distinct personalities, significant alteraion in affect. behaviour etc, then this could lead to DID. The compromise could be OSDD-1b, even with fronting alters, as without amnesia, the 'loss'of functioning is not apparent as the person is fully aware of all that is happening. It isn 't easy to get it right in every case, so compromises are made to be cautious. The true key is whether the treatment offered works!

@@thectadclinic Thank you so much for explaining! In the future would you maybe be willing to include a small segment in any of your videos about that compromise in diagnosis and how it works? Or is it more like a long spectrum where you have all the dissociative disorders but can have something similiar to between 2 disorders on the spectrum. If you don't want to explain it do you have any resources or websites where i can learn more about it?

@@thectadclinic bumping Crystal's second question as I'm interested, too.

@garby that's true. I do experience emotional amnesia as well as blurring. Adding other more common things to the mix like depression anxiety can make it a lot more difficult. I guess I just tend to say I'm functional in the sense of being able to hold a job, do chores, be with friends etc This definitely effects those things but doesn't make it impossible you know? While there's others who aren't able to at the moment (I don't remember The context- I should've reread my comment so I'm sorry If I'm way off) but I want to say I completely agree with you.

@garby not to say at all that I know your experience! My symptoms may just be more mild. But you had a good point. Thank you for correcting me :)

I second the thing about highlighting. My eyes are betraying me at the moment and I had to pause, lean forward and squint at a large screen to break the text apart. And there are people with way way waaaaay worse eyesight them me, and usually smaller screens! (Other than that, 10/10 video, informative and to the point, without waffle, skirting around the information or attempting to explain anything away like I've seen some people do.)

I totally know what you mean! It was difficult figuring out how to do it better, and I am still learning. The only answer is to pause and read, but the text is still small. In future, I will try and highlight the text in smaller chunks as I go along. Thanks for the great feedback!

Plus, yes, conversion symptoms, such as dissociative episodes / seizures are often mistaken for epilepsy. Advice is always get things checked first via neurology and go from there.

They tested me for epilepsy a couple of times when I was in my teens to mid-twenties, waay before any1 even mentioned possibly having D.i.D, due to time loss. x

Thanks, Leigh. You are right, of course, no prevalence data for non-identifiable conditions is truly correct. Only conditions that require reporting to Public Health are properly known. Glad you are enjoying the channel content, I hope to keep putting out interesting content!

I recognize these feelings you describe. It is a hard and often lonely journey. Keep educating yourself. One day, hopefully, you will find the peace and joy of acceptance of who you are - all of you.

@@janel4582 Thank you so much for your words. I will be trying

As with any symptoms like these, a thorough assessment is needed. Worth mentioning to who refers you to specialist services to see what might be going on for you.

I think one of the differences is that C-PTSD forms after a single personality has formed. OSDD has to form before a cohesive personality is developed. I forget what age it is that this normally happens but generally before the age of ten.

C-PTSD is a more extreme form of PTSD, the difference being that PTSD generally forms from a single traumatic event where C-PTSD generally forms from multiple traumatic events or extended trauma. OSDD and DID can develop as a result of PTSD or C-PTSD. PTSD and C-PTSD do not involve the presence of a system, but they do exist in all systems, since OSDD and DID are trauma-based disorders. OSDD and DID are essentially technically extreme forms of C-PTSD. You need trauma to develop OSDD and DID, so it makes sense for all systems to have PTSD or C-PTSD.

Interesting point! I'm curious to see what others comment on this? 👍

Doseneis Doseneis I agree, actually. If we saw all of this as complex trauma, or traumatised personality, it could even things out where services have disparity in what is available. The DSM committee would never go for it, though.

It's actually a drawing I did of a mouse spider (which is tiny). Have a watch of my video on phobias to explain why that picture is there!

Derpy Loo of course, such a thing is easy to do, and has already been swapped out. Hope my drawing did not cause too much grief!

@@thectadclinic no, thank you very much!

Aha I'm having the opposite problem, I'm obsessed with spiders so I was distracted like "SPOOD! FLOOF SPOOD!" That's how I tackled my fear of crawly things, by obsessing about them and becoming somewhat of a hysterical nerd aha.

Jokes on me

😂

I really hope you can figure out a way through this. Not being able to deal with such a diagnosis is common (check the video on denial), but blackouts are not 'necessary' for DID, as long as there is amnesia somewhere - so it could be for things long in the past, not recent things. Stay safe, and keep working on it.

it's also really common to not know that you don't remember things, including trauma and day-to-day life. We forget shit as it happens constantly, but the majority of the things we forget, we don't notice that we've forgotten something until it's brought up and there's just a blank space in place of any knowledge/memory of the situation. Emotional amnesia is also a thing - yea, "knowing" that something happened but not being able to pull up any details is also a form of amnesia! You're gonna be okay. Keep on keeping on, the sun will come out again.

Hi, thanks for the message, not something I can tell you, this is about talking with your healthcare provider to see if they can help with a therapist, they will have these answers. You can also do self-screening, like the DES, which may give some indication.

Great idea! I will consider this, thank you. As for grounding, not all techniques will lead to difficulty, its about finding your unique and individual methods that work, so don't give up hope! I often look to stuff like gardening, bird feeding, bookcase arranging. There's a lot of things to be done, hope you find the one that works!

@@mikelloyd3055 I hope so. I have tried so many and so far all but 2 things seem to work. One is my cat, who I had to leave in the UK with a friend while I was forced back to Australia (long story) and 2, people irritating the crap out of me seems to ground me really fast. But I can't always guarantee I will have a convenient pain the butt following me around all the time?! I had thought of another idea just now but it's gone. Ugh.. first world DID problems. I got interrupted by an internal conversation. If I think of it, I'll post it.

@@mikelloyd3055 oh yes, I remember now... what causes headaches when switching and/or dissociating? And actually, headaches happen with the seizures too, I've noticed. Maybe that could come up in one of your videos. I'd love to learn more.

@@sapphiregraver7906 physical grounding never helps us, we need social grounding. You might be similar, why your cat helps so much. Cats are the best

What is a dissociative seizure?

Hi Theresa, the article is referenced at the very end of the video, it is open access so you can search it on Google.

Oh I wanted to add that one of my alters will take over my right arm sometimes, I find this scary so I think I repress them a bit and that's sad, but we have found an equilibrium

Hopefully you manage all this ok.

Hi, yes, you are right, the NHS has an odd relationship with dissociation, with some areas accepting and some not. It seems that dissociation is the only diagnostic category in the DSM that is questioned in this way. We all hope this will change, in the meantime your GP can apply for specialist help from NHS commissioners if you have unmet needs.

@@mikelloyd3055 I have never heard of NHS commissioners, wow. I'll look into that, thanks so much! 😊 And thanks for the reply 👍

To be honest, the general approach to working with complex dissociation applies really well to CPTSD with dissociation. It comes down to the specific nature of the dissociation as the linking factor to the CPTSD and then how the trauma is being experienced in the present day. Most OSDD has CPTSD within it anyway, in clinical experience.

If you do not have identity alteration, with parts of the personality that act outside of your control even with co-consciousness, treatment will indeed be different. Treatments such as EMDR and DBT will also be different because there is no structural dissociation to address.

They could have more. They could be in the background.

It all depends on a good assessment and knowing when and when not to apply it.

So when another alter ‘fronts’/takes the lead, I as the host still gets the amnesia and lost time as it’s not me.

Alfie Hitchman Hi Alfie, I put out a video with a lot of OSDD information today, hope you get to see this.

Prudence Pegg There are some variations, but generally the active control of the person with consistency over time is not seen in either OSDD.

Influential is like backseat driving, offering suggestion or criticism, pointing to choices rather than leaning over and taking the wheel.

Andy Driver as with most health conditions, the diagnosis is often the gateway to the correct treatment.

The CTAD Clinic thank you

Yes, the diagnostic criteria for DID requires only the presence of ‘one or more’, alongside all the other factors.

@@thectadclinic Thank you :)

The studies are based on difference in DID and DDNOS, so these are separate figures. The table in the video shows the two as separate.

Sorry. I had a lot of trouble reading the tables.as ii can only use my phone for the time being. It would be so helpful if you could place links to these sources in the description box. I will look at the tables again when I have access to a computer.

@@ceridwentaliesin798 I thought I had done already, up there now.

I apologize. My mistake .

We only offer outpatient therapy, treatment is described in one of the other videos!

Court ney Hi, that needs careful analysis from all the clinical and observable information available.

Thar sounds like it, yes.

It develops the same as DID. Alters exist due to the personality states never being able to all fully merge, the merge occuring in childhood.

Yes to both, all about context.

Yes. This is called going dormant. Alters can also merge into one.

xydoit any diagnosis comes from a full and structured assessment, I hope you can find someone where you are to help with this.

@@thectadclinic i still didn't understood what is the difference?

xydoit A diagnosis would confirm what you are experiencing and describe accordingly. If you do not know what you have, that is what the assessment would describe.

@@thectadclinic thank you

Doesn’t sound good, hopefully you can get this properly assessed.

I don't think so, especially with a diagnosis of having both. If a specialist thought you had both, I'm guessing they'd diagnose you with UDD - Unspecified Dissociative Disorder.

@@hijislay3618 ok thanks

Like we don’t have the amnesia part of did Yeah we do forget things a lot But That’s because of adhd

Dang it's almost like teenagers can have disorders that develop in childhood.