The face of bad pain | Living with disability and chronic illness | My

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Resilience Quarterdeck

Resilience Quarterdeck

7 жыл бұрын

MY VIDEO DIARY:
Saturday 8 July. I'm having a very bad day pain wise and can't sleep properly. I have slept all day, yet I feel like I haven't slept for weeks as I don't get any real, deep sleep.
ABOUT ME:
I'm braver than you believe, stronger than I seem, and smarter than you think. I'm also a camera shy, mostly bedbound, spoonie noob learning how to KZfaq. Partly because of a volunteer project about accessible travel I'm involved in, where I will need to participate in vlogs, videos, podcasts etc; and partly because I want give my family something they don't have of me. A picture gallery, As of July, 2017, I am filming myself in various situations each day and uploading the clips on Instagram Stories. These clips are then transferred into daily videos that I upload here in the name of public phobia training. I will get over my fears. I will learn to forget about the ever present camera. Disability, weight, poverty, insecurities and queerness be damned - I am finally embracing myself just the way I am and putting myself out there!
WHERE TO FIND ME
Instagram: @evalenastyf
Facebook: / evalenastyf
Swedish Facebook: / frkstyf
CAN YOU HELP?
Please, leave a comment below! Let me know what you think of my progress and tell me what you'd like to see me talk about in these videos.

Пікірлер: 1
@ResilienceQd
@ResilienceQd 7 жыл бұрын
I was in two minds at first about posting this, as it feels a little too grim, but then I decided if I'm going to do thus I will have to be authentic. My life today is 95% bed bound and I am struggling with even the simplest activities of daily living. Learning to make KZfaq vlogs is something I can do in bed, and even if I can only do small chunks at a time it all adds up. And since everything is stored in my phone, nothing is lost even if I get too ill to continue for a while. Any other spoonies out there whop can relate? Come say hi!
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