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The Marfan Foundation honored Jonathan Larson at the 2016 Heartworks gala in New York City and gave special tribute to his family for all they have done to promote Marfan syndrome awareness among healthcare providers and the public in the 20 years since Jonathan's death. Jonathan, who was the award-winning playwright of RENT, died of an aortic aneurysm, believed to have been caused by Marfan syndrome. He had never been diagnosed and died before the play opened on Broadway.
More information the gala: www.marfan.org/...
More information about aortic dissection: www.marfan.org/...