Wowww. I always sat with my knees up as a kid and told my mom my legs hurt when they were down, and she said that was ridiculous. And I couldn’t stand up for music practice and get yelled at for sitting on the floor every couple of minutes. Now I realize my blood was just stuck in my legs!

I wish I could find a doctor that would just listen to me. You explained a lot.

That lecture just answered a lot of questions as to why I do things. Rocking when standing, hate queues with a passion , sitting with my legs curled up under my bottom , the list is so long it is incredible. Thank you .

There’s a company called Pri mark here, they have a dedicated assistant for people with a disability or they have a double buggy/stroller. So, having pots people don’t have to ask if they can be served quickly. Maybe if someone is a bit shy, take a little card to explain why they need it. I’ve never heard them question anyone about it either. They were so kind to me a couple of years ago when I was in there, I felt dreadful, probably at 9 3/4 pain wise, it was winter so I had a warm coat on in a small shopping mall. 4 separate members of staff came to ask me if I was ok and did I need any help, a chair? Drink etc. so nice of them, the person who served me saw me go to join the main queue and called me over. I don’t think I was even thinking properly to think about going to that till. She was another kind member of staff in addition to the 4

This was good! Could this also be why I love being in water?? Preferably diving in the ocean, but all kinds of water. The pressure from the surrounding helps the blood circulate!

14:30 Discussion of treatment options. 33:30 OI is not just deconditioning. 34:20 Addressing contributing conditions.

Very good talk talk on Pots. My husband watched it with me and was able to better understand what I’ve been dealing with. Thank you for sharing this vital information with all of us living with EDS and Pots. I always share these videos with my online support groups. 💞💫

This was so helpful! As someone who is living with orthostatic intolerance due to Lyme disease, it was very helpful to know that pain, allergic reactions and adrenal problems all worsen the condition also. I didn’t know that. It was lovely to hear that some of the choices I have made intuitively in day to day life are proven to make a difference, also. Thank you for this video!

Wow!!! I am blown away Everyone talks about PoTS as predominantly dizzy spells, lightheaded, ... Which I do not get. Everything else - me on the nose. I am so grateful for this video

I collapsed last week for the third time in recent years. Was with a vet who monitored me at the time. She told me i went as white as sheet and had a very weak pulse. I was hot, sweaty nauseous, my hands had prickly feeling and i had an optical kaleidoscope in a crescent shape in the right side of my vision. I normally have hypertension that can be labile. This talk explained so much. Thank you.

17:45 "Avoid really warm environments." I'm watching this in bed at 1:53 a.m. with an ice pack on my chest.

I have a lot of dysautonomic symptoms (hEDS), but I do not feel faint usually, and my heart rate does not seem to go up too high from just standing up, but I have so many of these other symptoms you talk about. I've no idea how to deal with it, really. No matter how fit I have been in the past, I'd always get very high heart rate with cardio based exercise, and I do all these fidget/sitting/standing things mentioned as I get so exhausted if I'm stood still such as in a queue. I guess there's more than POTS but that has a lot of overlapping symptoms?!

Wonderful talk! Thank you so much for making a point of touching on so many of the topics that many others don’t recognize or don’t even consider could be having an effect.

What an amazing talk!

Can anyone please tell me what search terms I should use to find a doctor who would understand this video and would subscribe to these methods? I want to get as close as possible to a doctor just like this doctor.

excellent presentation with many good recommendations. Thank you!

This explains alot! I wish my doctor new this! I get all of these symptoms Im sharing this

I was just diagnosed with POTS and Sarcoidosis. But I've experienced POTS symptoms and presyncope since I was a child. It just got unbearable once the Sarcoidosis hit my lungs. This lecture is incredibly helpful. I have started wearing ice packs on my body while I do dishes during August. It's helping a lot. My abdominal area gets SO hot and I start dripping sweat from my scalp. Ugh.

Thank you for this video it was very helpful !!

Thank you

Dude! Great talk.

I was born with this.doctors said it was a missing chemical from the body,I take one tablet every 24 hours if i take it a few hours out it does,not work properly.the tablets have been great.i haven't had a black out for many years.i find if I get really dizzy that salt helps me boost my blood pressure.i went to a specialist at the hospital when I was a child to treat this.i do take florineff.

I saw Hedi for a medical consult in 2015 in South Bend, Indiana. I have EDS. She was an excellent resource with invaluable information. I highly recommend her as an intelligent and highly professional physician. And I’m not typically a fan of doctors!

So many ah-ha moments for me during this talk! I just happen to be on one drug in cach category he mentions just via trying to address my symptoms over the years but no one has ever put this all together for me as being related primarily to one issue.

Could this be made worse with altitude changes also? My family and i went to the mountains and Everything seemed ok at first, but later on I thought that i was having a heart attack and couldn't seem to catch my breath. I have always had bad fatigue, abdominal pains, dizzy spells, problems with "zoning out", and inability to do any type of Cardio exercise. Trying to find a provider to get answers or simply a verification feels impossible.

He just talked about me and my daughters.

Wow I do literally all of the postural counter measures and now i know why lol

I was diagnosed with Parkinson’s 5 years ago after suffering from all of the symptoms mentioned here. Does this make sense? I do see a neurologist. I’m unable to stand at the counter to do anything. I feel extremely faint every time I stand. Should I ask for table test?.

Is it possible to have high blood pressure? My orthostatic intolerance presents with the opposite with high BP. Anyone knows? Thank you

Talking about the epudephine that why avoid if you go to the dentist you can request non epuinefril numb medication.

19:42 " . . . and if you're urinating more, that lessens blood volume as well."

What about gastric Bloating & wearing compression garments around the midsection? I have an SIJ belt which if I'm wearing it when eating after eating it's soo uncomfortable. & Non stretch jeans or pants? Omgoodness! My belly balloons! & Also hands & feet. Thoughts anyone?

Does anyone have the list of new drugs that help bring down heart rate. And that doesn't affect blood pressure. Also does anyone have the name of the drugs to bring up blood pressure. My cardiologist said there wasn't any.

I wish I could wear compression leggings but because of Gastroparesis I can't take the compression on my abdomen.

The problem is where can we get treatment??? Patients need help.

TOS and compression disorders causing severe autonomic dysfunction to worsen for me. Want surgery to stop plexus bundle nerves setting it off

What I would love to know is why no one ever seems to recommend IV fluids yet every man and his dog with POTS is on fluids.

When i threw meds away and went with natural food and clean water lots of walking for exercise i got better

What you explain is exactly how I feel but being a male for doctors is like depression but to tell the truth they do not listen no attetention at all is only women who suffer or males too?

Is any treatment coming soon for pots or dysautonomia

Fantastic talk. The only other talks on KZfaq that are as good as this are the other talks on the same subject by the same speaker. Everything else is a waste of your time.

Somebody tell Dr. Greger that 1/4 of people need to increase salt intake, not eliminate it. About 18:20. (He's a plant-based doctor who is adamant about elimitating salt from everyone's diets.)

Omg this is me but they just tell me it's anxiety. 2 years if this. No answers.

THIAMINE, YOU'RE WELCOME

I live a life of hell? My daily bp is 165 plus and I get AD boosting???! But I can not say I got AD as im not a Doctor but its hell past 200 its like I'm O-D'ing in A&E they think Im having?? A strock ?? ..@ 4:44 of this vido..I have all?? that and some more headaches run around the eye and to top of jaw...after years of heart tablets. I asked to be put on Doxazosin as my gp's have not got a clue best they can do is BMI ...I worked out my Bowel is the AD!! Trigger thaking Doxazosin is playing with fire! At 1mg im ok! At 2 its ruff anxiety and some at 4 it slows my bpm to sub 50 all? Day is 60s as is must of the time.. AD to me is a tool that takes for parts that can not .. Ps In 09 I did something to my L5 s1 but saying to gp's about it is peeing up the wall...