Great video! Very informative and hopeful,uplifting when knowing your loved one has CLL
@ThePatientStory8 ай бұрын
Thank you for watching! Please let us know if there are any helpful topics to cover.
@rajeshmakashir9208Күн бұрын
I’m a patient of CLL stage 0 for four years. No symptoms except weakness and night sweats Kindly advise
@garykirby31498 ай бұрын
Thank You for taking the time to share all the information and encouragement for us patients.
@karennagel-smith66488 ай бұрын
I loved how the patient said “you will die with this, not from this!”
@seahorse26 ай бұрын
Just started O+V, treatment. Treatment triggered by low RBC and low hemaglobin. Plus 5 infections, together, with pneumonia for a month.
@robertmorley36096 ай бұрын
I have CLL-LLC. My lymphocytes are around 0.5 x 10^9/L. It's hard to fin any discussion about this condition.
@careyh32645 ай бұрын
very useful when at dx plan....thankyou for info!
@GeorgePhillips-qj1bu9 ай бұрын
Thank you.
@davidneumann96532 ай бұрын
In 2020 I got the second shot for covid. Five after the shot my lymph nodes armpits and neck swollen all at the time. At that time I was 54. I have CLL and no ones care how I got it!
@TrudyContos-gq1bw2 ай бұрын
Great question or statement . Let's see if you'll get some answers . CLL is linked to Roundup. So, let's see if it's the vaccine and Roundup because it's becoming an epidemic itself .
@TrudyContos-gq1bw2 ай бұрын
I think the doctors should be documenting who if any of this new wave of CLL ARE VACCINATED OR ROUND UP EXPOSURE? THis can be good information for treatments. I'm sure it must have somenthing to do with the earlier and fast progression or the high risk percentage of CLL more aggressive types and getting to be quite the epidemic . Has EBV been a precursor to this cancer? It sure does state this in NIH?
@user-lq1hq5ng3sАй бұрын
WHAT ABOUT CAR T CELLS TERAPHY ----- IS IT RECOMENDED ON CLL ?
@KashanandHaribHkkids7 ай бұрын
I am patient of cll since last 3 year Stage binat A No any problem yet No any symptoms My wbc 40 thousands Lymphocytes 75 My age 57 What advice for me please
@insertnamehere51467 ай бұрын
Get busy livin at aged 57 you are going to be fine and around a long time. Drugs are great at keeping this in check. Don't Google and don't hang around cll forums with people who will try and depress you. With love
@celiajorge32474 ай бұрын
40 wbc is very low ,
@mdrahamatullahmd45744 ай бұрын
I am a cll patient. I am battling with this fatal disease since 2022. Since beginning, my physician is giving me capsule ibrutinib 140 mg to use. I am quite fine. Besides ibrutinib, I used 1. Beetroot juice 2. Tomato juice. 3. Pomegranate juice. 4. Carrot juice 5. Apple juice daily in the morning. One thing I fail to understand, why I am lean and thin. Why my bodyweight is decreasing. Please give kind suggestion.
@salehaldebassi17173 ай бұрын
it isn't fatal, medicine has gone a long way in battling this disease keep your hopes up
@TrudyContos-gq1bw2 ай бұрын
Were you obese or just overweight and now eating healthy ? Or your appetite changed to no appetite . Sounds like you feel great so baby keep doing what you're doing. But always check to see if nothing else is doing this .
@emacro658 ай бұрын
I wonder... If t cell exhaustion is affecting car-t responses, how about trying nivolumab (immunotheraphy) to un exhaust the t celks?
@joeadams-iv9yb7 ай бұрын
yes and i think they found ibrutinib helps the T-cells also.
@novizivot36318 ай бұрын
You are laying to people, it is curable.
@joeadams-iv9yb7 ай бұрын
It looks like to me a couple of people were cured with Car-T therapy.
@prettygirlzful3 ай бұрын
Interesting. And how do you distinguish "cure" from "remission"? Please cite your sources on "cure" rates for CLL. Thanks!
@SusiGlover-yg5pm2 ай бұрын
Fenbendazole - Joe Tippens Protocol.
@TrudyContos-gq1bw2 ай бұрын
I was thinking about taking this but it's becoming scarse