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The LATEST in Chronic Lymphocytic Leukemia (CLL) Treatments! | The Patient Story

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The Patient Story

The Patient Story

Күн бұрын

Пікірлер: 30
@mellink14
@mellink14 3 ай бұрын
This is so uplifting & encouraging! Thank you!
@meerkat2992
@meerkat2992 8 ай бұрын
Great video! Very informative and hopeful,uplifting when knowing your loved one has CLL
@ThePatientStory
@ThePatientStory 8 ай бұрын
Thank you for watching! Please let us know if there are any helpful topics to cover.
@rajeshmakashir9208
@rajeshmakashir9208 Күн бұрын
I’m a patient of CLL stage 0 for four years. No symptoms except weakness and night sweats Kindly advise
@garykirby3149
@garykirby3149 8 ай бұрын
Thank You for taking the time to share all the information and encouragement for us patients.
@karennagel-smith6648
@karennagel-smith6648 8 ай бұрын
I loved how the patient said “you will die with this, not from this!”
@seahorse2
@seahorse2 6 ай бұрын
Just started O+V, treatment. Treatment triggered by low RBC and low hemaglobin. Plus 5 infections, together, with pneumonia for a month.
@robertmorley3609
@robertmorley3609 6 ай бұрын
I have CLL-LLC. My lymphocytes are around 0.5 x 10^9/L. It's hard to fin any discussion about this condition.
@careyh3264
@careyh3264 5 ай бұрын
very useful when at dx plan....thankyou for info!
@GeorgePhillips-qj1bu
@GeorgePhillips-qj1bu 9 ай бұрын
Thank you.
@davidneumann9653
@davidneumann9653 2 ай бұрын
In 2020 I got the second shot for covid. Five after the shot my lymph nodes armpits and neck swollen all at the time. At that time I was 54. I have CLL and no ones care how I got it!
@TrudyContos-gq1bw
@TrudyContos-gq1bw 2 ай бұрын
Great question or statement . Let's see if you'll get some answers . CLL is linked to Roundup. So, let's see if it's the vaccine and Roundup because it's becoming an epidemic itself .
@TrudyContos-gq1bw
@TrudyContos-gq1bw 2 ай бұрын
I think the doctors should be documenting who if any of this new wave of CLL ARE VACCINATED OR ROUND UP EXPOSURE? THis can be good information for treatments. I'm sure it must have somenthing to do with the earlier and fast progression or the high risk percentage of CLL more aggressive types and getting to be quite the epidemic . Has EBV been a precursor to this cancer? It sure does state this in NIH?
@user-lq1hq5ng3s
@user-lq1hq5ng3s Ай бұрын
WHAT ABOUT CAR T CELLS TERAPHY ----- IS IT RECOMENDED ON CLL ?
@KashanandHaribHkkids
@KashanandHaribHkkids 7 ай бұрын
I am patient of cll since last 3 year Stage binat A No any problem yet No any symptoms My wbc 40 thousands Lymphocytes 75 My age 57 What advice for me please
@insertnamehere5146
@insertnamehere5146 7 ай бұрын
Get busy livin at aged 57 you are going to be fine and around a long time. Drugs are great at keeping this in check. Don't Google and don't hang around cll forums with people who will try and depress you. With love
@celiajorge3247
@celiajorge3247 4 ай бұрын
40 wbc is very low ,
@mdrahamatullahmd4574
@mdrahamatullahmd4574 4 ай бұрын
I am a cll patient. I am battling with this fatal disease since 2022. Since beginning, my physician is giving me capsule ibrutinib 140 mg to use. I am quite fine. Besides ibrutinib, I used 1. Beetroot juice 2. Tomato juice. 3. Pomegranate juice. 4. Carrot juice 5. Apple juice daily in the morning. One thing I fail to understand, why I am lean and thin. Why my bodyweight is decreasing. Please give kind suggestion.
@salehaldebassi1717
@salehaldebassi1717 3 ай бұрын
it isn't fatal, medicine has gone a long way in battling this disease keep your hopes up
@TrudyContos-gq1bw
@TrudyContos-gq1bw 2 ай бұрын
Were you obese or just overweight and now eating healthy ? Or your appetite changed to no appetite . Sounds like you feel great so baby keep doing what you're doing. But always check to see if nothing else is doing this .
@emacro65
@emacro65 8 ай бұрын
I wonder... If t cell exhaustion is affecting car-t responses, how about trying nivolumab (immunotheraphy) to un exhaust the t celks?
@joeadams-iv9yb
@joeadams-iv9yb 7 ай бұрын
yes and i think they found ibrutinib helps the T-cells also.
@novizivot3631
@novizivot3631 8 ай бұрын
You are laying to people, it is curable.
@joeadams-iv9yb
@joeadams-iv9yb 7 ай бұрын
It looks like to me a couple of people were cured with Car-T therapy.
@prettygirlzful
@prettygirlzful 3 ай бұрын
Interesting. And how do you distinguish "cure" from "remission"? Please cite your sources on "cure" rates for CLL. Thanks!
@SusiGlover-yg5pm
@SusiGlover-yg5pm 2 ай бұрын
Fenbendazole - Joe Tippens Protocol.
@TrudyContos-gq1bw
@TrudyContos-gq1bw 2 ай бұрын
I was thinking about taking this but it's becoming scarse
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