두 분 사이에 태어난 아이가 접합부형 표피수포증이라고 불리는 유전성 질환을 앓고 있으며, 지금도 1년째 입원하고 있습니다.근본적인 치료법을 찾기 어렵기 때문에 전 세계의 전문가, 치료해 주시는 분들에게 닿았으면 좋겠다고 말씀하십니다.두 분은 전 세계에 전문가의 도움을 요청하고 있습니다.일본인이지만 한국어로 번역해 보았습니다.한 명이라도 더 많은 분들께 도착할 수 있도록.
概略を英語にて書かせていただきます。微力ながら誰かの目に留まりますように!! Dear Any medical researchers or doctors. Their kid is suffering from junctional epidermolysis bullosa. Now he is 1year old. In Japan, there are few patient so we don't have enough cases and also treatment data. They are trying to contact all over the world researchers and they had done some medical trial test which was 1st time in Japan but unfortunately it didn't work to him. If you are or know any special experts to the desease, please contact them.Thank you. 英文の翻訳が精度高く追加出来ればその他の言語はyoutube studioから自動翻訳が追加できるので、ぜひ全文翻訳させていただきたいです!
To international viewers; Her son has a disease called junctional epidermolysis bullosa. There are still only a few cases of this disease in Japan, and no effective and fundamental treatment has been established. He is still hospitalized one year after his birth. She is looking for ways to cure her son's disease, with an eye toward treatment overseas. Please help her if you are a researcher overseas or have knowledge of the disease so that his disease can be cured as soon as possible.
Para la comunidad hispanohablantes. Esta pareja tiene un hijo de un año que padece una enfermedad genética llamada epidermólisis bullosa juntural y sigue hospitalizado un año después de su nacimiento. Quieren ponerse en contacto con especialistas internacionales ya que es difícil encontrar los tratamientos efectivos en Japón. Para salvar la vida a su querido hijo, quieren pedir ayuda de las especialistas del mundo. Por favor difundan este video o se pongan en contacto con ellos si tienen alguna información o contacto que podría ayudarles. Gracias.
Their 1 year old son is suffering from a disease, called junctional epidermolysis bullosa and they are desperately seeking for the information to save him. I’m not sure my comments can open the door to find those who are familiar with the disease, but I hope their beloved son could be saved.