Thanks for commenting! I always have more pain in the lower back area and legs/hips/knees and a lot of weakness in those joints so the cane is really helpful some times, but I don't use it on a daily basis at the moment. It's nice to have it in case I need it though! The unicorn pillow I got in Primark, its very very comfy! hmm I never thought of noise cancelling headphones, that's a great tip! I normally read on the train so it might be helpful to have them to minimise distractions and be more comfortable with the noise, like you said. See, I travel alone, which makes it a little trickier, but whoever is getting me from the station knows what carriage im in and all that to help me out. I find that with the unpredictability of fibro we just have to be prepared for all scenarios, no matter what!

B Deal oh glad it helped! Ya, it’s not a super huge difference, but it really keeps the pain levels in check!

Millicent Evans that’s the spirit! Thank you!!

That's interesting, but I guess if you were carrying it long periods of time, it wouldn't matter how good the bag was. Yes, when I get the train I always ask someone to put the bag up there for me, but I haven't yet traveled by plane since getting sick so I don't know. I am going to keep that in mind though! thanks for the tips!

Aw Emma, I'm so sorry to hear that. I hope you find something that helps you feel a little better soon!

Olga Chronics I’m not giving up! Just have a lot of ups and downs emotionally due to severity of symptoms but we know stress makes it worse don’t we! It’s hard but I’ll get there’s Thankyou for taking the time to reply. Means a lot 😘 hope you’re doing ok, and enjoy your travels! P.s totally get you about the walking stick, but I need mine out of my home every time until I get my wheelchair. I’ve even put a sticker on my car rear window ‘Not all disabilities are visible’ and the picture shows a person standing up and wheelchair upside down from their feet (like a shadow). Ive had a few really nice positive compliments about it and that shocked me but it really helps when people take the time even if just in passing and saying ‘that sticker is great!’ which was my first compliment. It makes a difference. I had the same medication weekly/day set, but changed it for a colourful one as I kept losing them (empty ones thankfully!) 🤦🏻‍♀️ fibro brain! In the UK we call the emergency/SOS medication ‘breakthrough’ medication. I Have hired a wheelchair on 3 occasions for a few hours at my local city centre. First time I was treated horribly by people especially staff in stores. I cried as soon as I sat in it tbh, (shock to the system I think), second time, not too bad. Third time, I was more relaxed because I realised how much less going out in the wheelchair wore me out. I was tired but I was ok when I got home. AND everyone was super helpful on that occasion which made it even better. Apologies, my comment is all over the place 🤷🏻‍♀️😂 xxx

That's okay though, I'm all for us using the aids that help us have more quality of life. I love my walking sticks cause they mean I get to do more and be more independent and safe! And we are all different, and the illness affects us all in different levels, so what is a good solution for me, might not be for you, but that’s okay. I think it’s awesome that you're not giving up, and stay hopeful & fight for your health! It’s hard, but if we don’t do it, no one else will.. I love that sticker, I've seen it floating around online! I'm always so happy when people compliment my walking stick, it makes my day :) I totally get you with the wheelchair thing - I feel like our mindset while using it really plays a big part in the experience. I get a lot of looks but never been mistreated. I think I've just been lucky, though, cause you hear some crazy stuff people have been asked while using mobility aids.. Hope you're having as low a pain day as possible :)

Millicent Evans thank you so much ☺️

Millicent Evans i know how you feel, but I don’t agree that it is a prison sentence. I think we have to find ways to handle things, and try everything to get better. I don’t feel awful all the time. I have a lot of days when I feel okay. Just keep working on finding what works for you. And don’t forget that negative thoughts and sadness and stress only make your symptoms worse

Thanks! I got it from a portuguese ortopedics website, so I don't know if they would deliver outside portugal or even still have it. A good place to look is amazon, and walkingsticks.co.uk also have some really snazzy ones :)