I stumbled upon your channel randomly. I similarly was diagnosed with lupus at a young age (14). Your video is very encouraging, as many people don't understand what it is like to have lupus, cope, lead a normal life as a 23 year old. I am one of the "10%" diagnosed, as I am male. You have inspired me to share with people, instead of hiding. You're truly a great young woman, beautiful on the inside and out. Your videos are touching more people than you know.

Thank you for sharing with us. I agree that in solitude we learn a lot about ourselves. I'm a nursing student and at 22 years old, I don't have a car or a driver's license.For a long time, I felt trapped and alone for years because I would basically be home all day, and I've been learning to drive for years. Eventually, I stopped resenting my situation, and I've learned to accept where I am and be content each day. Though I'm alone with no car, my life is good; I have everything I need.

Thank you so much for this! Opening up about my experiences has helped me in so many ways.

I like that! It's always good to stay motivated and to not fail because of lupus. The little things that we achieve are really big things for us.

I'm learning that too. If they can't understand our situation then they don't deserve to be in our lives. & Yes! Life is a beautiful thing. Thanks for your response. :)

Sounds a lot like me! Accepting the situation is really the first step to being okay with having lupus and knowing that we can conquer whatever comes our way.

Yes your right i'm trying to do it more often. Its just hard to be vulnerable and also that thing of not wanting to complain or use it as an excuse. But truth is its hard with lupus!! But I'm learning to deal and realize this is my life, thanks for responding and I hope you fee better.

Good video, sure makes you think and put your life into perspective.

I think I learn stuff about the world and myself every-day. Like you said, life doesn't stop moving, even when things go wrong. I've learned that sometimes I have to cut ties with people if they don't understand how certain things affect my health. (Luckily most of my friends seem to understand I don't feel good most of the time but, some of my family members just don't get it and try to make me do things when I feel terrible.) Life can be hard but, it can also be beautiful sometimes. :)

We can't be strong all the time. Sometimes we need someone to lean on and in those moments we show the ugly side of lupus.

Wish all and good health isa

I was diagosned with lupus five ago too.I don't have any friends who knows about my health issuses. Most people don' t understand the thing I happen to me. I deal with uncertainty is by praying , keeping things to my self or writing them down.

It is good to vent.

I just called a friend of mine yest.& its funny she lives in Michigan. But I was crying I needed someone to talk to. Im been crying for a week straight. Because Im coming to terms with uncertainty. I don't talk to anyone or go many places & my mother had a 50th Bday party& I bought something to wear it sent me over the edge. My body is so different the weight gain!!! Im been in a lot of pain I faint exercise so Im gained weight I can't sleep my poor husband is like oh my goodness.

It's true. We always have to think; how will this affect me? We always have consequences. We always have to make decisions about every little thing. I was up (vertical) for too long on Saturday. Got a bad migraine (vomiting, etc) on Sunday; so now Monday is a complete write-off. Was it because I was up too much on Saturday? Or is there too much stress lately? Only Lupues could understand. Maybe it's the bright days....

Im tired if being strong I think that's back firing because when I do cry or be sad my husband & everyone's like what's going on their used to mean being sooo strong all the times!!! Im just tired!!!

But Im like I have a illness I don't know what's going to happen at any minute. One minute Im happy at the park with my kids exercising then the next Im swollen having sharp shooting pains dry red swollen eyes& can't sleep in lots of pain scared that something's wrong in the inside. Im just sooo depressed right now!!! Im tired!!!

Is it a paralyzing disease?