Very good comprehensive thesis. Thanks.

Thank you for that “elucidation”. I have been following your posts for awhile and this really hit some “targets” for me.

The worst is vertigo and the pain so bad i vomit. Horrible thing to have to deal with. Even patterns or stores make me dizzy, certain lighting or fans...so weird!

Interesting you mention IBS which is obviously an anxiety manifestation. And many anxiety symptoms are the same as vestibular ones.

Remember the oestrogen-mimic thing has not gone away in spite of decades of awareness, if anything it is worse now with all the deceit around "BPA-free" plastics. Best advice is to avoid ALL plastic, e.g. plastic-wrapped lettuce, spring water in plastic, plastic water filter jugs, wine in plastic (boxed), mild in plastic (bottles or cartons), beer in cans, coke in plastic, etc.. That can help somewhat, though environmental plastic is everywhere now, including in women/babies' placenta, men's semen, antarctic ice, penguin eggs etc.

i had normal migraines for 20 years as soon as i had the covid vaccine I'm getting vestibular ones now and short term memory loss ..worst thing i ever done getting that vax

Paraquat (banned pesticide used (shhhh) by farmers) wafting on the breeze. Dry cleaner's trichloroethylene fumes affecting nearby flats, pavements, shops.

I started suffering with vertigo earlier this week, it got worse then I felt like my head was in cotton wool, dragged myself out to vote (may 2nd election UK) at the polling both I could hardly speak or understand what the woman was saying to me. When I got home I started seeing colourful zig zag flashing lines in one eye. This lasted about 20 minutes. 4 days on and Im still not better, spatial awareness is crap and I feel unsteady on my feet. Hope its not chronic, dont think I could stand it.

IBS: cut out highly processed seed oils, some of the most inflammatory stuff we ingest.

Matt!!! Great to see you, Mate!

Interesting, I have had ongoing (3 years) of pins & needles in my hands, with numb arms, strange breathing, headaches and dizzy symptoms with Tinnitus, this is usually triggered by strong smells (purfume, washing powder etc) which then send me into a 3 day cycle of hell! then after going private recently (NHS doctors kept fobing me off with Anxiety) I was sent for Audio vestibular tests, which I was then diagnosed with VM, its early days for me as Im also recovering from an Internal Corotid Aretry dissection that they found from a hospital visit in Feb (I think they found this due to the mixture of VM symptoms and having stroke like symptoms) which landed me in the stoke unit of AE, so im interested to know if anyone else has experienced the numbness and smells that trigger it?

A lot of these factors apply to me. I've been suffering for 6 months now. Luckily im not so bad that I can't get on with my life but I have some days better than others. My symptoms started after a viral infection. I had a CT scan which showed a few small pieces of metal in my scalp and a bit in my eye which is from my job as a welder. I also have a hiatus hernia which means im susceptible to acid reflux (inflammation). My dad and sister also used to suffer from migraines. So your research makes a lot of sense to me.

Have not watched all your videos, so I am suggesting that you get an MRI.

Great information but this illness is so random it seems as are the symptoms and causes. I don’t seem to have any symptoms or triggers as you describe. The episodes I have come on suddenly with no warning. They leave me incapacitated for hours where I am confined to bed or couch. After taking a large amount of meclizine I just wait it out before I can stand again. Keeps me confined to the house for a couple of days afterwards. No migraine pain or anything. My vestibular physical therapist is the ONLY one who can explain this to me. Does anyone else have attacks like these? Thanks

Before my diagnosis, I had migraine on and off for a few days plus vertigo, but then one day I thought I was having a heart attack. My resting heart rate was up 20 points. i didn’t know then that panic/ anxiety are a main symptom of VM. My God, it is SO disturbing. Had to take a Xanax. It helped FYI

Could TMJ contribute to this condition as well??

Hi matt, I'm male (20), do you have any advice for tapering off beta blocker meds for vestibular migraines? To give you a short summary of my story. I've been suffering with VM since I was 17 years old, and recently managed to finally find a dose of meds that worked. I was migraine free for 4 months, however I had suspicions that these meds we're lowering my testosterone levels, and causing me to feel tired and sweat more than the average person. So I went to see an endocrinologist and he agreed that the meds we're probably causing these issues. So I decided to begin tapering off the meds. Started at 20mg propranalol, and 50mg amitriptyline, and over the course of 8 weeks managed to get down to 10mg propranalol and 30/40mg alternating days of amitriptyline. However unfortunately as i switched to 30/40mg alternating days of amitriptyline I noticed my migraines to creep back in. And now they're back to the point where I'm getting them daily again. I have bumped the amitriptyline back up to 40mg (since I felt okay at that dose) and hoping my VM will go away again. However I feel a bit trapped,. I don't want to be on meds all my life because I don't want to feel low on energy all the time, but i also am struggling to want to taper off again due to the VM coming back. What would you do in my situation? Really would appreciate as many opinions as possible.

My story is a bit crazy.. i had a rare stroke and brain bleed 7 months ago a friend found me 10 days after it happened i lived along..40 year old male.. healthy fit they dont no why it happened.. in hospital i complain about how dizzy i was like on a boat, they had not answers .. so i was dizzy everyday all day ..then i listen to a doctor on youtube taking about vestibular migraine and ive has migrains a few times a years for years.. and treats it with nortriptyline so i started 20 mg a week ago and its a miracle im maybe 50 percent better .. ps sorry if my spelling is bad still working on that

food kicks mine off when i have cheese

My vestibular migraines have a lot to do with my TMJ (Jaw). I have degenerative changes to my left jaw joint and supposedly the inflammation from the disorder can reach the vestibular nucleus in the brainstem.

Do you reccomend amitriptyline for constant tension headaches n migraines

Sorry I can't read the any of the writing in any of the boxes