Virginia McEwen, MD "Mast Cell Activation Syndrome: the new fibromyalgia?"

Рет қаралды 3,947

Күн бұрын

Пікірлер: 18

@trsavage9778 2 жыл бұрын

Thank you for posting this information. We, meaning the sufferers of MCAS wish more, or all, doctors were well versed on this disease and symptoms.

@CoriHarhutch 6 ай бұрын

Diagnosed with FM 2020 and never told. Aggressively seeking treatment with an allergist for MCAS and really glad that you posted this. Thank you. I’ve taken screen shots and will be discussing treatment, genetic testing, and, if needed, bone marrow biopsy. Thank you again.

@Truerealism747 4 ай бұрын

Diagnosed CFS 1997 fybromyalgia 2017 heds last year with asperger's is the bone marrow test for oestoporsis what are your main symptoms nowadays muscle pain hard to find allergist uk

@toiletresin 2 жыл бұрын

Almost asked my dermatologist about Multiple Chemical Sensitivity (MCS) before realizing that doctors call it "Mast Cell Activation Syndrome" (MCAS). Phew! The "A" in "MCAS" seemed to remove psychosomatic stigma from my questions about formaldehyde rashes and heritable disorders of connective tissue (common with MCAS).

@SweetiePieTweety Жыл бұрын

Yes sadly, a prior diagnosis of MCS due to a lack of knowledge of MCAS has been a huge block and stigma. They continue to deny that MCS may actually be MCAS yet their diagnostics simply can’t diagnose. That they continue ti stigmatize and gaslite due to their own inability to effectively diagnose and refusal to diagnose MCAS based on symptoms due to their inability to diagnose on diagnostics is pathetic. Plenty of other conditions are diagnosed based on symptoms due to insufficient modalities for lab diagnostics. Lupus is one example of a connective tissue mast cell autoimmune condition that is recognized and diagnosed on symptoms by the medical community and not considered psychosomatic. Individual can have this response to an environmental such as response to any other environmental trigger or many I other environmental triggers. It denies. Lupus sounds like MCS sounds like MCAS 🤷‍♀️ Yet, no one has the balls in the medical arena to acknowledge it as possibly being a real thing. I guess it’s really difficult to sue the sun for shining down on us and the tress and grass and outdoor mold and insects and pollen and dogs and cats and dust etc etc etc. But man made products nope can’t go there…. can’t do that. Can’t let the research document anything but psychometric lest we find ourselves in lawsuits for our products for our work environments etc etc etc 🤷‍♀️ Adrian is a Weenie for continuing to pretend that MCS is not MCAS… for many potentially if not all we just don’t have good enough diagnostics to lay out fragile reputation on the line for that.

@jmartin7856 3 жыл бұрын

Checking this out. I have debilitating pain, fibromyalgia or MCAS maybe, thyroid disease, and very rare autoimmune lung disease NSIP! REALLY EXCITED 😄. I'm going to contact Dr Afrin and this wonderful researcher.

@Truerealism747 11 ай бұрын

How is your pain