I lost my vision in 2004. It's been a little over 20 years I'm fed up with it Time to get vision back! :-) lol

Good and i hope you do with all the others with lhon. My son is 2yrs in. He's joined this Facebook group for people with lhon. The main question I see is gene therapy trails. Iam sure every year there getting closer on helping everyone with this

@@AKck-eu9bv Yes we are learning so much more about the disease over the past years and have been getting closer and closer to actual applicable gene therapy that fixes the mutation in our DNA stopping the free radicals from being created subsequently damaging the retina and optic nerve causing blindness. From being apart of the gene therapy study in Miami at the Bascom Palmer in 2010 - 2012 I know for sure that trial or natural history study is what it technically was and then all that information went out to the companies to try to make a available version of the gene therapy so people with LHON could get it as far as I know they were at Gen sight in phase four all previous phases were successful at fixing the mutation or preventing it from happening in our mitochondrial DNA and they were trying to go to market This part I'm not sure about looking into genocide and maybe talking to them would probably get you more info but the FDA shut that down and said they wanted it to be better. As a patient with I feel great understanding of the disease that is incompetent The FDA has absolutely fucked us. Smh lol they want more people to get more vision back after they receive the gene therapy. From everything I know and have studied and taking part in, that is just not the way it works. The mutation of the DNA will be fixed no more free radicals will be created because of it so no more damage should be done and any vision improvements I think of as a side effect of the DNA not causing free radicals that damage the body any longer I do not think we can control that . For someone who is affected or already blind to get the gene therapy and then get vision back IMO is a side effect or coincidence so to say of fixing the DNA that is why I am trying everything I can to fix the retina optic nerve the retinal ganglion cells and so on as well as using methylene blue to bypass the mutation and give electrons to complex four so that in complex 5 ATP can be made properly at the proper amounts making the mutation kind of irrelevant IMO but as of right now I personally do not have that much faith or interest in being fixed by a pill a procedure or someone else I have to do this period that is it.