VLOG: What Does A Bad Day With Multiple Sclerosis Look Like

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Sara’s Living With MS

Sara’s Living With MS

Күн бұрын

Thank you for watching @SaraslivingwithMS. In this video I vlog about having a bad day with multiple sclerosis. I had been feeling well, but after a difficult week, feeling the effects now.
Please subscribe: / @saraslivingwithms
My videos do not provide medical advice and are for informational purposes only. The videos are not a substitute for professional medical advice, diagnosis or treatment. Please do not disregard professional medical advice or delay in seeking it because of something you have read or seen in any of my videos.

Пікірлер: 13
@jodieaydemir7868
@jodieaydemir7868 Жыл бұрын
Hi I am 50 and have am newly diagnosed with MS. I passed out last year in September in a hospital being treated for heart pain.. After my vaccinations I had pain over and over around heart. Was diagnosed with Myocarditis then pericarditis.. I was over medicated and passed out fell and hit my head really bad.. back in December I finally had a mri which showed 11 lesions on my brain.. and I was admitted to hospital 4 days for iv steroids.. the steroids helped for 3 weeks but since then the past month I have severe pain that lasts for days.. the numbness does not last for long but deep pain in several areas that no pill takes away.. I’m scheduled to start Ocrevus next week by iv just waiting for my jcv blood tests to comeback.. I’m so scared to have this medication.. prior to passing out last September I had not a single symptom and the past 6 months has been almost a daily pain in several areas.. stress yes makes it worse being happy even triggers something.. I’m so new to this and am watching lots of MS videos of real people who have it rather that what the doctors say.. sorry for the vent hope you feel better soon.. 💕
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
I am sorry to hear you are in pain. Are they saying the pain is from the MS? I was on Ocrevus previously. I have a video on it. Just keep fighting. Diet and meditation can help with the symptoms. Good luck to you❤️
@lesliehaas1986
@lesliehaas1986 Жыл бұрын
I think you can learn from others. I have so much appreciation for Sarah . I would like to be a friend to someone who relates. Sara I think you are a special woman an honest one❤️
@colleensmith3374
@colleensmith3374 Жыл бұрын
Bad days for me usually are because of the day before. I had one earlier this week where company came into town unexpected & even though chatting/lunch & dropping her off really exhausted me the next day. I spent it on the couch with a headache. I do think it's stress related about the family we talked about...I internalize and feel deeply about people and I know it's what caused this in the first place. Stress kills. I went and worked out the next day, spend some time sitting in the sun even though cool & started a knitting project. I also like to be extra kind to myself. Buy yourself some flowers, paint a picture, have a cup of tea, gardening is right around the corner. All these make me happy. Do kindnesses for yourself. Maybe it's new hobby?! Best to you:)
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
Thank you for sharing. That sounds very peaceful and relaxing.
@DavidSmith3750
@DavidSmith3750 Жыл бұрын
THANKYOU for sharing. Your a beautiful Lady. Stay positive. I feel your pain inside hurts I wish people wouldn’t stare too
@famasmaster2000
@famasmaster2000 Жыл бұрын
Sarah, you are handling it all wonderfully. Keep that stiff upper lip. I have been on the Wahls diet very strict for a year now and certainly hasn't been an easy adjustment but I'm very used to it now. It has made me so much more pleasant to be around because I was so miserable when I was diagnosed. I also find that quiet time and reflection especially prayer have really helped me lately 🙏 Just never give up eat right as some foods I think are definitely a trigger. Stay strong 💪 and keep your positive attitude because it's what we make it. My prayers go out to you as well ❤
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
Thank you for the suggestions ❤️ I agree that eating healthy is so important!!
@lesliehaas1986
@lesliehaas1986 Жыл бұрын
Thank you sara for sharing your life changing story.
@Velkro5000
@Velkro5000 Жыл бұрын
"Neurologists are bozo's." this is what my friends Dad says. He's also a neurologist. Primary Doctors have also echoed the same sentiment. My friend also make MS drugs and admit they don't work. Also, the biggest law suit in history to date was against and MS drug company.
@haninshuaib7289
@haninshuaib7289 Жыл бұрын
I been having a lot of ms symptoms but didn’t get diagnosed! I had brain and spinal mris without contrast they came back normal should I do one with contrast 😢 I’m lost
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
I am sorry to hear this. I did get a brain and spine MRI with and without contrast, I remember asking to only have it without contrast, but the doctor telling it is really important to have it. However I don't remember the reason. Keep advocating for yourself, ask your neurologist about what the MRI does with the contrast, I do have a video on my diagnosis story, if you are interested: kzfaq.info/get/bejne/e62dftV62s_XZmQ.html
@lauracarlson9260
@lauracarlson9260 Жыл бұрын
The reason to have it with contrast is to find out if it is "new" and still "enhancing". If it is then the steroid treatments will help as they will reduce the inflammation causing the issue. If it isn't bright in the MRI with contrast then it is past damage that a round of steroids won't possibly resolve. Your brain may still "rewire itself" over time and with the right resources. The MRIs with and without contrast should be pretty consistent- just the lesions are brighter if they are new as shown by the contrast. Dr Boster has hundreds of videos on everything MS on his You Tube Channel- this one covers this topic kzfaq.info/get/bejne/fJ9dkqSYuKvRhGQ.html
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