VNS: A Small Device Making a Big Difference

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Күн бұрын

A Vagus Nerve Stimulator (VNS) is a small device being used to improve the lives of eligible individuals impacted by epilepsy. The versions of the device discussed in this episode are inserted under the skin in an out-patient procedure. The VNS device acts like a pacemaker for the brain administering doses of electricity in an attempt to reduce, lessen the intensity, or eliminate seizures.
Join us as we discuss the VNS device, including patient eligibility, the surgical implant process, and possible side-effects of the device. Dr. Takijah Heard, Division Head of Pediatric Neurology at Northshore Neurological Institute, walks us through these topics and more in this episode of Seizing Life.
For more information about epilepsy and what CURE Epilepsy is doing to find a cure, please visit: www.cureepilepsy.org/
Check out the audio version of this episode at:
www.cureepilepsy.org/vns-a-sm...

Пікірлер: 42

@viviansweet10 2 ай бұрын

Thank you so much for the education on the VNS stimulator. It was a very informative and educational experience that I needed.

@phyliciabozzi9414 2 жыл бұрын

I have seizures and I do NOT know they are coming on. So I'm screwed. So people have to tell me that I am having a seizure or have had one. I have to show this video to my mom. I am considering having this. Then talk to my neurologist about it. She suggested it

@diysimpleartsncrafts5617 2 жыл бұрын

Amazing!!!.. This video has basically answered so many of my concerns. Thank you so much. The one thing that I have an issue with is the length of time it would take the body to adjust to the stimulator. Overall , I have learned a lot of valuable information.

@TheLastEnvoy0420 Жыл бұрын

I've got a VNS implant put in.

@queenluv5024 10 ай бұрын

Have you experienced any problems with your VNS device? I have been suffering severe pain, more headaches and more seizures for years. I have asked for the device to be removed, now I am demanding that the neurologist refer me to a neurosurgeon to remove the device. The company technician J***, and several neurologists have documented the complications that they have had with my device. My settings are high and seizures have increased.

@DoubleM-hf6ih 3 жыл бұрын

Imagine that VNS machine stopping a seizure before it starts. It’ll be great if I’m allowed to have it done. I feel my seizures coming on. It starts with my eyes moving fast, then my muscles tighten up then my face starts twitching. If it’s a bad one my whole body starts moving. I’m tired of having those stupid things and feeling depressed and tired after a bad one passes. Lately I’ve been having them about once a month something like that. I would give anything to go years without any seizures.

@joelselistinal1519 2 жыл бұрын

Publicly my 20 years seizure disgrace diagnosed disease including aneroxuia have be cured by a spiritual herbalist inshallah with his herbal root and leaf's mixtures kzfaq.infoD6UBT8lKYcw?feature=share

@yetibigfoot7350 2 жыл бұрын

I had brain surgery and it didn't stop mine. Now I'm getting this offered again. It seems great but.... sometimes I think this is just me. But..those stupid seizures are awful! I feel mine coming also but I just want them gone!

@kimberly6200 2 жыл бұрын

Me too 😢 I have my VNS...its been about a month and I'm still having seizures...I guess me and my Dr. Are still trying to find the correct therapeutic dose for me. Hopefully they find it asap!! I'm ready to go back to work 😫

@Stella-tan 2 жыл бұрын

@@kimberly6200 Can you tell me the side effects you’ve experienced after getting the implant?

@alisagbolden5184 2 жыл бұрын

Depressed also, this is the only surgery I can get, because it's not isolated, it's all over my brain. IM more tired than you know. 30 years now, and no one to look after me. Great luck to you.

@colmcoleman6421 2 жыл бұрын

I got my vns implanted about 6 months ago and have been clear of a major seziure for 5 months I had one small one but used the magnet, my doctor said "You have made my day that you are the fastest patient iv had to respond so quickly" I did have to keep relearning how to talk when it went off all that happens is I feel a small tightening but Iv had it this long most of the time i wouldnt even remember its there

@joelselistinal1519 2 жыл бұрын

@trudyperry2819 Жыл бұрын

I'm to find out about the battery change

@hugdeeznutz Жыл бұрын

have the docs ever had issues with it protruding from the chest muscle and Bruce's around the device.

@denisetran8300 2 жыл бұрын

Does the patient constantly feel the energy when device is running, similar to being shocked?

@dustycrawford4132 2 жыл бұрын

You do for a couple days but it doesn't hurt at all feels like you tapping your neck then you get use to it and won't feel it at all

@kimberly6200 2 жыл бұрын

No lol

@b991228 5 ай бұрын

I started having tonic-clonic seizures in college and ended up in the my local Milwaukee hospital hooked up to a EEG. I felt good and felt trapped in bed hook to this contraption. Being annoyed and bored I started reading the Wall Street Journal. Next thing I know I get attacked by doctors and nurses insisting my EEG says I am having a seizure. Is it possible that reading the Wall Street Journal while in college causes seizures?

@theway3660 Жыл бұрын

I had one 20 years ago,but it didn’t help me with my seizures. I hope it will help you!

@rosiomagallanes5172 9 ай бұрын

I had mine implanted back in 2016 and my battery died in 2021 it kinda worked . Now what I noticed I get my seizures every 4 months I don’t know if it’s because I’m not stressed don’t know . I haven’t changed my battery though

@rebeccataylor2088 2 жыл бұрын

If I have an ICD can I have a VNS?

@phyliciabozzi9414 2 жыл бұрын

My parents have seen seizures for me almost every day. I have to write down for doctors when I have them. Almost every day in December of last year. Not cool. And I take my meds ON TIME CORRECTLY. I have an alarm set on my phone

@queenluv5024 10 ай бұрын

I don’t recommend anyone having the VNS implanted into their body. The device hurts and doesn’t help.

@colmcoleman6421 3 жыл бұрын

i am getting the vns but one thing i want to know is do you feel the vns go off when it sends the signal

@denisehayes2298 3 жыл бұрын

Did you get the procedure yet? If so, how are you?

@colmcoleman6421 3 жыл бұрын

@@denisehayes2298 it is coming up soon but due to covid could be a delay, the hospital will call me when ready

@denisehayes2298 3 жыл бұрын

@@colmcoleman6421 OK well prayers for you and I will you all the best.

@colmcoleman6421 2 жыл бұрын

@@denisehayes2298 i got my vns operation done about 6 months now and its been 5 months since my last major seziure I have my life back now

@denisehayes2298 2 жыл бұрын

@@colmcoleman6421 I'm so happy for you. I am

@sbaby-np5hy 3 жыл бұрын

I'm about to go to a neurosurgeon tomorrow to talk about getting a VNS implanted in my body 30 days from the day that I see him which is tomorrow and I'm really nervous extra nervous about it because I'm seeing all these comments all over the Internet about how people had it put in and then they died and it's making me so nervous that I just can't like I'm just so afraid can anybody help me?

@joelselistinal1519 2 жыл бұрын

@laurasearch4155 2 жыл бұрын

I have had epilepsy since I was 13 and I'm 32 now. I have just had the vns surgery done on Thursday. I'm abit sore and my throat feels abit raspy. But after 2 weeks I will have the vns turned on, I'm nervous about it but so far so good. Just take pain killers for the discomfort after surgery in your kneck and chest.

@queenluv5024 10 ай бұрын

Please be very careful with the VNS device. Always be sure to ask your doctor and company representative how many patients have they treated and how many patients have severe problems. I still take medication and this device doesn’t work.