Suffered with this problem. Discouraging. Completely involuntary and aggravating. Thank you for describing because I don't know if there is much awareness of it.

I suffered from a conversion disorder - Psychogenic Non-Epileptic Seizures - back in 2014 and 2015. It was brought on by several traumatic events that occurred in a row. I didn’t realize that it was somatic until I came across the term PNES several years later, after the symptoms had stopped and I had given up on my neurologist. I could’ve sworn it was epilepsy. Scary stuff. I’m happy to answer any questions. I’ve done a lot of research on the topic. Great video, Kati.

Your “welcome” is so warm that it even makes depressed people smile ❤️

I never heard of this. I have ocd with tics. I've done lots of testing for tics and MRI and blood work came back normal. It doesn't fit the criteria exactly for Tourettes. Also, when someone distracts me it gets better but when I'm zoning out I tic like crazy. This is very interesting. Thank you, Kati 💜

I have a movement disorder. The doctors were determined that it was psychogenic and kept telling me if I go to therapy I will be cured, and were very rude about it too. I knew something else was wrong just as a lot of people do when they are diagnosed with this disorder. Yes, it can be caused by trauma. However, I am seeing a therapist and she confirmed that there is no way mine is from my mental state. We have found my largest trigger to be my sensory processing disorder which I was born with. And we are now finding that I am a perfect example of a vagus nerve dysfunction which can cause seizure like convulsions. People need to be aware that when you are told that you have this, it doesn’t always mean it stems from trauma. Please if you can feel something is wrong with your body, there probably is. You know your body better than anyone else. I was yelled at by an epilepsy specialist and told if I just accept it, it will go away. Turns out that is not even remotely true. I am starting to meet more and more people that aren’t being “cured” with this and I want people to be aware of the misdiagnosis that happens too much with this disorder. If you do have this and therapy has help, I am so happy you have gotten relief because movement disorders are no joke.

I have Functional Neurological Disorder (AKA Conversion Disorder) caused by excessive prolonged stress at University (around a 9 on the stress scale, meaning I was constantly in a state of fight or flight whilst at university and doing university work) coupled with my Anxiety, Depression and suspected high functioning ASD. I presented to the emergency room with gait disturbance, partial paralysis (that came and went suddenly), blindness, tremors (vocal and physical) and myoclonus. Had CAT scan and MRI done and spent 4 days in the hospital. I was seen by many doctors and med students and had a diagnosis on day 4. I have spent a year recovering and still cannot drive, but I am finally healthy enough to rejoin the workforce when someone hires me. XD Thank you for the video. Much appreciated.

I was told my weird movements were psychogenic for ages, but it turns out I have autoimmune encephalitis, which doesn't always show up on MRIs, etc. So...what appears to be a psychogenic disorder isn't always.

Hi Kati. I had never heard of this disorder until today. I suffer from anxiety and I have a tremor that comes and goes with varying levels of stress. Interesting topic that you have chosen to cover. Thank you for your time in researching and presenting this topic Kati. I really appreciate your efforts!

5:00 Your hypothesis about this kind of tic relating to PTSD or Complex PTSD hits quite close to home. I have had tics, jerks, and spasms in hand with PTSD flashbacks, and never had any explanation for it. I tried telling a therapist about it once only for her to tell me I was making it up. So this is very validating :)

I met a young girl at the SSA waiting for her appointment. She looked very fatigued like she hadn’t slept in a very long while and was about to pass out but her body kept making involuntary movements constantly never giving her one moment of rest. She sat next to me and I asked her if she was sleepy because she was about to nod out on my shoulder. She talked very well so I knew it wasn’t some mental condition or drugs and alcohol. Later after our appointments I asked her if it would be alright if I prayed for her. She wanted that and even asked others on the sidewalk to join in the prayer. But then her ride showed up and she had to leave. The young lady was tormented by something that wasn’t giving her a moment’s rest, I knew what that felt like before Yeshua healed me of acute Trigeminal Neuralgia. Thanks for your video explaining a possibility of what this was.

I was diagnosed with a conversion disorder when I was a teenager. Thank you for being so empathetic to those of us with these issues. It was a really scary time. I didn't know why I was hitting myself or squeaking and I think they were really concerned it was something big. I spent time in the hospital. I had bloodwork done, an MRI, so many tests. And then the neurologist who diagnosed me was very dismissive, like I'd wasted everyone's time or something. It's been 18 years and things are better, but I know that my anxiety is really bad when my right hand goes rigid and quivering and then I hit myself in the forehead. As much as it hurts to do that, it's a relief because I can then move my hand again. Last year, after white knuckling through life, I finally got on anti-depressants and they've really helped.

Finally I have a name for my stress jerking.

Thank you for validating what I’ve been calling my “anxious tic.”

Kati😍😍 this video is perfect! I have PNES and I've had it since I was in elementary school. I'm 20 now and despite the fact that I have this (I rarely have them now though!) I graduated high school, was captain of the cheer team, and I'm in college getting my BA in psych! For anyone suffering with a disorder like this, know that it gets so much better.. after I decided to judge how well I was doing based on factors outside of how many seizures I had a day, a weight was lifted off my shoulders. It's still there and it's been over 10 years, but I'm so happy and every day I do things I never thought I would be able to (cheer stunts, 5k's)

I'm an occupational therapist. I treated a boy's psychogenic paralysis, he was in a wheelchair, not able to walk at all and had to regain actual motor skills. since I met his family it made sense to me ...how the atiology might have happened... anyhow, it was one of the most interesting and pleasing experiences in my life so far. I heard, he's playing basketball right now

I have full body jerks and movements that make it hard to walk sometimes, or even stand up. Its exhausting and I'm so tired of it. Its not constant but on a bad day it can be. Thanks for posting this, I know it was years ago but I've been trying to work out what's going on for ages and this is the first video that makes sense to me.

I have these full body twitches whenever i get anxious and one time i was at my friends house and i got one and fell of the chair😂

Proud Kinion here to remind you all of the quality resource that Kati provides each month, not just on KZfaq but behind the scenes on Patreon. So be sure to check out her Patreon page to support the work she is doing globally around mental health. I wouldn’t be where I am today if it wasn’t for Kati’s channel and her input through Patreon. Behind you all the way Kati as you continue to change the world!!

Thank you so much for making this video. I’ve been waiting for someone to make a video about this. I’ve been on a long health journey, i had to medically withdrawal from school. My doctors are trying to figure it out and if the next round of tests come back normal, we can say my symptoms are psychogenic. It’s hard to accept that it’s even still an option. It was really comforting and validating to hear you speak about it. Thank you for making me feel not so alone. Thank you for all you do!❤️

So close to 1 million. Youre helping millions of people !!! So inspiring 💙💙

Sometimes I feel like I have a vibration inside me. Then I can along jerk and things fly out of my hand. Then I can go into a uncomfortable full body movement.

As someone with FND/Conversion, thank you. Alot of doctors think it's in your head because of the physical tests coming back fine. And most people think "oh that's so me lol! me too!". It's debilitating, and not just a little panic attack. It needed this recognition. Thank you again.

Thank you so much for talking about this! I live with conversation disorder and have all of these pmd types sadly and it's no fun I've lived with it for 7 years and I have found through my therapist that it was triggered by my trauma from my childhood seizures and now any type of significant stress like my cat dying yesterday made one start and I have found that hot yoga and therapy with my LCSW helps me so much. I also had my anxiety disorders start before along with my depression. In Kansas there's not much knowledge on this sadly. So that makes it really hard to live with but I do hot yoga everyday and that has significantly decreased my anxiety and pain. - much love from Sammy!

I’m taking my first psychology class this year, and it’s so exciting when i hear you mention a term or concept i learned before and genuinely understand what it means. I’ve never heard of PMD, but i’ve studied conversion disorder. Obviously i’m no professional but i’m very interested in psychology. Thank you for continuing to teach and raise awareness about mental health 💜

I used to think I was alone and I’ve never talked about this with anyone at all until, for some reason, I commented here. Anytime I think about something that gives me stress or anxiety, I literally go into a fetal position and can’t stop shaking for a few minutes but it’s only specific things like health concerns or something serious. I definitely need to dive into more research about this. Thank you uploading this video.

Thank you so much for this video, Kati! My left eye twitches a lot, to the point where people constantly point it out to me. I have noticed in the past that it’s definitely a lot worse whenever I feel especially anxious and/or depressed, but so far I’ve never really questioned it or realized that it’s an actual thing that can be treated. It is also more bothersome than painful, so I’ve never really searched for help, writing it off as something random and insignificant. Thanks for putting so much effort and research into your videos. I hope you realize they help a lot of people, even if it’s just with something as small as a twitching eye or finally finding the courage to seek out help.

I'm in grad school for mental health counseling, with a focus in Dance/Movement Therapy (DMT). I think that DMT can also be really helpful in treating PMDs, because we focus a lot on the mind/body connection and expressing/understanding emotion through movement expression. For a person with a PMD, movement may become a big source of anxiety-- a DMT may be able to address this anxiety and potentially work on changing the relationship between the client and their involuntary movements.

I have muscle tics. I've had them for years. I had one of my doctors actually suggest this... But the others believe it's actually fallout from my neuropathy for not geting treated for over 15 years. So if you have tics and spasms and such talk to your doctor. Don't let it go it may be something really important.

I love your videos kati. I watch them between my sessions with my therapist and they really help. Thankyou

Hi kati, What would a school counselor do when a student comes to them while they are having a panic attack?

Hi Kati, I really wanted to say thank you for being an amazing resource for me. Of course, you aren't the only person out there, but you have helped me immensely. I'm a freshman in college, but in 5th grade, I had a very traumatic brain injury. It caused short-term memory loss, and shortly after, transient tic disorder. School has exasperated them even more, but it's okay haha! You are part of the reason I'm planning on getting my masters either as an MFT, an adolescent therapist, or working in a psych ward. You make me feel as though I'm not alone. With much love, Matthew

*Q:* How would I get a new therapist to believe me when I say that many CBTs have been tried again and again and again without results, that I generally don't think in words but in images? I'm not unique, and I do appreciate their effort, but it really is maddening.

Never heard of this. Always love any new information, thanks Kati! Would love if you could do a video sometime on having a parent on the autism spectrum :) xx

I've noticed that when I'm incredibly stressed and feel overwhelmed, my body experiences internal vibrations in my hands and legs. Not sure if it's a form of some sort of panic or anxiety attack.

I've never heard of this before, so yay for new information. I've noticed that when I'm in social situation for too long without a break, having to talk to somebody or talking in front of a group of people (I was a tour guide for three years), there comes this moment where my neck stiffens up more and more, making it hard to move my head from side to side. After that there's this sudden movement where my head just snaps to the right side. It's so embarrassing, I hate it when that happens, I've become so self conscious because of it. I didn't know that such "ticks" were a "thing".

Thank you for this video, my mom just started having this just as she was admitted to the hospital (it wasnt even the main reason she was admitted but now its the issue that worries us the most!). Its making a lot of sense, I hope we are able to treat it successfully

Thank you for this video. I have been waiting for it for a long time. 💜 I have psychogenic non-epileptic seizures several times a day and I am going to share this with a group I've been going to.

Thank you for this video. It gave some validation to what I have been experiencing for years. I believe I have a psychogenic movement disorder in the form of head jerks. This has led to secondary behaviors that have caused my body a lot of distress in the attempt to avoid the involuntary movement. It came on suddenly and lasted a couple of years. After going to a doctor about it, the 'condition' mysteriously disappeared and then came back with the single thought of remembering that I used to have it. Just recently, I have realized that the term psychogenic disorder, which I have studied about in other contexts, could indeed apply to me. This video made me believe this even more firmly. I hope to get a 'team' that can help me through this, and it is helpful to know the right care can help.

I found this really interesting. I have psychogenic non-epileptic seizures. Interesting to learn more about this similar set of challenges people face. It's definitely a challenge in my life and a real issue that affects my life.

I constantly went to hospital for severe abdominal pain as a kid and they could never find anything. Looking back now, I think I had a somataform disorder. No one asked any questions about my mental health. I mean, if they had asked me, I would have told them about the bullying, sexual abuse, and parentifying I experienced as a young carer of parents with disabilities... ERs and GPs need to be better at identifying Mental Health issues in kids presenting with unexplained health issues.

Never heard of this, but love that little hypothesis you had. I have gotten so much information from you that has helped me to know how to deal with my complex ptsd and various other disorders. I'm finally getting treatment and addressing issues I didn't want to realize I have. I had a tremor go through my body when you were talking about the Psychogenic Myoclonus, honestly I really think you are right about that. Really related to this and now have a new term to look into and better understand my illnesses and find the correct treatments for myself. What you're doing is amazing and so helpful. Some of my trauma is related to doctors and treatments so is been a long hard journey but thanks to you and the power of research and sheer will, now have some tools and terms so I have hope that perhaps there is a way to get better.

I have schizophrenia and was taking anti-psychotics and I developed facial tics, shoulder shrugs, and my fingers tap and move involuntary. It's crazy how anti-psychotics can induce parkinson's disease.

Oh my goodness, I was so terrified when this started happening last November. It came out of nowhere and left just as soon but my whole body started twitching and I went to hospital to be said it was a panic attack. Then in June it happened again and happened almost every day before my exams. I figured out it was stress related and now I can tell when I feel 'twitchy but episodes could last like 2 hours

I have a Conversion Disorder, I go blind at random times in my life. The blindness lasts different times, sometimes vision is gone for a few days or longest was four months. Conversion Disorder can be really scary.

I know people who have been diagnosed with this but who actually had a tick-borne infection in their brain. Lots of people with this diagnosis also get a factitious disorder/munchausen syndrome diagnosis when what they really needed was a doctor that was good at their job and antibiotics.

Temporary tremors, can be caused by adrenaline surges, as well

I so wish all psychologists did the research you do, i call my movements tics, everytime i mention them i say tics, but nobody ever diagnosed me, not even the psychiatrist, i was even told by my last psychologist that she doubted i have any form of tic or movement or anything cause she couldnt see my tics during sessions, until one day i started to tic before a session and kept moving my neck during the whole session, she clearly didnt know what to say about it, people really do think one is making things up when they cant really see the movements or symptoms, and they dont get it when you tell them you cant control when they come ago and that they can dissapear completely for weeks, even months and then come back out of nowhere. Mine come and go, and it doesnt depend on my anxiety level, i could be completely fine and 3 tics show up at the same time and i cant control them at all

Thank you for this video. My daughter started having some severe involuntary movements upon hospitalization and tonight I thought she was having a seizure. We are still in the process of making sure there isn’t a medical cause but I feel like I can sleep tonight now that I know PMD is probably what she’s experiencing.

Your videos help me a lot. I have a hard time dealing with my issues alone. Knowing that you understand and therefore some others must as well was the first step in me getting out of the house. I'm now a full time psychology major (online), i still deal with depression and anxiety but it gave me the courage to get out and talk to people. I left my house behind and am now hiking the C&O Canal. I enjoy meaningful conversations with others almost every day. (Something i thought impossible) It all started with you, thank you for giving me the courage to confront my afflictions. Keep up the good work.

I've been taking Xanax on and off for 23 years. Last year I started getting head and neck tremors, inner tremors, extreme muscle tension and coordination issues. The tremors are mostly intention tremors, so I'm OK walking or leaning back in a relaxed position but soon as I sit up straight the head starts to tremble and the neck tenses up big time. It's been going on for a year now. 7 months ago I quit taking Xanax with medical assistance and have been clean since, the tremors are still there and so are all the other stuff I suspect is either long term side effects and/or withdrawal symptoms: Body zaps, jumpy, throat getting narrow, gasping for air, lip tremors, heart palpitations, feeling of getting electrocuted etc.

Recovery is definitely possible. I was in a bad car crash over 3 years ago that left me unable to move my head back. This progressed into full blown dystonia which caused my body to curl up til I couldn’t breath. It caused so much pain it was unreal but using music I’ve been able to teach my mind how to talk to my neck again. It took months just to calm the nerves down, 6 before I saw any improvement in mobility but now that it’s starting its coming back fast. Yesterday I was able to reprogram my sense of up and down, left and right and got smooth movements instead of jerky ones. Getting out of bed was different today my body’s knew how to stand upright! Ive been told a few times I’ll never recover but instead I plan to learn to dance!!!🎉

I experienced this very frequently and I used to have jerky movements all the time through the day and night (even in my sleep)! These were not painful but sometimes made me conscious that people might notice because it would send a jerk through my whole body! Thankfully during my recovery this has rapidly decreased and it's only very now and again i experience this!

This is an AWESOME video!! I have such a strong background in Psychology (both education & personal) that it’s rare I get the excitement and thrill of learning something completely new to me. Thank you for the intellectual stimulation this morning!!!!! ❤️❤️❤️

hey Kati, I'd love to have some more information about psychosomatic pain, can you please talk about the symptoms and how to distinguish it from "normal" pain and what to do about it? :)

My tremor, numbness, tingling, partial paralysis, dystonia, and myoclonus all came on pretty suddenly, and changed or came and went frequently and without warning. There had been symptoms for years before, but they had been minor enough to easily ignore or blame on other things. Suddenly, after a traumatic set of events, they were beyond ignoring. My neurologist ran all the possible tests and found no evidence of neurological illness. He referred me to a movement disorder specialist, who told me “conversion disorder” is an outdated idea, that doctors tend to lump people under that diagnosis simply because dystonias are still largely a mystery, even to the top experts, and because most dystonias are triggered or worsened by stress (in addition to other factors such as temperature change, fatigue, or exercise.) There is not enough research to provide the answers needed to correctly diagnose and help people, so it’s easier to tell patients that they’re experiencing a strictly psychological issue. He started me on a Levodopa trial and I responded very positively. My diagnosis is generalized dopa-responsive dystonia, and treatment gave me my life back.

I have actually never heard of this! Love to learn new mental health things

I had twitching in both eyes for over a year and finally on my own started taking iron and b12 and it went away. I later found out I was anemic in both iron and b12. so just a thought.

Hi Kati I usually love watching your videos and although I find this really interesting, i found a few things you said slightly inaccurate/uncomfortable. Parkingsons disease can and often effects both side of the body. You kept referring the PMDs as “not caused by a medical issue”. PMDs are a medical issue, not referring to them as such could add to the stigma around somatic disorders. Looking forward to your next videos xx

I have dissociative identity disorder and what’s helped me deal with PMD the most is getting to know my alters. Different alters have different movement issues. Their symptoms have lessened as they have started to heal by speaking with our therapist.

My neurologist said that my history of depression caused my tics but I have just gotten over my depression by a long and hard 4 years with a change in environment and support from friends who refused to give up on me. They (the tics) started after I had really gotten better and any time I go back into a depressive episode my tics stop. I was diagnosed with Functional Movement Disorder based off tics alone. I really want to trust this diagnosis but when she gave the the packet I related more with the organic side and the next time I saw her I brought up my concerns and she said she doesn't see a need to change the diagnosis. I really need to see the physical therapist but the first one I saw told me I'm not exhibiting the symptoms they typically see in patients with my disorder and couldn't help me. It is honestly a frustrating situation I have found myself in.

I haven’t heard if this. But it got my attention. In 1996 I started having seizure like episodes. The medical doctors found nothing ‘organic’ causing these. I was so fortunate to have an excellent doctor. He did many tests and was very thorough. He finally told me that these episodes were psychological. Many other odd symptoms started showing and I was unable to even care for myself for several months.I was hospitalized and diagnosed with depression, PTSD and later DID. My neurologist is great. He refers to my episodes as non-epileptic seizures rather than pseudo seizures. In other words, he’s validated what’s happening with me isn’t ‘fake.’ I have learned s lot in therapy and now take a very low dose of medication for these and rarely have a seizure. But. . . I wonder if what you share here is connected to what I’m experiencing. It’s so hard to explain to people what I go through. Sometimes my muscles tense. Other times I twitch. The worst ones are the ones when I hit the floor and don’t remember most of what happens. The strange thing is I do remember what happens often and there’s a correlation to this experience of nervous system ‘overload’ and flashbacks. Sometimes I am fighting for my life. It’s quite nuts bc it’s like I’m fighting an imaginary attacker. Am I right to think what you’re sharing here is what I’m experiencing? If not, I’d be interested in your thoughts. Thanks!

Love your videos Kati! How are you not at 1 million subscribers yet?!! Soon I’m sure! :) keep up the good work!

I have a friend who struggles severely with this and can’t even hold a job. She can’t get help from the state to see any doctors because they need her to go to the doctors that are extremely expensive but she can’t pay for them because she doesn’t have a job because she can’t do the job Because she has this disorder. What do you do for people like this? Getting medical care in this day and age is a luxury that only rich people can afford. Just one man’s opinion.

Fibromyalgia is the outcome of many psychological issues. My body does this, random times random areas. I have BPD, CPTD, Depression, anxiety and many others.

Is there a community for people with conversion disorders or specifically psychogenic movement disorders? I've had this disorder since 2017. I strongly believe it has done damage to my brain because I have done the work, I no longer have anxiety other than normal anxiety. I deal with it when it does come on and have wonderful skills to get me through it. I strongly want to help others based on my own experiences.

This is the video I was told to watch to understand my psychogenic tremors. Thank you ❤

I also suggest a MRI of the cervical spine to make sure an injury here is not the cause of it, as it could have impacted the vagus nerve- triggering the movement disorders.

Thank you Kati for creating this wonderful video and giving me some tools to use. This is a great topic to talk about.

When I am really stressed the corner of my eye twitches. Or ta tiny muscle in my shoulder. But I always considered it a physical result of too much stress chemicals in my body. After many many years of therapy I still have an exaggerated startle response at times. Not sure how to lessen this.

I am literally JUMPING with JOY after seeing this video! I’ve had PTSD for 40+ YEARS in addition to a BIZARRE movement disorder that I was MISDIAGNOSED and heavily MEDICATED for many years. When my children were young they joined the neighborhood kids who called me “Humperdink” and I joked that I was the “original Mexican Jumping Bean” in an effort to pretend it didn’t bother me. I was accused of being on drugs because of my bizarre twitching and rocking movements, but I knew in my heart that it was ALL because of my severe PTSD. How can I learn more about this?? I created #ETwithPTSD in an effort to get better.

I have a few comments to this: For one: trembling when you are stressed or anxious or when you were traumatized or had a potentially traumatizing event happen is not a disorder. And pls don't think that there is something wrong with you if you do. It is actually the opposite: The reaction of a healthy nervous system being allowed to act freely in order to release survival energy. Now of course you can get stuck if you don't physically release the trauma or work on the anxiety (which mostky gies hand in hand). And as Kati mentioned I believe too that certain 'ticks' but I also think the more slow movements can be caused by trauma. Type in: 'Ray's story Peter Levine' in youtube for example and you will see how in this example it is clearly linked (he was falsely diagnosed with tourete's syndrom, pmd would be a more accurate description) as you can imagine when there was some movement you wanted to make to protect yourself from a threat but you couldn't finish it, because it would have been too dangerous, you were too powerless or it hapoened too quickly... and the body needs to finish the movement, but keeps getting stuck until you have enough grounding and safety, resources and take all the time you need to really pay attention to your movements and are ideally guided by a body-oriented trauma therapist, which I think in this case would be an important addition to Kati's list for the treatment team. I am not saying that talk therapy couldn't also be beneficial but if you really want to heal it, it's just not helpful to just try to 'manage the symptoms' or drug them away. But I am not suggesting that trauma per se is the only reason for pmd. If you already have 'ocd' or 'autism' (not convinced of such labels) it can also be a secondary symptom of the person's state, a try to sooth, regain savety, controll and lots if other things probably, where cbt can probably be somewhat helpful.

I Was waiting for your video . 🌸💕 really appreciate your hard work 💓💓💓kati . Thank you for this video 💖 . 🌸

Kati can you do a video about psycho somatic pregnancies or when someone fakes a pregnancy due to mental illness but then they truly believe they are pregnant and have symptoms

I want to see what kind of action that kind of disorder look like. When it comes to words, I don’t fully understand if this is the right one or not.

I have an involuntary startle where my whole body jumps. It happens twice or 3 times a day, always when I'm either sat or laying down relaxing. They are not painful, just unexpected. I get no warning.

Are psychogenic non epileptic seizures the same thing? Also could you talk more about conversion disorder?

I have had this happen once when I was around 10 or 11, it was very unpleasant and scary to have your body act in this way involantarily. We were eating dinner and then BOOM my muscles in my back just contracted spontantaniously, I even fell of the chair, had no way of explaining this and of course I got chewed out for 'not behaving' at the dinner table. It was like a lightning struck and gone in an instant

Very informative, thank you very much! Keep up the great videos! Stay safe & all the best from Canada 🇨🇦

I love your videos! Your a big a inspiration for an aspiring therapist/psychologist

I found this very helpful thankyou, iv had this for a few years and never could explain it, i think i have always been on the spectrum and have ptsd but knew it stems further than most. I get tics and strange moments that are unexplainable and uncontrollable, i'v spoken to many doctors who don't have a clue what im saying. This has so far given me more understanding and hope to get better than i'v ever had so far

I was having complex partial seizures for 2+ years. They eventually said it was psychogenic but it turned out to be caused by the anti seizure medication I was taking for my bipolar. It was building up in my blood and too much of that medicine can cause seizures. That was rough.

I have ptsd from domestic violence and trauma. I shiver when I'm scared. I didn't realize until years later that there was a word for it...

This "team" sounds expensive as hell

Always great to learn something new from you Kati 😊❤

I am chronically ill. Diagnosed with a slew of medical conditions, abnormal tests, and have pretty severe anxiety. I am also a woman and am 27 years old, I have been chronically ill for about 6 years. I work, go to school am a homemaker and care for my two children. I have been told that I have MS, Fibromyalgia, and arthritis. I found out a few years ago I have a rare genetic disorder called EDS, which explains my chronic pain and hyper-flexibility. It does not, however, explain my neurological symptoms or my abnormal MRI's. Doctors have been at a loss for those symptoms for years and have been kicking me thru a slew of specialists. Now, with all of these things being said, I have been told these things could all be from anxiety. And honestly, it enrages me. "conversion disorder" is a fancy new label doctors are putting on what they are TRULY diagnosing, HYSTERIA. And who are they mainly diagnosing hysteria in? Women. The same condition they "diagnosed" woman with years ago who were actually dealing with "PPD or PPS" or because they were clinically "non-straight" and I for one am SUPER DUPER over it. I absolutely know that there are physical manifestations of mental illness and that there are "chronic malingerers". But doctors have now abused it as a label for anything they themselves cant diagnose and it is infuriating.

anyway i was diagnosed with conversion disorcer and psychogenic movement disroder for 12 years before i was diagnosed with a neurological condition that actually has ruined my life. doctors are so keen to talk about these other things but when there's actual work to be done behind a diagnosis they don't wanna do it. wild.

I often can’t feel my legs it’s all because of my complex trauma but still very scary

I'm so devastated. its so expensive to go to a neurologist and I went one time and I wrote down every single reason I could imagine could be even the slightest related to my spasms and twitches, I noted my siblings also get their own forms of twitches and tremors, and that they significantly increased or maybe even started when I started taking drugs for depression, anxiety and more which I already got significant side effects from, and then after more and more way down the bottom of the list I mentioned trauma, which I just thought as a desperate "maybe this could have something to do with it" and instead of taking me to a brain scan or something of the sort, she was CERTAIN it was that, and saw the smallest tiniest barely even a twitch of mine and she was like "Yeah thats what you have" And yeah, maybe it could be "somewhat" related to how I'm generally feeling but I get them even when I'm having a really great time! And she was like "yeah thats your subconscious" - which sounds like bullshit to me Its really making me frustrated because I hate this diagnosis, it just sounds like a load of shit to me, I really wish I could've gotten just a "oh, you have tourettes, everybody knows what THAT is and it makes sense" or "oh, you have this neruological condition, takes these drugs and you'll be fine" like yeah, there are worse neurological conditions out there but I can't just explain myself with people with like "uh yeah like I've had trauma thats what this is, it can't be described as any actual medical condition" I'm just getting so frustrated over this.. I really hate this diagnosis and I'm starting to get so angry about my tics

I woke up with a burning chest, got anxious, googled saw Parkinsons, freaked myself out now I'm laying in bed trying to calm down and sleep and for the FIRST time my HEAD is like literally trembling on the pillow and If I take it off the pillow it gets worse im freaking out!! Now my arms and legs feel weak and my heart rate is up 😭 I have several anxiety and panic but I didnt feel any out right attacks today, which is why I am so spooked.

Hi Kati , thanks for the video , I learned something new today !! I never heard of that !! Take care , I hope you and Sean have a GR8 Easter weekend , take care , Gary 

Hi Katie! I have a question about disabilities, and more specifically how we should treat people with disabilities. Around my campus, it’s frequent to see or notice people with disabilities physical and mental. I try to smile at them and nod as I pass by (like I would with anyone else) but I get a gut feeling like I’m doing something wrong. What are appropriate ways to show people with disabilities that I acknowledge them as people (with complex thoughts, and feelings just like me)? Ps I love how positive you are! It’s really contagious 😁

Yep. Good video. A month ago I had to stop Mirtazapine cold turkey. I felt compelled to take extra doses and tried reducing off them many times without success. After the acute withdrawal which lasted 2 weeks, there was a rebound depression which has been going on for about a further 3 weeks. Feeling like I had the flu, crying, insomnia, no appetite and psychogenic tremors. Today is the first day I have felt better. Tremor has ceased.

What I had found interesting in PMD, is that there's no solid to follow. Which it is harder to diagnose and treat it.

Thanks alot . 🇮🇶 your video is so informative and helpful

An MDS (movement disorder specialist) would be the best neurologist to see for diagnosis and treatment vs a regular neurologist.

I am currently struggling with this disorder... I have been on disability for nearly a year now it took 3 Dr.s and 3 Neurologist and around 5-6 months to finally get diagnosed. During that time I went through many tests blood work, MRIs, EMG, and even a steroid Infusion o and a spinal tap... that one hurt. I started receiving treatment in December and noticed slight improvements in January. However, it was at this time my disability started to deny all my claims and I have been in a appealing process since... This of course added a large amount of stress and my symptoms took a dive for the worse. I was finding a new symptom about one in ever 2-3 weeks. After that event I started to have all my current tremors increase in severity and even started to have sensory issues (very small but noticeable difference in how things feel by touching with my left hand compared to my right) so I can confirm this is 100% mental and you really need to control your mood. Try and find a way to get positive and try and forget about you having the issue at all. I know it sounds easy but it is truly difficult I find myself in a position where it is impossible for me to move on until my disability mombo jumbo is taken care of (as of yesterday they extended the appeal decision date by another 21 days.) But I am happy for this video because a fear that I have had this entire time is people thinking I am faking my issue because, I can see how on paper or over the phone it can sound fake or too "convenient ."

My head twitch when i was in deep thinking of my social anxiety and i feel it is so embarassing to the public. Its hard but i hv to control my mind realy harder

Always love learning from u😍best part of my day

When I was 11, I started limping after a stretch in a ballet class. Very immediately got a limp. My mom took me to the pediatrician and the X-rays came back clear. I was back in 3 more times over the next 6 weeks, and the pediatrician finally told my mom he thought I had a PMD. My mom took me to our chiropractor who asked to look at the X-rays before working on me. He looked at the same X-rays 2 radiologists said we’re clear, and he immediately diagnosed slipped capital femoral epiphesis. The femur was slipped on the growth plate. The most common hip injure in adolescents my age. Lol, this is why I have trust issues.

I am surprised I've never heard about this condition but it makes me think I know a few people that have it very interesting thank you for all the education I absolutely love psychology you're a good teacher