Does this also come with an increased rhuematoid count in a blood test like they use to test for arthritis?

there's a book on amazon stating is mental flared, some psychological factors. Are you aware of that?

Cutting out gluten is a huge help with my body

I just wanted to say Thank you for sharing this video, I was diagnosed with Anky Losing Spondylitis with HLAB27. I had re Back 2014. I had a Doctor who was really helping out on this Disease but unfortunately I also broke my neck back in March of 2014 which I'm very lucky to be here today anyway, I went 7 major neck surgeries and finally had to with my neck being together with 2 titanium rods and 28 screws holding them in yeah tell me about it..😂 anyways I was in the hospital for 10 months, yeah also tell me about 😂 And the hospital shipped out to rehab so I could learn to walk again, talk again, dress myself well you get the picture 🙄 So anyway I get out about a year later with a permanent disability. That's right I made it🤤 So I made it to see my personal Dr 😎 and he wanted to do a fallow up blood test, and the results came back 😦 That's when I got the news Doc told I have this Disease Anky loses spondylitis with HLAB27 imedity my went head🤤 In 10 different directions with NO Cure in sight ..... WHAT? What's that Doc? No cure insight? So now my mind starts to wonder what's going happen to me myself and body? Well it's been a Roller Coaster Ride since March 14th 2014 to May 1st 2021 ...Part 2 too be continued.

I'm 24 now and it started 4 years ago or so. I didn't understand it at first since the pain at night wasn't frequent. But 2 years ago I started to feel pain when I breathe at night. This year especially the pain became more severe and It moved to my whole back and neck too and it became very frequent (every night). I can't sleep at all. At the beginning of AS I used to only wake up in the second half of the night bc of pain, however these days I can't sleep 2 hours straight without feeling pain. I only understood my illness now due to these vids, now I'll get it checked as soon as I can but I hope I'm not too late.

Can you help me as well ?

@@shreymishra8690 carnivore is usually recognized as the first option for auto-immune problems. It's a complete meat only diet. This means no plant sources fats or oil, no fruit, no rice, no carbs, no bread. The only thing you can eat is meat. For better effects it's best to go a lion's diet which I recommend eating ONLY organic grass-finished beef (if you grab from butcher it's quite cheap, like cheaper then the normal ones from the supermarkets). Non-organic meat can still cause inflammation issues, and traditional beef is feed GMO grains which are highly inflammatory. Good luck.

CUT DOWN ON BEEF? I'VE HEARD OR READ THAT TOMATOES CAN MAKE ARTHRITIS WORSE! I HAVE A.S. IT WAS THOUGHT @ 1ST THAT I WAS NEEDING THOSE SOME:WHAT EXPENSIVE ORTHOTICS THAT I HAD MADE FOR MY FEET!!! ONE OF THE SYMPTOMS I'VE HAD IS AN IRITIS, WHICH IS MY BODY TRYING TO OVER COMPENSATE, OR FIGHT A.S. THE ONE EYE GETS RED, WATERY, CLOSED, AND WHEN I 1ST NOTICED IT, I THOUGHT I GOT SOMETHING LIKE DIRT IN IT BCAUSE I WAS ON A LADDER CHANGING FLOURESCENT LIGHT BULBS IN A DEPARTMENT STORE'S LIGHT FIXTURE IN THE CEILING! THE OTHER TIME I EXPERIENCED IT WASCWHEN I WAS SHOWERING, THINKING SOME SHAMPOO IN IT! ANOTHER TIME I WAS SPREADING GRASS SEED IN ONE OF THOSE GRASS SEED WHELLED SPREADERS!!! WHEN YOU GET AN IRITIS YOU HAVE TO GO SEE AN OPTHOMOLOGIST TO GET SPECIAL STEROIDAL EYE DROPS FOR IT!!!

My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD and a kidney tumor size of a tennis ball he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024 i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...

@@eivindgjengstjohansen9625 I'm sorry for your loss

😢😢😢

MY DAD ALSO HAD IT, WHICH I ALSO HAVE!!! HE WAS MISDYAGNOSED IN THE V.A. AS ANTHROSPONDILITIS, OR SOMETHING LIKE THE WORD I JUST TYPED! HE WAS BENT WAAY OVER OR STOOPED OVER LIKE A GORILLA!!! FOR MANY YEARS!!!

SORRY 4. YOUR LOSS!!! MY DAD HAD IT TOO!!!

I just got this news from my doctor and I’m heart broken. At 43 I’m super fit and active but I’ve always had extreme back pain and patellar tendon pain and I couldn’t understand why. Are you able to treat this with daily exercise and stretching? I do that everyday but still have back pain.

Try carnivore! My symptoms went away.

Thanks for the good tips, for watching!

Hi my cousin is recently diagnosed with it. She is 27 and lost so much weight. Also she has a small bump that's developing on her backbone.

Are you taking any medicine rt now

Are you ok...

How's you condition...

Thanks for the kind words!

Glad it was helpful! Thanks so much for watching!

Thank you for the kind words!

Got bamboo spine now, locked hip joints, and ever-present back pains. I was suggested to bear with it until I'm in my 40s so that there will be fewer surgeries in my lifetime. But I decided to get my left hip replaced at the age of 25 and now waiting for my right’s turn. Each hip lasts 10 to 15 years depending on activities.

Plz help me i do not have bamboo spine but i have sacrolitis in si joint and back pain from years my neck pains chest pain and so much pain in lega and foot heel i cant stand for more than 5 mins otherwise it pains a lot do you have same symptoms and does you have gi issues because i have from years does your symptoms match with me so i can go for checkup to ankylosing spondylitis i am 19 now and pain started from 13 14year age i have lower back pain in pelvis

I am 25years old.. My sacroiliitic pain stated 5years ago . I take some pain killers it resolve.. But in the starting of this year .. My back pain starting to blooming and my sacroilic joint don't say I can't even move... Nearly in starting 4 months drs give me pain killers... I stop pain killers I stop moving... Recently diagnosed by AS... I am on etoshine tab. Dr told me you can take it 2years😢..i am gud as long as I am taking the medicine... Sorry for my bad english😅

​@@AreyemMeyeraMy father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024 i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...

​@rajivjain4383 My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024 i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...

I agree with you,I have had cheap sausages and felt ill,my grandfather who lives in the country gave me some sausages and they have gone through my body fine,I still think we need iron in our diets,at least a small amount

strange isn't it,I bet you crave for potatoes aswell,the Japanese in the high country live to a good age,possibly something to do with hyaluronic acid,

Yes. I have experimented with diet to decrease symptoms after medication was taken away. Can confirm - potatoes are triggers, as well as pork, pasta / breads (gluten!) and nightshades (tomatoes, bell peppers, etc). Cut out gluten and nightshades, drank way more water and almost all symptoms went away. Age 37 - been living with AS flares ups for 15 years. Incredible amounts of pain and mental fatigue. Good luck!

Potato is a nightshade and they tend to flare up inflammation. Look it up

Thanks for watching!

Thanks for watching!

how you doing now..i got as too

Thanks for watching!

@@DrRowe no, thankyou,we need more people like you,

Thank you very Doc for information and explanation for Asiys causes and symptoms together with its remedies

Thanks Doc for your effort and explanation

Check for the Coimbra Protocol, or if it's too difficult there is the option of going for the Low Startch Diet. You can understand it on KickAs.org or in FB Forums. There are people with more severe AS that goes for Elimination Diet. In this way, with much will of power on trying the diets you may set AS into remission. Good luck

Start healing you gut, avoid sugar and wheat flour. I’m 34 years old and also hla-b27 positive. 10 years I had back stiffness while sleeping and now year ago it came to stay. I made some food intolerance tests and my gut were in chronic inflammation. Anxiety attacks etc. It always starts from gut..and also those who are hla-b27 positive..this gene manipulate with your gut microbiome. Started strong probiotic intake from september 2021 and now in April 2022 I’m totally in remission. Also besides probiotics I take Boulardi and glutamine. BUT most important is the food you eat. Cut out all the processed foods, sugar and wheat flour. It’s a long journey and different for everybody..but regular treatment does not address your root cause. And that’s a fact! Also there’s numerous researches about connections of gut and Spondylitis. All the best

Hi, hope you consulted a rheumatologist as recommended in this video & got better..

Plzz tell me do you have sacrolitis in si joint and heel pain in feet because i also cant stand for more than 5 mins

Can you describe the pain. My whole spine hurts especially the sides of the spine. If I stand for 10-20 min I will get pain in my back. The pain is kind of tender to feel. If someone presses my spine , I feel tenderness within the joint and it feels good if someone gives me mobilisation. Can u pls specify about ur pain

Thanks for watching!

What grains did you quit?

All of them, my biggest was Wheat. It only took 3 days, and I was all "what the?" and if I eat grains two days in a row, my spine starts to stiffen back up in the morning. Crazy.@@verohb79

Yes my friend,I use alot of moistureriser,the finger tips ,toes,I find it I have a good sleep which is rare my ankles crack in the morning,neck ,shoulders,anus,eyes,my ears are ringing now,I was told it takes a year of remicade/humira treatment to have an effect,base camp in lower spine,sacrolitic joints,around where you would wear a belt,every joint,muscle,you have to get your diet and exercise balanced out right, obviously no alcohol,I've lived in my car for years in Australia battling this in up to 48 degrees C,in a forty year old car with no aircon,don't move to Australia with this,our government will let you die,on a more positive note this gentleman is spot on 100 percent accurate,

Check the comments. Low/No Starch Diet or Coimbra Protocol

If it feels anything like where my hips sit within my pelvis, I have a feeling I know exactly what youre talking about when you say youre worried about your neck. It feels like the joints are holding their position tenuously, and when you try to make the joint move in one way, it gets other ideas and just moves however it wants. When I lie down on my bed, one leg even looks like it's sitting out of place in the joint and I constantly have to curl them up to my body and let them go flat again just to stay comfy. Every time I make a movement, though, I feel like one bone is grinding or "clicking" past another and its so unpleasant... I worry that one day its gonna click itself right out of the hip socket 🥶 Obviously that's just what I feel. It might not be like that but id say practically it makes little difference when im writhing in my bed trying to stay pain free All the best - hopefully you find ways to manage your condition satisfactorily 👍

I feel for u I'm 15 and have had AS since I was 12 without knowing it ruins confidence and self esteem talk to ur doctor about possible infections that might help u with ur pain and help prevent it getting worse

Omg ... this makes me feel less alne. Losing my ability to drive tho

There are some options Wayne

Thanks for the kind words, and thanks for watching!

No. Consult a Rheumatologist.

I have damage from AS in my cervical spine, so i guess that's the region of upper back.

Took me 15 years

Same here 25 years and almost completely blind with it as well

Yes it's possible ,it causes issues with heart ,lungs and bowels

My father has it. His grandfather had. 2 uncles of me have symptons, as well as a cousin of mine

I really, really love your attitude. My doctors never figured out what is wrong with me before I gave up looking for a diagnisis. They suspected Lyme disease or some illusive autoimmune disease. Or possibly fibromyalgia. That was a long time ago. My dad was recently diagnosed with AS. And I grew up in Wisconsin. He's in Wisconsin still. (Lyme disease hot spot) I wouldn't be at all surprised if a tick bite could bring this on. He has the gene for this, too. I don't know if I do or not because I don't see doctors anymore. Thank you for sharing your positivity. Hugs.

that Chinese is the only year the world has arrived like this, he has been convoyed to the maximum for 28 years and I am with SA

Hanging from a bar would benefit a lower back (lumbar) disc bulge. For the neck, these would work better: kzfaq.info/get/bejne/iN6PnMhyq97TgX0.html

@@DrRowe thank you so much sir.... This information is very useful for me..... Once again thank you sir... God bless you 🙏❣️

I've been at stuck home since Feb 2019 :(

Hope u get well buddy ! Stay strong , I’ve been diagnosed last n it’s scares the hell out of me

Im with you there, man. Im 31 and I walk around at work in that like "very visibly disabled" way where I have to make the right half of my body go stiff and step on my right leg at exactly 90° from the floor. If I don't, the bones come together quickly and squeeze my nerves, which ranges from excruciating pain to my leg actually just collapsing and letting me drop to the floor. So im given two choices: attempt to remain dignity, feel a lot of pain and very likely lose all dignity when I fall; or Hobble around like my right leg is a peg, drawing attention constantly. They both sound kinda suck... if im honest... 😒 Anyway, good luck. If you want, we can exchange emails and complain to each other about how miserable it is. It might help to make it feel less stifling and oppressive... 🤷‍♂️

I have the exact pain. When it flares up, I can’t even move. I need a hit of morphine to get out of bed. 37 years old and I’m getting tired of this disease. If I died tomorrow, it would be a blessing.

Same thing happens to me. I'm 24 my symptoms only started this year..never had these pains before. I had hip and lower back pains and got an xray. I have hip dysplasia and they also saw something on my lower back joint and think its ankylosing spondylitis..and now for 1 week I've started having pains on my upper back as well..

Hi. I've not been to the doctors yet but am going through a long spell of awful sleep where my lower back is in pain as are my ribs when I sleep on my side. I dread sleep 😩 Everything that I've ready today on AS (which I hadn't heard of before) makes me strongly think that this is what I have, and have had for a long time. Time to get to the doctors!

How did you get diagnosed without the gene marker?

@@kevinsomers8923 hip bone x-ray.

@@gulnursonmez9539 Try a carnivore diet and take things to heal your gut. Zinc L-Carnosine, Slippery Elm, L-Glutamine

@@kevinsomers8923 You do NOT need to have the gene to have the disease. I don't have the gene, but I have the condition.

How old are you

Better than what? Actually its not important because the answer is "No". Cupping isn't good for anything, to be honest. Its a pseudo therapy - like a lot of services chiropractors offer because they're frauds - and it doesn't do much other than making those awful looking sores on your back. And then what do you know, you'll magically always "have to come back for additional treatments" but they never give you a final goal point to track progress. Does that sound like the kind of treatment plan that has an end date in mind? It sounds like they're deliberately trying to suck you into coming to see them every week or two... indefinitely. Trust me, they're fine for a nice back rub, but a lot of chiropractors like to pretend they're more or less doctors, which is a lie and a sham. You could spend your money in more useful places than giving it to hucksters... If you want relief and treatment, do yourself a favour and stop considering alternative therapies, see your GP, get a referral to a rheumatologist and have them build you a treatment plan tailored for your situation. The other things are genuinely a waste if time that you'll only hurt yourself in the long term by pursuing them. And PLEASE don't even _think_ about trying herbal or homeopathic remedies. Those do about as much good for you as eating used band-aids off the floor. My mother wasted literally thousands of dollars buying all manner of herbal, naturopathic or other such "treatments" for my symptoms. All of them smelled bad and none of them provided relief - bar none. Then there's the insidious "manuka honey sopa bars" or "herbal moisturising shampoo to relieve dry flaky scalps" etc - not only do these also provide no relief and not smell very pleasant, but usually they don't even work to do what they're supposed to... the soap doesn't clean you (especially the underarms), the shampoo doesn't wash your hair or leave you moisturised... I was shocked at just how big that whole market is, considering its been responsible for zero improvement among its consumers - how many times do people have to try things like salt lamps and energy crystals before they realise they're spending a heap of money to own and pray to rocks?

Thanks for watching!

Happening in my case. I am searching too. Muscle wasting too much in body.

That can happen if you are not able to move around much because of pain, muscle wasting will happen naturally. But if you are very fit and healthy usually, weakness can be more a sign of Multiple Sclerosis. It also could be pain medication making you lose wait, I lost a lot of weight and muscle when on certain painkillers.

Unfortunately, there is no known cure for AS.

You are going to spend the rest of your life trying different things,keep researching,some things may help you more than other people,

Kratom

@razorsharpbt it can be so frustrating and painful. I'm sorry you are going through this. I hope you feel better soon.

Yes! I have it, and I can't ever find a position I'm comfortable in - sitting or standing it doesn't matter. Always readjusting myself or shifting to try to find relief somehow.

Yep 100%

Yes, I have been on it for one year now.

Tell her to check the Low Starch Diet groups on FB, KickAs.org, Coimbra Protocol, and also other medications and treatment.

@@davilfs thanks

As AS worsens, height loss is a common symptom.

@@DrRowe Sir is there any way to stop the height loss?

If you had, you have! You must be very lucky to set it into remission like this, without a big effort or suffering that much. But tingling in the feet, hands, shoulder, may be also affeceted. At least I also have symptons in those areas, besides de classical ones.

YES! OMG, so annoying. I take magnesium at night which helps a little but it really drives me nuts.

Any thoughts on which medicines cause harm and what treatments help?

AS affects everyone differently. There are those that will only get mild symptoms, and will not get bamboo spine.

Not really necessary

I believe it varies based on the other parent and some other factors, but the _worst_ odds put you at I think 20% chance of passing it on. If they get the gene, only about 5% will go on to develop AS. So I wouldn't lose sleep over it. Just be wary in case any subtle symptoms start to appear, but otherwise I wouldn't worry about it unless you have to

I got it from my father. So it's likely to be passed on.

100%,....It's in your DNA "strand", if you have it, nothing can stop it,...God Bless and please be "safe",...😥🙏😥🙏😥🙏

Perfect example of a DNA "strand" originality: Me & my Sister have the same Mother,..but different "fathers",...My sister recently less than a year ago is /was diagnosed with "Krones Disease", (terrible, urine/ "shit-bag" on your stomach),.. I never had it before,..later found out that it was from my sister's "dad" side of the family,....not mine,....🤔🤔🤔🤔

youre life expectancy is shortened,tell your family you love them

Please visit and consult with your local doctor, they would be able to help you right away.

I was diagnosed 3 years ago, it was very bad as I have a job where I’m on my feet all day long! lose weight, exercise regularly, cut down dairy and meat products. Take Ayurvedic medicine . You will be fine

J.m Ansari..H Bhai San AAP kaise hain..mera bhi Ankylosing spondylitis problem hai.. please reply BHAi.. please please please please please

Staying active is key! Thanks for watching.

Go anyway!

@@Tinyteacher1111 Ummmm... What? Why?

I know for me I have bone sticking into my spinal column in my neck so I've been told the same and wouldn't risk it you can do physiotherapy though

Please tretment

If you don't get treatment (biologics medicine) damage will occur eventually. You need treatment to deal with it long term AND the diet otherwise it will catch up with you. Just because you are pain free does not mean it's not there.

​@@harris-turneryou know the variation of pain differ from person to person.. & yes this disease is 100% curable with exercises & active life.. I dont know from where you get this info

The point of the video is to give valuable information about ankylosing spondylitis. A lot is unknown about it, including the cause. We call that an idiopathic disease. If you missed that point, that’s unfortunate but I’ll thank you for watching.

What, did you think he made the video about how to cure it? Its incurable! I found the video very well spoken and informative. I dont know what you were expecting from it but I would guess its the wrong thing... Anyway, feel free to contribute some scientific research of your own, if you find this to be inadequate. Goodness knows we need the research...

Really? What kind of question is that besides very rude? This is an excellent video explaining AS.

They have a cure for stupidity.