This is probably the saddest video I've ever done.

The worst part of all this is that you feel completely usless. You can't move. You can't comunicate. *You can't feel alive.*

My father has locked in syndrome. It's the absolute hardest thing any of our family has ever been through. Going on 3 years now, as hard as it is to see, I can only imagine how hard it is for him especially at only 53. I love you Dad

No one has the right to deny a person of their right to die, especially when something this tragic occurs.

This is a real life nightmare, imagine never being able to move, and unable to talk with people. And forced to sit through it all and denied your right to die.

So it's a self aware coma?

Conditions like this make me appreciate my life and what I have we should live ours lives to the fullest always 😔

Every time I watch these, I get scared of getting the disease. a few days later, I'm over it. Except a few mortifying ones. If I dealt with this, I would remember this video.

I had a patient with this condition 2 years ago. It was heartbreaking seeing my patient like that. She used to be funny, talkative and just full of energy. All I can do as a physiotherapist was to maintain joint integrity and electrical stimulation of her muscles. They can't afford better health care because their family is poor. Unfortunately, she died and I couldn't help but be sad about it to this day.

I’ve never suffered from Locked in Syndrome but I did and still do suffer from a Cervical Spinal Injury. I remember waking up in the hospital completely paralyzed and unable to move anything besides my eyes. I couldn’t even speak or make audible sounds because of the tubes down my throat and nose.I can tell you living life like that is worse than death and I only spent 2 weeks in that state before I was able to breathe on my own and talk a little. I’m still stuck using a crutch to walk 7 years later but I would rather die than experience that full paralysis again.

Wtf the government will actually force you to live in that condition and they know you don't want to to FTW

I’d go insane after the first hour being trapped in my head with my own thoughts not being able to talk

As a newly fully paralyzed teenager this is very hard to watch, however it does help by knowing there is even worse conditions than mine. I just wanna leave this here for everyone in the comments: Life is a blessing and at any time of the day things could change for you.. like you would never imagine. So please everyone make the most of your life and live each day like its your last.

This is horrifying

my best friend has lock in syndrome and hes only 27 he can't move at all but he can smile now so maybe he will get some more control over his body one day in the future I hope.

I’m crying. My aunt had this since she was 11. She got into an accident and fell into a coma. She was in a coma for around 3-4 days. I was in the room with her holding her hand saying that she needs to give me a sign that’s she’s still in there. I looked at her eyes and her eyelids seemed to be moving. I told the doctor and he came in and looked. He also saw her eyelids move and he opened up her eyelids to see her eyes moving. He said she had locked-in syndrome and she wouldn’t be able to talk or move ever again. At this point my hands were in my face and I was balling my eyes out. She wouldn’t be able to see again either...

Darkness imprisoning me All that I see Absolute horror I cannot live I cannot die Trapped in myself Body my holding cell Landmine has taken my sight Taken my speech Taken my hearing Taken my arms Taken my legs Taken my soul Left me with life in hell

This video reminds me of a song by Metallica call "one" and is base on a book that's about a soldier who was blown up and lost all motor functions. Then when the soldier woke up he couldn't really move but he had full brain function. The book/movie is very sad because the guy just wants to die but the doctors were having some sort of moral debate if they should let him live or die.

Ugh, of course you had to make a video about locked in syndrome. This is literally one of my greatest fears, just thinking about it gives me the chills. Years of suffering sleep paralyses have only fuelled this fear (although not the same at all, but the feeling is horrible - even leaving hypnagogic hallucinations aside). If I ever end up in a situation similar to this, and you find this comment: please let me die! I don’t fear death, but being kept alive to live through my worst nightmare is torture!

What if they thought you were dead and burried you.....😰😰😰

my eyes got wet..... nd i used to think i m a tough dude

Wait... they could use their eyes to use Morse code.

Imagine having a government so evil they deny you your basic right to end such a torturous existence. wow.

I was locked-in for 4 months, it’s was so bad the french call it buried alive syndrome. It took me 2 years to learn to walk/talk again and 10 years later still have a lot of problems with memory, anger, pain and signals not getting through to different parts of my body, granted that is from the brain damage. The NHS were brilliant in the rehabilitation centre and a big thank you for the continued support from the UK government, the NHS and Liverpool council!

I couldn't think of anything worse than seeing your family walk in the room around you (you'll hear them before you see them) peering over the bed crying and whispering your name, saying I love you and they don't know you can see it all, hear it all and feel it all. You'll wanna cry, you will want to just make a rapid movement out of anger at times or even move a finger but you can't and the feeling you'll be left with I think would be the stuff of nightmares. You will have so much emotion for so many reasons but not a millimetre of movement to show it. I never type KZfaq comments but this one got to me.

My dad experienced Locked-In syndrome but died 1 week later because of cardiac failure...

If this ever happens to me I hope my family does the right thing and pulls the plug on me

Coming from former locked in patient...yep talk about scared. That's an understatement... Told I was gonna die, then gonna be a vegetable... After 5 yrs of therapy. Im about 75%. Can speak if its quiet enough, can move every limb, and sense everything. Can walk but its laborious and crazy slow. I use a chair 99% of the time...100% independent tho. And thats the most important thing to me.

This is aweful. I would rather die, than too have this happen to me. Atleast you can come back from it. Your life is pretty much taken away for a time.

Rest in peace Steven Hawking

We take life so much for granted. Most of us are able to walk, run, laugh enjoy our time with our peers and be happy. It’s so sad to see that some of us are not able to do that. Hopefully science and medicine one day be able to release us on these potential tragedies.

But wait. If you are in that condition, is your mind awake all the time without sleeping (you hear everything 24h a day), or do you fade out for some time?

You truly deserve an Oscar for this video. Keep up with the excellent work.

In a strange twist.. This was one of my biggest fears.. But you only know what you've been through.. No matter how assured you'd think you are of yourself. With that being said; my answer is a sad, but definite yes.. I would want to be taken off life support or assisted suicide or euthanasia aka mercy killing.. I learned that after being in an induced coma in 5 separate cases in my life, 4 due to my illness, asthmaticus, because of my poor health choices at the time. I too was in a cognitive state and could not move nor respond.. I would fall back to sleep, then awaken, only to not be able to move. This happened over and over (little did I know I was in those separate states for a full week, it felt like a couple of days tho). I even at times could open my eyes but only slightly, to see no one in the room, and in some cases people interacting with one another. I remembered seeing my late aunt putting Chapstick on my lips and gently forcing my eyes shut with her other hand. With me thinking I was only dreaming. I would finally be taken out of the induced coma with the intubation being removed (it would feel as if you're being reborn as you choke from the tubes removal and gasping for air). I would eventually speak about the conversations that they were having with each other and the nurses. They were shocked. They would say things like; I was "unresponsive" and "not even moving my hands when it was squeezed". I'm fortunate that it was medically induced. Because if it was any other way, it could have turned out much different. But it still takes a toll on ones mind and body.. My doctor said my heart can't take another trauma like that.. I'm grateful, but, go through bouts of depression because of it.

I've never been much of a fan of Steven Hawking but im emotionally hurt. R.I.P

My grandfather suffered from this. Unfortunately, he didn’t make it but I’m glad he isn’t suffering anymore. I wasn’t completely aware of what was happening but now I know fully. Thank you infographics.

Reminds me of sleep paralysis

😢😢😢 emotional voice of infographics show's narrator

My dad had similar condition after a stroke for 4 months. Passed away and suffered a lot. He cried sometimes, hard times for the family.

This is so emotional. I feel sorry for whoever had it, still have it right now, or managed to cope with it until they were cured. God bless you all.

Imagine if you had this syndrome, and u had a lady friend u loved very much, or even a loved one. But yet, you still can’t be capable of saying the simple words of “I love you,”, and never able to say that. Or even if you didn’t have this syndrome before, and you acted mean to family and friends. But when you have it you can’t say that you love them. What I’m really trying to say is that you should always appreciate family, and the people you have in your life.

wow, this is such a cruel syndrome. It's things like this that make you question God's existence. And the image of Stephen Hawking walking away from his wheelchair into the distance or, the afterlife, is really sweet

darkness imprisioning me all that i see absolute horror i cannot live i cannot die trapped in myself body my holding cell

I'm a home health physical therapist and I have a patient with this case. What amazes me is that we can communicate through an alphabet board. He seems to be happy despite what happened to him. He spends most of his day watching tv and talking to his caregivers.

My best friend's mom (whom is also a mother figure to me) has this. While she has made a partial recovery, she has the brain of a 5 yr old and can't really move any of her extremities aside from her fingers. She also has a stutter. My best friend, her siblings, and I do our best to take care of her. Some days are more difficult than others, but that's my family and we all take care of each other 💓

I love your videos ❤️

When you start up your pc but your mouse and keyboard dont respond

Ok you know what? After seeing this, I realized that I have ZERO problems. My life is wonderful! I have so much freedom. I can move. I can walk. I can communicate. I can’t complain because THIS has to be the worst illness EVER

Happened to my little sister for a few weeks after she had a massive seizure. It was a bit different, as we could tell she could still blink and was still conscious the entire time, but her body basically went into full reset mode. Thankfully she recovered the ability to move her eyes two weeks later and then the rest of her face, and after 6 months she recovered from full-body paralysis.

Personally, if I had SOME form of speech I wouldn't want to die. Otherwise, bring it on sissies, unplug the cord

I used to work in a nursing home caring for people with this syndrome. It is heartbreaking.

4:39 "actually [slight chuckles] wanted to die"

If I had locked in syndrome I would want a computer like the one Stephen Hawking had if I couldn’t speak.

This makes me sad hope this never happens to anyone here Rest In Peace Steven Hawking you will be remembered

One of my patients had Locked In Syndrome and it really is as devastating as you imagine. He could only move his eyes to communicate, it’s absolutely horrific.

When I had my operation a few years back and I woke up after it was over, I could hear doctors and nurses talking to me, but couldn't respond or move even a finger, just blink. I remember trying so hard to say something and nothing come out. It was like you're underwater and they're above you. It still freaks me out, so to be in such a state for a long time terrifies me.

The sun is a deadly laser.

This made me cry its so sad

My sister had a brainstem stroke plus hydrocephalus almost two years ago and was in intensive care and unconscious for over 6 months. She is now minimally conscious, she is not fully locked in but can speak a little, struggles cognitively and has very limited movement. She has poor short term memory but can remember songs and people from before the stroke. She has very little dignity, no quality of life and all care tasks have to be done for her. She is fed mainly through a tube but can now breathe on her own. If anyone else out there has experienced this type of brain trauma I'd love to hear your experience and if there is much hope for improvement after two years.

This happened to my sister a few years ago when she was forty (and in excellent physical shape). She was having a procedure done to remove a small tumor from under her brain. Surgery went well, but within 48 hours her brain began to bleed, and she had a massive stroke. After about a couple of weeks she was able to use her eyes (opened wider for “yes”, narrower for “no”) to somewhat communicate. This was all she could move. For the next year plus she was on feeding and breathing tubes. She could not speak at all, but she had very small movement in a few of her fingers. Now several years later, she has regained a good bit of movement in her arms and legs. Her “recovery” is still on going, but she has progressed slowly but surely. Still has a long way to go. It is hard to imagine how this really affects anyone that this has happened to.

My friend got locked in.. I just found out 3 hours ago and it’s really hard

Im soooo lucky to have a mega strong immune system, i dont remember ever staying in the hospital because an illness

The most I can relate is sleep paralysis, where you can think but you can't move or even open your eyes. It's absolutely terrifying. The way I break out of it is focus on my toes and try to move it

This is horrible... I can't imagine being able to think but not being able to express how I feel to others.

The closest thing i've experienced is sleep paralysis. Although i was seeing my room or wherever i went in to sleep, but i knew it was part of a dream after looking it up.

I get it now gradma. I'm sorry for not speaking to you and not beliving that you were still there. Rest in peace and I hope you are happy whereever you are.❤

This makes me so depressed. I feel that there is hope if you can blink, but its horrifying if you cannot even open your eyes. I wish I could help everyone in this state, I so wish.

It's not mainly sad it's actually amazing how people can recover and how interesting the world is and how we can learn to get through barriers.

Some can not even blink only move their eyes when someone open them.

I just watched a House episode about this a day ago. The Internet and its recommendation algorythms never fail to make me feel surveilled.

Currently my grandmother has had this for 6 years thank you for the video

I had a very odd experience with anesthesia that was similar to this. I was put under anesthesia to reduce my shoulder. I could hear and visualize everything around me but I couldn't move or talk. I heart them saying I may need to go into emergency surgery. It was the scariest and most out of control I have felt in my life. Luckily once I came out of anesthesia I was fine.

Are you awake? >well yes but actually no

Ive had sleep paralysis for as long as i can remember,and they sound kinda similar. Sleep paralysis is being woken up (like when a nightmare wakes you up) but can only control your eyes. Being helpless like that for a few minutes is torture. only difference is my concious world turns into a dream scape where i see and hear things that aren't there. I usually see a dark tall hooded figure with no features looming over me.. Also if i try to move any sound gets amplified intensely.

This sounds terrifying. Just thinking about this happening to me causes mild panic.

There's a movie about this. It's about a girl who had syndrome and she was a painter. She was slowly dying. But one day, she suddenly took a brush, and painted her feelings. It's what a small flame, surrounded by blue ice. She survived at the end. I only know a bit

I really hope we will someone be able to connect the brain to computers or speak decoders. Not to play computer games, but to make "live" more bearable for these people. Nobody can imagine how being locked in feels like, but just thinking of being in that situation is a terrible feeling.

Lewis Capaldi’s song someone you loved “I’m going under and this time there is someone to save me”

I love how they have this pleasant stock music playing this over one of the most horrific things ever imaginable.

As a person who struggled with sleep paralysis many times, being unable to move and make people realize you need help is frightening. Even when you are trying your hardest from deep within. I can’t imagine having to go through that my whole life...

Saddest Video EVER

This Is So sad 😢

Thinking about all of this and all the artists and famous people that died so far this year and last year is just depressing me...

I've been through it and there was a sense of utter dread and terror.

#ShowUsYourFace

You can only blink... and think -The Infographics Show

This video made me cry but also inspired me!

Very interesting video today!!

I knew some one who suffered from this locked in syndrome when I was in the hospital after my spinal injury. She suffered a brain stem stroke and could only move her eyes

What about Jason Becker?

My uncle had a stroke 8 years back and he suffers from this syndrome. He tried to walk like 5 years ago but now he's just on bed. He became so skinny, nothing like the man I Knew before ..and it's so painful to me ..my heart breaks every time I see him..sometime he responds by trying to make a noise. That's really heart breaking to anyone that goes through it and their family

This reminds me of when I first had my spinal cord injury and could not move anything neck down, I had to use alphabet board and blink with my eyes as an indication to select the letter I wanted. It felt absolutely horrible.

🎵 *_NOW THE WORLD IS GONE IM JUST ONE_* *_OH GOD HELP ME_* *_HOLD MY BREATH AS I WISH FOR DEATH_* *_OH GOD WAKE ME PLEASE_* 🎵

This is genuinely terrifying. Its kinda hard to grasp how it feels to literaly be trapped inside your own body. The only thing i can really say now is rest in peace, Hawkings. Your impact on the earth will not be forgotten. We will all miss you.

This kind of reminds me of when my mom told me about a patient that forgot how to speak but learned to and got happy after learning how to say hay

I experience sleep paralysis probably twice a week but is not on the level of locked in syndrome but it is so scary the amount of times I tried to shout and scream at night or when I would attempt move in my bed it feels like several people are on top of you.

If I can't even write what I want to say, if I can't even touch a dog or horse, or touch someone else's hand...shoot me. Put me out of my misery. I fear death, but I fear that more. I need to be able to move, to see places, be entertained. Boredom, and not being able to do anything about it, is a type of pain to me. And shame on people who outlaw mercy killing. Keeping people alive, against their will, in such horrible conditions is not humane. How is it that we are more humane with our pets than family? It's selfish - only the living care that they are dead - the dead do not care.

My grandmother just had this. She died on 14 March, the same day as Stefen. She couldn't move but whenever someone would hold her hand a tear would drop down her check. We just saw her closing her eyes to sleep, nothing else moved. She stayed like this for 2 months and ultimately died from brain damage. May she rest in peace. I can't imagine what she was going through

Appreciate what you have till it's gone, for good.

I've had patients with this horrific condition. I feel a profound sense of guilt when I interact with them because they can't tell me how they're feeling. I just examine them, talk to them and leave the room. It seems like a form of "living death". Most of them eventually succumb to complications like pneumonia, infected bed-sores, or, sepsis. 😔