Hello! Thank you all for your wonderful and kind comments on this video. I'm glad some people are finding something they can relate to and I appreciate the thoughtfulness with which people are commenting. Please refrain from recommending me any treatments for my condition! Most chronically ill people will have tried everything they can to alleviate their condition and I am no different, I have tried lots of different things. I am working with my treatment team of wonderful doctors across different specialities to diagnose and treat the things I live with and so would rather people did not leave unsolicited medical advice without a full knowledge of my medical history. Thank you!

Thank you very much for this video! I’ve had psoriasis since 4 years ago and 5 days ago I was diagnosed with PSA by a rheumatologist. I know I have a problem with my lower back I got like 3 hernias if that’s what’s called in English if not excuse me I woke up 7 days ago with much pain on my spine lower back pelvis and hips the back of my legs felt like someone is pulling it very hard as if I’m doing the worst and most painful stretching Now my shoulders hurt And my feet I just feel swollen sore and tension I noticed my skin psoriasis got worse at the same time . It is very painful , it’s hell. I am very stressed and sad. It gets me depressed and in anxiety. I am on medication but it’s still early. To whoever is dealing with an autoimmune disease please .. Stay strong ❤ I love you , it’s gonna be okay.

Thank you for this information! I have not been diagnosed yet, but I have seen a dermatologist who has referred me to a rheumatologist. I thought I had a stubborn case of eczema, which I had as a child. I have always struggled with asthma and allergies of all kinds, especially to all animals with fur or feathers. I have also suffered from joint pain, aching, hot hands, and feet for years. I am now 62 years old. It was nice to hear your biologic is working for you. My dermatologist mentioned this type of treatment. So far, the skin itching, dryness, and peeling are on my hands and feet. My head does itch a lot, but no dryness or flaking yet. I was so confused by so many symptoms I have had over the last 15 years. Including gastrointestinal problems, back, hip, elbow, neck, and shoulder pain. At least i have a direction now. Your video information has really helped me. Thank you, and I send you prayers of health and healing!!! ❤

Hi Roisin, I think you described this horrendous condition perfectly and as a fellow sufferer I sympathise completely especially with you being so young! I was diagnosed with psoriasis 27 years ago and then psoriatic arthritis 20 years ago. I’ve been hospitalised on many occasions and have had complete body coverage like you. I’m now on biological treatment which is an injection every 8 weeks. I was put on this after having an infusion treatment which ended with a diagnosis of heart failure. It’s important to get the information out there and educate people about the condition so kudos to you for making this video, I’m glad to hear you have got a treatment that is currently working for you Susie xxx💕

Eating a carnivore diet has improved my symptoms a lot, so that's my suggestion. Maria Emmerich's youtube channel is a good one, especially for those like me who also needed to lose a bit of weight (a lot of the times you're told you don't get fat on eating animal fat, but yes you do. A protein sparing fast does the trick much better).

Thank you for this. Psoriatic Arthritis and Ankylosing Spondylitis are my most recent diagnoses. This has been very helpful.

Thank you so much for the video. I have psoriatic arthritis and after a CT scan to find something not related to it I was told i have degeneration of my spine. Its just good to hear someone else talking about lots that affect me daily. I have been injecting both Methotrexate and Secukinumab for about 5 years now but still have alot of pain all over my body especially with tendons and swelling. X

Thank you for this information ℹ️ I’ve been living with psoriatic arthritis since 2019 and I’m developing new symptoms so I feel like my biologic medication isn’t working anymore and I’m feeling very hopeless 😩

I have had psoriasis since I was 12 now 46 . I have been having back pain for a couple of years I was being fobbed of for a while by docs take this paracetamol blah blah blah but finally got to see physio and he thinks it could be psoriatic arthritis I just had blood tests last week and got MRI scan 26th September sick of the pain hopefully get diagnosed and start a treatment plan. You video is awesome xxxx

Hey, I have PA and migraine too! It’s nice to find you talking about this stuff. I really feel you on the part that you have to advocate for yourself, sometimes it feels like going to a battle, not looking for help

Our stories are almost identical it’s reassuring for me to hear your story , hope you don’t mind me saying that. We also do the same things to control our pain, heat pads baths etc. it took me 20 years + to get a doc to listen and I agree it took me finding some serious inner strength and confidence to insist they listen to me…I also did the same thing at the same time to diagnose my bronchiectasis.i also have stomach issues …Inflammatory bowel disease so have to be careful too and then the migraines i take nortriptaline for those which after 25 years of Depilating migraines was a miracle drug. Also I started methotrexate during the beginnings of covid which led to me having to leave my job working In A sch bc of the dangers of immunosuppressants…. So good to know it’s not just me and feel like a fraud all the time. Thank you for this video 👍🏻👏🏻💕

I was diagnosed with PsA about a year ago. On my third Rx (Hyrimoz-biologic). Just took injection #2 a few days ago. Still feeling terrible. Have other auto-immune diseases (Type 1 diabetes-37 years and Hashimoto's-26 years). Believe my diseases are the result of childhood trauma (Sibling abuse-physical/psychological abuse starting at age 3 for almost 25 years). Wish you well...

I'm going through your exact experience just now. 2 slipped discs in my neck for no reason and inflammatory markers off the chart. Thank you for this video it's so helpful.

Well here I am. 45 male, diagnosed psoriatic arthritis. This all started from some high stress at work and has only gotten worse with time. I have been prescribed biologic but have to go through many hoops until I get it. It’s 20k per dose so the insurance would rather have me not use it!

Ive had psoriasis for 30 years and now severe migraines and joint pain. Ive started the carnivore diet and it's life changing. Clear skin and join pain gone!

I feel like you’re talking about my lifelong issues. I was told as a teen it was juvenile arthritis, but I have psoriasis and hyper mobility as well. I’m really interested in hearing what your diagnosis will be in the future.

I was right around that same age group but wasn’t diagnosed until I was 24. I know and understand your pain unfortunately my psoriasis started when I was 16. It’s not fun it’s now on my face. I have spondylorampathy as well. Thank you for your video I’m glad I have someone who understand. Trempfya is a great option it’s helps a lot.

Thanks for sharing your story Roisin.

Thanks for sharing your story, I can so relate to arthritis in my knee, and my neck (due to surgery), and I so know your pain with herniated discs as I've had surgery on my neck and have several other herniated discs in my spine, as well as narrowing of my spinal column. Could you do a video about your back issues and how you best manage the pain? Thanks!

I found going to a Rheumatologist way better than seeing a Dermatologist. Derms never seem to want to prescribe dmards

Thank you for taking the time to make this video. It was helpful. What is the name of the medication you inject?

So happy Cho found this video! You gave so much useful information I’m so appreciative! I would like to know what type of biologic you are taking, could you please share what you are taking that is working for you and how often are you injecting it in your abdomen? Thank you so much, I am on this journey as well and we are right now discussing more serious medication, such as Biologics since nothing else is working.

I had a hard time understanding the medication you said that does not help your pain (approx 13:48) and the types of heat you use. Might you put them in a comment so I can read instead of listen. I have been diagnosed this past week after living with such awful pain for years. Thank you for all this good information.

Ohhh, so you have hyper mobility in your joints and so have you been diagnosed yet with Ehlos- Danlo’s Syndrome ? That would explain a lot of your pain too! Best Regards dear fellow pain Warrior

Thank you so much for sharing this! I have had problems since I was 14, mainly with fatigue though. (Diagnosed with chronic fatigue syndrome which my doctor thought was caused by depression when I was 14 and was given anti-depressants which made me suicidal) I have had psoriasis since I was in my 20's and was just now (age 47) diagnosed with psoriatic arthritis. It looks like I likely have an additional auto immune disease since I just tested positive for CREST syndrome which affects connective tissues. I still have to talk to my rheumatologist about that to see what he is seeing there. I'll be starting methotrexate in a couple weeks to see how that works for me. I won't be able to afford the biologics, except maybe next year when Humira goes generic, we'll see. I'm just hoping the methotrexate works really well for me since it is very affordable. I'm so happy that you finally got a correct diagnosis and are now on a treatment plan that is working so well for you!

I am beginning to think I may have it. Arthritic pain, small patch of psoriasis and I have also had uveitis in the past. I have also noticed myself feeling quite tired recently, but I am aged 67 and it could be my age. Waiting to see my GP, but I could travel around the world faster 😂

I now have PA and my left arm hurts, I can't fold my fingers into knuckle. I have strong pain in morning. I've been prescribed with metotreksat. I don't know how to deal with pain. Nimesulide doesn't really help (

Nice video

PsA recently diagnosed. Joint pain about two years before skin involvement. Does anyone have experience with Enbrel? I’m in so much pain, super tired, and wondering what my best options are. 54 year old female.

Thank you for this Roisin. I was almost completely bed ridden for 3 years. I could hardly walk and riddled with bizarre lacerations. I’ve had Enbrel and Humira but started with methotrexate and an error in labeling resulted in my heart stopping and starting. So I spent 2 “lovely” days in poison control on a folic acid drip. Best results from: biologic injectables. No gluten, no lectins, no sugar. Lots of turmeric D supplements And the greatest pain relief and general feelings of wellness ? Cryotherapy.

I am 19, living in the US, and Black. My symptoms as of recent have become unmanageable as far as nerve tingling, joint pain in my shoulders, toes, ankles, shoulders, hips, fingers, knees, and elbows. I was diagnosed with psoriasis when I was 17 and have ADHD, anxiety, and depression. My psoriasis is only present on my scalp but I finally after being diagnosed received a topical oil. I don't have any other skin issues on my body. I get tonsillitis now at least twice a year and experience frequent yeast and digestive issues. I recently saw a rheumatologist and she said she saw nothing physically wrong with me and I was dismissed. None of my blood test showed anything of concern. It's getting to the point where I know if I don't start using a walking aid I know my joints will be permanently damaged. How do I move forward through the healthcare system and continue to seek help for this condition?

Do you happen to know if you are HLA B27 positive? From what I understand those who are are more likely to have spine involvement with PsA

Hi Roisin, thank you for the interesting and articulate video! As a fellow migraine sufferer, I would be interested to hear you talk about them- do you have triggers that you're aware of, do you take triptans, or a preventative medication/what types of preventatives have you tried, have you had any luck with the NHS and getting access to newer preventative treatments like Botox or CGRP antibody medication (Obviously no pressure, if what medications you take is private or anything).

I have the same kind. Fingers, toes, fine. My SI joints? Pfff. There's nothing there anymore.

❤This was amazing. Thank you. I’d love to talk and pick your brain a bit. Sounds like we have VERY similar diagnoses (like all of them are mine or I’m currently being observed for…have genetic appt this week!) and I’d love to learn more because I’m tired of being unwell and visiting every Ologist that you wait 3 mo to see and you have 10 mins to review 20+ years of symptoms. Thanks for your strength, intelligence, and hope. Please contact me.

What is the Nilotic treatment you take (you showed in this video) that has no side effects? Thanks!

Can you please name the biologics you showed in this video?I'm also on biologis (adalimumab).but it is not helping.really frustrating 😑

Thanks for sharing! I find epsom salt baths to be super helpful as well for my muscle/fascia pain, but I never know how much to put in the tub. Have you noticed a difference?

Thank you for this❤️ I just got diagnosed yesterday. I'm 18 and trying to navigate it is so difficult when there's not a ton of information on it. How do you manage working? I'm currently not working and am scared I won't be able to.

after i took the vaccine i devolped psoriases on my elbows noticed it in the summer, weird how that happened? and ive had this ach feeling in my left hip bone that goes to my left groin area, i cant figure out what it is?? anyone know? ive had it for over 2 years now, it doesnt stop me from doing normal activities but its there all day and i feel it something feels off

Trying to decide if I should be medicated for psoriatic disease. For me it is mainly spine, I was also diagnosed during covid but decided against immunosuppressive drug at that time. How long did the drug take to work for you?

Roisin or Raisin?

Did you ever have any neurological symptoms like dizziness or vertigo?

I have kidney issues, psoriasis and arthritis along with disc issues and plantar facsitis but my antigen tests all came back negative. Does that rule out psoriatic arthritis?

what is the name of the bio medication your on?

What biological medication are you taking ?