I’m gluten free! After a blood test in the late 90’s a doc diagnosed me as celiac, after my symptoms, and gluten intolerance didn’t exist then, because they didn’t know what they know now. My husband doesn’t believe I have it but I eat gluten free all the time. Never had a biopsy to prove it. I have multiple food allergies and won’t attend dinners and I’ve been told I’m unsociable, I’m told the same if I bring my own food and show up to family dinners. I also have multiple food intolerances and allergies. No one believes I have so many issues with food.

in Argentina the chef and the waitress must know about celiac, and every food place must have at list one option for us.... I live in Toronto and I can not understand why when I ask for the same in Canada, they think I'm asking for too much.... Argentina is 3rd word country and could handle better than Canada celiac problems

Thank you for this video! I just got a diagnosis. I'm Italian, and here there are soo many gluten free options in markets, but there almost aren't people who actually know what does being coeliac mean. Many ask me "Can you drink fruit juice?", or like "Omg sorry that has rice in it, it has gluten!!!" It's very very common to be uninformed... Lots of love and pizza (gluten free lol)

I got a comeback for the cardboard one. Them: Yeah, you eat cardboard. Me: Actually the adhesive in cardboard that holds all the pieces together COULD contain gluten so...I don't eat cardboard just to be safe.

Yeah. I’ve had more than one person say they would kill themselves if they couldn’t eat bread.

Love this video! Thank you for the laugh. I can definitely empathize. One time I called a restaurant to find out about gluten free options and when they said their chips are gluten free, I asked if they used the same fryer to fry other gluten-containing foods. She said yes, they do, “but the oil gets like really, really hot, so you should be totally fine!” Also, lately I’ve been experiencing the “depends on how celiac you are” comments. One waiter said his celiac isn’t that bad, so he’s able to eat the pizza. If he truly has celiac, he doesn’t understand his disease at all.

i am currently 12 years old and i am officially a diagnosed coeliac. i turned twelve only last month btw. i went to the doctor one day about dizziness and heart palpitations, and the doctor wanted to check my blood assuming it was low iron. i also had an echocardiogram (ultrasound of the heart) to see if it was due to my heart, and my heart was fine. anyways my iron was very low, and my doctor thought the reason for that may either be heavy menstrual bleeding, not enough red meat in the diet, or coeliac disease. at this point me and my family thought it was a diet issue and never even thought i would have been coeliac disease as i had zero symptoms. three months later i had another blood test to check my iron levels after heaving more red meat and being on iron supplements, and i also did a coeliac serology ( which is basically just a blood test that tests for specific antibodies)my iron had gone up to the normal range but was still pretty low, and to our surprise i came back positive for coeliac disease. it was a big shock and my parents were convinced i didn't have it, and i was freaking out as i was extremely scared to have a gastroscopy, so we made a plan to try avoid that. until we actually saw my blood results we realised my results to the coeliac serology were extremely high and my mum read on coeliac Australia that i had to have a gastroscope to confirm a diagnosis. i was extremely scared. but don't worry i had it and i was fine and it wasn't bad, so if your in the same position i am a 12 year old girl who most of the time faints when i get needles do not worry its ok :) . anyways after an appointment with my gastroenterologist he booked me in for a gastroscope in a week! and guess what! i came back positive for coeliac disease 🤭. i also live with two siblings and two parents who all eat gluten, and they all support me. my family are extremely careful about cross contamination and even bought me my own seperate toaster. i never had any symptoms of coeliac disease, when i was on a gluten challenge for my gastroscopy, i found i felt slightly bloated and overall not as good as i did when i was gluten free. now i have been fully gluten free since august 16th 2023 when i had my gastroscopy. i'm going on a family road trip to Queensland and i am kind of worried because i'm still new to this and am slightly in the phase of "what do i actually have to eat? there is nothing!" anyways wish me luck and i am truly sorry for this very long comment but thank you for reading i appreciate it. Bye!

i've had people offering me food and telling me ' its gluten free dont worry, i checked, it has no milk ' -.-

Thanks Robyn, for this video! I just found your channel and am loving it. I was diagnosed with celiac a year ago, and I’ve had every single one of these conversations with my mom. She just doesn’t believe me when I try to explain how strict I have to be, and always ends each conversation with “you are just SO sensitive.” Thanks mom.

Love this! This happens often. At first I thought I was just gluten intolerant (which is still not good) but a dietician thinks I'm allergic even though I tested negative to coeliac. For years I've heard these things you mentioned. Tbh, it doesn't bother me much anymore but it just highlights people's lack of understanding.

I loved your channel! I feel so identified! 😭

I laughed so hard when watching this video. Oh my gosh! You are so good at your presentation!!!!!! 🥰

"Its ok, its organic" or "ohhhhhh, looookke, youuuuu CAN EAT THIS" this one always makes me feel like a child!

I just found your channel I love it I don't have Celiac (that I know of) but I have major gluten issues and so does my twelve year old daughter We also have food allergies I deal with a lot of what you talked about on behalf of both of us I am thankful to have a husband who is awesome about watching out for us and supporting us

I believe I’ve been asked or told all of the above. Thanks for this awesome video, it made my day!

The TMI, that was so relatable. We are graphic when explaining ourselves to others too!

This resonated with me so much and made me crack up. I have also had people tell me they would kill themselves if they couldn't eat gluten and I always tell them "no, you wouldn't." But also, people always say "I'm jealous - you must be so healthy!" And I then have the opportunity to tell them about gluten free Oreos, and King Arthur GF baking mixes, and all the GF flavors of ice cream turkey hill makes.

This is amazing and SO TRUE!! I feel like every scenario has happened to me in the 11 months since I was diagnosed with celiac. Thanks for making me laugh!! 😂

Yessss i agree with all og theese!!!😩I am 16 and in culinary school and my chef teacher dosent care about me at all and is always telling me to just try some bc she thinks I am just being a big baby😑love ur videos btw❤️Makes me feel like I am not alone💛

Thank you for your words. Only found your channel a few days ago. I was diagnosed only 6 months ago, a few days before my 43 birthday. It was years of miss diagnose and the last 2 years I had frequent visits to the hospital. Usually people tell me that “no worries, in Christmas you just have a feast, it is only one day”. Without the diagnose, I spent Christmas in bed… and I have hardly eaten anything. Also, since I’m recovering from malnutrition because of the lack of nutrients, my boss thinks that I can no longer be sick since I’m on a diet. I already knew what was celiac disease since my brother in law is celiac, but I didn’t knew that the psychological weight was so big. Kisses from Portugal to everyone

Yeah the "I would kill myself" I said to one "So you think I should kill myself because I can't eat doughnuts?" that shut it down pretty quick .

You're awesome and this channel is underrated.

So true robin

I have RA, so I must avoid gluten, dairy, and red meat; otherwise, my body will start aching or I get sick. I got fries at the stadium and threw them all up. Apparently, the fries had batter on them. There wasn't a SINGLE gluten-free or dairy-free option there. The combo of the three can make eating out nearly impossible.

It actually happened tonight with me that’s how I came to find your videos 😂 basically I accidentally ate something containing gluten which my dad served for me so I assumed it was gluten free but I had this feeling it wasn’t so I checked the label and there it was in bold “ BARLEY “ 🙄 I started feeling sick afterwards and my dad goes “ oh stop being dramatic you have been eating gluten your whole life your not going to die “ !! I was fuming especially because he knows how important my gluten free diet is for my health - I do understand though that I have only fairly recently been diagnosed with celiac disease so I do acknowledge that It’s not quite a habit in my family and it does take time ESPECIALLY for my dad 😅 but it annoys me so much how ignorant and inconsiderate it is to say stuff like that and obviously serving me gluten isn’t good for me however I do feel bad for him because he told me after that he wasn’t thinking and just saw it and thought I would enjoy it , I felt so bad but I knew I had to stick up for myself 😕

In my country people are very understanding and will go out of their way to find the option that is celiac friendly. Even at restaurants. A lot of restaurants and cafes have separate kitchens to cater to celiacs. I'm Argentinian

I was asked at Jersey Mike's if I wanted GF bread for a need or a preference... who prefers a $2-$3 up charge and cardboard tasting bread? Just make it the safest way possible.

The way you handle celiac...is new to me.

Good job!

As a very good rule of thumb, trust no one who offers you food. Unless you’re there while they cook it and you previously go over all the rules again. I’ve heard horror stories of family members and even mothers knowingly giving gluten to celiacs. 😡🙈 As a celiac, we got to look out for ourselves and don’t take the risk!! Also, I’ve recently become aware we should not eat fries in restaurants. There are few instances it can actually be safe, but I got the worst illness when I only ate fries at a place that had a dedicated frier. I was so excited and the French fries were nice and crispy. Turns out fries often have wheat flour thus making them crispy. Why didn’t I know this 🙄 maybe other celiacs do and only I was the dumbo that trusted them.

hahahaha it’s all so true, especially the “how gluten free are you” WHAT!! I never know what to say. Also why does everyone ask what will happen to me

This video was great!!! Everything was so true. I once had someone suggest I pick the gluten noodles out of a lasagna😳

Good video!

The worst while having my blood drawn (to check my iron levels, (for my anemia caused by the damage done to the villi ) and the nurse saying to me "if you eat a little gluten each day you will get better".

Wow all this happened to me in Germany where I live, too.

4:15 I only go McD if I deed to use the toilet. I dont support that chain with anything. Robyn, you should feel lucky you have not go there. I always wonder why people eat there that sad, tasteless meal (only taste of full sugar and salt, nothing else). I would rather choose to be not social with people who go to McD for lunch, or brekkie. Similar FOMO problem with smoking. Most of the people smoking and having fun in the smoking area. They talk, laugh, etc.. Non smokers left alone. If I go with them to the smoking room, I am passive smoker and I will smell like an ashtray. Or I can choose to sit alone. Also smokers find weird if I go out to get some air and I dont smoke just standing there. "hey, what are you doing" and security came: "hey you can not smoke in there" when I just stand outside and breathe fresh air. I dont feel outsider just because I have my own thoughts and having different consciousness than others. Iam vegan, I dont go to steak bar, or McD. I eat gluten free because I feel terribly sick and down if I eat gluten. 5:17 I do the same if somebody is stupid and dont understand I dont eat gluten or dairy and think I am just picky. :') When we work together 8-12 hours in the same room I tell them, "yes, give me that dairy cheese or milky cake but it would be horrible experience for both of us. If they dont get it I will explain why they would have horrible experience just to stand next to me (apart from watch me in pain they can expect me bloating and constantly release really stinky gases). After that said they dont try to convince me to force feed me with anything I dont eat. On top of it I can not drink most of the alcohol because of sulfites. You can imagine how many people try to convince me to drink this and drink that and they dont want understand what it means I can not drink.

"What, you don't even cheat on vacation?"

Subway and McDonalds are not one of my venues of choice. Even though my own mother who being a nurse, still did not understand the hidden dangers for the first few years. It is all in your dead and I don't believe it. Until I told her who the Consultant was that confirmed what I suspected was wrong and me becoming really ill at the time diagnosed it. Good video on how misinformed people can be.

I've had quite a few of these said to me. I think the worst wasn't really a comment. It was an action. My dad bought a birthday cake for me a couple years ago. Just a regular one from the store. I was diagnosed with Celiac almost ten years ago, and he was the one who suggested I ask my doctor about it. 🤦‍♀️

0:33 the fact that i am literally anaphylactic to peanuts and i have coeliac disease 💀

I will make you some gluten free donuts! It's one of the things I have perfected making! These are spot on tho my own family are usually the biggest ones who don't get it.

Our son is celiac and someone said to him.... “well at least you don’t have a peanut allergy that one could really kill you”. What do you say to that? Ya your right. With celiac I’m just in pain and throwing up for a couple of days and have a higher likelihood of having other intestinal issues throughout my life.

My own mother has said the, "I'm sure you can eat a little bit" part. I have had negative celiac blood tests but never a scope. My ND told me to stay away from gluten. My parents also (accidentally) glutened me back in the fall, and I felt awful for close to a week. Immense gas and pretty much feeling like I had the stomach flu all week.

I’m in the process of finding out if I have celiac, I am seeing a rhumetologist next month but in the meantime suffering, I’m so exhausted 😭😢

To 19 year old me you can't drink beer with absolute horror on their face, couldn't anyway, wouldn't now that I'm 34

I asked my friend to search up my disease to know how it feels to have and they said no I don’t have it 😂

Omg ! This is so accurate . Celiac myself

I have had issue in several Restaurants and also now dont use a hotel chain cause they dont cater for celiacs went to a competior. Also had a manager at work bring biscuits in for the staff and gave me gluten free ones.

OMG! I really laughed out loud!

Ha ha, I can relate to and have heard all of these, the flour in Europe is different, I wish I was celiac then I could lose weight etc. We were in Las Vegas and asked if there were GF options at a breakfast buffet (I was with other non GF people) and was told it was all free 😂.

Ive been asked for Gluten Free Pepperoni, Im at the point in my life where I have to question everything in regards to human dieting if Gluten has wound up in someone's pepperoni before.

This video really sums it up !

Yes to it all! People are pretty insensitive to us.

My favorite that I get all the time is "omg it's not a big deal just dont eat gluten it's not the end of the world" it's like um ma'am you don't know the half of it

i have been told so many times that its in my head and i should eat gluten. it is very difficult and i have no social life at all because of it.

Lol. Them: "This pizza was so delicious and crispy and crunchy and...you can't eat it...and buttery." Me: Please let me eat vicariously through your experiences.

Where I live in the UK am lucky to have three tapas bars, all localish, really good and get a good selection of gluten free tapas. Heaven.

My mother in law wanted to go to a fast food place that served absolute no gluten-free food. When my husband told her that I wouldn't be able to eat, she replied "she can come and watch us". And she was a lovely person who actually liked, if not loved me. How to understand?

A good friend said to me (a month after I tested positive for celiac) oh have you tried the new bread at the local bakery it’s sooooooo good. We have to go try it when you’re done being celiac. I replied well I mean it doesn’t work that way…. She said oh I just mean when you’re eating bread and gluten again.

Hello Robyn, I am celiac disease and student at university, and l will go to Europe for Erasmus during 6 month. Could you please give me some advice, how can l find gluten free food and do you know any internet page or application etc. to make sure whether contain gluten or not. Thank you

Can you please mention the restaurants in Greater Toronto Area those are safe for celiac disease? My daughter just diagnosed celiac disease and we are very use to of dining out but now we don't have even a single restaurant or fast food chain where we can dine.

I heared all the ridiculous things you can say to a gluten-intolerant.My mother doesn't believe it even a little,she keeps trying to make me eat gluten..😐she never remembers that I need to eat too.She keeps inviting me to eat something I cannot,so I end up cooking my own thing.

My roomie said that: "Oh, that's a fake problem". Should I move out？

I've never had someone say they would kill themselves, but someone did say that they would rather die than stop eating gluten, so it's not that much less extreme

I work in a Retirement Home and I had a conversation with one of my Server friends about what I can and can't eat (I've talked openly at work about my having Celiac Disease and my dietary restrictions). One evening, he offered me something that I knew would make me sick, so I said, "as yummy as that looks, no, thank you". He was disappointed that I wouldn't partake, so I thought of offering him the opportunity to try some of my treats to show him that I really wasn't missing out. So after visiting my favourite GF bakery one day before my shift, I brought in a butter tart so he could see for himself that "the best really does happen to be Gluten Free". Initially, he accepted the offer, but when it came time to actually take the butter tart home, he made the excuse, "Oops. Sorry, I'm too full" Like it would have killed him to take the butter tart home with him and return the container when he had more room for the butter tart. It felt as though he was turning his nose up at my food, without even TRYING IT first. I had a Supervisor at the same job that told me that she's gluten intolerant (supposedly gives her IBS), but she allows herself a cheat day on her birthday so she can binge herself stupid on a wheat-based cake. There are 2 staff at that Home that have Celiac Disease, and this former supervisor gave my non-GF coworkers the impression that the other staff member with Celiac Disease and I are making a big deal out of nothing, that we can cheat whenever we want and nothing will happen, and that we're doing it (eating gluten free) for attention. Both incidents have me frustrated enough to plan a Celiac Disease PowerPoint presentation for both Wellness and Culinary departments, since we both have to serve residents that have gluten intolerances.

Can you eat Cantaloupe ? From someone who couldn't keep it straight what gluten was.

Has anyone gone Keto to cut all carbs out completely? I've been gluten free for many years and put on so much weight with all the GF food that isn't really healthy. Just something I was wondering and possibly going to try. The strict ones seem to eat clean and GF anyway thought it would be the closest thing to GF as I still get problems with certain foods don't know why.

"does cake have gluten?" as they are serving the birthday cake.

I was diagnosed with celiac when I was a baby and before my parents didn’t know they used to feed me like baby food that had wheat in it and I always used to throw up and then I found out and then my whole life is changed and then my friends are talking about pretzels and they’re like oh my God I’m so sorry you can’t eat pretzels and I get mad because there’s gluten-free pretzels and then they ask can you have that? Can you have that but I can have everything it just have to be gluten-free.

I found out my son needed to be GF thru a elimination diet and I have had people tell me. Because a doctor didn’t diagnose it it’s probably not true. His toenails fell off during his detox period. I have pictures. I showed his pediatrician and guess what? She took my word for it. Now he gets a doctor note whenever we need one. The doctor didn’t do any special test that made what she said more true then what we went thru. In fact she told me a elimination diet is the most accurate way to find and diagnose food allergies.

Lol. Them: I wish I had celiac so I could eat carbs. Me: *nodding as a response because my mouth is full of Glutino Cookies*

I have definitely been like, "Oh man if I couldn't have gluten I'd be so depressed!" Joke's on me! XD

My roommate would eat my gluten free food because he thought it was healthier with less calories. He would eat my rare find foods! Then continue on with his own. I have to hide some of it and I hate to be that way. I always loved to share everything but damn.

I had 2 different people in 2 different states say this when I ask if there’s anything gluten free. Oh well we do have pasta. Can’t you just take the burger off the bun? Just scrape the croutons off!

4:26= 🤣 This reminds me of when my then vegan sister mentioned that a coworker had happily exclaimed "I know what you guys (vegans) eat: chicken"! LMFAO! ^_-

ALL of the above, and that was just within the first six months of being diagnosed. Also: - "Oh, so you're one of THOSE people now" - "My friend had celiac as a kid but grew out of it" "My friend has celiac but is OK with cross-contamination" - Asking "Is (insert random generic food name, like tomato soup, cheese, sushi)" gluten-free?" and then looking at me like I have 2 heads when I explain about needing to check ingredients/ check for cross contamination

Lol, great examples and the acting as well hahaha, I’m laughing but it’s actually not funny when people are so ignorant, but well who’s the winner here the ones who eat gluten or avoid it 😎

I had a guy giving sausage samples, when asked if they were gluten free, say "oh, she's one of those people, its all in their head."

Omg this whole video is so relatable hahaha

wow Gluten free and Vegetarian that is even Harder. I just went to Spain and the waiters kept bring bowls of Bread to the table, we spend every other day feeling so bad because we will eat at a restaurant and get cross contaminations or the waiter will say that it was Gluten Free when it wasn't. it was hard, at some point I will just eat fruit for lunch and fired eggs for breakfast. I hate Gluten!!

I want A doughnut two😭

I got Celiac and numerous food allergies (and other allergies). I've had people on purpose contaminating my food and then mocking me when I became extremely sick and ended up in hospital, making fun of me, telling the entire town that I'm "just a fussy eater", telling me that "my Celiac and allergies only exist in my mind and are not real". Or variants of this, such as "this never existed when I was young", "in my days people/children ate what they got given", and the usual "it's all just in your head, it's not real". After a lifetime of this, I have had to realize that I just have to stay friendless and single if I don't want to get terribly sick and end up in extreme pain. I can't take any more abuse and I can't risk getting made sick on purpose.

I ask for something gluten free in a coffee and I got a peanut free carrot cake

Some say, oh I would loose so much weight not eating wheat.

I am from Turkey and people in here even more ignorant than canada or many other countries. There was a time ı went to a restaurant and asked for gluten free options. Chef literally said this: "our restaurant is definitely clean and decent. There would no such a thing like gluten."?!?!!? He had no idea what gluten is and pretended as if he knew (assuming that gluten is some kind of dirty thing) :D This was one of the amazing moment in my life. (sorry about my english mistakes, love from Turkey) Oops ı forgot another amazing moment in my life. My friend and ı had an argue and my lovely friend threatened me with contamine my stuff (plates, forks etc.) with wheat. I told her off. I mean ı hit the ceiling. What a dumbass she was.

Waiter : So are you like a full on celiac or...? Me: a what... I've also had the "oh this is organic sourdough so it's healthy." Like yes sure it sounds delicious but still not healthy for me thank youuu. Everyone just thinks I'm some hippy health nut now.

Hahaha! I have had ALL of them. Once got a «gluten free» cake from a friend who after I ate two slices said «the secret is the ritz crackers» 🤯 The one I hear the most here in Oslo, is the joke that when I order sonething like a gluten free pizza, some people think is funny to order their pizza «with extra gluten» 🤷🏻‍♀️ And the worst is when also people think is funny to eat things that I can’t have in front of me in a defying way and making all kind of sounds, even adding the «ohhh gluten» like if it is a choice for me to eat gluten..

I can add" it's disgusting ,how can u find this tasty!!! ,Well I don't too, I just have to

I want a donut!!!

Ha ha, i'm pretty sure.......

I hate also how if I buy something that I know I can have and someone is like well thats not good for you anyway so if ur going to eat that just eat gluten and im like ugh excuse me??? 😑

I had a personal friend, who happens to be a family doctor, ask me "Do you get sick when you eat gluten or can you have small amounts?". A doctor. Said that. I thought celiacs have a lot of obstacles ahead of them.

Katz gluten free has the best donuts

A.) I’m 100% celiac, if that even makes sense. B.) NO, no one invented celiac disease. (Waiter once thought someone did) C.) I eat food, you eat food. D.) keep a good book in the bathroom Much love! 😂🖤

I drink Peroni the gluten free version........

I was at a St-Hubert in Montréal recently and they bragged about how "celiac woke" they are. They GUARANTEED me that the food I had selected on their menu was celiac safe. I started eating and IMMEDIATELY started to feel the effects. The manager AND the 'chef' came out to explain to my wife and I that the food had ZERO gluten (and a celiac delivery driver eats it all the time without issue). The cocky chef even brought the label from the box to the table to "prove" that the food was safe. I read the label and the FIRST TWO WARNINGS were "CONTAINS WHEAT and BARLEY" I was MAAAAAAAAD! They thought the label would say "contains gluten". MORONS EVERYWHERE! 3 DAYS in bed after that encounter (well, combo of bed and bathroom). 🙄🙄🙄

Omg, you vomit too!? I thought I was one of the only Celiacs who vomit. ...I also get psychosis but I don't openly share that one...

Mc Donald's😔

I’m guilty of the Europe comment! I read their wheat hasn’t been destroyed like US wheat. Not true??

Did you say gluten free sub at Subway???? What????