What's LAM and how does it affect me? I answer your questions 🤓 Living with Lymphangioleiomyomatosis

Рет қаралды 564

Күн бұрын

Hello 😁
Welcome back for another video. I know its a little long for a sit down and talk, however, its not a straight forward journey and quite frankly I was enjoying the process of telling you my story and, answering your questions!
I hope you enjoy thank you x

Пікірлер: 20

@jennyvdwesthuizen2478 Жыл бұрын

You are a lovely woman and very level headed and brave. thank you for this video and all the others.

@Plainlyhayley Жыл бұрын

Thank you so much 😊

@susangannon5621 Жыл бұрын

I am sorry you had to endure delays in getting diagnosed and all the effects that has on relationships as well as the disease. Thank you for making this video, you are a mighty woman and despite you experiencing anxiety what shines through here is your strength, intelligence, gentleness and humour. I wish you well Hayley.

@Plainlyhayley Жыл бұрын

I am too however its how we deal with things in the here and now isn't it. Thank you so much for such kind words 😊

@susangannon5621 Жыл бұрын

Wise words Hayley, the here and now is what matters and who stands by you in the present.

@serenadm6619 Жыл бұрын

Very interesting,I had never heard of it before :)

@Plainlyhayley Жыл бұрын

Thank you and thanks for watching. Most people haven't including medical professionals!

@xianthe_ Жыл бұрын

I'm sorry you didn't get diagnosed sooner. You are strong and courageous. Question for Michael: How are you doing with her diagnosis and what helps you cope?

@Plainlyhayley Жыл бұрын

Thank you 😊

@lreppy10 Жыл бұрын

P.S. I love your mug!

@Plainlyhayley Жыл бұрын

thank you😊

@KMD2832 Жыл бұрын

Thank you for another great video. It was very interesting to hear your story, and sad to hear what you endured before diagnosis, x. What an amazingly pragmatic and strong woman you are. Thanks for explaining about the oxygen, it makes sense now :) My new question - if you are accepted onto the lung transplant list, where will you have the surgery? I think you are up somewhere near Inverness and I’m guessing Raigmore (I think that’s the name of the hospital??) wouldn’t have those facilities?

@Plainlyhayley Жыл бұрын

Thank you for keep watching them😁and thank you for saying so I appreciate it. Perfect question ill answer for the next video so thanks for that 😊

@lreppy10 Жыл бұрын

Haley, thank you for sharing your story with us. I’m sorry that it took the doctors so long to give you the correct diagnosis. Do you happen to live near a bigger city? The medical schools (at least here in the U.S.) tend to have the best doctors who do the most research. Could you get a second opinion somewhere like that? It might be good to have a doctor in a bigger facility in case you do need a transplant in the future. On a lighter note, a question for you and Michael… what are your favorite Star Treks series? 😊

@Plainlyhayley Жыл бұрын

Your so welcome and thanks so much for always listening. I don't unfortunately. I'm in a very rural part of Scotland. I've met with a couple different consultants and their findings get sent along to the LAM centre in Nottingham where they look at it. Im sure also with the upcoming assessment they'll give me the full woks 😬 next video I'll include all the Michael questions, he can't wait!

@lreppy10 Жыл бұрын

Gryffindor or Hufflepuff! 🧙🏻‍♀️

@Plainlyhayley Жыл бұрын

unlucky! 🧙‍♀️