Sooo I am pretty nervous to put this video out there because it is very raw, real, and emotional, but I really wanted to create a video to show and explain what suffering with gastroparesis is really like. To those watching who have gastroparesis, or another GI condition, you are an absolute freaking warrior. Going through something like this everyday is not an easy task. Lately my health has not been the best and I am so so tired because I haven’t been able to get my nutrients in, and I just empathize with you all so much. Keep fighting, you are not alone and we can get through this! To those watching this who do not have a GI condition, thank you. Thank you for taking the time and effort to try to learn and understand what it is like to live with a crippling GI condition. The world is a better place with your knowledge and understanding. It means the world to me (and a whole bunch others) that you would take time out of your day to watch this. Whoever you are watching this, I hope this video helped you or impacted you in some way. You are all beautiful people and can accomplish anything you set your mind to. I love you all and thank you so much for watching. Feel free to comment anything or share part of your story.

I’ve never related to a video more in my life. Thank you

I did not expect to cry watching this. The struggle between the 24/7 nausea and emetophobia is the absolute worst. Thank you so much for making this and allow people like me feel less alone. I hope you are doing good and never lose hope🙏🏻 We got this!

This video left me in tears. As someone who also spent a lot of time in the hospital, it is truly inspirational to see how strong of a person you are and how amazing you and your boyfriend's relationship is. Thank you for sharing!! ♥️

as someone who was diagnosed with Gastroparesis and Eosinphilic Esophagitis a few years ago, this video really hit home. Proud of you, I hope your doing better

I’m watching as I’m currently going under an investigation to see if I have this or another similar problem,I have so much respect for you. I’m also scared of getting conformation of what I’ve got,I don’t know how it will affect my mental health or my diabetes.

Thank you so much for making this!!!! Such a real look into what we all deal with daily! I relate to every single thing you said, especially the emetophobia! You are so strong 💚

This just made me cry thank you. I have been drug tested before multiple times in the ER. For my seizures and for my Gastroparesis. I had a CBD gummy for anxiety just before the ER once that slightly elevated my Marijuana marker in the test and the ER doctor sent me home saying that my seizure was “Because I got too high” despite it being CBD and not THC and I was not in any way high. Despite the fact I broke out in a rash and my seizure lasted more than an hour. Despite the I hadn’t eaten a week because my Gastroparesis. I had about 9 long and painful seizures, barely any ability to eat, and 3 ambulance rides before they finally admitted me to the hospital. And honestly this video really made it sink in how absolutely messed up that was. My blood sugar was about 30 and I was extremely dehydrated in the hospital. I wasn’t diagnosed with Gastroparesis yet. They continued to over hype the fact that I have a history of anxiety and forced me to see a psychiatrist in the hospital. I am so glad my family helped me advocate for myself and make it so it wasn’t for nothing cause it lead to me getting POTS and Severe Gastroparesis diagnosed. I’m still fighting for treatment beyond nausea meds and IV Therapy but it’s KZfaqrs like you who help encourage me to keep fighting.

I just shared this video with my friends and family. I've been diagnosed with gastroparesis since late 2020 and I haven't been able to express the toll it has taken on me as well as you have expressed it in this video. Thank you. ❤

Thank you for this video ❤ made me feel less alone even 3 years later.

Wow what a great video ! I’ve seen a lot of videos on gastroparesis but this is probably the best one yet !Thank you!

Thank you so much for sharing this video. I have been binge watching your videos whilst in a bad flare up. I have never related more. Thank you x

Thankyou so so much… I am suffering sooo hard right now and don’t know what to do :( I really needed this and I’m so glad to see you having some relief !

I'm sorry you had to go through all that and still suffer, I'm about to take a gastric emptying test in about a week to confirm gastroparesis. Thank you for being so very brave by posting this video with all the good and the bad of what it is like to live with this condition. 💜

I love this video. Thanks for sharing all sides of this terrible illness. Also you look like wonder woman!!

I have severe EDS and gastroparesis, I just got a feeding tube and I think that this video is really helpful! I only found your channel today but I already love it!

Im so sorry you go through this. May God bless you and keep you well 💚 You are so courageous. This video was very well made. You explain things so well

This really does describes life with this awful condition. I feel like the only 30 year old male in the world with idiopathic GP. My symptoms are similar to yours, however, luckily I don't have the malnourishment or bloating. I too have a complete phobia of throwing up and no matter how nauseated I get I just can't do it. Luckily, I am still able to eat somewhat enough for my smaller body type. There are many days where I just don't want to go on. Its so unfair . Like you, I continually question why me? what did I do? I otherwise would have had the perfect life, not wanting for anything. Thanks for your candid and true depiction of what this F**king illness is. I had botox done which didn't help and I have consulted wth a Dr about GPOEM and he didn't think it would be worth the risk completing the procedure on me. I feel like there is no other options and nowhere else to turn.

Thank you 🙏 I relate so much to this constant nausea had it for 20 years and this video I the first ever I am really relating to because you explain your feelings so well! You’re angel for making this video !take care!

Thank you for sharing your story!!

Thank you for being brave and sharing this. I have a patient that comes to our hospital often and this has helped me to understand a bit more what she has to deal with.

I was there from the beginning of this video to the end excelent job love you both.

It is an honor to recieve your vulnerability and your strength. Thank you for giving others, myself included, a voice to how we feel living with GP

Reasonable do much with this, safely. Here for you all and being with you all virtually through all of this.

You're video brought me to tears because I have so many chronic illnesses and have been told I just have IBS and Diverticulosis and literally am about to go talk to my boyfriend about my symptoms because he doesn't understand why I have to take so many pills and it upsets me but your video rang true to me I've been told so much of what you said by doctors and it just kills me on the inside to this day because they still are saying it.

This made me cry so much , I cannot explain how accurate this is , you literally explained my whole life

Wow…. I don’t have any words 😔 I just started to learn about this disease, and It BREAKS my heart to see this happening to people, and without any real cure for it. Thank you for sharing your story! You are such a beautiful, and strong woman! You are also SO blessed to have such an amazing husband🙌🏻 It was beautiful to see you document the little moments with each other in the video. Having the support and love you have is incredible! I’m so happy to see that that surgery has helped improve your life! Praise God!🙏🏻 I will be keeping you, and the many others fighting this disease in my prayers🩷

Thanku so much for having the strength and courage to make this video

Today is the first day I've ever heard this noun that describes what I've suffered with my whole life, along with gallbladder disease and gastroparesis: Emetophobia: extreme fear of vomiting. One counselor acknowledged it back in the day, but gave me no name for it.

10 minutes in, im in tears cause all this is so relative, I have lived with it for over 10 years...

This is currently my journey…you are completely explaining my life. I am scheduled for NG/J tube placement tomorrow and I have no idea what lies ahead. Thank you for posting ❤

This is incredibly beautiful- exactly what I feel and think all the time, I couldn’t have put it more perfectly myself! Thank you so so much for sharing this & spreading awareness for our disorder 💗

I feel like you're telling my story. I tried to keep it from family and friends. I started posting about it I was nervous at first but it's time to everyone knows about us. Your boyfriend is amazing .

Thank you for putting into words what my 16yr old has been feeling like. We highly suspect she’s been suffering from Gastroparesis for the last 3yrs. And it wasn’t until I found your videos of you sharing your story…that I felt like I could understand & grasp what she has been experiencing…So…THANK YOU! We are meeting with GI in a few days & we are praying for this as the answer. (Not that we want Gastroparesis but just to have answers for all her struggling.) But after a 12lb weight loss in less then a week…it’s time to get to the bottom of all this. Any ways…all this to say Thank You for being brave enough to share your story & allowing my daughter to not feel alone.

You are so brave!!! An inspiration!!!! Thank you for taking the time to explain this so very well…I cried from start to end…I just had my second specialist GI apt for GP and was told by the doctor that until I loose a massive amount of weight there is nothing to be done because I am allergic to the mobility medications and all nausea meds (except for phenergan)….but when I “look like the starving kids on TV”….that’s when he said he would help me….despite me being on daily steroids because I have Addison’s disease….I also have severe psoriasis….(like being in the burn unit for weeks during a flare kind of severe psoriasis) the last year of life has been just tears and vomiting and pure loneliness….I am thankful I was blessed with an amazing man as well….we met and fell in love very fast in 2008…six months later I got sick and spent months in the hospital from a surgery gone bad and there he was….staying with me every second he could….he would make sure our three kids had everything they needed back home then would drive and hour to the hospital to sleep on a chair bed beside me…..that kind of love rarely comes around….13 years later and he is still that same person….(we have more photos of us in hospitals than at home-but the love is real)….again I want to thank you for making this video….I want to share it with my friends and family who believe the big lie that I tell them….you know….the “ I’m okay” lie….just like you said perfectly you said the big “I’m okay to not bother others”….I do that a lot too….I think all of us chronically sick people do….I hope you don’t mind me sharing your video as a means of real education that I can’t seem to convey well💚

This was so beautiful and authentic. I can’t thank you enough for all the awareness you spread and for sharing your story. Sometimes it’s hard to see the bright side of all of this but you do a damn good job at it. Keep fighting the good fight, know that we love you, and please say a prayer for me tonight because I’m on 4 laxatives and haven’t had any success in two weeks😅

@Kenna K. I have been recently diagnosed with gastroparesis and I am glad I found your channel .

Thank you so much for creating this video to share your true self with the world and to help others who may be going through something similar to relate. You’re my and their hero 🙌🏻 You’re so strong and so brave and it makes me the happiest person to see you grow so much and bright so much love into the world despite all you had to endure. You’re an angel. I love you!!! ❤️

Amazing video and please continue not to bottle up your emotions. You are a strong warrior 💪 keep it up

This is an amazingly informative video! 😍

I was brought to tears watching this. I am 18 and got diagnosed a little over a year ago after going to the doctor for 3 years and them recommending me to therapist after therapist saying I had anxiety. I recently got access to my blood test results and have had the markers of malnutrition since January 2018. Since my diagnosis I've gotten two endoscopys with botox. I've gone several days without eating and called the hospital to be met with "try taking all your meds and then eating". The part about sitting in the shower, bruising easily, and staying in because there is going to be food wherever you go. My last botox just wore off and I have been dealing with the fact that I can't eat anymore and they can't perform the procedure again. I've been looking up how everyone else has been dealing with this disease. This helped so much and you described everything perfectly, thank you!

I am also fellow GP warrior and couldn’t help but cry this entire video. You did an amazing job at summarizing GP, how if affects us, what is has taken, and what it has not. Thank you so much. You’re inspirational.

I found this video at the beginning of my health crash. It gave me someone to relate to. Someone who made me feel like I wasn’t alone. Someone that gave me hope. I’ve come back to this and I’ve sobbed the whole video. I’ve never realized just how much I bottle my feelings and completely numb myself until I’ve had to face them. I go to therapy but can’t think of what to talk about even though I know it’s there. I lost a year of my life. I was so malnourished that I don’t have memories. On my birthday I couldn’t eat my special birthday dinner. I was hospitalized a week later. I still remember my first tube feeds. The feeling of my empty stomach filling up with the barest amount of formula still haunts me. I’m not ok. This illness has taken everything from me. I try to be strong but I’m not. Those bottled up feelings manifest as anger towards my family. I find myself so short tempered that my dog eating my little amount of candy or my door being left open to send me into a sobbing rage. I hate being like this but I can’t fix it. I want my life back. I want to be my normal healthy self i was. But I’m here. I’m not dying but I’m not better.

Thank you for this video. I hate that you're struggling so much. I have severe emetophobia and would rather lose a leg than feel sick. Gastroparesis is an illness that im so terrified of getting. I don't think i could continue to live. Thank you for showing this.

This was so beautiful, well done! I related so much to this! I've had gastroparesis for years now and you nailed some of the feelings I've had. Oh the nausea, ginger chews, the fear of throwing up, the skinny comments, the doctor appointments, the pretending that you're fine, the um lactating haha. I actually just had the POP procedure done in Ohio a few months ago and while the nausea is a little better, I'm still hopeful that more can be done for all the GI discomfort. Keep sharing your story :)

I apologize for writing so much, I just keep listening to more and I am so happy you also see the positives in your life, your husband is awesome and it takes a real man to do what he has. It's not just your disease but his too, he owned it and I know it had to be tough, I am quite positive that the struggle bonded you both for life. I believe we do sometimes not understand what the other person is dealing with and how they suffer, even if it's just feeling guilty because he can't fix you, because you can be sure he would give anything to make your world better. It affects people that love us in different ways, they feel guilty, angry because they can't change it, they may not even understand what you need from them, yes their quality of life suffers for different reasons, but primarily because they feel helpess to help the person they love so damn much. I am really happy to have been able to cheat and see that things have mostly turned out well for you both, that you guys got married for better or worse, through good times and more importantly bad times. He could of ran away in terror but love won and I personally admire your husband for being such a wonderful person, but understand you are too, you tried to shield him as much as possible and in the video you both admitted doing the wrong thing, rather than accept it I guess there was a sense of avoiding it, which made it harder for both of you. I really haven't talked about my illness for the same reasons you didn't as well I felt in comparison to so many my disease was just so small on rhe grand scale how dare I complain. I still feel this way because I have learned of so many diseases like yours and worse and some not as bad but more than mine, it's just a realization that I could have it so much worse, of course I could have itbso much better, but that frame of mind gets into a pity party and I don't want to do that. 8 rather would accept my limitations and be grateful I didn't have something worse, and feel empathy for those that suffer far more than myself. I believe you understand me, probably many of us think like this and maybe thats what gives us the strength to carry on in a life that many times makes you wonder why ❤

I’m suffering now just found out after three years!!! Thank u for this

Thank u for sharing this story with us. I feel like it might help people understand us finally. I have just started losing weight and I am scared 😨.

I literally cry after watching this video, I’ve been suffering with gastroparesis for the last seven years of my life and it’s completely destroyed me I live in New York City, and I can’t even work or even take care of myself. I became homeless because I was unable to pay bills or do things for myself. I’m on the verge of getting a surgery called a subtotal gastroenterology procedure. I have no idea if it’s really going to help me. But at this point, I’m willing to try anything to get my life together. but I honestly do feel and agree that most people that do not suffer with this disease truly do not understand what we go through and that it’s beyond medication. Nothing you do helps I would like to know the name of the procedure you got to see how it helped you.

im not too sure if i have gastroparesis but I went quite a while with very high blod sugar because my diabetes went unnoticed and I have pain all the time after eating, i throw up a lot more than normal people and I feel nauseous 24/7. I'm just watching lots of other's experiences to maybe compare. I''m calling my doctor on monday to get it checked out haha.. but thank you for being open about your gastroparesis, it must be hard to open up about such a personal part of you life wish you all the best

I suffer from disphasia. Thank you for this encouragement. I love you.

Thank you for the great video Kenna! I was extremely sick for months (or likely even longer, but my condition wasn't so severe that I was concerned). I lost 16lbs in only a couple of weeks, and was drastically dropping. After spending a month in the hospital, and having many tests, X-rays, ultrasounds, various scans, endoscopy, colonoscopy, and finally a gastric emptying test, I was then diagnosed with gastroparesis. I spent a month in the hospital trying to find a medication that would help me. Nothing worked for me. They tried a procedure to stretch my pylorus and then inject Botox to relax things. That didn't work either. So, my last resort was to have a GJ tube inserted. I am getting adjusted to getting all my nutrients via my feeding tube, I haven't been able to consume food orally at all. I can finally manage to have about 50-100ml of fluids now (coffee, tea, juice) which is a nice start. The nausea and vomiting are constant, and I am grateful for the odd day that I can say I've been nausea free! It's a rarity these days though. I'm hoping things settle down, but I understand that's a part of this horrible condition. Gravol, Zofran, and peppermints are my lifesavers these days. This has been very life changing for me. I have always had an active lifestyle, and things came to an abrupt halt for me. Your video showed me that I am not alone in this new journey, and that there are many others suffering what I am going through. It helped me realize that my symptoms are just a part of 'a day in the life of gastroparesis'. Like you, I will adapt and adjust to this condition, and not let it take my life! We are warriors, we are strong, we will survive! Thank you for the video, and I look forward to following your journey with you and learning more about gastroparesis through your videos. 🙏

omg i have gastroparesis and i have emetaphobia as well and i never knew someone else who did so i feel so much less alone. I'm so sorry you've had to experience this, it's such a terrible illness.

Love your video I wish you the best. Having similar issues haven’t been diagnosed yet but trying to figure it out. It hurts to be alive.

It took 16 years for my diagnosis they said it's because I'm diabetic that it took so long. I have severe emetephobia as well I'm like seriously of course I'd get one of the chronic illnesses that has nausea and vomiting as the number one symptom. I am grateful that you were able to get the surgery and that you got 4.ogpa in nursing school! 💕

I absolutly love this video, i feel like i can relate to it so much but with different symtoms. I have suffered from severe gerd for 5 years and no medication or clean diet helps, even water comes back up. I have to sleep extremly elevated or else i wake up choking on my vomit, even if i wait 6 hours upright before i go to bed, but the heartburn is always there even sitting and standing up. 24/7, it never goes away. I had some tests done and everything came back fine but my gastro doesnt believe its as bad as i say it is and that just makes me so frustrated and cry because i know theres something wrong. I desperatly want a gastric emptying test. I love all your videos im glad i found your channel 🥰

I got diagnosed around mid 2020 and it felt amazing to finally know why I always felt so awful. Right now I’m just on pills to help it but I feel it getting worse lately. The vomiting is the worst, especially when I kept gaining weight too I got so self conscious and stopped eating most days but still felt so awful all the time. Learning about what I have has helped immensely and I feel not so alone anymore

Wow, this video is so powerful and so well done. Living with your fear daily is so tough to do. It is so tough to do normal things when you feel sick all the time. I too got so nauseous all the time that watching something would become too much. I also lost 20 lbs and become severely underweight. I too had the pouch of medicine with oils, pepto, gas-x, tums, Zofran. And I couldn’t leave the house without it. Showering was impossible somedays. Eating was impossible somedays. Trying to walk from point A to point B felt impossible. Never wanting to leave the house because you feel awful or you don’t want to feel awful when you get out. Walking around the grocery store felt impossible. Going to target or the mall only to feel so sick half way through and just wanting to be home. Never feeling hunger or thirst. Never feeling peace and bliss after a meal- even though all you ate was a small amount of mashed potatoes or dry cereal. Knowing you NEED to eat more yet it’s impossible to do so. Going to the GI doctor and not getting any tests done and getting told “it’s just acid reflux. Change your diet” when you’ve cut out EVERYTHING already. And the “are you sure you aren’t pregnant?” And “it’s probably just IBS. you will need to figure out how to deal with it” and “it might be gastritis. Take this medicine for the rest of your life” This being said, I never had gastroparesis. Instead, I had an overactive gallbladder which was only revealed via HIDA scan. I have had surgery and am SO much better now. If you are watching this video, PLEASE advocate for your health at the doctor. Bring someone with you for support if possible. Push for answers. You will find some!! You will find a better way to live. Kenna, you have created such a beautiful support system through these videos that many will be so thankful for, including myself. Thank you.

you are exactly the same as me omg your emetaphobia explination is amazing

Thanks for sharing. I'm nauseas all the time (started with 14 and now I'm 31) treated all the time like the crazy freak. Now I feel less isolated

Thank you 💚

You just explained my 18 year olds life 💕😞

That was a beautiful video

This is powerful. Thank you so much for making this. I only have a mild case op GP, but combined with severe dysautonomia/POTS still leaves me bedridden most days . Sometimes I wonder what is worse, the illness or the medical gaslighting.

If your pictures trigger anyone, then that's on them. I appreciate your courage just to tell your story, when I came looking I found your story and I fully understand your story is uniquely your own there are common threads that apply to far more than yourself. So thank you for sharing because I am 100 percent sure it's helped me better understand and for those dealing with the same issues, they know they are not alone. I understand you pretty well as my disease isn't the same as yours, regardless it applies, people think you look okay, they don't understand on the inside you are struggling just to survive and many people don't have a support system which is all the more hurtful. I came across this disease by chance and researched it because I was genuinely seeking to understand not just the scientific jargon that is void of humanity, but really understand how this affects a daily life, it's never nice and tidy like explained on Wikipedia or mayo clinic etc. those are just a basic explanation void of individual real world experience. Hearing someone living it really makes it hit home how devastating these illnesses are. You have done a great job documenting and helping others, I know to a degree how this goes, honestly I don't remember how it feels to be healthy, you fall 8nto a new normal, and that happens over and over as disease progresses. We already know there is no cure and we have to live within these new parameters, complaining fells useless and like it falls on deaf ears and people think we are just cry babies. I know the stigma and it's very real. I do believe your attitude taken does help you live better and I know how important it 8s to have someone that loves you and tries hard to understand and just be there when you feel weak or feel like giving up. Thank you for what you have done, I am sure you have helped far more people than you even know. I know that realizing my disease is nothing compared to others has humbled me and kept me from getting to much into a pity party and thankful I don't have something much worse, I can imagine most of us use that to face our disease understanding it could be so much worse. I stumbled onto another disease that contains yours and as if not bad enough they had to deal with their joints and ribs dislocating as if it was not bad enough here is some extra hell to endure, then there are even worse things that are not survivable like ALS which is more known and many less known lethal diseases, I see these and think to myself I have no right to complain, even against your disease, mine seems mild in comparison, yet it sucks too. I guess I am like most I don't speak of it typically, I just live it and do the best I can within my current limitations. So really your words hit home and I totally understand you. Different disease, yet loss of quality of life. How does one measure the loss of quality I have never figured out, I just know that all of it is bad and there are definitely levels of bad and most of us can pretty easily find something worse, that makes us feel lucky or at least thankful we don't have their level of torment. And to say they wished they had your disease to be skinny shows me the utter ignorance they have on such diseases. I really can't hardly believe someone would say that out loud. Be careful what you wish for, clearly they would repent such uterrings given a week or month of the suffering you have faced, probably even a single day. Yes people can be completely ignorant. My disease I can't eat often not for the reasons you did but my disease basically shutdown my metabolism almost completely, if I ate normal I would be incredibly obese, I go three or four days without eating and then just one meal because I don't burn it off, even not eating I lose weight incredibly slow, calories don't add up in my case. I can not eat in 4 days maybe lose a pound if I am lucky, however I do have issues with low blood sugar from such a eating regime, I have to watch for that too as low blood sugar can be far worse than high blood sugar. 8 don't mean to get into my issue, I just wanted you to know there are many of us with different diseases but the same reality, loss of quality of life, and you got yours even younger than myself, I tracked mine to around age 27 to 28 still in the prime of life but wow I feel mine is nothing as you truly were in prime time for life everything should of been great and nothing to worry about other than grades. Again thank you for sharing. You are truly very strong ❤️

Thank you for this information and reality. I was diagnosed with gastroparesis about two years ago. I also have chronic pancreatitis. The strange thing is I weight 340. I just recently started having more issues with the gastroparisis. The problems I had in the past we thought was from the pancreatitis like a lot of abdominal pain, severe nausea, cramping, diarrhea or constipation. Now we are leaning more towards the gasteoparesis. I have been hospitalized several times, my hair continues to fallout, my nails are very brittle, exhaustion all the time, and me constantly feeling like I should suck it up and do normal things. I don’t have the energy to do things that I think I should. There are times my family just doesn’t understand why I am so exhausted or that I just can’t do something all of a sudden. This disease hits at a moments notice. Right now, I can eat non fibrous stuff unless of my allergies to food which just since I have been diagnosed have been identified. The list is very long such as most all fruits and all nuts! The hospital trips are more frequent and seem harder to deal with now. I feel they sometimes think I am only there as a drug seeking person. Most of the time, it is because my meds are not working. I do eat small meals. Large meals even average will tear me up. I guess I’m getting used to what I can and can not have. My question is I understand there are stages, so I am just in an early stage? My Dr always says I am in a book all by myself that my symptoms and ways don’t go along with the normal. Has anyone heard of someone like me having these issues? Thank you again for your channel. 😅

Thank you soooo much! That's literally just my situation! Im sooo tired too and today a doctor that didnt know about gastroparesis told me again its a psychosomatic thing when I know it isnt. It is officially diagnosed with a szintigrafie too and I probably have it since my late childhood but the nausea was always blamed on stress and food intolerances. The doctors visit today was so frustrating. Of course I was looking stressed and maybe anxious because I need to talk about really embarassing things with my digestion and because I simply cant eat..it was 4 pm and i still had the food from the day before in my stomach and I was so tired already and just too tired to explain gastroparesis to a doctor that just told me she doesnt know much about it. The fatigue from lack of nutrients is just so strong when your literally starving.. Hope they send me to a gastroenterology station in hospital and not to a mental institution where they might try to fix the broken stomach with pills that make everything even worse. Just thanks once again!!! Wish I could show this to my doctor..

God blessed you 🙏 princess, and return your health

Recently just found your channel. I do not have GP, I have something called FAP, it’s a disease that causes thousands of polyps that will eventually turn to cancer. So 20 years ago I had my large intestine taken out. Things were great for just over 10 years. Then I started to have issues. Nausea, bloating, vomiting if I eat too much. Over the last 5 years I ate less and less. Losing about 65 pounds. Wasn’t trying to loose any. In that 5 years i had 5 abdominal surgeries and it was determined that I have a desmoid tumor, right where my stomach and small intestine meet. It’s causing a minor blockage. They can’t remove it for a few reasons. Got to the point last fall where I was losing 1/2 pound a day. They treated me like I have GP, put me on all the same treatments, diet, lifestyle and such. So in the spring I had a j tube placed. Best thing ever. Put on some weight, I’m now at a very healthy weight for me. Have energy again, and don’t feel like I’m 80 anymore. Still have some issues, but over all I feel amazing. Secretly I have wished I had GP, so many of my issues overlap. Then i could have a support system. But no one with my disease has the complications I do. It’s very rare. According to my dr, my tumor is strategically placed for maximum damage. I recognized the hospital gown in your video. And felt compelled to write this. I have been a patient at the Cleveland Clinic for over 20 years. All my abdominal surgeries have been done there. I travel from Michigan, because my condition is so rare, and my complications with this disease are even more rare. Anyway, thanks for sharing your story. Wish you all the best!

Thank you so much for this! I was just diagnosed this weekend…If you don’t mind could you please share the name of your amazing doctor? I feel so lost right now…Sending lots of love 💕

Wow I’m so sorry 😢😭

i feel so good about by gp after watching your video.

I really admire the fact you have such a positive attitude. You and your boyfriend are so cute together. I wish more people had watched this!

I was diagnosed with Gastroparisis and Elhers Danlos 4 years ago surgically placed feeding tube now changed out to a NG tube surgical tube being placed again soon 😢 much love girl gastroparisis warrior 💚 and I also have a HIGE fear and anxiety about throwing up it scares me so bad but no matter how much it happens it never gets better I have had so much dental work done due to the acids in my stomach coming into contact with my teeth 😢

This really helped my emotions... It took until I am 26. I just got diagnosed this year in 2022. I always thought my ulcerative colitis was causing this and it wasn't. I have been dealing with this for so long without a label. I am trying so hard and barely able to eat. I am afraid of the inevitable. I am barely making it through school and have to make though decisions. How do you get through college with this? I am afraid that I might not make it. Do you have any way you can help?

I had a lot of symptoms years ago then I looked it up and that’s when I decided to see the gastroenterology doctor and said to be tested for gastropresis myself so they finally did a hidascan and found out that I had extremely slow emptying of the stomach when in fact of 2004 my cat scan showed food likely to retain food in stomach which nobody never ever mentioned gastropresis to me at all I was diagnosed back in 2014 I’ve had to follow a certain diet and completely lost so much weight it’s a struggle steal dealing with stomach issues I completely understand especially the nausea 😮

Thanks so much for sharing so much in this video! I can relate to a lot of this. I have digestive motility issues, fainting, fatigue, and a lot of other stuff from having hypermobile type Ehlers Danlos syndrome. Was it something like Domperidone that caused the lactation? I can't have drugs like that, due to my endocrine issues and adverse reactions to them in the past. My dysmotility, fainting, and fatigue are being managed with Mestinon, which is an old medication and a new treatment option for gastroparesis.

@Kenna K I have the symptoms and it feels like food goes to my intestines super fast and I get diarrhea, nausea, and there are sometimes I can't keep solid food down at times but then most times I can tolerate food but there is weeks at a time where I can only drink ensure and drink it real slow? Is that Gastroparesis? My GI doctor wants me to do a barium swallow test. I'm scared I will throw it up

Thank you for you video. My 13 yo EDS boy is with all the symptoms now. But, as nausea, vomiting after little food and feeling full after a few bites, pain, all these symptoms are the same in gastric cancer, how can you tell the difference? Where in your stomach do you feel the pain?

U saved me ❤

I was diagnosed with severe gp but, I would rate my syptoms as mild. I consider myself extremely lucky. it still sucks.

I’m just now seeing this but my pots specialist believes I have gastroparesis and I have emetephobia as well and it sucks having to feel so naseous all the time while constantly worrying about throwing up

I think I've had this for years. I had gallbladder removed and possible damage to Vegas nerve. It not all the time I get these episodes but when I eat too much. I end up with a swollen stomach and vomiting it up in 8-10 hours. During those hours I'm in severe pain. If I eat foods of too many ingredients tacos, burritos, etc. I camt imagine what you are going through if, this, is a daily basis.

I got officially diagnosed in April of this year and I also have emetophobia. It’s literally killing me and draining me

I like all of your videos, but I have gastroparesis I been dealing with it four 3 years😢

Im 32 years old. I became a type 1 diabetic at 25 years old. I did not take care of myself. Im not gonna lie i was about 190lbs 5'10 thew up blood for 3 weeks and dropped 50lbs. They explained to me that i was diabetic and it would be forever and i did minimal research and got insurance and my first monthly supply of insulin. I met a women 4 years ago the age of 28, before i met her, during and after i smoked, drank and did drugs. I stopped doing drugs at the age of 30 so did she. I stopped drinking at 31, not sure what happened. They say uncontrolled blood sugar levels cause gastroparesis. I was doing better than i ever had but it was too late. I ended finding myself having massive weight loss and appetite loss without really noticing. I couldnt walk bare footed to the bathroom, cause my feet would hurt so badly. My legs from my butt down to the toes hurt and i mean badly. Couldnt barely touch them let alone walk. I couldnt get help for almost a year after seeing all different types of doctors. Did the tracer test, found out i had gastroparesis and tbh atleast i know now. Ive been diagnosed for about 3 months. But have had it for a year now.this video touched my heart. Cried the entire time, its honestly terrible. I thank god everyday for my girlfriend, she goes through so much with me and she has never once even complained. I wish all of you kings and queens the best life you can have and all i want to say is god bless you and take your diabetes seriously before you have this happen to you. I was naive and thought because i looked and felt healthy that i was. Diabetes is an everyday upkeep that even if you feel okay, please i beg you. Go the extra mile and take extra care of yourself because just like type 1 diabetes u can wake up 1 day and this can happen to you. Stay safe everyone

I’m having a bad hypoglycemia rn or whatever I haven’t been able to eat today at all because of my gastroparesis I have had gastroparesis since I was 16 and now I’m almost 21 in august I can’t with this illness anymore but I’m pushing threw it hoping I can have gastric bypass surgery this year for my wieght and my gastroparesis and yes the crunchy dissolveable snacks baby food are my best friend and I also eat smoothies a lot

i love your videos. i just posted an animation to spread awareness for one of my conditions, median arcuate ligament syndrome. getting tested for sibo, gastroparesis and the rest like smas. how were you diagnosed with your chronic illness? i hate when people say they wanna be as skinny as me:(

I was just diagnosed with this but I have been suffering from it for over a year I’ve lost over 100 pounds I am 5 foot eight and I weigh 119 pounds my hair is falling out my teeth are loose and I can’t think straight I’m exhausted I am so hungry I am going to be 57 in November that’s if I make it I’ve been hospitalized twice for it and I’m sure it should’ve been more however I’ve been out of work for two years because I have work injury I’m not recovering from that surgery the way I should because of this disease I am not getting the nutrients I need to heal the way I should I don’t have enough money to buy the ensure that I need to at least get some calories in lately I have not been able to eat at all I was released from the hospital two weeks ago still trying to get some insure trying to get Iowa total care to pay for it or at least help me out I’m all by myself I have no one I’ve been divorced for four years now was in a very long marriage and it was an abusive one and now this is happening to me and nobody cares because they don’t know what it is my son told me I wish I had my fat mom back because skinny mom he’s too skinny and looks sick like she has aids and dying my son is 34 years old the words he uses to describe the situation funny anyway I am trying to get help and there is no one there to help the social worker at Iowa total care instead of doing her job she decided to call the police and tell the police that I was drunk and on drugs and threatening to harm myself I’ll because I reported her for not helping me out with this situation every time I talk to her she yells at me and tells me that I am putting up roadblocks how am I putting up roadblocks when I couldn’t remember my doctors phone number is this woman has all this information she is a social worker that is supposed to be assigned to my case therefore she has all of my medical records along with my doctors phone number two weeks now still nothing she came back with you need to get your doctor to do such and such I said no you need to get my doctor to do that after all you are my advocate because I cannot do this on my own that’s why you were assigned to my case so the police came knocking at my door thinking that I was on drugs intoxicated and trying to harm myself wow all because of some lazy lazy nurse that did not want to do their job over two weeks still nothing still haven’t gotten the ensure but I didn’t get was a knock at the door from the police he says you’re clearly not intoxicated or on drugs and you’re not trying to hurt yourself you’re just trying to get someone to help you save your own life and he asked if he could take me to the hospital so I could get some nourishment and I said no that’s OK I will have my friend next-door do it last thing I want is more attention to myself anyway just needed you to hear my story and thank you for posting these videos it helps a lot!!

I’ve been reeling from Gastroparesis. My gpoem failed and I’ve been nauseated and puking constantly for three weeks ugh !

Im 24 years old, underweighted and still undiagnosed. Be grateful to be lucky with good doctors, cause in other hand they dont care and tell you you have it in head...

I'm a guy who developed this from an experimental medication victoza, I can't believe people don't know about this more. Or have a bit more empathy to people with this. It's soul crushing. Wait who is the doctor that knows their stuff!?!? I need a name, please!!!

Did the nj tube give u energy back ect

The butternut squash and sweet potato baby food are my favorite sadly

What surgery did you have. I’m getting a G POEM in a week

What surgery did you have ? I have gastroparesis ...its awful... living of ricemilk and protein powder

I was diagnosed with idiopathic gp when I was 12, then it went away randomly. Now I’m dealing with possible partial intestinal paralysis at 25😔

My mother has gastroparesis, Thursday we have another appointment with her GI. What surgeries helped anyone here? Thank you.

I’m sorry if some of this sounds kind of strange my spelling is bad it’s only because I have an eaten in days I mean I think I’ve had it for the whole week 300 cal

❤