Cognitive issues tend to be indiscriminate alright.

Dissociative Disaster ugh I feel like that’s me sometimes even though I don’t have brain damage. I have a disability tho and I get overwhelmed crossing the road sometimes it’s scary! Especially in lots of traffic 😂

Yep or remember stuff from 20 years ago but not remember words or where you put your keys. Mine was caused by a radiotherapy beam through my brain.

That's basically my NVLD 😯

Miss Adjusted In America we say: ”hold my beer.”

Colleen Nikstenas In this case it would probably be “Hold my earl grey.”

Kenji is a SMOL boi Hehe!

@@mikadoedwards3117 as an American who drinks tea but not beer, I shall adopt your saying.

I am the same. The only problem is that when it comes to packing the small one in the car, I find it difficult to disassemble and lift into the boot - especially the battery. The big one looks quite flash (I had a kid ask me if it was a motorbike), and will easily take me into town and back (a round trip of about five miles).

ThisLazyPanda if she made a GoFundMe I’d totally donate! Wheelchairs/Scooters are so important for people who need them!

RIGHT????

@@amyhull754 This girl I know in a wheelchair saved up so many soda-tabs (in Canada we have this thing where you can donate them and they'll recycle them into a wheelchair :) it's really cool :D

Shabby Cat www.karmanhealthcare.com/blog/2018/10/17/what-are-pull-tabs-for-wheelchairs/ That’s the closest I could find. There is a link at the bottom of that post for the actual website of the charity.

I vote yes on the bike!

I started with a stick and so far I have worked my way up to two walkers and a scooter! I do miss the days when I could just jump in the car and drive away!

PageMonster thanks for sharing these tips, these are really helpful

Yes on the long skirts!! wether a scooter or powerchair - always be SO careful with long and/or full skirts. I have had my share of clothing tragedies on mobility aids :(

You can either have a scooter or a car on mobility. However you can get an electric wheelchair from your local wheelchair service but there assessments are strict and determine what you get. Plus then you need a WAV car also a whole other issue and at least 10 videos on the process it’s a nightmare. there really is not easy or right way I guess you just work out what’s best for you

Do you Think i'd should get one?? I AM dyspraxic and trip a lot, it's dificulta to climb stairs

She's unlikely to get one on NHS as she can walk around her house x

I have mid wheel. So much easier. Depends on how many wheels the chair has though. Mine has 2 main drive wheels in the middle and 2 stabiliers (!) front and back which makes me feel a little like a toddler on a training bike but makes a huge differenct to stability and also its ability to climb chunky kerbs :) I've never had a chair that had 4 wheels though (rather than the 6 on mine). Might try one of those out as I need to start looking for my next one!

When I was a carer on of the service users wheel chair was a NIGHTMARE to steer. Think it was rear wheel. Ran myself over SO many times

Vanessa McCoy that is an awful, awful experience. your sister and the other mobility device user are WONDERFUL. while i can't think of how to wreck karmic vengeance upon any who incite such malice unto others, i CAN offer up some cool Halloween costume/cosplay options that incorporate one's mobility device? some arts&crafts, stickers, ribbons/scarves/ties, &/or clip-on bike/hair accessories big enough to clip onto the device. 1. Barbara Gordon, the first Batgirl &, with the moniker "Oracle", the leader of the all-femme Birds Of Prey team, and information broker to DC's superheroes. she was a permanent wheelchair user when she went by Oracle & operated from a secret hacker's lair in a clocktower in a Mission Control role. she got retcon'd to being the ONLY Batgirl (erasing the history of her choosing & mentoring her successors + aging her down) & is completely ambulatory currently BUT! with a red wig, some glasses, a "laptop", &/or the entire batgirl costume (to mix her two roles together), you can ask your sister to dress up as Cassandra Cain (Batgirl II, essentially wears Batman's costume but with a full-face mask & yellow outlines) or Stephanie Brown (Batgirl III, long blonde wig & a purple Batman suit). 2. any of the Scooby Doo characters with some cardboard or other craftiwork to dress your mobility device as The Mystery Machine! your sister can dress up as one of the other members to match! 3. a Star Wars rebel pilot: wear a white bike helmet with a visor, an orange outfit, & a white jacket/vest. use any vaguely recognisable Star Wars symbols you like (on scarves/pins/stickers/etc) to dress up your mobility aid! if VERY crafty, you could mock up a cardboard cockpit, blaster turret, or an exterior ship! 4. Pirate King Elizabeth: dress to mimic any of her film costumes or just as a generic pirate & deck out your aid to be the ship you captain! 5. Wonder Woman in her "invisible" jetplane - since it's invisible, you don't need to accessorize your scooter/chair at all! 6. any Disney queen or princess with your mobility aid dressed up as your throne! (if you have the cardboard/craftiwork, you could mock up an Iron Throne for a crossover or Just For Fun). 7. a knight/prince/princess (specific or generalised) on your trusty "steed" (be it a tiger, unicorn, dragon, or mortar&pestle if you want to be Baba Yaga). coloured scarves/ribbons tied onto the mobility aid can mimic the hair/fur/mane & tail/s of your "steed" and googly eyes stuck on (if you have lights on your device, no need to do up a face: it "has one" already). i always find dressing up makes me feel more secure & more confident: the visibility makes it safer for ME (i have low vision: if i stand out it means others see me coming when i can't perceive them, & it also makes me more "public" so that if anyone hassles me others will notice immediately. i am able-bodied but frail & often anxious, dissociative, or unaware of my surroundings. dressing up makes me feel as powerful as those i'm dressed as & it also heightens my visibility - it also tends to endear me to "the public" so people are more forgiving when i have to squint right-up-close or when i miss social cues. i know that most people restrict "costumes" for special events but, since my ventures outdoors are so few, when i go out i am almost always Dressed Up in SOME way or other. if this isn't helpful at all, sorry! i do hope it at least gives you some ideas on tinkering/decorating your mobility aid/s that are so very essential to your wellbeing. anything that give you a bit of confidence, fun, or fancy when using it is something to delight in!

BOOM. Well done for speaking up. You don't ever have to ofc, it's not our responsibility to educate people. But I'm glad that you did. Hope you're not too scarred from the experience.

That's so brave that you waited, observed and spoke up. I'm sorry they were so mean and small minded.

You can do all this in the UK :) I got good advice when I bought mine. We have to buy our own generally. I spent a long time looking for grant funding and I was very very lucky that a church charity agreed to fund my last powerchair. I'm a bit stuck at the moment as I need a new one now, some years after the last one has had lots of replacements and I need to retire it. I'm struggling to get any funding. The NHS wheelchair services staff are coming out to see me to see if there is anything they can do to help. They can usually only supply indoor wheelchairs which is useless to me (have to take my daughter to school etc), apparently there is a 'tiny' possibility that they can apply for an indoor/outdoor powerchair for me! (like I have now) but I think the criteria are hugely strict and I've no idea if I would qualify (I suspect not), but keeping everything crossed. Otherwise my current chair may have to limp on for a few more years whilst a few more bits fail here and there! (obviously mobility aids failing over time isn't limited to powerchairs and some can take more punishment than others :) )

Downside is the custom powerchairs are eye wateringly expensive between like £7 and £25k depending on what you have on it!!!

@@ixykix indoor/outdoor powerchairs usually only funded if you a full time powerchair user. The powerchair must also fit into your house so you can access bathroom, kitchen etc with foot plates extended. There is also medical criteria like cant have seizures etc

@@ecologist_to_be yes it's pretty strict. I don't qualify because I'm not in my chair all the time. I'm in the process of applying to charities again though

Cool~ ill add the norwegian word Solskinn to the list🌞

In German it's Sonnenschein. ☉

In Dutch, zonneschijn :)

Italian is considerately less beautiful sounding, but it's "luce di sole"

Caroline oh Caroline I’m sure it’s beautiful when you say it! I’ve heard the most beautiful sounding word in the english language is “windowsill” which looks unpleasant but sounds lovely.

*hug* Well, then you obviously need it. For any weird incidents, you could carry little cards that say "Yes, I have a disability, even though you don't see it and using this toilet makes things easier for me." So if somebody gives you shit for going on it, you just hand them the card and don't have to deal with them personally.

I can get claustrophobic very easy. And if the normal stalls are really tiny then I don't feel comfortable in them and so I go into the disability stall. Normally it's fine because there's not a high demand specifically for that stall and you only need to use it for a couple of minutes. I did have one lady very rudely remark on me using the disability stall though. Which makes her the a$$hole.

@@ebunni5862 Yes, I can imagine.

@@ebunni5862 it's a real problem at my school because there are *2* disabled toilets and only the kid in a wheelchair with a full time carer is supposed to use them. I have arthritis and often need to lever myself up but can't in a narrow, smoothsided stall.

@@emjenkins464 that's pretty awful. Do people not take your arthritis seriously?

Hm, could you sew coverings for the braces? Like, from fancy fabric with decorations on them?

Johanna Geisel I wish. They’re Velcro. You don’t to have anything that slides of the arm because it’ll pop my joints out. Weirdly I have different color RayBans so I’m just matching them to the color tapes I get. Haha

But it also comes with the large turning radius that gave her so much trouble on the scooter. And you cannot put your feet on an even surface like you can do on the ground of a scooter. A bike saddle is also not as comfortable to sit on as a wheelchair or scooter seat is. IMHO the trike is a cool thing but only for exercise and not for attending events where you have a lot of "standing around" time.

Even though I have a power chair I actually really want one of these as well!

I don’t think she meant that as a primary choice. Just for fun.

I'm pretty sure that you still have to pedal some of the time too.

I was just kidding a bit. :) The trike has a lot of issues, it's probably giant and weighs a ton, wouldn't help at the airport or on public transit. But it's so dang cute, I had to encourage it.

PS: you and your wife are absolutely gorgeous and I am so happy for you both!

Yes i bet the rental company aren't charging them correctly

How do you find mobility scooters with a smaller turning radius? It is the biggest problem I have with mine. Can’t get it in buses and generally can’t use it inside most places. It is very outdoor only which is a problem as my mobility is too poor to walk in shops and stuff too.

@@lotusflower474 my dad got his from the Veteran's Administration and I'm not sure how my aunt got her's and as she passed recently I can't ask her. I did go with her on the bus in Milwaukee several times and she had no problems so it may just be an issue of trying them out? I just know that they do exist.

Did... did a sea witch turn your fishtail into legs at the price of you being only able to walk with pain? Is your husband a prince?

The guilt of using mobility aids while young is one of those nasty things that society doesn't really help with. If it helps though, I've been using mobility aids (mostly canes) since I was 16 and I'm nearly 20. I've been able to work physically demanding jobs but I still get a lot out of using mobility aids. In the end if it helps manage your pain it's definitely worth it and I hope you find a system that works well for you!

@Liz I find it so hard to not feel guilty even though I I have no reason to think that way. Daftest thing is not one person has ever said anything unpleasant to me and yet I still think I know what they're really thinking lol!

@@johannageisel5390 Do you ever wonder if Hans knew someone with a chronic illness?

Same where I live x

I feel very similar to to you and hate that people might think I need my scooter because I'm too fat, not because I have a disability (MS). It's hard enough to accept you need something for support.

If I hear people talk about me in a way that I can hear it, I always challenge them to say it to my face.

I did.......

@@renagodfrey2138 Great! How did they react?

It LOOKS like anger, but i think it's really fear...of needing help themselves, or becoming ill or old. gentle hugs

L. Findlater I smiled and said “thank you for being patient with me, I broke my foot and can’t walk very far right now”. They in turn said “I hope you feel better soon” It was glorious.

If ppl are referring to themselves?

@@chaelao.4321 Well, you're certainly free to refer to yourself any way you please, and I wouldn't yell at you for it. … But I'd privately think you were incorrect, as having and using the wheelchair you need is more liberating than needing a wheelchair and not having one. So "Wheelchair Liberated" is more accurate than "Wheelchair Bound" If you're limited by anything while in a wheelchair, I'd say it was the stairs and narrow doorways, and being treated as if you were invisible by those around you. And the chair is not the cause of any of that nonsense.

@@CapriUni Power chair empored?

That word 'bound', aaargh!

I love whelchair bound along the same lines as beach bound, that's awesome

I weighed this up a lot when I changed from a scooter. I went for a more substantial powerchair that I use outdoors a lot but its ok indoors in most spaces. It's a pretty big chair but it's a good compromise between both

@@ixykix Do you take out in a car? Staying local gives you far more choice, but if you need to transport it then that can be a different kettle of fish.

I'm so, so sorry that happened to you. I can empathise. My advice is, as much as possible, try not to think about things you can't do, and how you could have done them if only things had been different. I find concentrating on the things you are able to do is much more helpful.

An antibiotic (Gentamycin) nearly killed me a few years ago. Luckily, I was in hospital at the time. I had flashbacks for a while, but they subsided. You can refer yourself for counselling. Ask your local Mental Health Team if you're in the UK.

oh gosh I'm so sorry you're having to deal with this. the same thing happened to me; I got akathisia from a med, then got it under control after I'd quit the med just to have it triggered by ANOTHER med I've been taking for years that can apparently also cause akathisia in rare cases of which I had no idea. are you on anticholinergics to help with the akathisia? I've found them helpful (have been on two different ones), although they do come with their own side-effects which are also pretty uncomfortable. have you been able to quit the medication that originally caused the akathisia? seriously, if you want to talk about it or just vent to someone who knows what it's like, let me know. all the best!

daisychains thank you so much, it’s great to hear from someone else who’s had the experience. I’m not on anything for it yet as I’ve only just found out that this is what’s going on, and I’m still in the process of tapering off the meds that caused it. Hopefully I can get it under control it’s just very scary that I might have it forever, especially because its so agonizing. Thank you for the support, it means a lot

Fiona O'Connell I suggest you try counselling/ therapy. It helps a lot.

Do they not produce this model anymore?

Agree. Power chairs so much easier to use on public transport, in shops etc. Only downside is needing a specialist car costing £££££££££££££££££.

@@johannageisel5390 yes, something very like it, but I think I'm more devastated because it feels like a family member is leaving! (strange I know, but we're all fond of him ;) ) my needs have changed a bit since first buying one so I will probably look for something slightly different this time

@@ixykix I see. I wish you good luck in your search!

US websight: www.ergoactives.com/products/crutches UK store: www.mytravelmobility.co.uk/ergobaum/

Do you know you still have to tread the tricycle? The battery is only helping you, not doing all the work. You can still get very tired legs.

They cost more though that's the downside!

Well yes that is true. I live in the Netherlands and I got mine from the city. I did not pay anything for it, they covered the costs. Can’t you get the costs covered?

Familie Kemp-Pals Nobody covers the costs for these aids in the UK. You have to pay for them yourself.