i’d never thought about that! yeah😅

@@Zara_Beth Dang, now I'm sorry for bringing it up. It wasn't my intention to make you anxious about a scenario like that

@@BlackPlectrum no it's okay, its another thing to plan for to make it safer for me! good to talk about possible scenarios so things can be put in place to try and prevent the worst case problems from happening :) life with FND is a constant problem solving game haha

Ik but if she prays and keeps her head high she gonna make it

@@Zara_Beth hey :) can I ask you, did they give you some medicine, or what nevrologist says? I am asking because I also have Fnd., and have similar symptoms

Most likely none, it’s quite rare

Same that’s exactly what I thought

i knew a girl who had epilepsy and one time after a science class she told me ”i had a seizure during class but no one noticed :/“ 😭😭

@@ao1fe That is really sad

@@ao1fe it's a common thing for us with seizures to have them when nobody notices!

yes, there are many different types

Theres ticks and there sometimes the person doesn't even know I've always known there are different types even though I never been around or no anyone who has them

Those are known as "generalized tonic-clonic seizures", or "grand mal seizures". They're the best (or only) one known by lots of people, but they're not actually all that common. As far as I understand, absences and tics are far more common.

@@phobos.anomaly my mom always tells me the grand map ones are the worst ones besides granny seizures, and they can kill you?? 😨

same, i also thought that. i didn’t know there were different types! this channel is educating me

Damn that sucks! I’m so sorry to hear that. F@ck those ppl!

Same!

Kids are horrible in general and will always find something to pick on but those teachers should 100% know better. The way teachers treat disability is a complete travesty.

Me too!! I had absence seizures and petite mal seizures through high school (my first one ever was on my first day!) I got bullied for it as well. Kids are so cruel. The awareness is so key!! ❤️

I feel like it would be better if teachers treated these episode as "daydreaming", rather than bringing more attention to your medical conditions in fron of the whole class.

Can I ask you something yes or no

Yes even though I don't deal with this I still imire how strong you are and positive mindset with this because I know these days are hard but I think you are amazing for getting through it so amazing ❤

Some teachers are just rude and want to write off behaviour like this as quickly as possible. So it wont hurt their pretty minds thinking about what someone might be going through and labeling it as bad behaviour or poor discipline. So happy your environment is aware and keeping an eye on you. Your strong willed person, I pray one day by some miracle your condition can be cured.

I delt with this a lot too in highschool, I only found out about my epilepsy when I started having Grand Mal seizures in my sleep in College, it's a scary thing for sure

I have these too girl power through it

But sleeping in school is banned

I have a few autoimmune includinG POTS and I agree when my seizures and fainting started 4 years ago I freaked out some, but now the most annoying thing is people freaking out makes it so much worse. My husband learned very quickly just be a calming presence and it’s so much better for me.

I can relate to that feeling when I get out of a seizure. Everything seems normal, but everyone's gathered around because something happened that I'm not aware of. I may be on the ground, but I haven't taken note. I just get iritated and defensive. My neurologist told me once she had a patient throw something at her, after emerging from a seizure. I've never gone that far, but I can understand.

I don't have a medical issue but the safest place for you when waking me up is at my head my arms are the last thing to react when I wake up my feet are the first and their pretty accurate my brother and sister could tell you it's a defense mechanism against being tickled I'm ticklish all over and its literally why I don't hug if I hug your safe it means I'm not that ticklish at the moment though I think most of it came from dry skin ever since I have switched to sensitive skin I have been less ticklish after a car accident I about almost kicked the paramedic who was checking me over kinda forgot to tell him I was ticklish probably thought when reacted he had found a spot I said it's alright I'm just ticklish the way I reacted body shivering and a little shake like shaking something off is the only warning you get after I tell you not to touch me as the next time it might be a kick the shake and shiver is my way of saying I barely caught that kick reaction don't push it

As someone who has Epilepsy and hasn't had a seizure in 30yrs I hope you are able to be seizure free 1 day

@@alexusturner3231 i have a friend who has epilepsy. My friend Catie Bowman has epilepsy and she has her mother who catches her seizures in petite mal seizure types but would help her when a grand mal seizure happens. Catie Bowman has a brother who is also an epileptic person. Just she has the petite mal seizures more than grand mal seizures, but her brother has grand mal seizures more than petite mal seizures.

Your mom

@@chevellmcintosh4525 don't be saying roasts like that towards people with disabilities. How would you feel if I roasted you by saying "your mom" when you suffered a concussion and a fractured leg bone and have to be in a wheelchair for a long time? You'd feel upset, won't you? Don't roast these epileptic people.

Man I nearly had a seizure three days ago had to practice my breathing exercises just to stop it

Zara thanks for hearting :) love ya💙💙

These are not seizures in the sense you are thinking of. This girl has a functional neurological condition thst is why. If you google functional neurological condition you will get what I'm saying.

@@lindasmith6072I can talk perfectly coherently during my auras, sometimes throughout the actual thing (tho that’s more rare and I’m away with the fairies to look at) We are all different

Its good to know that im not alone in this bc I have seizures and I’ve had them in class before and some people would make fun of me and start rumors about me

It's so bad when you have them in public, like school or something. I don't have them, but I can imagine how bad it would be to have those in class, especially if you don't have a good relationship with your classmates and they make fun of you or smth. I have tics and when they happen in class, most of my classmates don't know what they are and they start making fun of me or call me crazy. I hope you are doing ok! 💙💙💙

My friend Catie Bowman and her brother Daniel Bowman are both epilepsy sufferers, you're not alone with the epilepsy and seizures too. I also help my friend and her brother whenever either one of them has a grand mal seizure, or a petite mal seizure. On march 29th 2023, Catie Bowman had witnessed her brother have a seizure at valley forge, during her school field trip. Her brother isn't a part of her school (she's in a cyber school called reach), meaning, he's not a learning coach, or a teacher, or a student, he is only 27 years old and he wanted to go on a hike through valley forge, on that day, so he went with her and her sister Michelle Bowman whom is her learning coach and a caretaker in Reach, and went to valley forge, then Daniel had a sudden change in blood sugar and blood pressure at the same time, happened and he asked for a Peanut butter and jelly sandwich from Michelle, but Michelle knew they weren't near a lunch area, then Daniel had a grand mal seizure. Catie tried to help him, and so did Michelle, then a park ranger, and several hikers came by, 1 of the hikers called 911, then daniel was taken to the nearest hospital, then Catie and Michelle told the park ranger that they were on a field trip and the Park ranger gave them a ride to the meeting area for the school, but the school never showed up, then Michelle called the park ranger, and the park ranger came and picked her and catie up and catie said "let's go to the hospital." And the park ranger decided to drive to the hospital, but he let his boss (or whoever he calls on walkie talkie, probably a dispatcher, specifically for park rangers) know he was going to the hospital that Daniel was in, then he got the right away to go to the hospital, then the park ranger drove to the hospital, and Michelle called her mom and dad and told them about the seizure Daniel had, then her dad had to tell his boss about Daniel's seizure, but he had to clarify that he was talking about daniel and not david since Catie's dad's boss only knew David Bowman personally, since both Catie's father and Catie's brother David both worked at SEPTA as traffic checkers, but Catie's brother David noved to Florida and got a job as a security guard at a museum, and Catie's dad became a train modeler, or someone who builds model trains that the transit gift shop sells in the store at SEPTA's transit gift shop. Catie's dad had to cancel his work, Catie's sister had to let the reach Montgomery county community coordinator know that they're not gonna be able to make it to the field trip, then Catie's brother David had to pay an uber for Catie's mom to get to the hospital from home, and Catie's mom had to get woken up and get ready and such, then idk how many hours later, Catie's mother, father, and catie and her sister arrive at the hospital, and went to meet Daniel and then he was discharged, and then Catie and her family went to the bus stop and then took a bus home, well, several buses to get to home. The park ranger went back to valley forge park after dropping Catie Bowman and her sister Michelle off at the hospital's emergency room meeting entrance, and other things happened. Seizures are crazily scary, I can tell. And Catie Bowman is always worried that she wil end up having a seizure and dying, like how Michael Jeter died of an epileptic seizure.

@@tjfreshboi1577 What the? There is nothing to make fun of... Sometimes people are strange. Depending on how these things go, they look scary even for the people watching...

Fr tho I’ve witnessed them sometimes and it’s scary as heck, sometimes I even try to get up and help if someone doesn’t get there in time, but thankfully I’ve only witnessed 1 seizure and not many, the other time was a faint I think. God bless everyone.

well spotted! that’s one of the symptoms i get when the (suspected POTS) fainting symptoms begin ❤

I have that too, just not ADHD 👍🏼

If I may ask, what does it mean when your hands mottle? As in what causes it? I get it quite a lot in my hands and feet and and I’m suspecting I might have pots

I have adhd and not POTS

@@Zara_Beth I am interested in hair 😊

@franktank516 I flooded my entire flat and my neighbours ceiling leaked flooding his floors. I had a seizure and fell asleep whilst running a bath. I was asleep almost 2 hours. I ha to get a bath alarm and have a person always with me at the time. It's scary to know you've no control over yourself during every seizure. I'm sorry for your friend that's terribly sad 😔

Do you have any advice to fighting the fear? I've been scared to leave the house for years haha

​@@JessMcNichollhonestly for everyone its different. But the one thing I did learn is to cope with it and not fight it. The more you fight the worse it gets. For a long time I felt broken and useless. I had people that cared for me help me through the process. Sorry that this reply is late.

they probably know what she has and she would probably have told them not to worry about it etc, or they are in a special school and/or the teachers are trained with this sort of stuff and know how to handle it

She clearly tells the girl next to her and the girl tracked how long she was out. If this happens daily, there's no point in fussing over her. She knows what's going on and it's not life threatening.

Of course they see?? There’s nothing to help with.

There’s nothing they can do. Sat there next to her friend, with a teacher who knows what to look for, is the safest place she can be.

@@pey-petZC maybe

Have greater ambitions than accumulating likes.

Oh dear I'm sorry

Thank you so much! welcome to the community ❤

@@Zara_Beth fainting is for the WEAK

you are never alone ❤

I hope you are okay. I'm type 1 diabetic, and if my glucose falls too low, I could have a seizure. I've never had one, but I saw a kid in middle school have a grand mal, and it scared me a lot.

@@lelouchvibritannia4028 i hope you will get better soon, ik it's not easy to live a life with a disease but Dw you will get well soon I'll pray for all of u guy's who suffering from any kind of disease :)

@@LucyHeartfilia9942 Thank you very much, and same here to you.

They probably all know about it and I’m guessing she’s told everyone just to let her go through it and she’ll be fine. I mean her friend there knew how long it was so she was aware. Well at least of the faint, perhaps not of the seizure parts.

20 minutes 😅

Can I just ask can you hear what is going on around you when you faint 🥰

@@Joandpriya nothing! i'm unconscious

@@Zara_Beth thank you so much for replying to my message I really appreciate it

@@Zara_Bethhi um how often do you have seizures?

She’s not epileptic, she has FND which causes PNES

@@eneedham789 ah sorry. I saw the word ‘seizure’ and kinda linked it to epilepsy. Sorry I assumed 😬

@@sootyskeeper that’s ok! I just thought I’d mention it because functional/psychogenic seizures tend to look a lot different to epileptic ones.

Same here. I am fortunate enough to have gotten genetic testing (for EDS) and find out I'm not making anything up.. PUSH FOR YOUR HEALTH! you matter the most. Disabled people always feel like everything is messed up with them or feel like an imposter. You got this

In the UK you are asked to declare any disabilities or other issues when you apply to colleges etc to discuss them, and then this information is relayed to your teachers in the form of a support plan they can access

during seizures like absence seizures in this video, i'm completely unaware and it feels like literally waking up when i come around from one - i'm confused and remember nothing so i'm trying to gauge my surroundings and figure out what the heck i was doing before it came on i have had the odd full tonic clonic (convulsive) seizure where i remember snippets but usually i don't and i'm not there ❤

@@Zara_Beth ok thanks you! xx

Have you looked up conversion disorders? I personally have functional Neurological Disconnect. Symptoms are differential in intensity. But some for me are limb numbness and weakness. Along with non epileptic seizures and fatigue, which lead to passing out. FND won't shop up in blood work or MRI scans.

@@yinyang5529 i havent but I recently got a preliminary diagnosis of psychosomatic non-epileptic seizures and was told to try cognitive behavioral therapy bc its caused by an overreaction to anxiety and external stressors. I did look up covering disorders though and that matched my symptoms so well so I will be asking my neurologist at my next appointment! Thank you so much for your response! It makes me feel less crazy knowing other people experience the same things 🫶🏼