I’m not sure if I had a stroke or what happened I had Covid three times and I felt my brain swelling down like my neck area. My school plates had moved and overlapped over each other my scalp for a year. I couldn’t really speak right my eyes were glossy, my leg was kind of like dragging it still does, though I used to rollerskate but I mean it’s a lot better now . I’m trying to get back to work. I’m gonna go back to work. It’s been three years. I want to try to get this done. Try to get some sort of a life back. Thank you for posting these videos.

And steroids build and stay in the body forever. Not many doctors disclose that.

I just want to have a rhizotomy done every 5 years in the places where it hurts I'll take the 6 weeks of healing where it hurts worse at first

I have been constantly dizzy for 11 years now after a concussion is this something surgery will help??

I thought i was going to die physically the worst pain etc...never, ever again. I would die first!

Are there ever cases where this may be related to Chiari malformation?

This absolutely makes sense. I have chronic migraines. Thank you for putting out these videos. The more I know, the better informed decisions I can make.

Nerve blocks never gave me any relief. Severe DDD.

I have pain in the front of my neck that started behind my head behind my ear and traveled down my neck to back of head.one side..and to my collarbone. The first neurosurgeon mentioned occipital neuralgia because I would cry when the front and of my neck muscle would spasm. He could actually see it happening. This is all one sided pain..I don’t have migraines. I also developed Allodynia later on under my neck, front of one side of neck and chest. I get a sensation that goes all the way from my occipital nerve behind my ear down my arm into my thumb. I’ve had head mris and Ct scans which show I have issues with c-3 c-4 but I get the feeling that that not really causing this. I’ve seen two neurosurgeons that are stumped. I was offered ACDF surgery if a diagnostic cortisone injection in that area gives me relief. Does this sound like I could have occipital neuralgia?

How do I get this surgery? I’m so tired of living with this pain. I honestly can’t concentrate anymore as it activates the pain

Can this help with dizziness??

Wow thankyou so much for sharing. As a migraine sufferer this is invaluable

Can this help with dizziness?? Vestibular migraine?

I have been dealing with a headache issue for a number of years and I just want to thank you for making these videos. They are so informative and they have helped me have hope for the future. Thank you so much.

Can this treat vestibular migraine?

Thank you for being honest about your recovery!!! I have had 2 decompression surgeries (NOT by Dr. Lowenstein) and experienced that same horrific recovery. Some part of every single day, is spent in bed in the dark w/the terrible pain. I can literally understand your recovery!!

Having patient updates after a full year of recovery would be great! It could be something as simple as they submit a video by phone, or do a FaceTime call with them! That is the true test = seeing how patients do in the long run of recovery. Thanks so much for your info today!

I can empathize w/the patient w/several diagnosis. I have several headache diagnosis also!

I wish there was a way to see these trapped nerves on an MRI. I know the nerve blocks are available

It doesn’t matter if you office is hectic - we just want to hear from you and your valuable information!!

Do you have an update on how this patient is doing now? Would love to hear if the monster pain stayed away!

Do you offer consultations to see if someone is a candidate for surgery? I need to see what that entails. Thank you

Couldnt treating the teeth clenching resolve the issue? Can temporal neuralgia cause pain in the center of the forehead?

Dr Muehlberger did my surgery in Jan of 2021, for the decompression and resection of the occipital nerves. I take my hat off to him with gratitude and can happily say after several years of miserable pain from the peripheral headaches and other issues, I am happily pain free. He has given me my life back, and I can recommend to people who are eligible for this procedure, it is a life changer :=)

I had 5 February my operation. When i wake up the pain was gone 🙏 !! This operation is a Miracle 🙏 !!

What could be the causes of migrane headaches after resection of temporalis muscle and placement of a medpor prosthesis with Titanium screws??

If the nerve blocks don’t work does that mean the surgery isn’t an option?

Are there any ndph patient testimonials?

Oh RIGHT. Surgery. Injections. “Other things”. Instead of just a very effective prescription like Fioricet. 🤡. Gaslight, label and slander people who benefit greatly from a prescription. 🤡

Can you tell me something please! I had surgery in September and they put a nerve block in my elbow. Because my elbow was blocking my nerves going to my left hand. Now, my whole left side like I’m getting sharp electrical shock in my leg and hand. Can you please explain why

Awesome! Congratulations!!

Do you treat NDPH with only forehead pain? Tension type with severe photophobia? 6/10 pain all the time

This is such a power story. Thank you for sharing! Your words will help so many people understand what living with migraine is like. I’m so happy for the transformation for you!!!!

It does matter what we “call it,” b/c insurance companies will allow for some treatments for some diagnosis and not others. I’ve been through this game for decades!

I had a session in hospital last Thursday arvo . PROLOTHERAPY. Wasnt 2 bad 4 2days . Mainly 3/10 . With some periods of time around 5/10 for the fri /sat . Sun Mon & 2day Tuesday back 2 my old screwed up life of 6++++++/10 . Just put on some pain patches 2 assist me Headaches and Migraines.

What a beautiful woman and supportive husband. I am looking forward to having this procedure for my lovely wife of 50+ years. We have suffered the same situation for the last 50 year and are reaching out to Doctors to give us help. Thanks for sharing your life.

I feel everything she's saying here, especially when she said the pain drains everything out of you. As a daily headache "sufferer" myself, I pray the day will come when I can actually do things with joy, just like what Christa says. :)

Wow.. I resonate so much with this but I'm 28 now and have had migraines since I was a baby.. They affect my vision, coordination, speech, and balance..

have you tried botox injections?, also find a neurosurgeon and neurologists to both agree nothing is helping you, your insurance should cover any out of network procedure. I am in nyc and I had 2 out of network surgeries and I get meds and botox injections. don't give up , annoy these people (insurance company) the same way the migraines annoy you

After you had your first surgery what percentage of A reduction in migraines did you have and was it not possible to do both surgeries at the same time?

I had mine yesterday morning. I’m in pain hopefully it gets better

What nerve supplies roof of mouth tongue throat cheeks lower lip? Im in so much pain.

My son's are getting worse plus he has grand mal seizures. He has been getting vertigo and has to lay on the floor at work. He said his head feels like it is going to burst. Trying to get him into the Migraine clinic but seeing an internal doctor for now. He also just had a bad case of covid. Any ideas? He was given 2 prescriptions but hasn't used them yet. Too bad we aren't in Colo. any more. I lived there with 2 children for 50 years. My son is 37.

I watch videos where there is different top of nerve decompressionOn the mine wasn't not is intensive as other videos I watch where they have a drain tube and a pain pump or something my match just cut across the back cleaned up the scar tissue and some backup I didn't have much hair cut off in the bottom ahead..

I am one. Only slows it down but a migraine sroll breaks through. Oke month i felt it worked been about six months.

Does not work for Everyone. I had it all it did is slow it slower still still breaks through

Thank you for the video. I'm 3.5 weeks post op from having Occipital Nerve Decompression surgery. Instead of a vertical incision on the back of neck, and a few on head and other parts of neck he did 1 horizontal incision about 6" across IMO where I would say C1 is. The pressure and tightness where the incision site is is unbearable at times and gets tighter when watching TV, on phone, PC or really anything with any amount of eye strain. Also there felt like a band around the crown of my head that would tighten as well, thankfully that is getting better. He said he removed the LON and TON but left the greater. I need to ask but I am not real sure why he removed LON and TON and also stated they were tucked into a muscle for blood supply. He said no chance of them coming loose or out of the muscle. I have had migraines 2x as bad as before surgery and have only had about 3 half way normal days. I questioned why the horizontal incision over the traditional and was told it creates access to all nerves at once. I guess that's more important than the patients recovery and pain they go thru. I couldn't sleep on my back for 2 weeks, felt my head was laying on a 2x4. I'm guessing this and the tight pressure where my incision is is due to the incision pretty much being from ear to ear. Not sure how much muscle he cut thru ect. I asked for a pic and it showed just the greater which looked really damaged, as if they were stretched and frayed like an old rubber band. I guess my question is is there anything thing I can do about this and does this sound like a usual recovery. If I turn my head certain ways i can feel a nerve in my neck shoot up to the left side right above ear, Not sure if that would be the less or greater. May be another nerve needing decompressed but no around here does that. (Nashville area) Said all my symptoms post op would improve 6 month to a year. I sure wasn't told the pain and issues that would occur post op. I know this surgery was needed, just 2nd guessing my choice of who I chose to do it. Pretty much the only one of 2 in my area and apparently has done over 500 with 90% success rate. 50% no recurrence of a migraine, 40% over all improvement, with only 10% no difference. IMO I'm seeing and understanding and wishing the incision was vertical. Thanks for your time.

Nerve block or a Steroid Epidural Injection?

wish I lived in america , the doctors here in the uk are useless with this stuff

What if occipital nerve ablation don't work? Well it worked..... I went from debilitating migraines to pressure headaches and fatigue quickly with no change in double vision 😫. It got better but still in pain a different way now