So sorry. I cut mine last year as well. It’s so awful.

Thank you so so much. 🙏

Thank you. I have a treatment plan from my doctor but am resting from trying new things right now.

Thank you for watching ❤️ and for the love and prayers!

Thanks for watching!

@@VAshleyETC So do you have a "plan" on how to try and get better or taking it day by day... It is hard when you have been sick for many years... Sometimes I feel I try to find something to see if it will get better other times I don't know if I just need to surrender and let me body do what it is going to do.

I go through waves of both I think. Sometimes I go through a period where determined to try all of the things. I have a list of medications and I’m ready to go. But then there are periods of times where I’m too exhausted and just focus on resting. Sometimes I dip into apathy. I’m now focusing on just trying to move at the speed of my own body. To not feel like I have to be in a rush to get better, but to not lose hope that there’s something that may help me feel better when I am ready. Just focusing on giving myself grace and not feeling bad about it either way

So yes I do have certain treatments I want to try. There are so many. But I’m often too scared or too tired to do research on the treatments so I wait until I feel confident. But I’ve waited a few years one time and that was detrimental. So I just try to balance it out. Try new things when I have the energy to feel more confident about trying it, and taking breaks from that when needed

Thank you!

Yup

@@VAshleyETC Did you call and dispute the charge?

@nawluck nah, it’s too late unfortunately.

So sorry.

Ugh!!!

I’m so sorry! Communication should be the least of our worries and yet here we are! 😭 wishing you good health too 💜

Okay lmao

If they can't speak, they also need an interpreter. Let's not assume bad intent when someone is bringing awareness to patients rights.

Did you know that diagnostic delays and errors account for an estimated 30% of healthcare spending? Interpreters allow for faster and more accurate communication and have been found to be cost-effective as a result. They're also a reasonable adjustment under disability law and so that cost is already included and that service would be available for you if you ever needed it. Administrative costs are up to another 30% of healthcare spending and equivalent to three times the cost of cancer care. Are you sure patients with access needs are who you should be blaming for your insurance premiums?

So just send the entire thing back? They keep going back and fourth via chat about fixing it myself and I’m just like wth…

I agree with the commenter you need to threaten to sue and if they still show resistance not only do you really contact a lawyer but you should make vid n post on all platforms about the situation. And make them aware of it. “What do u think will look better? You actually fixing the chair or giving me a new one since I paid out of pocket? OR your company blasted all over social media and the news about how you treat your customers that are in need because of their health issues? I know which my lawyer would recommend you go for but that’s just me. What’s going to be your choice?”

Whew just uploaded an update! I’m suing

Sigh. Thank you 💛. I cried a bit out of frustration but I guess I’m so used to it now almost 20 doctors later that I just cry a little and keep it going. I don’t have state disability coverage just disability coverage from my job which is pretty good! But i “make too much” from my disability payments to qualify for free transposition and stuff like that which sucks.

@@VAshleyETC I was thinking of you this morning and the testing..... Have you looked into Ulta lab to see if they can run some of the blood work?.... You can order it directly from them and bypass the doctor.... They don't have all the tests, but I have used them many times.... Also, have you checked your local county disability agencies to see if they have anything to offer for help?

@@VAshleyETC I thought I left a comment but it must have not posted ... Have you looked into Ulta labs?... You can order certain blood tests from them without requiring your Dr to be involved

Yea definitely! I use them weekly. Sadly I need actual specific diagnostics this time including a venous Doppler at minimum but also a cardiac mri. I’m frustrated because there’s no reason for them not to do these. Ugh

@@VAshleyETC I don't know how worries you are about burning bridges with doctors but I know sometimes people have told their doctors if you won't do it will you please put it in my charts that you declined me.

Thank you for watching! I’m trying!

Thank you so much That’s so kind!

And you! <3

Thank you!

I am so sorry. Grieving, and processing, and just surviving is so difficult some days. In the meantime while I work on the video, some things that helped me were finding a trusted friend, even if it’s just one, who would allow me to vent. Prayer (though I know this is specific to certain ppl), and Yoga Nidra meditations. The app insight timer really really helped me. It’s free! I started by joining the live meditations and felt just so welcomed. There’s chronic ill groups on there that can help you. Lastly facebook has some amazing support groups. I had to get off there bc sometimes it can be too much for me to see others suffering so often, but they can be really supportive too. I’m sorry you’re going through this. Here for you!

@@VAshleyETC I am on some Facebook groups but haven't found anything that clicks yet. I have found myself wanting to distance myself a bit more from social media now. I don't know if it is because I am coming more to terms with my immediate environment and what is actually in front of me.....don't know if that makes sense

Hey that’s awesome. I can try and make a video! Mostly learning from deaf people will be the best. I I use lingvano app and bill vicars on KZfaq!

I also watch videos on KZfaq that have an interpreter so I can follow the signs and sentence structure

Check out Jon Urquhart. His parents are deaf, but he is hearing.

Not yet! I’m trying to schedule it now. I’ve been too scared. It’s so insane how much it is!!

Don't be scared of a port, I'm not chronically ill but I've had one and it's OK I swear 💗 wish you the best.

Insurance companies are evil! I’m happy that you will be one of the new doctors advocating for all of us 💛

I’m also sorry to hear about your struggles and am hoping it gets better for all of us.

Hey I’m super new to it! I’m on my second week of literally one drop. I uploaded a video describing my symptoms so far. It’s been rough but I’m a super reactor. I’ll keep everyone updated! I go up next week in dose

Hey I just started my channel last week for this, and recently posted a brief explainer :) but yes I think that’s a great idea

Kolye.............. seni Allah c.c yoluna cagiriyorum