Thanks for the info , just diagnosed 3 months ago and still figuring things out.
@znanjenadlanu26669 ай бұрын
I think that I have ocular maistenija graves.Wich madikment to use?
@shrinivaskulkarni5702 Жыл бұрын
I am 68 now and want to be your team member
@shrinivaskulkarni5702 Жыл бұрын
I am sb kulkarni since last 3 years I am having this problem I am on destinon and micophynolate pl advice
@stevesaavedra3609 Жыл бұрын
Thank you! You all give me hope ❤
@muanpuiiabawihikhiangte4361 Жыл бұрын
I'm Myasthenia gravis patient...😔😔
@maxwella.gamingps4631 Жыл бұрын
Im 30 years old. I was diagnosed with Myasthenia Gravis last month. At first I thought my weakness was the 30s "hitting me hard". But when it got to my breathing, my chewing and my swallowing, I knew something was wrong. I am glad to have the neurologist I have, she has helped me be better, even though the weakness still prevails, Mestinon has made me feel better. And this video made me feel like Im not alone, and that Im understood. I eish I lived over there to go to those meetings!
@stellaancimer8505 Жыл бұрын
How they diagnose you? Because my doctor couldnt find what is wrong, we thought it is narcolepsy..weakness is so huge it paralized me, and i Lost mouth muscle control, i hope you are better❤
@johnnguyen2782 Жыл бұрын
Love it
@maribellaguting7499 Жыл бұрын
Do have jerking?
@abdulawalkhokon3098 Жыл бұрын
I am my MG patient my country Dhaka Bangladesh my problem 6 years
@Sofea3143 Жыл бұрын
Aishah, 21 Generalized MG Malaysian Anyone from here?
@understandingautismot Жыл бұрын
Hello, i am the mother of a Mysthenia Gravis patient , my daughter is 8yrs old and she is diagnosed with MG 2 months back She has every symptom like drooping eyelid, drooling, chewing and swallowing diifficulties, unable to write, unable to jump, run, climb and play with kids Please help my daughter, i need help Don’t know about line of treatment anything
@understandingautismot Жыл бұрын
I don’t want likes, i need help
@asanthideepani3299 Жыл бұрын
Please contact good neurologist immediately
@tamekahenry19232 жыл бұрын
Love this!!!
@chchwoman99602 жыл бұрын
This is lovely, what a beautiful bunch of people. I think I may have this but I am afraid my doc might judge me for self diagnosis, especially if I'm found not to have it
@maxwella.gamingps4631 Жыл бұрын
Be confident. I told the neurologist I had this, of course, they always leave room for doubt, but I nailed it. She and I were joking about how right I was afterwards. Make sure your doctor is supportive and sympathetic too. That helps out a lot!
@karenknirnschild38702 жыл бұрын
Thank you! Very helpful!
@helenokezie16142 жыл бұрын
I am 34 years old I was diagnosed with Ocular MG April 2021 till now no solution from Nigeria
@KMWiltz132 жыл бұрын
Thank you for this
@Telanganathopu2 жыл бұрын
I am from India, how to beat it
@ashikfarook81212 жыл бұрын
Thanks a lot for this video really its helps me to think positively as a MG patient
@elenaandrew84142 жыл бұрын
Thanks
@deepthrought2 жыл бұрын
What a wonderful woman she is
@themysticmuse Жыл бұрын
Agree.😘
@amcmer2 жыл бұрын
Thank you! At the age of 73, I have just been diagnosed with MG.
@Teenibash19692 жыл бұрын
Sending you all best wishes from Scotland. I was diagnosed in July this year, so early days.
@LastMomentMan3 жыл бұрын
I was getting Cortisone long time for my MG, but unfortunately, I get cataract disease because of this medicine.
@tankmitesh33203 жыл бұрын
Thank you for video
@qamaralsabi89733 жыл бұрын
I am 27 .. i had MG since i was 9 years old .. i am everyday worrier fighting MG. ! I am on medication but i am living perfect life. I am an engineer go to work everyday and mother taking care of child and i go to the gym everyday !! Love life, stay positive ☝🏼
@boolatte5693 Жыл бұрын
What medication do you take?
@queentwinkle7301 Жыл бұрын
Same condition here
@DrWathaab29 күн бұрын
@@queentwinkle7301سلامات، وأين تم العلاج؟ والدي أصيب بذلك أيضاً، وهل يوجد مجموعات للمرضى المصابين بذلك؟
@vikas99pan13 жыл бұрын
Very inspirational guys! Gives me energy too!
@ziyazohra70813 жыл бұрын
I m 24 n suffering from MG since childhood gone through thymectomy..n now planning to get married is my pregnancy will be normal or there may be some complications??
@qamaralsabi89733 жыл бұрын
stay positive.. for me, during my pregnancy i was doing better because I don’t get my period which usually make my MG worse .. nd i delivered my baby as a piece of cake .. stay positive!!
@drimonitiehome4213 жыл бұрын
Hello, I am riches After being in relationship with my husband for years, he broke up with me. I did everything within my reach to bring him back but all was in vain, I wanted him back so badly because of the love I had for him, I begged him with everything, I made promises but he refused. I explained my problem to my friend and she suggested that I should rather contact a spell caster that could help me cast a spell to bring him back , I had no choice than to try it. I messaged the spell caster, and he assured me there was no problem and that everything will be okay before three days. He cast the spell and surprisingly on the second day, my husband called me. I was so surprised, I answered the call and all he said was that he was so sorry for everything that had happened He wanted me to return to him. He also said he loved me so much. I was so happy and went to him that was how we started living together happily again. The spell casters WhatsApp is : +2348141751132 You can WhatsApp him if you need his assistance in your relationship or any other Case. 1) Love Spells 2) Lost Love Spells 3) Divorce Spells 4) Marriage Spells 5) Binding Spell. 6) Breakup Spells Contact this great man if you are having any problem for a lasting solution through Whatapp number +2348141751132or Egmail [email protected]
@kimbalika4 жыл бұрын
A great video for someone like me who is recently diagnosed. Thank you!
@topeye42024 жыл бұрын
No pharma chemicals needed : kzfaq.info/get/bejne/mbGlmLapxsfRgaM.html
@robertawalker5264 жыл бұрын
MG affects my vision, breathing, copd,pain at thoracic,u steady gait.
@robertawalker5264 жыл бұрын
Roberta Walker dx in 2008 I live in Bloomingdale, Ga 31302
This was well done, but should have covered symptoms.
@Duperele20004 жыл бұрын
Love it! ❤ Greetings from Poland
@watzaprawwwr63564 жыл бұрын
I'm 21 and i have MG and i cant speak because of MG. I need a little help here in Philippines
@mariaalicialopezmorales61142 жыл бұрын
You need to see the neurologist who will look for the treatment that suits you, because you could be leading a normal life with the correct treatment.
@wp41064 жыл бұрын
Truly inspirational.
@mao4u4 жыл бұрын
Thank you. I love the facts that I am not alone. I love you so much
@jawaharv6924 жыл бұрын
Very good job, thanks to all , I am m g V jawahar, kakinada city, state of andhrapradesh, India
@angi36195 жыл бұрын
Ist soooo good to see you all!😍
@ShaJawad5 жыл бұрын
I have MG since I was born, I am now 23 and still under medication distinon 60Mg, I just saw video where this and removing the thymus can improve the body, can someone please help me.
@josecamara13375 жыл бұрын
Check with your neurologist if you qualify for an operation after remove of the thymus please ask questions to you neurologist
@AkKhan-yp6xe5 жыл бұрын
Ocular maystheniya grewis
@gamerreborn46735 жыл бұрын
Thanks....
@marifeviterbo84415 жыл бұрын
Hi im diagnos MG IS 19YEARS OLD.. BUT NOW 25years old..
@DonZko Жыл бұрын
How are you doing now?
@rebeccasultana25445 жыл бұрын
I am having mg for 3 years.
@karenwhitefawnhershey93465 жыл бұрын
Your KZfaq is fun to watch and I appreciate your efforts of the video. I am weak with MG I have difficulty breathing and swallowing. I have extremely droopy eye lids. I am 70 years of earth. I have a mobility dog named LuLu. She is wonderful for me, sometimes she helps me to stand up. I work, too. I assist veterans in filing their claims for disability service-connection. I am the founder of a job that now has many people working at this for our veterans. Knowing that you are a suppoort group for me to see and hear...happy for it.
@DonZko Жыл бұрын
I hope you are doing well.
@robertrumph66466 жыл бұрын
great job guys! thanks for making this quality video. so much great advice. from a fellow MG traveler here in Texas
@ashivarshney39796 жыл бұрын
I was diagnosed with MG, 6 years ago please help me to fight with it. I take medication from last 6 years but it is not cured
@caramizansky88715 жыл бұрын
Hello.. I can appreciate your post in reference to MG. You got it right that you need help to fight, except you don't want to fight with it you want to fight IT. Also, if you were diagnosed 6 years ago, I would hope that you do realize that there is NO cure for this disease. There is treatments and medications but NO cure as of right now. SO.... If you are hoping to get cured I would hope that you have read or your doctor is educated enough to help you understand the fight not the imaginary cure.