Made by Myasthenia Gravis Patients For Myasthenia Gravis Patients

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Georgia Chapter Myasthenia Gravis Foundation

Georgia Chapter Myasthenia Gravis Foundation

Күн бұрын

Members of the Georgia Support Group of the Myasthenia Gravis Foundation of America talk about dealing with the illness.

Пікірлер: 73
@qamaralsabi8973
@qamaralsabi8973 2 жыл бұрын
I am 27 .. i had MG since i was 9 years old .. i am everyday worrier fighting MG. ! I am on medication but i am living perfect life. I am an engineer go to work everyday and mother taking care of child and i go to the gym everyday !! Love life, stay positive ☝🏼
@boolatte5693
@boolatte5693 Жыл бұрын
What medication do you take?
@queentwinkle7301
@queentwinkle7301 Жыл бұрын
Same condition here
@karenwhitefawnhershey9346
@karenwhitefawnhershey9346 5 жыл бұрын
Your KZfaq is fun to watch and I appreciate your efforts of the video. I am weak with MG I have difficulty breathing and swallowing. I have extremely droopy eye lids. I am 70 years of earth. I have a mobility dog named LuLu. She is wonderful for me, sometimes she helps me to stand up. I work, too. I assist veterans in filing their claims for disability service-connection. I am the founder of a job that now has many people working at this for our veterans. Knowing that you are a suppoort group for me to see and hear...happy for it.
@DonZko
@DonZko Жыл бұрын
I hope you are doing well.
@JimG70
@JimG70 9 күн бұрын
Thanks for the info , just diagnosed 3 months ago and still figuring things out.
@wp4106
@wp4106 4 жыл бұрын
Truly inspirational.
@KMWiltz13
@KMWiltz13 2 жыл бұрын
Thank you for this
@robertrumph6646
@robertrumph6646 6 жыл бұрын
great job guys! thanks for making this quality video. so much great advice. from a fellow MG traveler here in Texas
@karenknirnschild3870
@karenknirnschild3870 2 жыл бұрын
Thank you! Very helpful!
@jessebenjamin4779
@jessebenjamin4779 8 жыл бұрын
I love it guys!
@Duperele2000
@Duperele2000 4 жыл бұрын
Love it! ❤ Greetings from Poland
@angi3619
@angi3619 5 жыл бұрын
Ist soooo good to see you all!😍
@vikas99pan1
@vikas99pan1 3 жыл бұрын
Very inspirational guys! Gives me energy too!
@tamekahenry1923
@tamekahenry1923 Жыл бұрын
Love this!!!
@stevesaavedra3609
@stevesaavedra3609 Жыл бұрын
Thank you! You all give me hope ❤
@mao4u
@mao4u 4 жыл бұрын
Thank you. I love the facts that I am not alone. I love you so much
@kimbalika
@kimbalika 3 жыл бұрын
A great video for someone like me who is recently diagnosed. Thank you!
@wespierce4569
@wespierce4569 7 жыл бұрын
I had my first IVIG treatment yesterday and my second today. I've never met anyone with MG. I'd love to travel from St. Louis, Mo. to eat y'all. MG isn't going to keep me down!!!!!!!
@wespierce4569
@wespierce4569 7 жыл бұрын
Meet
@erinuber2881
@erinuber2881 8 жыл бұрын
This is a really fantastic video! Thank you for it! I have MG, too. Sending you all lots of good wishes from California!
@tankmitesh3320
@tankmitesh3320 2 жыл бұрын
Thank you for video
@shezfeintuch7560
@shezfeintuch7560 6 жыл бұрын
Thank You all that made me feel better!! Just been diagnosed three or four months ago.
@Teenibash1969
@Teenibash1969 2 жыл бұрын
Sending you all best wishes from Scotland. I was diagnosed in July this year, so early days.
@ashikfarook8121
@ashikfarook8121 2 жыл бұрын
Thanks a lot for this video really its helps me to think positively as a MG patient
@maxwella.gamingps4631
@maxwella.gamingps4631 Жыл бұрын
Im 30 years old. I was diagnosed with Myasthenia Gravis last month. At first I thought my weakness was the 30s "hitting me hard". But when it got to my breathing, my chewing and my swallowing, I knew something was wrong. I am glad to have the neurologist I have, she has helped me be better, even though the weakness still prevails, Mestinon has made me feel better. And this video made me feel like Im not alone, and that Im understood. I eish I lived over there to go to those meetings!
@stellaancimer8505
@stellaancimer8505 Жыл бұрын
How they diagnose you? Because my doctor couldnt find what is wrong, we thought it is narcolepsy..weakness is so huge it paralized me, and i Lost mouth muscle control, i hope you are better❤
@amcmer
@amcmer 2 жыл бұрын
Thank you! At the age of 73, I have just been diagnosed with MG.
@gamerreborn4673
@gamerreborn4673 5 жыл бұрын
Thanks....
@leeandrachelhiggins3979
@leeandrachelhiggins3979 8 жыл бұрын
You guys did a GREAT job. Thank you!!!!! Rachel (from GA, living in TX)
@jawaharv692
@jawaharv692 4 жыл бұрын
Very good job, thanks to all , I am m g V jawahar, kakinada city, state of andhrapradesh, India
@johnnguyen2782
@johnnguyen2782 Жыл бұрын
Love it
@chchwoman9960
@chchwoman9960 2 жыл бұрын
This is lovely, what a beautiful bunch of people. I think I may have this but I am afraid my doc might judge me for self diagnosis, especially if I'm found not to have it
@maxwella.gamingps4631
@maxwella.gamingps4631 Жыл бұрын
Be confident. I told the neurologist I had this, of course, they always leave room for doubt, but I nailed it. She and I were joking about how right I was afterwards. Make sure your doctor is supportive and sympathetic too. That helps out a lot!
@robertawalker526
@robertawalker526 4 жыл бұрын
MG affects my vision, breathing, copd,pain at thoracic,u steady gait.
@marifeviterbo8441
@marifeviterbo8441 5 жыл бұрын
Hi im diagnos MG IS 19YEARS OLD.. BUT NOW 25years old..
@DonZko
@DonZko Жыл бұрын
How are you doing now?
@jeffb8132
@jeffb8132 6 жыл бұрын
Hi my 55 and I have MG two years I'm take my family to Hawaii from Xmas I keep herring about the heat what can it do
@meganhenry5795
@meganhenry5795 4 жыл бұрын
This was well done, but should have covered symptoms.
@robertawalker526
@robertawalker526 4 жыл бұрын
Roberta Walker dx in 2008 I live in Bloomingdale, Ga 31302
@rebeccasultana2544
@rebeccasultana2544 5 жыл бұрын
I am having mg for 3 years.
@understandingautismot
@understandingautismot Жыл бұрын
Hello, i am the mother of a Mysthenia Gravis patient , my daughter is 8yrs old and she is diagnosed with MG 2 months back She has every symptom like drooping eyelid, drooling, chewing and swallowing diifficulties, unable to write, unable to jump, run, climb and play with kids Please help my daughter, i need help Don’t know about line of treatment anything
@understandingautismot
@understandingautismot Жыл бұрын
I don’t want likes, i need help
@asanthideepani3299
@asanthideepani3299 Жыл бұрын
Please contact good neurologist immediately
@LastMomentMan
@LastMomentMan 2 жыл бұрын
I was getting Cortisone long time for my MG, but unfortunately, I get cataract disease because of this medicine.
@znanjenadlanu2666
@znanjenadlanu2666 8 ай бұрын
I think that I have ocular maistenija graves.Wich madikment to use?
@judyhooker3891
@judyhooker3891 7 жыл бұрын
This picture is not me, I share a Computer, I believe I have MG. I was 36 years old when my health took a drastic turn. I had two children with birth defects, had to use a collar during pregnancy to support my neck. One child died after birth due to his heart being on the wrong side. I have struggled for 40 years with nerve and muscle problems but no blood testing or Thymus testing. I have bone cancer also a Bcell Lymphoma. I knew to see Neurologists, was wrongly diagnosed and sent away. (Gullien Barre)sp. I live in NCentral Florida and have gone to a "good doctor", meaning muscle and nerve who only did strength testing without considering my other symptoms and studies such as 3 abnormal brain Electrical studies. Obviously I need a MG Specialist. Where to go based on old studies? JFH
@r8003
@r8003 4 жыл бұрын
And you were never tested for multiple sclerosis?
@shrinivaskulkarni5702
@shrinivaskulkarni5702 11 ай бұрын
I am 68 now and want to be your team member
@arunabala9828
@arunabala9828 7 жыл бұрын
Hi I am having MG for about an year. its now under control but it does sometimes show up.... I'm worried and not sure whether having MG will be obstacle for me to conceive ..
@awais222
@awais222 6 жыл бұрын
Aruna Bala How control your MG Can you help me??
@helenokezie1614
@helenokezie1614 2 жыл бұрын
I am 34 years old I was diagnosed with Ocular MG April 2021 till now no solution from Nigeria
@shrinivaskulkarni5702
@shrinivaskulkarni5702 11 ай бұрын
I am sb kulkarni since last 3 years I am having this problem I am on destinon and micophynolate pl advice
@ShaJawad
@ShaJawad 5 жыл бұрын
I have MG since I was born, I am now 23 and still under medication distinon 60Mg, I just saw video where this and removing the thymus can improve the body, can someone please help me.
@josecamara1337
@josecamara1337 5 жыл бұрын
Check with your neurologist if you qualify for an operation after remove of the thymus please ask questions to you neurologist
@annadorota9367
@annadorota9367 4 жыл бұрын
My name is Anna (Miastenia gravis 2017)Polska
@Sofea3143
@Sofea3143 Жыл бұрын
Aishah, 21 Generalized MG Malaysian Anyone from here?
@Telanganathopu
@Telanganathopu 2 жыл бұрын
I am from India, how to beat it
@ziyazohra7081
@ziyazohra7081 3 жыл бұрын
I m 24 n suffering from MG since childhood gone through thymectomy..n now planning to get married is my pregnancy will be normal or there may be some complications??
@qamaralsabi8973
@qamaralsabi8973 2 жыл бұрын
stay positive.. for me, during my pregnancy i was doing better because I don’t get my period which usually make my MG worse .. nd i delivered my baby as a piece of cake .. stay positive!!
@AkKhan-yp6xe
@AkKhan-yp6xe 5 жыл бұрын
Ocular maystheniya grewis
@watzaprawwwr6356
@watzaprawwwr6356 4 жыл бұрын
I'm 21 and i have MG and i cant speak because of MG. I need a little help here in Philippines
@mariaalicialopezmorales6114
@mariaalicialopezmorales6114 2 жыл бұрын
You need to see the neurologist who will look for the treatment that suits you, because you could be leading a normal life with the correct treatment.
@marlad2155
@marlad2155 7 жыл бұрын
I am so scared. I am afraid I will die from this disease.
@r8003
@r8003 4 жыл бұрын
You won't!
@DonZko
@DonZko Жыл бұрын
How are you doing?
@ashivarshney3979
@ashivarshney3979 6 жыл бұрын
I was diagnosed with MG, 6 years ago please help me to fight with it. I take medication from last 6 years but it is not cured
@caramizansky8871
@caramizansky8871 5 жыл бұрын
Hello.. I can appreciate your post in reference to MG. You got it right that you need help to fight, except you don't want to fight with it you want to fight IT. Also, if you were diagnosed 6 years ago, I would hope that you do realize that there is NO cure for this disease. There is treatments and medications but NO cure as of right now. SO.... If you are hoping to get cured I would hope that you have read or your doctor is educated enough to help you understand the fight not the imaginary cure.
@abdulawalkhokon3098
@abdulawalkhokon3098 Жыл бұрын
I am my MG patient my country Dhaka Bangladesh my problem 6 years
@muanpuiiabawihikhiangte4361
@muanpuiiabawihikhiangte4361 Жыл бұрын
I'm Myasthenia gravis patient...😔😔
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