I figured out carrying something in my hands and doing a task works wonders. (Non-Breakable Plate/Glass, Trash, etc) without the walker.
@DanielleChiasson-lo4rp3 ай бұрын
I was diagnosed 14 months ago. Thank you for sharing. I will definitely try to do the dog thing in the morning as I do have a lot of paralysis seizures.
@alisonbeeney3 ай бұрын
Than you so much Maxanne for sharing your journey 😊😊😊
@samifjs343 ай бұрын
Remember everyone can recover and everything can get cure....
@carolc31026 ай бұрын
What you need is at hand. Those virtual reality goggles will help you disassociate. Retrain your brain. Acupuncture with those in the Chinese medicine tradition. You are remembering the last time you remembered. The event is over. You are remembering The Remember. Aromatherapy. Spray lavender on a neck towel, make a ritual of wearing your neck roll. Native American music relieves stress for me. I need to get a blood pressure machine…I know there is a blood pressure drop immediate to hearing it. With the internet, the world is your oyster. Find the music, astral sounds, white noise. With your other vid…you were walking down a hallway. Pirouette. Pretend you and dance partner are dressed to the nines, powdered wigs. Half dance with your hands held to form an arch. Step back, join up. What color is your dress? Lymph cleansing, deep massage, foot soaks, compression leggings. Have a waking dream. It’s the same process as nighttime …just be awake to set up the dream. Ask….where is this disturbance. There’s a knot. Take me there.
@Aceadonis20116 ай бұрын
How do you bring yourself out of it, what do you think about, what helped you get your mind in that state?...I've been trying to take my mind off of it for years but I have never been able to walk normal like you.
@carolcaldwell7 ай бұрын
How did you learn these techniques? What is the therapy, modality, specialty that I should find? Thank you for your help.
@carolcaldwell7 ай бұрын
The his happens to me and was the first manifestation of FND back in 1983!
@juliancarr80307 ай бұрын
Want to get better
@chabrissimpson65508 ай бұрын
Hi, I also suffer from FND and have not found anything else besides your video that discussed FND and sleep paralysis. For me sleep paralysis has been a feature that I have found very common in my life even Pre-FND. I wondered if the two was contacted as sometimes when attempting to fall asleep I can have many episodes one after another. I find it really strange there’s no research around this topic nor mother FND patients reporting this as a symptom. Can I just as if you have had many episodes with FND and prior to FND. Thank you for your video it was much appreciated and will use your technique in the future. Many thanks xx
@Tiare619 Жыл бұрын
Sounds like me, with spasticity instead of weakness. I have good and bad days and moments.
@missabbiesworld511 ай бұрын
Me too 😁
@apriltom0818282 жыл бұрын
I love watching your videos! I have FND as well and have been trying to observe others’ symptoms and strategies to prevent them. You are very successful with your strategies. I have subscribed to your channel. Could you view mine at Mimi with FND as well and subscribe? We need to promote awareness and provide more resources that are easily accessible t for others with this disorder.
@brianbordenkircher523 жыл бұрын
I hope I can get rid of mine. Life could be worse, but I’ve had FND daily for just over 2 years. Former traumatic brain injury tho as well
@fndrecovery3 жыл бұрын
I hope you can too. It can be a challenge to find the things that work for you. Best of luck as you continue your path of self-discovery.
@azizanal3 жыл бұрын
Thank you from malaysia
@proudarmywife7263 жыл бұрын
This is amazing! My daughter was just diagnosed yesterday! We literally were just released from the hospital yesterday. I have been googling like crazy! I found your video. And we set a mirror in front of my 17 year old daughter this evening. She stood twice!!!! We took the mirror away, she can’t do it now. But this was so much hope! And so amazing! How long did it take you with the mirror?
@fndrecovery3 жыл бұрын
It worked quickly for me, but I still use it often when symptoms arise. It helps my brain and body reconnect. Best of luck to your daughter!
@sherryfox13683 жыл бұрын
Great analogy on explaining how the Mirror works for you. Thank you for sharing part of your journey with us.
@Annmarie123ize3 жыл бұрын
Yeah I have notice that too
@ingalarson63183 жыл бұрын
The mirror as acceptance”...right on!
@alexisdumais54304 жыл бұрын
ohhh! when you don’t have symptoms you’re 100% recovered?
@fndrecovery4 жыл бұрын
Alexis Dumais I haven’t had problems walking for years, but I wouldn’t say I’m 100% recovered. This blog post explains how I feel about my recovery. fndrecovery.com/2019/09/18/what-recovery-means-to-me/
@alexisdumais54304 жыл бұрын
FND Recovery Oh okay! i just checked, that’s really interesting. I just been diagnosed with it, is it possible to overcome our symptoms completely? Mine are mild. I have hands tremors and stiffness and a mild stiffness in the left leg.
@fndrecovery4 жыл бұрын
Alexis Dumais You have an excellent chance for a full recovery since your symptoms are mild and haven’t been there long. Good luck!
@alexisdumais54304 жыл бұрын
FND Recovery nice! that’s so encouraging! i tried my best to succeed! Do u know what are the best treatments in general for people with FND?
@fndrecovery4 жыл бұрын
Alexis Dumais, my understanding is that a team of professionals to address different symptoms (physical therapy, speech therapy, occupational therapy, psychotherapy) usually is most helpful.
@ebbaychannel43434 жыл бұрын
Hello miss I'm always see your journey ...
@ibSprintin4 жыл бұрын
Thank you for sharing your story. The more people we have spreading the word about FND and dispelling the myths about it, the better.