Basically relaxed her nervous.system been 26 years for me though symptoms have changed over time to

Thanks you saved me 45 minutes

I tried all of these things and nothing seemed to help. I'm 3 yrs with CFS. About six months ago, I suddenly started feeling better, and got back to about 70% of normal. Then my wife brought home a cold and I caught it. I was sick for two weeks. I recovered, and she brought home another cold (she's a 4th grade teacher and is constantly exposed, but she has a strong immune system and barely gets sick.) I got sick a 2nd time, and that was all it took. My CFS is worse than ever. Often, I can't leave the house. When I'm well enough, I take a short walk. This all started rather suddenly in 2020 after I had a mild sore throat. Six months of testing showed nothing was wrong. The doctors decided that I either had asymptomatic COVID which became "Long COVID", some other "Post Viral Syndrome", or CFS. I'm glad some people recover. That gives me hope, but it doesn't seem there's anything I can do except wait and suffer.

I find that with interviews with Long Covid as well. They never really get to the depth of how they healed.

I'm getting good results from looking into polyvagal theory, Deb Dana has good books on it. I've been severely ill for 11 years. It's been a month since starting the brain retaining to unlearn the neuroplastic fatigue and already I'm the healthiest I've been in 7 years. Hope it can help you too

I agree with every word you said i have abs no support with my illnesses and find it so hard to carry on living each day i tell myself tomorrow may be the day they find something to help us hanging on but slowly giving up = 30 yrs of suffering had enough - time they did more research and agree with you comments about invisible illnesses i am often not believed because i look so well - nope thats make up i put on to look as normal as poss hope you find something to help with your pain and fatigue up to now ive not found much to help after all these yrs xxxxxxxxxxx

I totally agree too. Some people aren’t as lucky as this woman so the recovery is a lot more difficult.

Sir it's a negative feedback system, u need to bring in positivity in ur mind , I have seen many recover coz of positive mindset , u need to take it from 99% ill to 98% ill to 97% ill , slowly 1% pain reduction at a time , within no time ull be 30% ill . Now it's way easier for u to move frm this point . Trust me sir this works .... See even though we have fibromyalgia for years , why aren't we dead yet??? Its still coz all of the body parts are fine , its our mind which is struck in negative feedback loop system

The symptoms of chronic pain, chronic fatigue and depression are very similar, and these conditions usually occur simultaneously. But they have very distinctive characteristics and that is why people need a profession, like doctors who are trained to make these diagnoses.

@@DrAndreaFurlan Thank you Dr. Furlan for taking the time to comment! Yes, I understand how all these conditions can (and likely would) occur together. I think one can lead to another and unfortunately can be quite overwhelming and confusing to a person. You make a truly valid and necessary point about people needing to seek help from their doctors etc. However, sadly that is much easier said than done in my province. Just to gain access to a Family GP can be a huge challenge. As for getting any tests , even blood work can be a wait of 3 weeks. To get a scan or MRI or any diagnostic tests is a year to 3 year wait. Needless to say, just hearing that and realizing it can make one go into a downward spiral as they are already suffering physically, that leads to emotionally and around it goes. Getting help never seemed more difficult than it has been the past couple of years. Again, I do really appreciate the time , the effort and the compassion you exhibit and your videos have always been a positive bright spot.~~~Jo💞

@@DrAndreaFurlan Dollars to donuts she NEVER had CFS. Why because you can't cure CFS with brain retraining and graded exercise. !!!!!!!! It makes me angry to see this woman tell her tale of recovery from a disease that she most likely didn't have.

@@StarryNightKnittingdoctors can’t do anything to help so it’s pointless wasting time with them

I’ve been out of work for 8 months because of this and was just denied my disability claim. I think they think it’s not real. And it suck. It’s depressing and annoying. Nobody’s seems to care or understand. So I’ve been watching these videos to try and understand it more. So I can fix myself.

I totally agree this is what it is and we're not given any tools from the western medicine approach at all n so so much of it is learning and trial n error n being our own healer. I wish I knew about the pacing like this cos I was healing I'd reached a steady place n was mobile n then I started exercise at the gym due to my docs recommendation and the fact I felt so much better and was used to being an active person crashed hard after 2mnths n am now bk to hardly leaving my home 🤦🏼‍♀️ so here we go again 😂 blessings to you on Ur journey 🙏🏼

Hi Jo, thank you for your kind words

Agreed!!

Watching from Israel .Hereit's a new area .Annoying because Israel is leading in medicine . Here they separate between CFS = Fatigue +pots+PEM and Phbro . I think its correct.Thanks@@DrAndreaFurlan

You cant say that. This shit hits people differently. No two people with cfs are alike

How do you fix mitochondria?

@@lambylambcurly mind and vitamin s diet helps

I could not stay awake for a 20 min car ride.

My thoughts exactly. I have learned to manage my symptoms to a degree. But if I push just a bit hard, WHAM! It's African sleeping sickness & being hit by a freight train at once.

Hi Ortansa, thank you for your comment

❤❤❤

Agreed, it was found those treatments helped only 7% and made many with ME much worse. I believe it's multifaceted and some have mitochondrial disfunction, the body's immune system, blood disorders such as vitamin B12 malabsorbsion (due to lack of intrinsic factor in the gut) as well as lack of circulating oxygen could all be at play. So much more research is required.

​@helendunn9905 I so agree with this. My daughter was originally diagnosed with CFS 10 years ago after a non stop series of severe viral infections, mostly turning into ear infections and perforated eardrums. When the infections had stopped, but the symptoms (excluding the ears) had continued for over 2 years, she was given a CFS diagnosis. A year later, when she developed paraesthesia in her arms and legs together with body pain, the diagnosis was changed to fibromyalgia. Since then so many new symptoms have developed, all attributed to fibro, but pain has never been the overwhelming symptom....some of it has been shown to have a physical basis. The fatigue, with its accompanying vertigo, nausea, brain fog, light and sound intolerance, is what she struggles with most. 18 months ago, her old doctor retired, and her new one ordered a new battery of tests to make sure there wasn't something specific lurking under her battery of symptoms. Vitamin B12 deficiency came up, but with no obvious cause. Supplements raise her levels slightly, but don't give her more energy. Nothing else has come up, other than possibly POTS, and a reinstatement of the original CFS diagnosis, as well as Fibromyalgia ( which is now viewed as the underlying cause of her other symptoms) She already ensures she eats properly, and plans 'events' carefully, knowing she will relapse after them. She has, I think, accepted her limitations, and adapted her life around them. She is a single mum (her daughter is 13 now) and so what energy she has is directed towards her daughter. Money is tight, especially since basic housekeeping services need to be paid for, because she cannot undertake them herself. I know that many CFS sufferers are permanently bed bound. And my heart goe out to all of you. Fortunately, she is not. She is limited in what she can do every day. Bad relapses can, however, still have her bed bound for a few weeks at a time. I think this lady was very fortunate to find a way back to normality. My daughter has tried the gradual increase mobility routine, recommended for fibro, it resulted in severely increased crashes. She is, however, not immobile. She walks small amounts on a regular basis to stop her muscles from wasting and cramping. She did try yoga, but that even at its simplest level was too intense. She is positive by nature, and so does whatever she can, whenever she can. Sunshine (despite her photosensitivity) is a welcome event in her life, and always a mood lifter. It's a pity we get so little of it here in the UK. The other options, massage etc, are only viable if someone comes to her. Her mobility is not that good for travelling for that kind of treatment, on a regular basis, nor could her bank balance sustain it. Very, very lucky lady, indeed to have had the physical and financial support to do this, as well as recourse to it. I think that for most CFS sufferers, this path to normality is not an accessible one. It is a great pity that it should be that way.

100! I've been "cured" too. I kept thinking that she has a humbling realization coming. Yes, it is possible to achieve "remission", but you can't change the way your nervous system is made!

Her path to cure involved many steps. We didn't have time to explore all of these steps. I recommend you watching her youtube channel, she exlains it all there www.youtube.com/@RaelanAgle

She quit her job, got massages every day and traveled the world. Basically a ten year vacation. It’s not helpful or specific advice in my opinion.

Thank you for sharing that

Well said!

Another Pollyanna speaks!

Hi how are you doing?

Seams most if us have both and more for myself I've found out all related to Asperger's ADHD add eds hsd.but have had to find out for myself.alot have these connorbid things what cause it

You're welcome 😊

Yes, support is very important.

Thank you for sharing that with us.

@@DrAndreaFurlan Maca gave me lots of energy and made me hungry. I was able to continue university. After 6 months I was living again. It was triggered by a viral infection.

How long have you been struggling with cfs?

That's not ME, by definition.

Dr Steven Gundry might be able to help...he has some good books

same, i can't shower,clean or tidy house,exhausted just walking few yards to the toilet,hardly any sleep,constantly exhausted and breathless, drs here in uk don't help,id need lifting up off the bed to go to hospital if the drs would arrange it for me but they don't, it's a terrible debilitating condition

@@GG-tk8cq 11 years with CFS

Thank you for watching the video and writing this comment. Please share this video with your friends. I have lots of videos about chronic pain on my channel kzfaq.info And don't forget to turn on the notifications 🔔 on youTube. so you get notified when I post new videos. And please remember, I do not give individual medical advice via social media or email.

Thank you

Il suo libro sul dolore cronico è anche in Italiano?

neither funny nor informed, but keep entertaining yourself

We can’t separate psychological from biological. The whole body is biological, including the mind.

@@DrAndreaFurlan So do you think psychiatric disorders have a biological cause most of the time?

Glad you enjoyed it!

Hi Marco, in some casese, it can be episodic.

@@DrAndreaFurlan Hey thank you for your response. 👍

Sorry to disappoint you.

Please talk to your doctor about your thoughts, see a psychologist or go to a hospital as soon as possible.

Quelli con la fibromialgia in Italia sono piú riconosciuti e meno " fantasmi" rispetto alla CFS...

Quelli con la fibromialgia in Italia sono piú riconosciuti e meno " fantasmi" rispetto alla CFS...

Never lose hope.

Try 100% clean diet :strictly keto with ginseng, ginko biloba, moca

Thanks!

Thank you Sharmistha.

If you don't believe it's possible, then it won't be. Edit: I know privilege makes it easier. I'm not trying to invalidate that. This stuff is hard. A LOT harder for those who don't have resources, of which I was one. But I think the first thing I said still stands.

_"If you don't believe it's possible, then it won't be."_ Pollyanna speaks!

You are welcome

Thanks

Thanks

I'm sorry that you didn't find anything useful.

No, that is not what we are saying. Pain is in the brain and the body. We cannot disconnect the mind from the body. People who tryi to find the cause "ONLY" in the body is also wrong. it is not Only in the brain or only in the body. It is in both.

I disagree with you

The brain is capable of neuroplasticity. If you never heard about it, then you need to get some education.

@@DrAndreaFurlanLast time I looked there is No Cure, education? Your putting out Scams Lies to get money monthly from KZfaq hits. There is No Cure for ME/CFS, EDS. There is No treatment. A lot got well from Chronic Fatigue the MENTAL type, not the Syndrome. How dare you say Cure

Thanks

Dear Carolyn, I understand that many people get frustrated when they hear stories like this and they can’t achieve the same results. However, your comment is also dangerous because you are not aware of all of her struggles, symptoms and diagnoses. I invited her to my channel after I had done a thorough investigation of her claims. Please respect my guests. Her story has helped many people in a similar situation.

I disagree with this comment. Personally I believe there are levels of CFS. Some people are bed bound whilst some might have several hours a day in them...

Absolutely, this recovery is great but it doesn't appear to be true ME, I agree she suffered and am glad she recovered. But for those still struggling it's "gaslighting". The type of things your GP will tell you and then ignore your crys for help. 🤦🏻‍♀️

Sorry, you seem to have missunderstood my comment. I believe your guest did in fact recover from her condition based on her stated recomendations including graduated exercise therapy. I do not know her medical qualifications so I would not consider it medical advise but rather one person's personal experience. Newer ME protocol advises against GET due to the significant repercuations of PEM. pubmed.ncbi.nlm.nih.gov/32568149/#:~:text=Conclusion%3A%20GET%20not%20only%20fails,it%20should%20not%20be%20recommended. Conclusion: GET not only fails to objectively improve function significantly or to restore the ability to work, but it is also detrimental to the health of≥50% of patients, according to a multitude of patient surveys. Consequently, it should not be recommended.

That is not a nice comment about my guests. ☹️

Perhaps an open hearted and open minded review of Raelan Agle's KZfaq channel can help?

I I think testosterone can help males in particulat many of them have very low t

U agree!!