#52: Everyday with Parkinson's is different

No video

#52: Everyday with Parkinson's is different

Рет қаралды 4,848

Күн бұрын

The Secret Life of Parkinson's: BRIAN IS BACK! In this episode, we spend a little time just catching up on how we are feeling. While we might look positive and put together, we all experience our off or bad days, and that's ok.

Пікірлер: 45

@patrickdavis6953 Жыл бұрын

God is with us for ever and ever

@gjvarnado Жыл бұрын

Happy to see Brian again. Thanks to all of you for donating your time and sharing your experiences. I look forward to these episodes.

@thesecretlifeofparkinsons Жыл бұрын

Our pleasure!

@StaverMarilyn 3 ай бұрын

Good to see you both! Im grateful I found you 💕

@melindamorgan8781 7 ай бұрын

You are helping me . Thank you.

@thesecretlifeofparkinsons 7 ай бұрын

Glad to hear that! Thank you! I wish you well

@pattirossiter1065 Жыл бұрын

Happy birthday, Jessica. I appreciate all you do. 🌺

@joycebaker603 Жыл бұрын

HAPPY BIRTHDAY FROM BRIAN'S MOM

@normanrubenzer Жыл бұрын

finally he's back yeah, there is a good chemistry between you too. thanks for being so real. maybe look into hyperbaric oxegyn and the vibratting gloves from stanford medicle??

@thesecretlifeofparkinsons Жыл бұрын

Check this video out where we address the Vibrating Gloves. kzfaq.info/get/bejne/oJuiic6L28vTd5c.html

@barbarabreen4780 Жыл бұрын

Happy Birthday Jessicia

@thesecretlifeofparkinsons Жыл бұрын

Thank you ;)

@kevinhoskins7997 Жыл бұрын

Love the podcasts. I just had DBS surgery two weeks ago and will be "turned on" next Tuesday (03/07/23) I'm looking forward to seeing how it helps. I'm on a lot of meds (2 different doses of Rytary, Gocovri, carbidopa, and ongentys) I am hoping to reduce the meds.

@thesecretlifeofparkinsons Жыл бұрын

How did the DBS surgery go?

@kevinhoskins7997 Жыл бұрын

@The Secret Life of Parkinson's It went well, I was amazed at how well it worked when I was "turned on". My tremor was minimized immediately, and I felt I had better control of my movements.

@chrisc9259 Жыл бұрын

Reunited and it feels so good. haha :) The waterworks are real, and for whatever reason too lol. Happy 39th B-Day Jessica ;) Hope it was awesome! Welcome back Brian!

@thesecretlifeofparkinsons Жыл бұрын

Thank you!! 😊

@jendaley9178 Жыл бұрын

Yay, Brian!!! Great having you back!

@jeancattoi2796 Жыл бұрын

Happy birthday

@tyterry9284 Жыл бұрын

Welcome back. My stomach growls too!

@sebastiankrys7152 Жыл бұрын

This is wonderful. I was diagnosed in 2019.

@thesecretlifeofparkinsons Жыл бұрын

Same!

@laurenard9431 Жыл бұрын

Definitely starts in the gut and your stomach absolutely responds to that change! 🖐️ I'm one of those examples. There is circulating theory that a first symptom years before the obvious symptoms start is bowel irregularities. I went gluten free for four years thinking it was that since I also carry the celiac gene. We used to joke that I had celiac disguised as Parkinson's. Turns out I just had parkinson's.

@thesecretlifeofparkinsons Жыл бұрын

That's interesting you say that. I never put the two together but years ago I went gluten free (wasn't celiac so I just assumed it was a gluten sensitivity). I'm fine with gluten now - are you?

@laurenard9431 Жыл бұрын

@@thesecretlifeofparkinsons yes I'm fine with it now. I got tested and I wasn't celiac. I was certain it was celiac or a sensitivity. I eat gluten again now. I did see someone on the Parkinson's buddy network through the mjf foundation say that they went gluten free because it helps their Parkinson's symptoms.

@judithcaldwell555 10 ай бұрын

Parkinson’s doesn’t run in my family, but I to had bowel irregularities all my life. I was diagnosed at 68. Think there is something to the gut brain theory.

@newworld6474 Жыл бұрын

Welcome back ...

@rickpieto9678 Жыл бұрын

i love your podcast. the crying thing could be pseudobulbar affect. it's associated with people with parkinson's. i have parkinson's and pba is one of my symptoms. it can also be uncontrollable laughing as in joaquin phoenix's joker. the smallest thing can trigger episodes of sobbing. embarrassing in public or social situations. i can have periods of absolute apathy along with my pba. there's a drug to treat it but it interferes with my rasagiline absorption. so forget that.

@thesecretlifeofparkinsons Жыл бұрын

I have heard of the pseudobulbar affect. That sounds like a bad job by the pharma companies - creating a drug to treat pba but it interferes with a popular PD drug. Thanks for listening!

@jeancattoi2796 Жыл бұрын

Great video

@bmbc112s Жыл бұрын

Happy, Happy 41 ! Maybe in future mention what amount of funds you need as we might be able to help your efforts. I appreciate that these podcasts are a lonely vigil but a lot of good people are in your corner.

@thesecretlifeofparkinsons Жыл бұрын

Will do! Thanks Charlie!

@tr3vorb438 Жыл бұрын

There are acupressure points in the legs and the eyebrows that can help you sleep better. 😁 My wife practices this on me and I’m sleeping much better, and more consistently now.

@reedmiller4457 Жыл бұрын

Love you guys

@someonenew9442 Жыл бұрын

Happy Birthday Jessica! 🎂🍾

@stanleybarton 4 ай бұрын

I was diagnosed 12 years ago and I just now discovered you accidentally on KZfaq. You’re talking about so many things I have always suspected; but, you’re the first “Parkinson’s Site” to confirm my suspicions. For example, I have always suspected the link between my intestines and my symptoms. I’m looking forward to watching all of your videos. Do you produce programs on a scheduled basis and, if yes, how do I find out when your next program will be on KZfaq?

@thesecretlifeofparkinsons 4 ай бұрын

Glad you found us! If you go to The Secret Life of Parkinson's page on KZfaq, just click subscribe and then in your notifications, you have to make sure your subscription notifications are "turned on". We typically release videos every Thursday. Sometimes I do quick one-off videos throughout the week, but our actual podcast recordings should be released on Thursdays!

@brianbaker4648 Жыл бұрын

Thanks everyone

@judithcaldwell555 Жыл бұрын

Would be happy if you would do an episode on rem behavior disorder.

@johndonaldson5126 10 ай бұрын

I have REM disorder. I too would appreciate an episode on it.

@ocrodger Жыл бұрын

Still trying to accept my diagnosis. It's been two years. Got any suggestions. HBD Jessica.

@thesecretlifeofparkinsons Жыл бұрын

I just read a new book that was published and it may help. It was an easy read and I really enjoyed it. It's called "You have Young Onset Parkinson's" by Blake L. Bookstaff

@williamallen7836 6 ай бұрын

Just remember, there's nothing can do to change it, but you change how you respond. Like the rest of life it's a journey, not the destination.

@TheTrinityProjectinc Жыл бұрын

Please...please make the intro more engaging...loving your vids but that intro makes me feel like im getting ready to watch a senior living podcast...

@thesecretlifeofparkinsons Жыл бұрын

Thanks for the feedback! We will work on it. Thanks!