ACCEPTING YOUR DIAGNOSIS | My First Year Living with Lupus

Рет қаралды 2,464

5 жыл бұрын

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My name is Samantha Wayne and I have been creating advocacy videos on KZfaq since 2009.
I created Live Hope Lupus in order to create a space where those with chronic illnesses could get information and support. Please subscribe to follow me along on this journey!

Пікірлер: 36

@andreabrown5731 5 жыл бұрын

At first I was relieved that I wasn't crazy but then I started to deny it. I still have ups and downs. I was diagnosed a year ago.

@queenofscrolls7585 5 жыл бұрын

I love coming to your channel on a down day. Youre so calm and not hiding your emotions, it's really nice to hear someone acknowledging the hardships

@zizia9060 5 жыл бұрын

Thanks for a great video Samantha! Personally I felt when I was diagnosed with lupus, I went through the five stages of bereavement/grief; denial, anger, bargaining, depression and finally acceptance. And my mum went through the stages with me too. Denying my diagnosis, seeking alternative consultations/diagnosis and encouraging me to refuse the prescribed medications. I am slowly coming away from the depression but I needed meningitis in December 2015 to shift my perspective! And now I'm on Retuximab Infusion, similar to chemo because I wasn't compliant with other meds. But Live, Hope with lupus is my new Moto! Thanks for being here.x

@HealWithSamantha 5 жыл бұрын

Thank you for being here as well! It is a process. Something I wish I would have mentioned was grief, we lose our old selves in the process.

@Mumunga123 5 жыл бұрын

Yeah I recently got diagnosed in April 2018 at 18 years old and I’m still trying to adjust my whole life while simultaneously going to university and building a career. It’s difficult because of all the tests and things I have to learn but hopefully it’ll slowly get easier

@arvinderkaursahota6289 5 жыл бұрын

I have accepted the fact that I have Lupus, but I do go out as well, and an other thing is you should always stay positive, that's what I believe in. If you are positive, you can fight any disease. That's what I believe it.

@diannewilliams1953 5 жыл бұрын

There's always something in the minds eye that challenges a direct insult such as lupus...sjogrens..schleroderma..but u DEAR CHILDREN ... put on the WHOLE armor of GOD to live yet another second..minute..hour. ..day by day...to inform others who do suffer the extremities of any autoimunities.. I am now 71 yrs...and sending good vibrations out to all of you young brave souls.

@TheOfficialBiancaMedia 5 жыл бұрын

Yay you reached 10k!!!! Congrats!!! The first year is always tough.

@mentalhealth9175 5 жыл бұрын

Fair play to you. A diagnosis is really want most want.... The unknown is scary.... And guaranteed, talking about your problems helps a million.... Love your video x

@michaelinekelley-boyet1713 5 жыл бұрын

Never Surrender! 🙋❤️

@Blahlalsaas 3 жыл бұрын

I got diagnosed on Friday. Thank you for making these videos

@zZjak793Zz1 5 жыл бұрын

I totally agree with you! It takes time, and the first year is the hardest with adjusting and accepting. I would also add that your perspective and tenacity plays a big role. You're going to grow so much as a person through this experience and your empathy will increase so much. But taking it day by day and not judging yourself for not being as physically capable as you used to be is huge. If you have access to good health care and have a support system, this can even be a blessing. At least that is my experience with Dermatomyositis. Stay strong! But also be okay with your struggles.

@HealWithSamantha 5 жыл бұрын

Great advice! The not judging yourself aspect is something I am still trying to work on to this day. It's a day to day struggle but in the end it has made all of us stronger.

@hindyehia196 5 жыл бұрын

When I was diagnosed I was shivering all way back home and all night knowing that next day I’ll be keept in a hospital which was my 1st medical experience. Physiologically I felt So Weak. But then it changed my whole life style as I started to get conscious how healthy my food should, I lost all extra fats and lots of more stuff I’m learning

@magicalpatterns 5 жыл бұрын

Is a grieving process. 🙏🏼🌷

@queenofscrolls7585 5 жыл бұрын

That's exactly what I feel.. Grieving for the person I was, the person I could have been.

@MarieObscured 5 жыл бұрын

I was diagnosed this past July. It has been hard the past few months. Just also turned 21...it was hard to celebrate during such a difficult time. I had to drop all my classes and probably won't be able to return to college until next fall. But I'm learning how my lupus is different from my fibro, and each day acceptance gets a little bit easier. I'll be starting Benlysta after the new year so here's to hoping things will improve! Thank you from the bottom of my heart for creating such meaningful content, you've helped me and countless others! 💜

@HealWithSamantha 5 жыл бұрын

I hope the Benlysta helps! It helped me out when I was on it.

@TheAnnamarie49 5 жыл бұрын

Research a lot so you know your options, and watch people as this great lady be kind to yourself and learn to change your life

@HealWithSamantha 5 жыл бұрын

Thank you Marie.

@joecarr7939 3 жыл бұрын

At first, my old pcp said it was a bacterial infection from the gym... hmmm yeah riiiight. Went to a new pcp and they said I may have Urticaria. When I started to tell them more about how I was feeling, due to the diary that my doc said to start... Thats when I found out I had Lupus, after a biopsy and loads of blood work and testing.

@MsXtraordinary 5 жыл бұрын

It’s been about 4 years since my diagnosis and I still don’t fully accept. I haven’t shared with many people around me because I don’t really accept it.

@cward970 5 жыл бұрын

hey little sis you are doing great it is bad to get bad news but it is not your fault for u or me or who ever what we can do is to help others so keep on love u all my name MICHAEL i do know pain do not let it take your soul GOD BLESS

@meghankelie2107 5 жыл бұрын

I was diagnosed in April.... it’s been tough accepting it. I’m slowly getting used to how to prevent flares and know my body.

@khuselwam 5 жыл бұрын

The first year is still tough on me...i have depression its killing me most days I'm crying but thank you for being open about it when I can connect watching and listening to you thank you it helps alot ALOT

@HealWithSamantha 5 жыл бұрын

I am so glad it helps. It's not an easy life to live.

@khuselwam 5 жыл бұрын

It is not for the fade hearted

@jessicads10 5 жыл бұрын

I’m 3 months in ... still hard. Some days I accept it. Other days I don’t. It has been weighing on my mental health mostly.

@reneerunyan3583 5 жыл бұрын

I accepted it many years ago but don’t always like it.

@emilycappasola7068 5 жыл бұрын

💜🦋

@marcohaamans4707 5 жыл бұрын

💪

@melissavera6006 5 жыл бұрын

I was diagnosed March 2018. I have not accepted it yet. It sucks.

@HealWithSamantha 5 жыл бұрын

Indeed it does.

@evettecorrea441 5 жыл бұрын

You don't go Iive no more Samantha? I still can't accept mine, I don't think I ever will.

@staci8596 5 жыл бұрын

Hi evette I totally get where your coming from... It infuriates me that I have a disease I can't do a thing about!!! The doctors don't understand the disease nor do they know how to make this disease better! SO we are just have take each day one day at a time... I hate it, I don't like iit, I don't like my Self most of tomorrow but I deal with life one day at a time.. keep pushing thru and one day we will make it or at least live like we do.. Lupus Sucks but we will survive it just because it messes with people and makes them wonder ..😀